Examining the Family-Level and Economic Impact of Complex Child Disabilities as a Function of Child Hyperactivity and Service Integration

Journal of Developmental and Physical Disabilities

Volumn 25, Issue 2, 2013, Pages 181-201

  Browne, Dillon T ^a   Rokeach, Alan ^a   Wiener, Judy ^a   Hoch, Jeffrey S ^a   Meunier, Jean Christophe ^a   Thurston, Sandy ^a  

^a NONE

Author keywords

Developmental disorder; Disability; Expenditures; Family functioning; Hyperactivity; Inattention; Integration; Longitudinal; Service utilization

Indexed keywords

EID: 84874959232     PISSN: 1056263X     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10882-012-9295-z     Document Type: Article

References (52)

1. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders, 4th edition-text revision(DSM-IV-TR). Washington, DC: American Psychiatric Press.
2. Baker, B. L., Blacher, J., Crnic, K. A., & Edelbrock, C. (2002). Behavior problems and parenting stress in families of three-year-old children with and without developmental delays. American Journal of Mental Retardation, 107(6), 433-444.
3. Barkley, R. A. (2001). Accidents and attention-deficit/hyperactive disorder. TEN, 3, 64-68.
4. Barkley, R. A. (2002). International consensus statement on ADHD. Clinical Child and Family Psychology Review, 5, 89-111.
5. Beresford, B. (1995). Expert opinions: a survey of parents caring for a severely disabled child. Policy Press, Bristol.
6. Borthwick, S. A., Eyman, R. K., & White, J. F. (1987). Client characteristics and residential placement patterns. American Journal of Mental Deficiency, 92, 24-30.
7. Borthwick-Duffy, S. A. (1994). Epidemiology and prevalence of psychopathology in people with mental retardation. Journal of Consulting and Clinical psychology, 62, 17-27.
8. Borthwick-Duffy, S. A., & Eyman, R. K. (1990). Who are the dually diagnosed. American Journal of mental Retardation, 94, 586-595.
9. Boyle, M. H., Offord, D. R., Racine, Y., Fleming, J. E., Szatmari, P., & Sanford, M. (1993). Evaluation of the revised Ontario child health study scales. Journal of Child Psychology and Psychiatry, 34, 189-213.
10. Browne, G., Byrne, C., Roberts, J., Gafni, A., & Whittaker, S. (2001). When the bough breaks: provider-initiated comprehensive care is more effective and less expensive for sole-support parents on social assistance. Social Science & Medicine, 53, 1697-1710.
11. Browne, G., Gafni, A., & Roberts, J. (2001). Approach to the measurement of resource use and costs. Hamilton: System-Linked Research Unit, McMaster University.
12. Browne, G., Roberts, J., Gafni, A., Byrne, C., Kertyzia, J., & Loney, P. (2004). Conceptualizing and validating the human services integration measure. International Journal of Integrated Care, 4, article e03.
13. Browne, G., Kingston, D., Grdisa, V., & Markle-Reid, M. (2007). Conceptualization and measurement of integrated human service networks for evaluation. International Journal of Integrated Care, 7, article e51.
14. Browne, D. T., Odueyungbo, A. O., Thabane, L., Byrne, C., & Smart, L. A. (2010). Parenting-by-gender interactions in child psychopathology: attempting to address inconsistencies with a Canadian national database. Child and Adolescent Psychiatry and Mental Health, 4(1), 5 (13 pages).
15. Browne, D. T., Verticchio, D., Shlonsky, A., Thabane, L., Hoch, J., & Byrne, C. (2010). The family standpoint of investigation: examining the correlates and costs of parental stress in a sample of families involved with Ontario child welfare. Canadian Journal of Community Mental Health, 29(2), 131-154.
16. Browne, D. T., Meunier, J.-C., O'Connor, T. G., & Jenkins, J. M. (2012). The role of parental personality traits in differential parenting. Journal of Family Psychology. doi: 10. 1037/a0028515.
