-
1
-
-
85018193929
-
-
National Academies Press, Washington, DC Nass S, Levit L, Gostin L
-
Beyond the HIPAA Privacy Rule: Enhancing privacy, improving health through research National Academies Press, Washington, DC, Nass S, Levit L, Gostin L, 2009
-
(2009)
Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research
-
-
-
2
-
-
33751003263
-
Patients, privacy and trust: Patients' willingness to allow researchers to access their medical records
-
10.1016/j.socscimed.2006.08.045 17045717
-
Patients, privacy and trust: Patients' willingness to allow researchers to access their medical records. Damschroder L, Pritts J, Neblo M, Kalarickal R, Creswell J, Hayward R, Soc Sci Med 2007 64 223 235 10.1016/j.socscimed.2006.08. 045 17045717
-
(2007)
Soc Sci Med
, vol.64
, pp. 223-235
-
-
Damschroder, L.1
Pritts, J.2
Neblo, M.3
Kalarickal, R.4
Creswell, J.5
Hayward, R.6
-
4
-
-
0346896830
-
Attitudes and Behaviour: The impact of privacy and confidentiality concenrs on participation in the 2000 census
-
10.1086/377465
-
Attitudes and Behaviour: The impact of privacy and confidentiality concenrs on participation in the 2000 census. Singer E, van Hoewyk J, Neugebauer RJ, Public Opin Q 2003 67 368 384 10.1086/377465
-
(2003)
Public Opin Q
, vol.67
, pp. 368-384
-
-
Singer, E.1
Van Hoewyk, J.2
Neugebauer, R.J.3
-
6
-
-
80052961373
-
Privacy Concerns and the Census Long Form: Some evidence from Census 2000
-
Washington, DC
-
Privacy Concerns and the Census Long Form: Some evidence from Census 2000. Martin E, Annual Meeting of the American Statistical Association, Washington, DC 2001
-
(2001)
Annual Meeting of the American Statistical Association
-
-
Martin, E.1
-
7
-
-
33644642795
-
Privacy fear factor arises
-
17899645
-
Privacy fear factor arises. Robeznieks A, Mod Healthc 2005 35 46 6 17899645
-
(2005)
Mod Healthc
, vol.35
, Issue.46
, pp. 6
-
-
Robeznieks, A.1
-
8
-
-
33644869675
-
Technical difficulties: Recent health IT security breaches are unlikely to improve the public's perception about the safety of personal data
-
Technical difficulties: Recent health IT security breaches are unlikely to improve the public's perception about the safety of personal data. Becker C, Taylor M, Mod Healthc 2006 38 8 6 7
-
(2006)
Mod Healthc
, vol.38
, Issue.8
, pp. 6-7
-
-
Becker, C.1
Taylor, M.2
-
11
-
-
18044403083
-
Publishing raw data and real time statistical analysis on e-journals
-
Publishing raw data and real time statistical analysis on e-journals. Hutchon D, Br Med J 2001 322 3 530
-
(2001)
Br Med J
, vol.322
, Issue.3
, pp. 530
-
-
Hutchon, D.1
-
12
-
-
33644513386
-
Are journals doing enough to prevent fraudulent publication?
-
Are journals doing enough to prevent fraudulent publication? Can Med Assoc J 2006 174 4 431
-
(2006)
Can Med Assoc J
, vol.174
, Issue.4
, pp. 431
-
-
-
13
-
-
31444436810
-
Microdata access and labor market research: The US experience
-
Microdata access and labor market research: The US experience. Abraham K, Allegmeines Stat Archiv 2005 89 121 139
-
(2005)
Allegmeines Stat Archiv
, vol.89
, pp. 121-139
-
-
Abraham, K.1
-
14
-
-
33745699139
-
Whose data set is it anyway ? Sharing raw data from randomized trials
-
10.1186/1745-6215-7-15 16704733
-
Whose data set is it anyway ? Sharing raw data from randomized trials. Vickers A, Trials 2006 7 15 10.1186/1745-6215-7-15 16704733
-
(2006)
Trials
, vol.7
, pp. 15
-
-
Vickers, A.1
-
15
-
-
0035802663
-
Authors should make their data available
-
11713749
-
Authors should make their data available. Altman D, Cates C, BMJ 2001 323 1069 11713749
-
(2001)
BMJ
, vol.323
, pp. 1069
-
-
Altman, D.1
Cates, C.2
-
16
-
-
0029887683
-
Whose data are they anyway ?
