Quality of Life in Pediatric Dermatology

Dermatologic Clinics

Volumn 31, Issue 2, 2013, Pages 211-221

  Brown, Megan M ^a   Chamlin, Sarah L ^b   Smidt, Aimee C ^a  

^a UNIVERSITY OF NEW MEXICO SCHOOL OF MEDICINE   (United States)

^b NORTHWESTERN UNIVERSITY   (United States)

Author keywords

Patient focused care; Pediatric dermatology; Quality of life; Skin disease

Indexed keywords

RETINOID;

ACNE VULGARIS; ATOPIC DERMATITIS; BIBLIOTHERAPY; CAPILLARY HEMANGIOMA; CAREGIVER; CHILD ADVOCACY; CHILD HEALTH CARE; CHRONIC DISEASE; COMORBIDITY; DERMATOLOGY; DEVELOPMENTAL STAGE; DISEASE ASSOCIATION; EMOTIONALITY; EVIDENCE BASED MEDICINE; HEALTH CARE COST; HUMAN; HYDRATION; ICHTHYOSIS; INTELLECT; MEDICAL CARE; MENTAL DEVELOPMENT; PEDIATRICS; PHYSICAL DEVELOPMENT; PRIORITY JOURNAL; PSORIASIS; PSYCHOSOCIAL DISORDER; QUALITY OF LIFE; REVIEW; SKIN DISEASE; SOCIAL DISCRIMINATION; SOCIAL EVOLUTION; SOCIAL PSYCHOLOGY; SYMPTOM; VITILIGO;

EID: 84875785663     PISSN: 07338635     EISSN: 15580520     Source Type: Journal    
DOI: 10.1016/j.det.2012.12.010     Document Type: Review

References (101)