17. Byles, Byrne, C., Boyle, M. H., & Offord, D. R. (1988). Ontario child health study: reliability and validity of the general functioning subscale of the McMaster family assessment device. Family Process, 27(1), 97-104.
18. Cacioppo, J. T., Bernston, G. G., Sheridan, J. F., & McClintock, M. K. (2000). Multilevel integrative analysis of human behaviour: social neuroscience and the complementing nature of social and biological approaches. Psychological Bulletin, 126, 829-843.
19. Charach, A., Lin, E., & To, T. (2010). Evaluating the hyperactivity/inattention subscale of the National Longitudinal Survey of Children and Youth. Health Reports, Statistics Canada, 21(2), 1-9.
20. Cossette, L., & Duclos, E. (2002). A profile of disability in Canada, 2001. Statistics Canada Housing Family and Social Statistics Division. Ottawa: Minister of Industry.
21. Eyman, R. K., & Borthwick-Duffy, S. A. (1980). Patterns of care for mentally retarded persons. Mental Retardation, 18, 63-66.
22. Eyman, R. K., & Call, T. L. (1977). Maladaptive behavior and community placement of mentally retarded persons. American Journal of Mental Deficiency, 82, 137-144.
23. Gadow, K., & DeVincent, C. (2005). Clinical significance of tics and attention-deficit hyperactivity disorder in children with pervasive developmental disabilities. Journal of Child Neurology, 20(6), 481-488.
24. Guerriere, D. N., Ungar, W. J., Corey, M., Croxford, R., Tranmer, J. E., Tullis, E., et al. (2006). Evaluation of the ambulatory and home care record: agreement between self-reports and administrative data. International Journal of Technology Assessment in Health Care, 22(2), 203-210.
25. Guevara, J., Lozano, P., Wickizer, T., Mell, L., & Gephart, H. (2001). Utilization and cost of health care services for children with attention-deficit/hyperactivity disorder. Pediatrics, 108, 71-78.
26. Herring, S., Gray, K. M., Taffe, J., Tonge, B. J., Sweeney, D., & Einfeld, S. L. (2006). Behavioural and emotional problems in toddlers with a pervasive developmental disorder and developmental delay: associations with parental mental health and family functioning. Journal of Intellectual Disability Research, 50(12), 874-882.
27. Jenkins, J. M., Rasbash, J., & O'Connor, T. G. (2003). The role of shared family context in differential parenting. Developmental Psychology, 39(1), 99-113.
28. Johnston, C., & Mash, E. J. (2001). Families of children with attention-deficit/hyperactivity disorder: review and recommendations for future research. Clinical Child and Family Psychology Review, 4, 183-207.
29. Konrad, K., & Kickhoff, S. B. (2010). Is the ADHD brain wired differently? A review on structural and functional connectivity in attention deficit hyperactivity disorder. Human Brain Mapping, 31(6), 904-916.
30. Lansisalmi, H., Kivimaki, M., Aalto, P., & Ruoranen, R. (2006). Innovation in healthcare: a systematic review of recent research. Nursing Science Quarterly, 19(1), 66-72.
31. Levine, S., & White, P. E. (1969). Exchanges as a conceptual framework for the study of interorganizational relationships). In A. Etzioni (Ed.), A sociological reader on complex organizations (2nd ed., pp. 117-132). New York: Hold, Rinehart & Winston.
32. Lyons, J. S. (2004). Redressing the emperor: Improving the children's public mental health system. Westport, CT: Praeger.
33. Mannuzza, S., & Klein, R. G. (2000). Long-term prognosis in attention-deficit/hyperactivity disorder. Child Adolescent Psychiatry Clinics of North America, 9, 711-726.
34. Mash, E., & Wolfe, D. A. (2005). Abnormal child psychology (3rd Ed.) Chapter 5: Attention-deficit/hyperactivity disorder (ADHD). Canada: Wadsworth.
