Perspectives on death, dying and advance care planning from patients receiving haemodialysis

Journal of Renal Care

Volumn 39, Issue 1, 2013, Pages 5-11

  Collins, May ^a   Lehane, Elaine ^b  

^a Department of Medicine National University of Ireland Cork   (Ireland)

^b UNIVERSITY COLLEGE CORK   (Ireland)

Author keywords

Advance care planning; End of life care; Haemodialysis

Indexed keywords

AGED; ARTICLE; ATTITUDE TO DEATH; CHRONIC KIDNEY FAILURE; COMPARATIVE STUDY; CULTURAL FACTOR; DECISION MAKING; FEMALE; HUMAN; IRELAND; LONG TERM CARE; MALE; MIDDLE AGED; NURSING; PALLIATIVE THERAPY; PATIENT ATTITUDE; PATIENT CARE; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; RENAL REPLACEMENT THERAPY; VERY ELDERLY;

ADVANCE CARE PLANNING; AGED; AGED, 80 AND OVER; ATTITUDE TO DEATH; CROSS-CULTURAL COMPARISON; DECISION MAKING; FEMALE; HUMANS; IRELAND; KIDNEY FAILURE, CHRONIC; LIFE SUPPORT CARE; MALE; MIDDLE AGED; PALLIATIVE CARE; QUESTIONNAIRES; RENAL DIALYSIS; SICK ROLE;

EID: 84874300618     PISSN: 17556678     EISSN: 17556686     Source Type: Journal    
DOI: 10.1111/j.1755-6686.2013.00340.x     Document Type: Article

References (33)