1. Bickers D.R., Lim H.W., Margolis D., et al. The burden of skin diseases: 2004 a joint project of the American Academy of Dermatology Association and the Society for Investigative Dermatology. J Am Acad Dermatol 2006, 55(3):490-500.
2. Chren M.M., Weinstock M.A. Conceptual issues in measuring the burden of skin diseases. J Investig Dermatol Symp Proc 2004, 9(2):97-100.
3. Holme S.A., Man I., Sharpe J.L., et al. The children's dermatology life quality index: validation of the cartoon version. Br J Dermatol 2003, 148(2):285-290.
4. Finlay A.Y. The burden of skin disease: quality of life, economic aspects and social issues. Clin Med 2009, 9(6):592-594.
5. Beattie P.E., Lewis-Jones M.S. A comparative study of impairment of quality of life in children with skin disease and children with other chronic childhood diseases. Br J Dermatol 2006, 155(1):145-151.
6. Wallander J.L., Varni J.W. Effects of pediatric chronic physical disorders on child and family adjustment. J Child Psychol Psychiatry 1998, 39(1):29-46.
7. Wallander J.L., Varni J.W., Babani L., et al. Children with chronic physical disorders: maternal reports of their psychological adjustment. J Pediatr Psychol 1988, 13(2):197-212.
8. Eiser C. Psychological effects of chronic disease. J Child Psychol Psychiatry 1990, 31(1):85-98.
9. Chamlin S.L., Cella D., Frieden I.J., et al. Development of the childhood atopic dermatitis impact scale: initial validation of a quality-of-life measure for young children with atopic dermatitis and their families. J Invest Dermatol 2005, 125(6):1106-1111.
10. Clarke S.A., Eiser C. The measurement of health-related quality of life (QOL) in paediatric clinical trials: a systematic review. Health Qual Life Outcomes 2004, 2:66.
11. Cremeens J., Eiser C., Blades M. Characteristics of health-related self-report measures for children aged three to eight years: a review of the literature. Qual Life Res 2006, 15(4):739-754.
12. Lewis-Jones M.S., Finlay A.Y. The children's dermatology life quality index (CDLQI): initial validation and practical use. Br J Dermatol 1995, 132(6):942-949.
13. Lewis-Jones M.S., Finlay A.Y., Dykes P.J. The infants' dermatitis quality of life index. Br J Dermatol 2001, 144(1):104-110.
14. Garralda M.E., Palanca M.I. Psychiatric adjustment in children with chronic physical illness. Br J Hosp Med 1994, 52(5):230-234.
15. Chren M.M. Doctor's orders: rethinking compliance in dermatology. Arch Dermatol 2002, 138(3):393-394.
16. Corkum P., Moldofsky H., Hogg-Johnson S., et al. Sleep problems in children with attention-deficit/hyperactivity disorder: impact of subtype, comorbidity, and stimulant medication. J Am Acad Child Adolesc Psychiatry 1999, 38(10):1285-1293.
17. Chamlin S.L., Mattson C.L., Frieden I.J., et al. The price of pruritus: sleep disturbance and cosleeping in atopic dermatitis. Arch Pediatr Adolesc Med 2005, 159(8):745-750.
18. Daud L.R., Garralda M.E., David T.J. Psychosocial adjustment in preschool children with atopic eczema. Arch Dis Child 1993, 69(6):670-676.
19. Golics C.J., Basra M.K., Finlay A.Y., et al. Adolescents with skin disease have specific quality of life issues. Dermatology 2009, 218(4):357-366.
20. Gupta M.A., Gupta A.K., Watteel G.N. Perceived deprivation of social touch in psoriasis is associated with greater psychologic morbidity: an index of the stigma experience in dermatologic disorders. Cutis 1998, 61(6):339-342.
21. Schwartz R., Sepulveda J.E., Quintana T. Possible role of psychological and environmental factors in the genesis of childhood vitiligo. Rev Med Chil 2009, 137(1):53-62.
22. Smidt A.C., Lai J.S., Cella D., et al. Development and validation of Skindex-teen, a quality-of-life instrument for adolescents with skin disease. Arch Dermatol 2010, 146(8):865-869.
23. Williams E.F., Hochman M., Rodgers B.J., et al. A psychological profile of children with hemangiomas and their families. Arch Facial Plast Surg 2003, 5(3):229-234.
24. Pittet I., Berchtold A., Akre C., et al. Are adolescents with chronic conditions particularly at risk for bullying?. Arch Dis Child 2010, 95(9):711-716.
25. Crossley J., Eiser C., Davies H.A. Children and their parents assessing the doctor-patient interaction: a rating system for doctors' communication skills. Med Educ 2005, 39(8):820-828.
