Mother-clinician discussions in the neonatal intensive care unit: Agree to disagree

Journal of Perinatology

Volumn 33, Issue 4, 2013, Pages 278-281

  De Wit, S ^a   Donohue, P K ^a,b   Shepard, J ^a   Boss, R D ^a  

^a JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

Author keywords

communication; critical illness; understanding

Indexed keywords

CHILD CARE; COMPREHENSION; DISEASE SEVERITY; FEMALE; HEALTH CARE QUALITY; HEALTH SURVEY; HUMAN; HUMAN RELATION; INFANT; LENGTH OF STAY; MAJOR CLINICAL STUDY; MASS COMMUNICATION; MATERNAL ATTITUDE; MEDICAL DECISION MAKING; MEDICAL INFORMATION; NEWBORN INTENSIVE CARE; PERCEPTION; PHYSICIAN ATTITUDE; REVIEW; SATISFACTION; SEMI STRUCTURED INTERVIEW;

ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO HEALTH; CONSUMER SATISFACTION; CRITICAL ILLNESS; DISSENT AND DISPUTES; FEMALE; HEALTH LITERACY; HUMANS; INFANT, NEWBORN; INTENSIVE CARE UNITS, NEONATAL; INTENSIVE CARE, NEONATAL; MOTHERS; PATIENT ACUITY; QUALITATIVE RESEARCH; SEVERITY OF ILLNESS INDEX; SOCIAL PERCEPTION;

EID: 84875734118     PISSN: 07438346     EISSN: 14765543     Source Type: Journal    
DOI: 10.1038/jp.2012.103     Document Type: Review

References (19)

1. Harrison H. The principles for family-centered neonatal care. Pediatrics 1993; 92(5): 643-650.
2. Ward FR. Parents and professionals in the NICU: communication within the context of ethical decision making-An integrative review. Neonatal Netw 2005; 24(3): 25-33.
3. Meert KL, Eggly S, Pollack M, Anand KJ, Zimmerman J, Carcillo J et al. Parents' perspectives on physician-parent communication near the time of a child's death in the pediatric intensive care unit. Pediatr Crit Care Med 2008; 9(1): 2-7.
4. Kowalski WJ, Leef KH, Mackley A, Spear ML, Paul DA. Communicating with parents of premature infants: who is the informant? J Perinatol 2006; 26(1): 44-48.
5. Orzalesi M, Aite L. Communication with parents in neonatal intensive care. J Matern Fetal Neonatal Med 2011; 24(Suppl 1): 135-137.
6. Boss RD, Hutton N, Donohue PK, Arnold RM. Neonatologist training to guide family decision making for critically ill infants. Arch Pediatr Adolesc Med 2009; 163(9): 783-788.
7. Azoulay E, Chevret S, Leleu G, Pochard F, Barboteu M, Adrie C et al. Half the families of intensive care unit patients experience inadequate communication with physicians. Crit Care Med 2000; 28(8): 3044-3049.
8. Boss RD, Donohue PK, Arnold RM. Adolescent mothers in the NICU: how much do they understand? J Perinatol 2010; 30(4): 286-290.
9. SPSS for Windows. Rel. 19.0 ed. SPSS Inc: Chicago, 2011.
10. Ford D, Zapka JG, Gebregziabher M, Hennessy W, Yang C. Investigating critically ill patients' and families' perceptions of likelihood of survival. J Palliat Med 2009; 12(1): 45-52.
11. Charles C, Gafni A, Whelan T. Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med 1999; 49(5): 651-661.
12. Meyer EC, Ritholz MD, Burns JP, Truog RD. Improving the quality of end-of-life care in the pediatric intensive care unit: parents' priorities and recommendations. Pediatrics 2006; 117(3): 649-657.
13. White DB, Engelberg RA, Wenrich MD, Lo B, Curtis Jr. The language of prognostication in intensive care units. Med Decis Making 2010; 30(1): 76-83.
14. Meadow W, Pohlman A, Frain L, Ren Y, Kress JP, Teuteberg W et al. Power and limitations of daily prognostications of death in the medical intensive care unit. Crit Care Med 2011; 39(3): 474-479.
15. Meadow W, Lagatta J, Andrews B, Caldarelli L, Keiser A, Laporte J et al. Just, in time: ethical implications of serial predictions of death and morbidity for ventilated premature infants. Pediatrics 2008; 121(4): 732-740.
16. Tomlinson D, Bartels U, Gammon J, Hinds PS, Volpe J, Bouffet E et al. Chemotherapy versus supportive care alone in pediatric palliative care for cancer: comparing the preferences of parents and health care professionals. CMAJ 2011; 183(17): E1252-E1258.
17. Reder EA, Serwint Jr. Until the last breath: exploring the concept of hope for parents and health care professionals during a child's serious illness. Arch Pediatr Adolesc Med 2009; 163(7): 653-657.
18. Holditch-Davis D, Miles MS. Mothers' stories about their experiences in the neonatal intensive care unit. Neonatal Netw 2000; 19(3): 13-21.
19. Weiss S, Goldlust E, Vaucher YE. Improving parent satisfaction: an intervention to increase neonatal parent-provider communication. J Perinatol 2010; 30(6): 425-430