1. Al-Arabi S. (2006). Quality of life: subjective descriptions of challenges to patients with end stage renal disease. Nephrology Nursing Journal 33(3), 285-292.
2. Asp C., Spring B.K. & Sokdowski M.P. (2005). Massachusetts Commission on End of Life Care. Available at http://www.assets.aarp.org/rgcenter/health/ma_eol.pdf (accessed 23 March 2011).
3. Burns N. & Grove S.K. (2005). The practice of nursing research conduct, critique and utilization, 3rd edn. Missouri: Elsevier Saunders.
4. Calvin A.O. (2004). Haemodialysis patients and end-of-life decisions: a theory of personal preservation. Journal of Advanced Nursing 46(5), 558-566.
5. Cohen L.M., Germain M.J. & Woods A. (2005). The family perspective of ESRD deaths. American Journal of Kidney Disease 45(1), 154-161.
6. Cohen L.M., Germain M.J. & Poppel D.M. (2000). Dying well after discontinuing the life-support treatment of dialysis. Archives of Internal Medicine 160(16), 2513-2518.
7. Davison S.N. (2010). End-of-life preferences and needs: perceptions of patients with chronic kidney disease. Clinical Journal of the American Society of Nephrology 5(2), 195-204.
8. Davison S.N. (2006). Facilitating advance care planning for patients with end-stage renal disease. Clinical Journal of the American Society of Nephrology 1(5), 1023-1028.
9. Davison S.N. (2001). Quality end-of-life care in dialysis units. Seminars in Dialysis 15(1), 41-44.
10. Department of Health (DoH). (2008). End of life strategy-promoting high quality care for all adults at the end of life. London: Department of Health.
11. Detering K.M., Hancock A.D. & Reade M.C. (2010). The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. Available at http://www.bmj.com/content/340/bmj.c1345.full (accessed 10 December 2010).
12. Fried T.R. & Bradley E.H. (2003). What matters to seriously ill older persons making end-of-life treatment decisions? A qualitative study. Journal of Palliative Medicine 6(2), 237-244.
13. Hall S., Petkova H., Tsouros A.D. et al. (eds). (2011). World Health Organisation: palliative care for older people: better practices. Available at www.euro.who.int/_data/assets/pdf_file/0017/143153/e95052.pdf (accessed 13 May 2011).
14. Heyland D.K., Dodek P. & Rocker G. (2006). What matters most in end-of-life care: perceptions of seriously ill patients and their family members. Canadian Medical Association Journal 174(5), 627-633.
15. Health Service Executive (HSE)/Irish Hospice Foundation (IHF). 2008. Palliative care for all; integrating palliative care into disease management framework. Dublin: HSE/IHF.
16. Irish Council for Bioethics. (2007). Is it time for advance healthcare directives? Available at http://www.bioethics.ie/index.php/advance-directives (accessed 21 January 2011).
17. Kataoka-Yahiro M.R., Conde F.A. & Wong R.S. (2010). Advance care planning among Asian Americans and Native Hawaiians receiving haemodialysis. International Journal of Palliative Nursing 16(1), 32-40.
18. Life's End Institute. (2000). Missoula Demonstration Project Community Survey, Missoula. Available at http://www.promotingexcellence.org/tools/pe1261.html (accessed 2 March 2011).
19. Mailloux L.U. (2010). Initiation, withdrawal, and withholding of dialysis: clinical. In Supportive care for the renal patient (eds Chambers E.J., Brown E.A., & Germain M.J.), 2nd edn. Oxford: Oxford University Press.
20. McCarthy J., Weafer J. & Loughrey M. (2010). Irish views on death and dying: a national survey. Journal of Medical Ethics 36(8), 454-458.
21. O'Shea E., Murphy K. & Larkin P. (2008). End-of-life care for older people in acute and long-stay settings in Ireland. Dublin: Hospice Friendly Hospitals Programme. National Council on Ageing and Older People.
22. Ostermann M.E. & Nelson S.R. (2003). Haemodialysis patients' views on their resuscitation status. Nephrology Dialysis and Transplantation 18(8), 1644-1647.
23. Parahoo K. (2006). Nursing research; principles, process and issues, 2nd edn. Hampshire: Palgrave Macmillan.
24. Polaschek N. (2003). The experience of living on dialysis: a literature review. Nephrology Nursing Journal 30(3), 303-313.
25. Polit D.F. & Beck C.T. (2004). Nursing research; principles and methods, 7th edn. Philadelphia: Lippincott Williams & Wilkins.
26. Polit D.F. & Beck C.T. (2010). Nursing research; appraising evidence for nursing practice, 7th edn. Philadelphia: Wolters Kluwer/Lippincott Williams & Wilkins.
27. Renal Physicians Association/American Society of Nephrology (RPA/ASN). (2000). Shared decision-making in the appropriate initiation of and withdrawal from dialysis. Available at http://www.promotingexcellence.org/esrd/monograph/pe3666.html (accessed 13 November 2010).
28. Simpson-Whitaker C., Tottem A.M. & Moffat-Miller C. (2006). Idaho State Wide End of Life Survey Report. Available at http://www.aging.boisestate.edu/pdf/idendoflifesurvey.pdf (accessed 23 February 2011).
29. Singer P.A., Martin D.K. & Kelner M. (1999). Quality end-of-life care. Journal of the American Medical Association 281(92), 163-168.
30. Singer P.A., Martin D.K. & Lavery J.V. (1998). Reconceptualizing advance care planning from the patient's perspective. Archives of Internal Medicine 158, 879-884.
31. Steinhauser K.E., Clipp E.C. & McNeilly M. (2000). In search of a good death: observations of patients, families, and providers. Annals of Internal Medicine 132(10), 825-832.
32. Straw G. & Cummins R. (2003). AARP North Carolina End of Life Care Survey. Available at http://www.assets.aarp.org/rgcenter/health/nc_eol.pdf (accessed 23 February 2011).
33. Vig E.K., Davenport N.A. & Pearlman R.A. (2002). Good deaths, bad deaths, and preferences for the end of life: a qualitative study of geriatric outpatients. Journal of the American Geriatrics Society 50(9), 1541-1548.