26. Cremeens J., Eiser C., Blades M. Brief report: assessing the impact of rating scale type, types of items, and age on the measurement of school-age children's self-reported quality of life. J Pediatr Psychol 2007, 32(2):132-138.
27. Irwin R.S., Richardson N.D. Patient-focused care: using the right tools. Chest 2006, 130(Suppl 1):73S-82S.
28. Chren M.M. Interpretation of quality-of-life scores. J Invest Dermatol 2010, 130(5):1207-1209.
29. Salek M.S., Khan G.K., Finlay A.Y. Questionnaire techniques in assessing acne handicap: reliability and validity study. Qual Life Res 1996, 5(1):131-138.
30. Irwin R.S. Patient-focused care: the 2003 American College of Chest Physicians Convocation Speech. Chest 2004, 125(5):1910-1912.
31. Smithard A., Glazebrook C., Williams H.C. Acne prevalence, knowledge about acne and psychological morbidity in mid-adolescence: a community-based study. Br J Dermatol 2001, 145(2):274-279.
32. Krowchuk D.P., Stancin T., Keskinen R., et al. The psychosocial effects of acne on adolescents. Pediatr Dermatol 1991, 8(4):332-338.
33. Rapp D.A., Brenes G.A., Feldman S.R., et al. Anger and acne: implications for quality of life, patient satisfaction and clinical care. Br J Dermatol 2004, 151(1):183-189.
34. Krejci-Manwaring J., Kerchner K., Feldman S.R., et al. Social sensitivity and acne: the role of personality in negative social consequences and quality of life. Int J Psychiatry Med 2006, 36(1):121-130.
35. Magin P.J., Pond C.D., Smith W.T., et al. Acne's relationship with psychiatric and psychological morbidity: results of a school-based cohort study of adolescents. J Eur Acad Dermatol Venereol 2010, 24(1):58-64.
36. Kiec-Swierczynska M., Dudek B., Krecisz B., et al. Med Pr 2006, 57(6):551-555. [in Polish].
37. Brown B.C., McKenna S.P., Siddhi K., et al. The hidden cost of skin scars: quality of life after skin scarring. J Plast Reconstr Aesthet Surg 2008, 61(9):1049-1058.
38. Mallon E., Newton J.N., Klassen A., et al. The quality of life in acne: a comparison with general medical conditions using generic questionnaires. Br J Dermatol 1999, 140(4):672-676.
39. Tan J.K. Psychosocial impact of acne vulgaris: evaluating the evidence. Skin Therapy Lett 2004, 9(7):1-3. 9.
40. Walker N., Lewis-Jones M.S. Quality of life and acne in Scottish adolescent schoolchildren: use of the Children's Dermatology Life Quality Index (CDLQI) and the Cardiff Acne Disability Index (CADI). J Eur Acad Dermatol Venereol 2006, 20(1):45-50.
41. Motley R.J., Finlay A.Y. Practical use of a disability index in the routine management of acne. Clin Exp Dermatol 1992, 17(1):1-3.
42. Girman C.J., Hartmaier S., Thiboutot D., et al. Evaluating health-related quality of life in patients with facial acne: development of a self-administered questionnaire for clinical trials. Qual Life Res 1996, 5(5):481-490.
43. Gupta M.A., Johnson A.M., Gupta A.K. The development of an acne quality of life scale: reliability, validity, and relation to subjective acne severity in mild to moderate acne vulgaris. Acta Derm Venereol 1998, 78(6):451-456.
44. Gupta M.A., Gupta A.K. Antidepressant drugs in dermatology. Skin Therapy Lett 2001, 6(8):3-5.
45. Laughter D., Istvan J.A., Tofte S.J., et al. The prevalence of atopic dermatitis in Oregon schoolchildren. J Am Acad Dermatol 2000, 43(4):649-655.
46. Mancini A.J., Kaulback K., Chamlin S.L. The socioeconomic impact of atopic dermatitis in the United States: a systematic review. Pediatr Dermatol 2008, 25(1):1-6.
47. Chamlin S.L., Frieden I.J., Williams M.L., et al. Effects of atopic dermatitis on young American children and their families. Pediatrics 2004, 114(3):607-611.
48. Schmitt J., Chen C.M., Apfelbacher C., et al. Infant eczema, infant sleeping problems, and mental health at 10 years of age: the prospective birth cohort study LISAplus. Allergy 2011, 66(3):404-411.
49. Romanos M., Gerlach M., Warnke A., et al. Association of attention-deficit/hyperactivity disorder and atopic eczema modified by sleep disturbance in a large population-based sample. J Epidemiol Community Health 2010, 64(3):269-273.
50. Schmitt J., Romanos M. Lack of studies investigating the association of childhood eczema, sleeping problems, and attention-deficit/hyperactivity disorder. Pediatr Allergy Immunol 2009, 20(3):299-300. [author reply: 301].
