Investigating critically ill patients' and families' perceptions of likelihood of survival

Journal of Palliative Medicine

Volumn 12, Issue 1, 2009, Pages 45-52

  Ford, Dee ^a,b   Zapka, Jane G ^b   Gebregziabher, Mulugeta ^b   Hennessy, Winnie ^b   Yang, Chengwu ^b  

^a MEDICAL UNIVERSITY OF SOUTH CAROLINA   (United States)

^b MEDICAL UNIVERSITY OF SOUTH CAROLINA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AFRICAN AMERICAN; AGED; APACHE; ARTICLE; CONTROLLED STUDY; CRITICALLY ILL PATIENT; DISEASE SEVERITY; FAMILY; FEMALE; HEALTH STATUS; HEALTH SURVEY; HUMAN; INTENSIVE CARE UNIT; MALE; OBSERVATIONAL STUDY; OUTCOME ASSESSMENT; PATIENT DECISION MAKING; PERCEPTION; PROGNOSIS; PROSPECTIVE STUDY; RACE; RELIGION; SPIRITUAL HEALING; SURVIVAL; TERTIARY HEALTH CARE; UNIVERSITY HOSPITAL;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; APACHE; ATTITUDE TO HEALTH; CRITICAL ILLNESS; FAMILY; FEMALE; HUMANS; INTENSIVE CARE UNITS; LIFE EXPECTANCY; MALE; MIDDLE AGED; PROGNOSIS; SURVIVAL ANALYSIS; YOUNG ADULT;

EID: 58849133720     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/jpm.2008.0183     Document Type: Article

References (47)