-
10.1136/bmj.312.7041.1241 8634604
-
Whose data are they anyway ? Delamothe T, BMJ 1996 312 1241 1242 10.1136/bmj.312.7041.1241 8634604
-
(1996)
BMJ
, vol.312
, pp. 1241-1242
-
-
Delamothe, T.1
-
17
-
-
0028290830
-
Increasing the accessibility of data
-
10.1136/bmj.308.6943.1519 8019302
-
Increasing the accessibility of data. Smith GD, BMJ 1994 308 1519 1520 10.1136/bmj.308.6943.1519 8019302
-
(1994)
BMJ
, vol.308
, pp. 1519-1520
-
-
Smith, G.D.1
-
20
-
-
0022904632
-
Obtaining access to data from government-sponsored medical research
-
10.1056/NEJM198612253152608 3785337
-
Obtaining access to data from government-sponsored medical research. Yolles B, Connors J, Grufferman S, NEJM 1986 315 26 1669 1672 10.1056/NEJM198612253152608 3785337
-
(1986)
NEJM
, vol.315
, Issue.26
, pp. 1669-1672
-
-
Yolles, B.1
Connors, J.2
Grufferman, S.3
-
21
-
-
0025730138
-
Ethical issues in sharing epidemiologic data
-
1827649
-
Ethical issues in sharing epidemiologic data. Hogue C, J Clin Epidemiol 1991 44 Suppl. I 103S 107S 1827649
-
(1991)
J Clin Epidemiol
, vol.44
, Issue.SUPPL. I
-
-
Hogue, C.1
-
22
-
-
0023909175
-
Justifications for the sharing of social science data
-
Justifications for the sharing of social science data. Hedrick T, Law Hum Behav 1988 12 2 163 171
-
(1988)
Law Hum Behav
, vol.12
, Issue.2
, pp. 163-171
-
-
Hedrick, T.1
-
26
-
-
35648983023
-
Alternatives to project-specific consent for access to personal information for health research: What is the opinion of the Canadian public ?
-
10.1197/jamia.M2457 17712084
-
Alternatives to project-specific consent for access to personal information for health research: What is the opinion of the Canadian public ? Willison D, Schwartz L, Abelson J, Charles C, Swinton M, Northrup D, Thabane L, J Am Med Inform Assoc 2007 14 706 712 10.1197/jamia.M2457 17712084
-
(2007)
J Am Med Inform Assoc
, vol.14
, pp. 706-712
-
-
Willison, D.1
Schwartz, L.2
Abelson, J.3
Charles, C.4
Swinton, M.5
Northrup, D.6
Thabane, L.7
-
27
-
-
0842305807
-
Patients' consent preferences regarding the use of their health information for research purposes: A qualitative study
-
10.1258/135581904322716076 15006236
-
Patients' consent preferences regarding the use of their health information for research purposes: A qualitative study. Nair K, Willison D, Holbrook A, Keshavjee K, J Health Serv Res Policy 2004 9 1 22 27 10.1258/135581904322716076 15006236
-
(2004)
J Health Serv Res Policy
, vol.9
, Issue.1
, pp. 22-27
-
-
Nair, K.1
Willison, D.2
Holbrook, A.3
Keshavjee, K.4
-
28
-
-
0642307855
-
The use of medical records in research: What do patients want?