51. Harari M., Dreiher J., Czarnowicki T., et al. SCORAD 75: a new metric for assessing treatment outcomes in atopic dermatitis. J Eur Acad Dermatol Venereol 2012, 26:1510-1515.
52. Oranje A.P. Practical issues on interpretation of scoring atopic dermatitis: SCORAD index, objective SCORAD, patient-oriented SCORAD and three-item severity score. Curr Probl Dermatol 2011, 41:149-155.
53. Schram M.E., Spuls P.I., Leeflang M.M., et al. EASI, (objective) SCORAD and POEM for atopic eczema: responsiveness and minimal clinically important difference. Allergy 2012, 67:99-106.
54. Magin P., Heading G., Adams J., et al. Sex and the skin: a qualitative study of patients with acne, psoriasis and atopic eczema. Psychol Health Med 2010, 15(4):454-462.
55. Charman C.R., Venn A.J., Williams H. Measuring atopic eczema severity visually: which variables are most important to patients?. Arch Dermatol 2005, 141(9):1146-1151. [discussion: 1151].
56. Charman C., Chambers C., Williams H. Measuring atopic dermatitis severity in randomized controlled clinical trials: what exactly are we measuring?. J Invest Dermatol 2003, 120(6):932-941.
57. Chang L.C., Haggstrom A.N., Drolet B.A., et al. Growth characteristics of infantile hemangiomas: implications for management. Pediatrics 2008, 122(2):360-367.
58. Hoornweg M.J., Grootenhuis M.A., van der Horst C.M. Health-related quality of life and impact of haemangiomas on children and their parents. J Plast Reconstr Aesthet Surg 2009, 62(10):1265-1271.
59. Hoornweg M.J., Smeulders M.J., van der Horst C.M. Prevalence and characteristics of haemangiomas in young children. Ned Tijdschr Geneeskd 2005, 149(44):2455-2458.
60. Dieterich-Miller C.A., Safford P.L. Psychosocial development of children with hemangiomas: home, school, health care collaboration. Child Health Care 1992, 21(2):84-89.
61. Weinstein J.M., Chamlin S.L. Quality of life in vascular anomalies. Lymphat Res Biol 2005, 3(4):256-259.
62. Kunkel E.J., Zager R., Hausman C., et al. An interdisciplinary group for parents of children with hemangiomas. Psychosomatics 1994, 36:524-532.
63. Blechinger T., Klosinski G. The meaning of bibliotherapy and expressive writing in child and adolescent psychiatry. Prax Kinderpsychol Kinderpsychiatr 2011, 60(2):109-124.
64. Thomas Editor S.P. Bibliotherapy: new evidence of effectiveness. Issues Ment Health Nurs 2011, 32(4):191.
65. Barrera M.E., Rykov M.H., Doyle S.L. The effects of interactive music therapy on hospitalized children with cancer: a pilot study. Psychooncology 2002, 11(5):379-388.
66. Cohen S.G. Hemangiomas in infancy and childhood: psychosocial issues require close attention. Adv Nurse Pract 2005, 13(11):41-44.
67. Shwayder T., Ott F. All about ichthyosis. Pediatr Clin North Am 1991, 38(4):835-857.
68. DiGiovanna J.J., Robinson-Bostom L. Ichthyosis: etiology, diagnosis, and management. Am J Clin Dermatol 2003, 4(2):81-95.
69. Ganemo A., Sjoden P.O., Johansson E., et al. Health-related quality of life among patients with ichthyosis. Eur J Dermatol 2004, 14(1):61-66.
70. Mazereeuw-Hautier J., Dreyfus I., Barbarot S., et al. Factors influencing quality of life of inherited ichthyosis: a qualitative study in adult using focus groups. Br J Dermatol 2012, 166:646-648.
71. Ganemo A., Lindholm C., Lindberg M., et al. Quality of life in adults with congenital ichthyosis. J Adv Nurs 2003, 44(4):412-419.
72. Lundberg L., Johannesson M., Silverdahl M., et al. Health-related quality of life in patients with psoriasis and atopic dermatitis measured with SF-36, DLQI and a subjective measure of disease activity. Acta Derm Venereol 2000, 80(6):430-434.
73. Styperek A.R., Rice Z.P., Kamalpour L., et al. Annual direct and indirect health costs of the congenital ichthyoses. Pediatr Dermatol 2010, 27(4):325-336.
74. Kamalpour L., Gammon B., Chen K.H., et al. Resource utilization and quality of life associated with congenital ichthyoses. Pediatr Dermatol 2011, 28(5):512-518.
75. Rogers M. Childhood psoriasis. Curr Opin Pediatr 2002, 14(4):404-409.
76. Nevitt G.J., Hutchinson P.E. Psoriasis in the community: prevalence, severity and patients' beliefs and attitudes towards the disease. Br J Dermatol 1996, 135(4):533-537.
77. Gupta M.A., Gupta A.K., Watteel G.N. Early onset (< 40 years age) psoriasis is comorbid with greater psychopathology than late onset psoriasis: a study of 137 patients. Acta Derm Venereol 1996, 76(6):464-466.