1. Angus DC, Barnato AE, Linde-Zwirble WT, Weissfeld LA, Watson RS, Rickert T, Rubenfeld GD; Robert Wood Johnson Foundation ICU End-Of-Life Peer Group: Use of intensive care at the end of life in the United States: An epidemiologic study. Crit Care Med 2004;32:638-643.
2. Knaus W: APACHE 1978-2001: The development of a quality assurance system based on prognosis: Milestones and personal reflections. Arch Surg 2002;137:37-41.
3. Rogers J, Fuller HD: Use of daily Acute Physiology and Chronic Health Evaluation (APACHE) II scores to predict individual patient survival rate. Crit Care Med 1994;22:1402-1405.
4. Knaus WA, Draper EA, Wagner DP, Zimmerman JE: APACHE II: A severity of disease classification system. Crit Care Med 1985;13:818-29.
5. Kruse JA, Thill-Baharozian MC, Carlson RW: Comparison of clinical assessment with APACHE II for predicting mortality risk in patients admitted to a medical intensive care unit. JAMA 1988;260:1739-1742.
6. Brannen AL, 2nd, Godfrey LJ, Goetter WE: Prediction of outcome from critical illness. A comparison of clinical judgment with a prediction rule. Arch Intern Med 1989;149:1083-1086.
7. Rocker G, Cook D, Sjokvist P, Weaver B, Finfer S, McDonald E, Marshall J, Kirby A, Levy M, Dodek P, Heyland D, Guyatt G; Level of Care Study Investigators; Canadian Critical Care Trials Group: Clinician predictions of intensive care unit mortality. Crit Care Med. 2004;32:1149-1154.
8. Azoulay E, Chevret S, Leleu G, Pochard F, Barboteu M, Adrie C, Canoui P, Le Gall JR, Schlemmer B: Half the families of intensive care unit patients experience inadequate communication with physicians. Crit Care Med 2000;28:3044-3049.
9. Azoulay E, Pochard F: Communication with family members of patients dying in the intensive care unit. Curr Opin Crit Care 2003;9:545-550.
10. Azoulay E, Pochard F, Chevret S, Lemaire F, Mokhtari M, Le Gall JR, Dhainaut JF, Schlemmer B; French FAMIREA Group: Meeting the needs of intensive care unit patient families: a multicenter study. Am J Respir Crit Care Med 2001;163:135-139.
11. Lautrette A, Darmon M, Megarbane B, Joly LM, Chevret S, Adrie C, Barnoud D, Bleichner G, Bruel C, Choukroun G, Curtis JR, Fieux F, Galliot R, Garrouste-Orgeas M, Georges H, Goldgran-Toledano D, Jourdain M, Loubert G, Reignier J, Saidi F, Souweine B, Vincent F, Barnes NK, Pochard F, Schlemmer B, Azoulay E: A communication strategy and brochure for relatives of patients dying in the ICU. N Engl J Med 20071;356:469-478.
12. Malacrida R, Bettelini CM, Degrate A, Martinez M, Badia F, Piazza J, Vízzardi N, Wullschleger R, Rapin CH: Reasons for dissatisfaction: A survey of relatives of intensive care patients who died. Crit Care Med 1998;26:1187-1193.
13. Abbott KH, Sago JG, Breen CM, Abernethy AP, Tulsky JA: Families looking back: One year after discussion of withdrawal or withholding of life-sustaining support. Crit Care Med 2001;29:197-201.
14. Curtis JR, Engelberg RA, Wenrich MD, Shannon SE, Treece PD, Rubenfeld GD: Missed opportunities during family conferences about end-of-life care in the intensive care unit. Am J Respir Crit Care Med 2005;171:844-849.
15. Curtis JR, Patrick DL, Shannon SE, Treece PD, Engelberg RA, Rubenfeld GD: The family conference as a focus to improve communication about end-of-life care in the intensive care unit: Opportunities for improvement. Crit Care Med 2001;29(2 Suppl):N26-33.
16. Charles C, Gafni A, Whelan T: Decision-making in the physician-patient encounter: Revisiting the shared treatment decision-making model. Soc Sci Med 1999;49:651-661.
17. Thompson BT, Cox PN, Antonelli M, Carlet JM, Cassell J, Hill NS, Hinds CJ, Pimentel JM, Reinhart K, Thijs LG; American Thoracic Society; European Respiratory Society; European Society of Intensive Care Medicine; Society of Critical Care Medicine; Sociètède Rèanimation de Langue Française: Challenges in end-of-life care in the ICU: Statement of the 5th International Consensus Conference in Critical Care: Brussels, Belgium, April 2003: Executive summary. Crit Care Med 2004;32:1781-1784.
18. Plante TG, Vallaeys CL, Sherman AC, Wallston K: The development of a brief version of the Santa Clara Strength of Religious Faith Questionnaire. Pastoral Psychol 2002;50:359-368.
19. Knaus WA: APACHE 1978-2001: The development of a quality assurance system based on prognosis: Milestones and personal reflections. Arch Surg 2002;137:37-41.