35. Matza, L. S., Paramore, C., & Prasad, M. (2005). A review of the economic burden of ADHD. Cost Effectiveness and Resource Allocation, 3, 1-9.
36. Meunier, J. C., Bisceglia, R., & Jenkins, J. M. (2011). Differential parenting and children's behavioral problems: curvilinear associations and mother-father combined effects. Developmental Psychology. doi: 10. 1037/a0026321.
37. Milward, H. B., & Provan, K. (2003). Managing the hollow state: collaboration and contracting. Public Management Review, 5(1), 1-18.
38. Owens, P. L., Hoagwood, K., Horwitz, S. M., Leaf, P. J., Poduska, J. M., Kellam, S. G., & Ialongo, N. S. (2002). Barriers to children's mental health services. Journal of the American Academy of Child & Adolescent Psychiatry, 41, 731-738.
39. Rojahn, J., Borthwick-Duffy, S. A., & Jacobson, J. W. (1993). The association between psychiatric diagnoses and severe behavior problems in mental retardation. Annals of Clinical Psychiatry, 5, 163-170.
40. Rosenbaum, P., King, S., Law, M., King, G., & Evans, J. (1998). Family-centered service: a conceptual framework and research review. Physical and Occupational Therapy in Pediatrics, 18, 1-20.
41. Sloper, P., & Turner, S. (1993). Risk and resistance factors in the adaptation of patients of children with severe physical disability. Journal of Child Psychology and Psychiatry, 34, 167-188.
42. Sloper, P., Knussen, C., Turner, S., & Cunningham, C. (1991). Factors related to stress and satisfaction with life in families of children with Down's syndrome. Journal of Child Psychology and Psychiatry, 32, 655-676.
43. Statistics Canada. (1994). National longitudinal survey of children and youth, cycle 1-User Guide. Ottawa: Statistics Canada.
44. Statistics Canada. (2008). National longitudinal survey of children and youth. Ottawa: Statistics Canada. http://www. statcan. gc. ca/.
45. Swensen, A. R., Birnbaum, H. G., Secnik, K., Marynchenko, M., Greenberg, P., & Claxton, A. (2003). Attention-deficit/hyperactivity disorder: increased costs for patients and their families. Journal of the American Academy of Child and Adolescent Psychiatry, 42, 1415-1423.
46. Thurston, S., Paul, L., Ye, C., Loney, P., Browne, D., Browne, G., Wong, M., Thabane, L., & Rosenbaum, P. (2010). System integration and its influence on the quality of life of children with complex needs. International Journal of Pediatrics, Article ID 570209, 12 pages.
47. Varni, J. W., & Limbers, C. A. (2009). The Pediatric Quality of Life Inventory: measuring pediatric health-related quality of life from the perspective of children and their parents. Pediatric Clinics of North America, 56, 843-863.
48. Widaman, K. F., Givvs, K. W., & Geary, D. C. (1987). Structure of adaptive behavior: in replication across fourteen samples of nonprofoundly mentally retarded people. American Journal of Mental Deficiency, 91, 348-360.
49. Widaman, K. F., Stacy, A. W., & Borthwick Duffy, S. A. (1993). Construct validity of dimensions of adaptive behavior: a multitrait-multimethod evaluation. American Journal on Mental Retardation, 98, 219-234.
50. Willms, J. D. (2002). Vulnerable children: Findings from Canada's National Longitudinal Survey of Children and Youth. Edmonton: University of Alberta Press.
51. Wymbs, B. T., Pelham, W. E., Molina, B. S. G., Gnagy, E. M., Wilson, T. K., & Greenhouse, J. B. (2008). Rate and predictors of divorce among parents of youths with ADHD. Journal of Consulting and Clinical Psychology, 76, 735-744.
52. Yoshida, Y., & Uchiyama, T. (2004). The clinical necessity for assessing ADHD symptoms in children with high-functioning Pervasive Developmental Disorder. European Child & Adolescent Psychiatry, 13(5), 307-314.