-
10.1111/j.1748-720X.2003.tb00105.x 14626550
-
The use of medical records in research: what do patients want? Kass N, Natowicz M, Hull S, et al. J Law Med Ethics 2003 31 429 433 10.1111/j.1748-720X. 2003.tb00105.x 14626550
-
(2003)
J Law Med Ethics
, vol.31
, pp. 429-433
-
-
Kass, N.1
Natowicz, M.2
Hull, S.3
-
29
-
-
33646582652
-
Patients' attitudes towards sharing their health information
-
10.1016/j.ijmedinf.2005.08.009
-
Patients' attitudes towards sharing their health information. Whiddett R, Hunter I, Engelbrecht J, Handy J, Int J Med Inf 2006 75 530 541 10.1016/j.ijmedinf.2005.08.009
-
(2006)
Int J Med Inf
, vol.75
, pp. 530-541
-
-
Whiddett, R.1
Hunter, I.2
Engelbrecht, J.3
Handy, J.4
-
31
-
-
0001883017
-
Disclosure control of microdata
-
10.1080/01621459.1990.10475304
-
Disclosure control of microdata. Bethlehem J, Keller W, Pannekoek J, J Am Stat Assoc 1990 85 409 38 45 10.1080/01621459.1990.10475304
-
(1990)
J Am Stat Assoc
, vol.85
, Issue.409
, pp. 38-45
-
-
Bethlehem, J.1
Keller, W.2
Pannekoek, J.3
-
33
-
-
60549085042
-
Evaluating Predictors of Geographic Area Population Size Cutoffs to Manage Re-identification Risk
-
[PMID: 19074299] 10.1197/jamia.M2902 19074299
-
Evaluating Predictors of Geographic Area Population Size Cutoffs to Manage Re-identification Risk. El Emam K, Brown A, Abdelmalik P, J Am Med Inform Assoc 2009 16 2 256 266 [PMID: 19074299] 10.1197/jamia.M2902 19074299
-
(2009)
J Am Med Inform Assoc
, vol.16
, Issue.2
, pp. 256-266
-
-
El Emam, K.1
Brown, A.2
Abdelmalik, P.3
-
35
-
-
77950527202
-
A method for managing re-identification risk from small geographic areas in Canada
-
10.1186/1472-6947-10-18 20361870
-
A method for managing re-identification risk from small geographic areas in Canada. El Emam K, Brown A, AbdelMalik P, Neisa A, Walker M, Bottomley J, Roffey T, BMC Med Inform Decis Mak 2010 10 18 10.1186/1472-6947-10-18 20361870
-
(2010)
BMC Med Inform Decis Mak
, vol.10
, pp. 18
-
-
El Emam, K.1
Brown, A.2
Abdelmalik, P.3
Neisa, A.4
Walker, M.5
Bottomley, J.6
Roffey, T.7
-
37
-
-
0038324972
-
-
Federal Register Archived at: [http://www.webcitation.org/5tqU5GyQX]
-
Standards for privacy of individually identifiable health information Federal Register, 2000 Available from: [http://aspe.hhs.gov/admnsimp/final/ PvcFR06.txt]. Archived at: [http://www.webcitation.org/5tqU5GyQX]
-
(2000)
Standards for Privacy of Individually Identifiable Health Information
-
-
-
38
-
-
0038324972
-
-
Federal Register Archived at: [http://www.webcitation.org/5tqULb7hT]
-
Standards for privacy of individually identifiable health information Federal Register, 2000 Available from: [http://aspe.hhs.gov/admnsimp/final/ PvcFR05.txt]. Archived at: [http://www.webcitation.org/5tqULb7hT]
-
(2000)
Standards for Privacy of Individually Identifiable Health Information
-
-
-
39
-
-
77953149045
-
Evaluating re-identification risks with respect to the HIPAA privacy rule
-
10.1136/jamia.2009.000026 20190059
-
Evaluating re-identification risks with respect to the HIPAA privacy rule. Benitez K, Malin B, J Am Med Inform Assoc 2010 17 2 169 177 10.1136/jamia.2009.000026 20190059
-
(2010)
J Am Med Inform Assoc
, vol.17
, Issue.2
, pp. 169-177
-
-
Benitez, K.1
Malin, B.2
-
43
-
-
0035649152
-