20. Knaus WA, Harrell FE, Jr., Lynn J, Goldman L, Phillips RS, Connors AF, Jr., Dawson NV, Fulkerson WJ Jr, Califf RM, Desbiens N, Layde P, Oye RK, Bellamy PE, Hakim RB, Wagner DP: The SUPPORT prognostic model. Objective estimates of survival for seriously ill hospitalized adults. Study to understand prognoses and preferences for outcomes and risks of treatments. Ann Intern Med 1995;122:191-203.
21. Stewart AL: Measuring Functioning and Well-Being: The Medical Outcomes Study Approach. Durham, NC: Duke University Press, 1992.
22. Hosmer DW, Jr., Lemeshow S: Applied Logistic Regression, 2nd ed. New York: John Wiley & Sons, Inc., 2000.
23. SAS Institute Inc. SAS 9.1. Cary, NC: The SAS Inc., 2006.
24. Taylor S: Adjustment to threatening events: A theory of cognitive adaptation. Am Psychol 1983;38:1161-1173.
25. Canada AL, Parker PA, Moor JSd, Basen-Engquist K, Ramondetta LM, Cohen L: Active coping mediates the association between religion/spirituality and quality of life in ovarian cancer. Gynecol Oncol 2006;101:102-107.
26. Christakis NA, Iwashyna TJ: Attitude and self-reported practice regarding prognostication in a national sample of internists. Arch Intern Med 1998;158:2389-2395.
27. Curtis JR: Communicating about end-of-life care with patients and families in the intensive care unit. Crit Care Clin 2004;20:363-380, viii.
28. Reilly CE, Lambrecht ME: The cognitive model. Interventions for improved patient-provider communication. J Psychosoc Nurs Ment Health Serv 2001;39:32-39.
29. Hamric AB, Blackhall LJ: Nurse-physician perspectives on the care of dying patients in intensive care units: Collaboration, moral distress, and ethical climate. Crit Care Med 2007;35:422-429.
30. McKinley ED, Garrett JM, Evans AT, Danis M: Differences in end-of-life decision making among black and white ambulatory cancer patients. J Gen Intern Med 1996;11:651-656.
31. Blackhall LJ, Frank G, Murphy ST, Michel V, Palmer JM, Azen SP: Ethnicity and attitudes towards life sustaining technology. Soc Sci Med 1999;48:1779-1789.
32. Kagawa-Singer M, Blackhall LJ: Negotiating cross-cultural issues at the end of life: "You got to go where he lives." JAMA 2001;286:2993-3001.
33. Goldstein NE, Concato J, Bradley EH, O'Leary J R, Fried TR: Doctor-patient communication about prognosis: The influence of race and financial status. J Palliat Med 2005;8:998-1004.
34. White DB, Curtis JR, Wolf LE, Prendergast TJ, Taichman DB, Kuniyoshi G, Acerra F, Lo B, Luce JM: Life support for patients without a surrogate decision maker: who decides? Ann Intern Med 2007;147:34-40.
35. Silvestri GA, Knittig S, Nietert PJ, Zoller JS: The importance of faith on decisions regarding cancer care. J Clin Oncol 2003;21:1379-1382.
36. King D, Wells B: End-of-life issues and spiritual histories. South Med J 2003;96:391-393.
37. Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA: Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 2000;284:2476-2482.
38. Steinhauser KE, Clipp EC, McNeilly M, Christakis NA, McIntyre LM, Tulsky JA: In search of a good death: Observations of patients, families, and providers. Ann Intern Med 2000;132:825-832.
39. Brett AS, Jersild P: "Inappropriate" treatment near the end of kife: Conflict between religious convictions and clinical judgment. Arch Intern Med 2003;163:1645-1649.
40. SF-8 ™ Health Survey Scoring Demonstration. Lincoln: Quality Metric Incorporated, 1992.
41. Scales D, Tansey C, Mette A, Herridge M: Difference in reported pre-morbid health related quality of life between ARDS survivors and their substitute decision makers. Intens Care Med 2006;32:1826-1831.
42. Hofhuis J, Hautvast JL, Schrijvers AJ, Bakker J: Quality of life on admission to the intensive care unit: Can we query the relatives? Intens Care Med 2003;29:974-979.
43. Arnold RM, Kellum J: Moral justifications for surrogate decision making in the intensive care unit: Implications and limitations. Crit Care Med 2003;31(5 Suppl):S347-353.
44. Layde PM, Beam CA, Broste SK, Connors AF, Jr., Desbiens N, Lynn J, Phillips RS, Reding D, Teno J, Vidaillet H, et al: Surrogates' predictions of seriously ill patients' resuscitation preferences. Arch Fam Med 1995;4:518-523.
45. Heyland DK, Frank C, Groll D, Pichora D, Dodek P, Rocker G, Gafni A: Understanding cardiopulmonary resuscitation decision making: Perspectives of seriously ill hospitalized patients and family members. Chest 2006;130:419-428.
46. Shalowitz DI, Garrett-Mayer E, Wendler D: The accuracy of surrogate decision makers: A systematic review. Arch Intern Med 2006;166:493-497.
47. Lo B, Steinbrook R: Resuscitating advance directives. Arch Inten Med 2004;164:1501-1506.