78. Lundberg L., Johannesson M., Silverdahl M., et al. Quality of life, health-state utilities and willingness to pay in patients with psoriasis and atopic eczema. Br J Dermatol 1999, 141(6):1067-1075.
79. Ganemo A., Wahlgren C.F., Svensson A. Quality of life and clinical features in Swedish children with psoriasis. Pediatr Dermatol 2011, 28(4):375-379.
80. Seidler E.M., Kimball A.B. Socioeconomic disability in psoriasis. Br J Dermatol 2009, 161(6):1410-1412.
81. Gupta M.A., Gupta A.K. Depression and suicidal ideation in dermatology patients with acne, alopecia areata, atopic dermatitis and psoriasis. Br J Dermatol 1998, 139(5):846-850.
82. Sampogna F., Chren M.M., Melchi C.F., et al. Age, gender, quality of life and psychological distress in patients hospitalized with psoriasis. Br J Dermatol 2006, 154(2):325-331.
83. Ferrandiz C., Pujol R.M., Garcia-Patos V., et al. Psoriasis of early and late onset: a clinical and epidemiologic study from Spain. J Am Acad Dermatol 2002, 46(6):867-873.
84. de Jager M.E., de Jong E.M., van de Kerkhof P.C., et al. An intrapatient comparison of quality of life in psoriasis in childhood and adulthood. J Eur Acad Dermatol Venereol 2011, 25(7):828-831.
85. Gupta M.A., Gupta A.K. Depression modulates pruritus perception. A study of pruritus in psoriasis, atopic dermatitis and chronic idiopathic urticaria. Ann N Y Acad Sci 1999, 885:394-395.
86. Nijsten T., Rolstad T., Feldman S.R., et al. Members of the national psoriasis foundation: more extensive disease and better informed about treatment options. Arch Dermatol 2005, 141(1):19-26.
87. Nijsten T., Margolis D.J., Feldman S.R., et al. Traditional systemic treatments have not fully met the needs of psoriasis patients: results from a national survey. J Am Acad Dermatol 2005, 52(3 Pt 1):434-444.
88. Abel E.A., Moore U.S., Glathe J.P. Psoriasis patient support group and self-care efficacy as an adjunct to day care center treatment. Int J Dermatol 1990, 29(9):640-643.
89. Alikhan A., Felsten L.M., Daly M., et al. Vitiligo: a comprehensive overview part I. Introduction, epidemiology, quality of life, diagnosis, differential diagnosis, associations, histopathology, etiology, and work-up. J Am Acad Dermatol 2011, 65(3):473-491.
90. Taylor A., Pawaskar M., Taylor S.L., et al. Prevalence of pigmentary disorders and their impact on quality of life: a prospective cohort study. J Cosmet Dermatol 2008, 7(3):164-168.
91. Linthorst Homan M.W., Spuls P.I., de Korte J., et al. The burden of vitiligo: patient characteristics associated with quality of life. J Am Acad Dermatol 2009, 61(3):411-420.
92. Linthorst Homan M.W., Sprangers M.A., de Korte J., et al. Characteristics of patients with universal vitiligo and health-related quality of life. Arch Dermatol 2008, 144(8):1062-1064.
93. Sampogna F., Raskovic D., Guerra L., et al. Identification of categories at risk for high quality of life impairment in patients with vitiligo. Br J Dermatol 2008, 159(2):351-359.
94. Kent G., al-Abadie M. Factors affecting responses on dermatology life quality index items among vitiligo sufferers. Clin Exp Dermatol 1996, 21(5):330-333.
95. Pope A.W., Ward J. Self-perceived facial appearance and psychosocial adjustment in preadolescents with craniofacial anomalies. Cleft Palate Craniofac J 1997, 34(5):396-401.
96. Radtke M.A., Schafer I., Gajur A., et al. Willingness-to-pay and quality of life in patients with vitiligo. Br J Dermatol 2009, 161(1):134-139.
97. Linthorst Homan M.W., de Korte J., Grootenhuis M.A., et al. Impact of childhood vitiligo on adult life. Br J Dermatol 2008, 159(4):915-920.
98. Sampogna F., Picardi A., Chren M.M., et al. Association between poorer quality of life and psychiatric morbidity in patients with different dermatological conditions. Psychosom Med 2004, 66(4):620-624.
99. Shenefelt P.D. Biofeedback, cognitive-behavioral methods, and hypnosis in dermatology: is it all in your mind?. Dermatol Ther 2003, 16(2):114-122.
100. Papadopoulos L., Bor R., Legg C. Coping with the disfiguring effects of vitiligo: a preliminary investigation into the effects of cognitive-behavioural therapy. Br J Med Psychol 1999, 72(Pt 3):385-396.
101. Thompson A.R., Kent G., Smith J.A. Living with vitiligo: dealing with difference. Br J Health Psychol 2002, 7(Pt 2):213-225.