Proposals for the 2001 samples of anonymized records: An assessment of disclosure risk
-
10.1111/1467-985X.00212
-
Proposals for the 2001 samples of anonymized records: An assessment of disclosure risk. Dale A, Elliot M, J R Stat Soc 2001 164 3 427 447 10.1111/1467-985X.00212
-
(2001)
J R Stat Soc
, vol.164
, Issue.3
, pp. 427-447
-
-
Dale, A.1
Elliot, M.2
-
44
-
-
0025994049
-
The case for samples of anonymized records from the 1991 census
-
10.2307/2983043
-
The case for samples of anonymized records from the 1991 census. Marsh C, Skinner C, Arber S, Penhale B, Openshaw S, Hobcraft J, Lievesley D, Walford N, J R Stat Soc A Stat Soc 1991 154 2 305 340 10.2307/2983043
-
(1991)
J R Stat Soc A Stat Soc
, vol.154
, Issue.2
, pp. 305-340
-
-
Marsh, C.1
Skinner, C.2
Arber, S.3
Penhale, B.4
Openshaw, S.5
Hobcraft, J.6
Lievesley, D.7
Walford, N.8
-
45
-
-
21344489286
-
Safe data versus safe settings: Access to microdata from the British census
-
10.2307/1403544
-
Safe data versus safe settings: Access to microdata from the British census. Marsh C, Dale A, Skinner C, Int Stat Rev 1994 62 1 35 53 10.2307/1403544
-
(1994)
Int Stat Rev
, vol.62
, Issue.1
, pp. 35-53
-
-
Marsh, C.1
Dale, A.2
Skinner, C.3
-
46
-
-
80052038363
-
De-identifying a Public Use Microdata File from the Canadian National Discharge Abstract Database
-
10.1186/1472-6947-11-53 21861894
-
De-identifying a Public Use Microdata File from the Canadian National Discharge Abstract Database. El Emam K, Paton D, Dankar F, Koru G, BMC Med Inform Decis Mak 2011 11 53 10.1186/1472-6947-11-53 21861894
-
(2011)
BMC Med Inform Decis Mak
, vol.11
, pp. 53
-
-
El Emam, K.1
Paton, D.2
Dankar, F.3
Koru, G.4
-
47
-
-
49249103738
-
Protecting privacy using k-anonymity
-
10.1197/jamia.M2716 18579830
-
Protecting privacy using k-anonymity. El Emam K, Dankar F, J Am Med Inform Assoc 2008 15 627 637 10.1197/jamia.M2716 18579830
-
(2008)
J Am Med Inform Assoc
, vol.15
, pp. 627-637
-
-
El Emam, K.1
Dankar, F.2
-
48
-
-
0000072558
-
Finding a needle in a haystack or identifying anonymous census records
-
Finding a needle in a haystack or identifying anonymous census records. Dalenius T, J Official Stat 1986 2 3 329 336
-
(1986)
J Official Stat
, vol.2
, Issue.3
, pp. 329-336
-
-
Dalenius, T.1
-
49
-
-
33846936304
-
Evaluating common de-identification heuristics for personal health information
-
[PMID: 17213047] 10.2196/jmir.8.4.e28 17213047
-
Evaluating common de-identification heuristics for personal health information. El Emam K, Jabbouri S, Sams S, Drouet Y, Power M, J Med Internet Res 2006 8 4 28 [PMID: 17213047] 10.2196/jmir.8.4.e28 17213047
-
(2006)
J Med Internet Res
, vol.8
, Issue.4
, pp. 528
-
-
El Emam, K.1
Jabbouri, S.2
Sams, S.3
Drouet, Y.4
Power, M.5
-
50
-
-
77951623059
-
-
Privacy Commissioner of Canada, Ottawa
-
El Emam K, Jonker E, Sams S, Neri E, Neisa A, Gao T, Chowdhury S, Pan-Canadian De-Identification Guidelines for Personal Health Information Privacy Commissioner of Canada, Ottawa 2007
-
(2007)
Pan-Canadian De-Identification Guidelines for Personal Health Information
-
-
El Emam, K.1
Jonker, E.2
Sams, S.3
Neri, E.4
Neisa, A.5
Gao, T.6
Chowdhury, S.7
-
52
-
-
77955837214
-
-
International Organization for Standardization, Geneva
-
Health Informatics: Pseudonymization International Organization for Standardization, Geneva 2008
