Quality of life in adults with congenital ichthyosis

Journal of Advanced Nursing

Volumn 44, Issue 4, 2003, Pages 412-419

  Gånemo, Agneta ^a,d   Lindholm, Christina ^b   Lindberg, Magnus ^b   Sjödén, Per Olow ^c   Vahlquist, Anders ^a  

^a UPPSALA UNIVERSITY   (Sweden)

^b KAROLINSKA INSTITUTE   (Sweden)

^c UPPSALA UNIVERSITY   (Sweden)

^d UPPSALA UNIVERSITY HOSPITAL   (Sweden)

Author keywords

Epidermolytic hyperkeratosis; Ichthyosis; Nottingham Health Profile; Quality of life; Skin disease

Indexed keywords

ADULT; AGED; CLINICAL ARTICLE; CONGENITAL ICHTHYOSIFORM ERYTHRODERMA; CONTROLLED STUDY; COPING BEHAVIOR; DATA ANALYSIS; DISEASE SEVERITY; EXPERIENCE; FEMALE; HUMAN; HYPERKERATOSIS; INFORMATION PROCESSING; INTERVIEW; LAMELLAR ICHTHYOSIS; MALE; QUALITY OF LIFE; QUESTIONNAIRE; REVIEW; SCORING SYSTEM; SKIN DISEASE; SOCIAL BEHAVIOR;

ADAPTATION, PSYCHOLOGICAL; AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; FEMALE; HUMANS; ICHTHYOSIS; INTERPERSONAL RELATIONS; MALE; MIDDLE AGED; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 0344825773     PISSN: 03092402     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.0309-2402.2003.02820.x     Document Type: Review

References (21)

1. Borgquist L., Nilsson L.T., Lindelöw G., Wiklund I. & Thorngren K.-G. (1992) Perceived health in hip-fracture patients: a prospective follow-up of 100 patients. Age and Ageing 21, 109-116.
2. Charmaz K. (1983) Loss of self: a fundamental form of suffering in the chronically ill. Sociology of Health and Illness 5, 168-195.
3. Finlay A.Y. & Khan G.K. (1994) Dermatology Life Quality Index (DLQI): a simple practical measure for routine clinical use. Clinical and Experimental Dermatology 19, 210-216.
4. Gånemo A., Virtanen M. & Vahlquist A. (1999) Improved topical treatment of lamellar ichthyosis: a double blind study of four different cream formulations. British Journal of Dermatology 141, 1027-1032.
5. Holsti O. (1969) Content Analysis for the Social Sciences and Humanities. Addison-Wesley Publishing Company, MA.
6. Hunt S.M., McKenna S.P. & Williams J. (1981) Reliability of a population survey tool for measuring perceived health problems: a study of patients with osteoarthrosis. Journal of Epidemiology Community Health Dec. 35, 297-300.
7. Iliev D., Furrer L. & Elsner P. (1998) Zur Einschätzung der Lebensqualität von Patienten in der Dermatologie. Der Hautarzt 49, 453-456.
8. Lindholm C., Bjellerup M., Christensen O.B. & Zederfeldt B. (1993) Quality of life in chronic leg ulcer patients. Acta Dermato-Venereologica 73, 440-443.
9. Lodén M. (2000) Keratolytics. In Dermatopharmacology of Topical Preparations - A Product-Development Oriented Approach (Gabard B., Elsner P., Surber C. & Treffel, eds), Springer-Verlag, Berlin Heidelberg, pp. 255-280.
10. Lundberg L., Johannesson M., Silverdahl M., Hermansson C. & Lindberg M. (1999) Quality of life, health-state utilities and willingness to pay in patients with psoriasis and atopic eczema. British Journal of Dermatology 141, 1067-1075.
11. van Scott E.J. & Yu R.J. (1974) Control of keratinization with α-hydroxy acids and related compounds. I. Topical treatment of ichthyotic disorders. Archives of Dermatology 110, 586-590.
12. Swanbeck G. (1968) A new treatment of ichthyosis and other hyperkeratotic conditions. Acta Dermato-Venereologica 48, 123-127.
13. Traupe H. (1989) The Ichthyoses: A Guide to Clinical Diagnosis, Genetic Counseling, and Therapy. Springer-Verlag, Berlin.
14. Usher J.A. & Neisser U. (1993) Childhood amnesia and the beginnings of memory for four early life events. Journal of Experimental Psychology 122, 155-165.
15. Vahlquist A. (1994) Role of retinoids in normal and diseased skin. In Vitamin A in Health and Disease (Blomhoff R., ed.), Marcel Dekker, Inc., New York, pp. 365-424.
16. Vahlquist A. (2000) Ichthyosis - an inborn dryness of the skin. In Dry Skin and Moisturizers. Chemistry and function (Lodén M. & Mainbach H.I., eds) (Dermatology: Clinical and Basic Science Series), CRC Press, Boca Raton, pp. 121-133.
17. Weber R.P.H. (1990) Basic content analysis in research practice. In International Handbooks of Quantitative Applications in the Social Sciences (Lewis-Beck M.S., ed.), Part IV, Sage Publications, Inc., Thousand Oaks, CA, pp. 251-323.
18. Wellard S. (1998) Construction of chronic illness. International Journal of Nursing Studies 35, 49-55.
19. Wiklund I. (1990) The Nottingham Health Profile - a measure of health-related quality of life. Scandinavian Journal of Primary Health Care 1, 15-18.
20. Wiklund I. (1992) NHP Manual. Svensk version av Nottingham Health Profile - ett frågeformulär som mäter hälsorelaterad livskvalitet (Swedish version). OFTA Grafiska, Gothenburg.
21. Wiklund L, Romanus B. & Hunt S.M. (1988) Self-assessed disability in patients with arthrosis of the hip joint. Reliability of the Swedish version of the Nottingham Health Profile. International Disability Studies 10, 159-163.