"It hurts to know...And it helps": Exploring how surrogates in the icu cope with prognostic information

Journal of Palliative Medicine

Volumn 16, Issue 3, 2013, Pages 243-249

  Schenker, Yael ^a   White, Douglas B ^a   Crowley Matoka, Megan ^b   Dohan, Daniel ^c   Tiver, Greer A ^a   Arnold, Robert M ^a  

^a UNIVERSITY OF PITTSBURGH SCHOOL OF MEDICINE   (United States)

^b NORTHWESTERN UNIVERSITY   (United States)

^c UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; BEHAVIOR; CLINICAL ARTICLE; COMPARATIVE STUDY; COPING BEHAVIOR; DRIVE; FAMILY DECISION MAKING; FEMALE; HEALTH BELIEF; HOPE; HUMAN; INFORMATION SEEKING; INTENSIVE CARE UNIT; INTERPERSONAL COMMUNICATION; LIFE SUSTAINING TREATMENT; MALE; MEDICAL INFORMATION; NEEDS ASSESSMENT; PHYSICIAN; PROGNOSIS; QUALITATIVE ANALYSIS; SEMI STRUCTURED INTERVIEW; WORK EXPERIENCE;

ADAPTATION, PSYCHOLOGICAL; DECISION MAKING; FAMILY; FEMALE; HUMANS; INTENSIVE CARE UNITS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; PROFESSIONAL-FAMILY RELATIONS; PROGNOSIS; THIRD-PARTY CONSENT; TRUTH DISCLOSURE;

EID: 84874483495     PISSN: 10966218     EISSN: 15577740     Source Type: Journal    
DOI: 10.1089/jpm.2012.0331     Document Type: Article

References (26)

1. Apatira L, Boyd EA, Malvar G, Evans LR, Luce JM, Lo B, et al.: Hope, truth, and preparing for death: Perspectives of surrogate decision makers. Ann InternMed 2008;149:861-868.
2. Evans LR, Boyd EA, Malvar G, Apatira L, Luce JM, Lo B, et al.: Surrogate decision-makers' perspectives on discussing prognosis in the face of uncertainty. Am J Respir Crit Care Med 2009;179:48-53.
3. Braun UK, Beyth RJ, Ford ME, McCullough LB: Voices of African American, Caucasian, and Hispanic surrogates on the burdens of end-of-life decision making. J Gen Intern Med 2008;23:267-274.
4. Wendler D, Rid A: Systematic review: The effect on surrogates of making treatment decisions for others. Ann Intern Med 2011;154:336-346.
5. Davidson JE, Powers K, Hedayat KM, Tieszen M, Kon AA, Shepard E, et al.: Clinical practice guidelines for support of the family in the patient-centered intensive care unit: American College of Critical Care Medicine Task Force 2004-2005. Crit Care Med 2007;35:605-622.
6. Truog RD, Campbell ML, Curtis JR, Haas CE, Luce JM, Rubenfeld GD, et al.: Recommendations for end-of-life care in the intensive care unit: A consensus statement by the American College [corrected] of Critical Care Medicine. Crit Care Med 2008;36:953-963.
7. Power TE, Swartzman LC, Robinson JW: Cognitive-emotional decision making (CEDM): A framework of patient medical decision making. Patient Educ Couns 2011;83:163-169.
8. Cherlin E, Fried T, Prigerson HG, Schulman-Green D, Johnson-Hurzeler R, Bradley EH: Communication between physicians and family caregivers about care at the end of life: When do discussions occur and what is said? J Palliat Med 2005;8:1176-1185.
9. Antonelli M, Azoulay E, Bonten M, Chastre J, Citerio G, Conti G, et al.: Year in review in Intensive Care Medicine 2009. Part III: Mechanical ventilation, acute lung injury and respiratory distress syndrome, pediatrics, ethics, and miscellanea. Intensive Care Med 2010;36:567-584.
10. Zier LS, Burack JH, Micco G, Chipman AK, Frank JA, Luce JM, et al.: Doubt and belief in physicians' ability to prognosticate during critical illness: The perspective of surrogate decision makers. Crit Care Med 2008;36: 2341-2347.
11. Zier LS, Sottile PD, Hong SY, Weissfield LA, White DB: Surrogate decision makers' interpretation of prognostic information: A mixed-methods study. Ann Intern Med 2012;156:360-366.
12. Boyd EA, Lo B, Evans LR, Malvar G, Apatira L, Luce JM, et al.: ''It's not just what the doctor tells me:'' Factors that influence surrogate decision-makers' perceptions of prognosis. Crit Care Med 2010;38:1270-1275.
13. Bylund CL, Peterson EB, Cameron KA: A practitioner's guide to interpersonal communication theory: An overview and exploration of selected theories. Patient Educ Couns 2012;87:261-267.
14. Sachs E, Kolva E, Pessin H, Rosenfeld B, Breitbart W: On Sinking and Swimming: The Dialectic of Hope, Hopelessness, and Acceptance in Terminal Cancer. Am J Hosp Palliat Care 2012 May 2 [Epub ahead of print].
15. Breitbart W, Rosenfeld B, Pessin H, Kaim M, Funesti-Esch J, Galietta M, et al.: Depression, hopelessness, and desire for hastened death in terminally ill patients with cancer. JAMA 2000;284:2907-2011.
16. Back AL, Arnold RM: Discussing prognosis: ''How much do you want to know?'' Talking to patients who do not want information or who are ambivalent. J Clin Oncol 2006;24:4214-4217.
17. Kutner JS, Steiner JF, Corbett KK, Jahnigen DW, Barton PL: Information needs in terminal illness. Soc Sci Med.1999;48: 1341-1352.
18. Fried TR, Bradley EH, O'Leary J: Prognosis communication in serious illness: Perceptions of older patients, caregivers, and clinicians. J Am Geriatr Soc 2003;51:1398-1403.
19. Schenker Y, Crowley-Matoka M, Dohan D, Tiver G, Arnold R, White D: I don't want to be the one saying 'we should just let him die': Intrapersonal tensions experienced by surrogate decision makers in the ICU. J Gen Intern Med 2012;27: 1657-1665.
20. Kvale S: Interviews: An Introduction to Qualitative Research Interviewing. Thousand Oaks, CA: Sage, 1996.
21. Charmaz K: Constructing Grounded Theory: A Practical Guide Through Qualitative Analysis. London: Sage Publications, 2006.
22. Grbich C: Qualitative Data Analysis. London: Sage Publications, 2007.
23. Kaufman SR: And A Time To Die: How American Hospitals Shape the End of Life. New York: Scribner, 2006.
24. Emanuel EJ, Emanuel LL: Four models of the physicianpatient relationship. JAMA 1992;267:2221-2226.
25. Curtis JR, Engelberg RA, Wenrich MD, Shannon SE, Treece PD, Rubenfeld GD: Missed opportunities during family conferences about end-of-life care in the intensive care unit. Am J Respir Crit Care Med 2005;171:844-849.
26. DeVita MA, Arnold RM, Barnard D: Teaching palliative care to critical care medicine trainees. Crit Care Med 2003;31:1257-1262.