-
(2008)
Health Informatics: Pseudonymization
-
-
-
53
-
-
84873888487
-
Tragedy of the Commons
-
Tragedy of the Commons. Yakowitz J, Harvard J Law Technol 2011 25 1 2 66
-
(2011)
Harvard J Law Technol
, vol.25
, Issue.1
, pp. 2-66
-
-
Yakowitz, J.1
-
54
-
-
0036433649
-
A measure of disclosure risk for microdata
-
A measure of disclosure risk for microdata. Skinner G, Elliot M, J R Stat Soc Ser B 2002 64 Part 4 855 867
-
(2002)
J R Stat Soc ser B
, vol.64
, Issue.PART 4
, pp. 855-867
-
-
Skinner, G.1
Elliot, M.2
-
61
-
-
0002357984
-
Population genetics theory - The past and the future
-
New York, Springer Lessard Kluwer S
-
Population genetics theory-the past and the future. Ewens W, Mathematical and statistical development of evolutionary theory New York, Springer, Lessard Kluwer S, 1990 177 227
-
(1990)
Mathematical and Statistical Development of Evolutionary Theory
, pp. 177-227
-
-
Ewens, W.1
-
62
-
-
0001191605
-
Random discrete distribution invariant under size based permutation
-
10.2307/1428070
-
Random discrete distribution invariant under size based permutation. Pitman J, Adv Appl Probability 1996 28 525 539 10.2307/1428070
-
(1996)
Adv Appl Probability
, vol.28
, pp. 525-539
-
-
Pitman, J.1
-
63
-
-
0347516378
-
Applying Pitman's sampling formula to microdata disclosure risk assessment
-
Applying Pitman's sampling formula to microdata disclosure risk assessment. Hoshino N, J Official Stat 2001 17 4 499 520
-
(2001)
J Official Stat
, vol.17
, Issue.4
, pp. 499-520
-
-
Hoshino, N.1
-
64
-
-
0003157310
-
Estimation of identification disclosure risk in microdata
-
Estimation of identification disclosure risk in microdata. Chen G, Keller-McNulty S, J Official Stat 1998 14 1 79 95
-
(1998)
J Official Stat
, vol.14
, Issue.1
, pp. 79-95
-
-
Chen, G.1
Keller-Mcnulty, S.2
-
67
-
-
69549117388
-
Evaluating patient re-identification risk from hospital prescription records
-
Evaluating patient re-identification risk from hospital prescription records. El Emam K, Dankar F, Vaillancourt R, Roffey T, Lysyk M, Can J Hospital Pharm 2009 62 4 307 319
-
(2009)
Can J Hospital Pharm
, vol.62
, Issue.4
, pp. 307-319
-
-
El Emam, K.1
Dankar, F.2
Vaillancourt, R.3
Roffey, T.4
Lysyk, M.5
-
68
-
-
33847342133
-
Method to assess identifiability in electronic data files
-
17182982
-
Method to assess identifiability in electronic data files. Howe H, Lake A, Shen T, Am J Epidemiol 2007 165 5 597 601 17182982
-
(2007)
Am J Epidemiol
, vol.165
, Issue.5
, pp. 597-601
-
-
Howe, H.1
Lake, A.2
Shen, T.3
-
70
-
-
49249087521
-
Heuristics for de-identifying health data
-
Heuristics for de-identifying health data. El Emam K, IEEE Security and Privacy 2008 6 4 58 61
-
(2008)
IEEE Security and Privacy
, vol.6
, Issue.4
, pp. 58-61
-
-
El Emam, K.1
-
72
-
-
0003684449
-
-
Springer, New York
-
Hastie T, Tibshirani R, Friedman J, The Elements of Statistical Learning: Data Mining, Inference, and Prediction Springer, New York 2009
-
(2009)
The Elements of Statistical Learning: Data Mining, Inference, and Prediction
-
-
Hastie, T.1
Tibshirani, R.2
Friedman, J.3
-
73
-
-
0003802343
-
-
Wadsworth and Brooks/Cole, Belmont
-
Breiman L, Friedman J, Olshen R, Stone C, Classification and Regression Trees Wadsworth and Brooks/Cole, Belmont 1984
