Understanding the costs of care for cystic fibrosis: An analysis by age and health state

Value in Health

Volumn 16, Issue 2, 2013, Pages 345-355

  Van Gool, Kees ^a   Norman, Richard ^a   Delatycki, Martin B ^b   Hall, Jane ^a   Massie, John ^c  

^a UNIVERSITY OF TECHNOLOGY SYDNEY   (Australia)

^b MURDOCH CHILDREN'S RESEARCH INSTITUTE   (Australia)

^c ROYAL CHILDREN'S HOSPITAL   (Australia)

Author keywords

Australia; cost of illness; cystic fibrosis; registry data

Indexed keywords

ARTICLE; CYSTIC FIBROSIS; DIAGNOSTIC TEST; DISEASE COURSE; DISEASE SEVERITY; HEALTH CARE COST; HEALTH STATUS; HOSPITAL PATIENT; HUMAN; LONGITUDINAL STUDY; LUNG FUNCTION; MEDICAL SERVICE; ORGAN TRANSPLANTATION; PRIORITY JOURNAL;

ADOLESCENT; ADULT; AUSTRALIA; CHILD; CHILD, PRESCHOOL; COST OF ILLNESS; CYSTIC FIBROSIS; DISEASE PROGRESSION; FEMALE; HEALTH CARE COSTS; HEART TRANSPLANTATION; HOSPITALIZATION; HUMANS; INFANT; INFANT, NEWBORN; LIFE EXPECTANCY; LUNG TRANSPLANTATION; MALE; MARKOV CHAINS; MIDDLE AGED; REGISTRIES; SEVERITY OF ILLNESS INDEX; YOUNG ADULT;

EID: 84875451063     PISSN: 10983015     EISSN: 15244733     Source Type: Journal    
DOI: 10.1016/j.jval.2012.12.003     Document Type: Article

References (34)