-
(1984)
Classification and Regression Trees
-
-
Breiman, L.1
Friedman, J.2
Olshen, R.3
Stone, C.4
-
74
-
-
77955110608
-
-
National Partnership for Women & Families, Washington DC
-
The state experience in health quality data collection National Partnership for Women & Families, Washington DC 2004 Available from http://healthcaredisclosure.org/links/files/DataCollection.pdf
-
(2004)
The State Experience in Health Quality Data Collection
-
-
-
75
-
-
79958039212
-
Physician privacy concerns when disclosing patient data to public health authorities for disease outbreak surveillance
-
10.1186/1471-2458-11-454 21658256
-
Physician privacy concerns when disclosing patient data to public health authorities for disease outbreak surveillance. El Emam K, Mercer J, Moreau K, Grava-Gubins I, Buckeridge D, Jonker E, BMC Public Health 2011 11 454 10.1186/1471-2458-11-454 21658256
-
(2011)
BMC Public Health
, vol.11
, pp. 454
-
-
El Emam, K.1
Mercer, J.2
Moreau, K.3
Grava-Gubins, I.4
Buckeridge, D.5
Jonker, E.6
-
76
-
-
77955808028
-
Alleged LTTE front had voter lists
-
Alleged LTTE front had voter lists. Bell S, National Post, 2006
-
(2006)
National Post
-
-
Bell, S.1
-
77
-
-
77955785477
-
Privacy chief probes how group got voter lists
-
Privacy chief probes how group got voter lists. Bell S, National Post, 2006
-
(2006)
National Post
-
-
Bell, S.1
-
81
-
-
69549114557
-
A Globally Optimal k-Anonymity Method for the De-identification of Health Data
-
10.1197/jamia.M3144
-
A Globally Optimal k-Anonymity Method for the De-identification of Health Data. El Emam K, Dankar F, Issa R, Jonker E, Amyot D, Cogo E, Corriveau J-P, Walker M, Chowdhury S, Vaillancourt R, Roffey T, Bottomley J, J Am Med Inf Assoc 2009 16 5 670 682 10.1197/jamia.M3144
-
(2009)
J Am Med Inf Assoc
, vol.16
, Issue.5
, pp. 670-682
-
-
El Emam, K.1
Dankar, F.2
Issa, R.3
Jonker, E.4
Amyot, D.5
Cogo, E.6
Corriveau, J.-P.7
Walker, M.8
Chowdhury, S.9
Vaillancourt, R.10
Roffey, T.11
Bottomley, J.12
-
82
-
-
77952923929
-
Risk-based de-identification of health data
-
Risk-based de-identification of health data. El Emam K, IEEE Security and Privacy 2010 8 3 64 67
-
(2010)
IEEE Security and Privacy
, vol.8
, Issue.3
, pp. 64-67
-
-
El Emam, K.1
-
92
-
-
0035517699
-
Protecting respondents' identities in microdata release
-
10.1109/69.971193
-
Protecting respondents' identities in microdata release. Samarati P, IEEE Transactions on Knowledge and Data Engineering 2001 13 6 1010 1027 10.1109/69.971193
-
(2001)
IEEE Transactions on Knowledge and Data Engineering
, vol.13
, Issue.6
, pp. 1010-1027
-
-
Samarati, P.1
-
94
-
-
79960907469
-
-
Springer, New York
-
Ciriani V, di Vimercati SSF DC, Samarati P, k-Anonymity, in Secure Data Management in Decentralized Systems Springer, New York 2007
-
(2007)
K-Anonymity, in Secure Data Management in Decentralized Systems
-
-
Ciriani, V.1
Di Vimercati, D.C.2
Samarati, P.3
-
95
-
-
0032265203
-
Estimating the number of classes in a finite population
-
10.1080/01621459.1998.10473807
-
Estimating the number of classes in a finite population. Haas P, Stokes L, J Am Stat Assoc 1998 93 444 1475 1487 10.1080/01621459.1998.10473807
-
(1998)
J Am Stat Assoc
, vol.93
, Issue.444
, pp. 1475-1487
-
-
Haas, P.1
Stokes, L.2
|