1. M. Welsh, B. Ramsey, and F. Accurso Cystic fibrosis C. Scriver, A. Beaudet, W. Sly, D. Valle, The Metabolic and Molecular Bases of Inherited Disease 2001 McGraw-Hill New York chapter 201
2. J.D. Christie, L.B. Edwards, and P. Aurora The Registry of the International Society for Heart and Lung Transplantation: Twenty-sixth Official Adult Lung and Heart-Lung Transplantation Report-2009 J Heart Lung Transplant 28 2009 1031 1049
3. P. Aurora, L.B. Edwards, and J.D. Christie Registry of the International Society for Heart and Lung Transplantation: Twelfth Official Pediatric Lung and Heart/Lung Transplantation Report-2009 J Heart Lung Transplant 28 2009 1023 1030
4. C. Krauth, N. Jalilvand, and T. Welte Cystic fibrosis: cost of illness and considerations for the economic evaluation of potential therapies Pharmacoeconomics 21 2003 1001
5. M. Robson, J. Abbott, and K. Webb A cost description of an adult cystic fibrosis unit and cost analyses of different categories of patients Thorax 47 1992 684 689
6. M.F. Wildhagen, J.B. Verheij, and J.G. Verzijl Cost of care of patients with cystic fibrosis in the Netherlands in 1990-1 Thorax 51 1996 298 301
7. H.T. Ireys, G.F. Anderson, and T.J. Shaffer Expenditures for care of children with chronic illnesses enrolled in the Washington State Medicaid program, fiscal year 1993 Pediatrics 100 1997 197 204
8. U. Baumann, C. Stocklossa, and W. Greiner Cost of care and clinical condition in paediatric cystic fibrosis patients J Cys Fibros 2 2003 84 90
9. J.A. Johnson, M.A. Connolly, and P. Jacobs Cost of care for individuals with cystic fibrosis: a regression approach to determining the impact of recombinant human dnase Pharmacotherapy 19 1999 1159 1166
10. T. Lieu, G. Ray, and G. Farmer The cost of medical care for patients with cystic fibrosis in a health maintenance organization Pediatrics 103 1999 e72
11. M. Heimeshoff, H. Hollmeyer, and J. Schreyogg Cost of illness of cystic fibrosis in Germany: results from a large cystic fibrosis centre Pharmacoeconomics 30 2012 763 777
12. V. Horvais, S. Touzet, and S. Francois Cost of home and hospital care for patients with cystic fibrosis followed up in two reference medical centers in France Int J Technol Assess Health Care 22 2006 525 531
13. D. Eidt-Koch, T.O. Wagner, and T. Mittendorf Outpatient medication costs of patients with cystic fibrosis in Germany Appl Health Econ Health Policy 8 2010 111 118
14. E.M. DeWitt, C.A. Grussemeyer, and JlY Friedman Resource use, costs, and utility estimates for patients with cystic fibrosis with mild impairment in lung function: analysis of data collected alongside a 48-week multicenter clinical trial Value Health 15 2012 277 283
15. Cystic Fibrosis Australia. Australian Cystic Fibrosis Data Registry Information Management Policy and Practices. Sydney: Cystic Fibrosis Australia, 2005.
16. Cystic Fibrosis Australia. Cystic Fibrosis in Australia 2007: 10th Annual Report from the Australian Cystic Fibrosis Data Registry. Sydney: Cystic Fibrosis Australia, 2009.
17. NIH Consensus Development Panel on Genetic Testing for Cystic Fibrosis. Genetic testing for cystic fibrosis [National Institutes of Health Consensus Development Conference on Genetic Testing for Cystic Fibrosis]. Arch Intern Med 1999;159:1529-39.
18. Anyanwu AC, McGuire A, Rogers CA, et al. An economic evaluation of lung transplantation. J Thorac Cardiovasc Surg 2002;123:411-418; discussion 18-20.
19. J.J. Barendregt The half-cycle correction: banish rather than explain it Med Decis Making 29 2009 500 502
20. DOHA. Manual of Resource Items and Their Associated Costs for Use in Submissions to the Pharmaceutical Benefits Advisory Committee Involving Economic Evaluation. Canberra: Australian Department of Health and Ageing, 2002.
21. DOHA. National Hospital Cost Data Collection Cost Report. Canberra: Australian Department of Health and Ageing, 2009.
22. DOHA. Pharmaceutical Benefits Schedule. Canberra: Australian Department of Health and Ageing, 2009.
23. DOHA. Medicare Benefits Schedule: Operating from 1 November 2009. Canberra: Australian Department of Health and Ageing, 2009.
24. J.G. Serginson, I.A. Yang, and J.G. Armstrong Variability in the rate of prescription and cost of domiciliary oxygen therapy in Australia Med J Aust 191 2009 549 553
25. J.M. Wolter, R.A. Cagney, and J.G. McCormack A randomised trial of home vs hospital intravenous antibiotic therapy in adults with infectious diseases J Infect 48 2004 263 268
26. Cystic Fibrosis NSW. Online store. 2010;2010.
27. Government of Western Australia. Price Schedule - WA Government. Perth: Department of Treasury and Finance, 2007.
28. PBAC. Guidelines for Preparing Submissions to the Pharmaceutical Benefits Advisory Committee. Canberra: Department of Health and Ageing, 2008.
29. ABS. 6401.0 - Consumer Price Index, Australia. Canberra: Australian Bureau of Statistics, 2010.
30. T. Stewart Clinical Care Enhancements for the Australian Cystic Fibrosis Data Registry 2009 Cystic Fibrosis Australia Sydney
31. Cystic Fibrosis Foundation. Patient Registry Annual Data Report 2009. Bethesda, MD: Cystic Fibrosis Foundation, 2011.
32. J.A. Johnson, M.A. Connolly, and P. Jacobs Cost of Care for Individuals with Cystic Fibrosis in Alberta: A Regression Approach to Determining Important Cost Drivers 1996 Institute of Health Economics Edmonton
33. P.B. Davis Therapy for cystic fibrosis: the end of the beginning? N Engl J Med 365 2011 1734 1735
34. B.W. Ramsey, J. Davies, and N.G. McElvaney A CFTR potentiator in patients with cystic fibrosis and the g551d mutation N Engl J Med 365 2011 1663 1672