-
1
-
-
84859864850
-
The Patient-Centered Outcomes Research Institute (PCORI) national priorities for research and initial research agenda
-
10.1001/jama.2012.500, 22511682
-
Selby JV, Beal AC, Frank L. The Patient-Centered Outcomes Research Institute (PCORI) national priorities for research and initial research agenda. JAMA 2012, 307:1583-1584. 10.1001/jama.2012.500, 22511682.
-
(2012)
JAMA
, vol.307
, pp. 1583-1584
-
-
Selby, J.V.1
Beal, A.C.2
Frank, L.3
-
2
-
-
33845418975
-
Generic health-related quality-of-life assessment in children and adolescents: methodological considerations
-
10.2165/00019053-200624120-00005, 17129075
-
Ravens-Sieberer U, Erhart M, Wille N, Wetzel R, Nickel J, Bullinger M. Generic health-related quality-of-life assessment in children and adolescents: methodological considerations. PharmacoEconomics 2006, 24:1199-1220. 10.2165/00019053-200624120-00005, 17129075.
-
(2006)
PharmacoEconomics
, vol.24
, pp. 1199-1220
-
-
Ravens-Sieberer, U.1
Erhart, M.2
Wille, N.3
Wetzel, R.4
Nickel, J.5
Bullinger, M.6
-
3
-
-
0031877697
-
Canadian-French, German and UK versions of the Child Health Questionnaire: methodology and preliminary item scaling results
-
Landgraf JM, Maunsell E, Speechley KN, Bullinger M, Campbell S, Abetz L, Ware JE. Canadian-French, German and UK versions of the Child Health Questionnaire: methodology and preliminary item scaling results. Qual Life Res 1998, 7:433-445.
-
(1998)
Qual Life Res
, vol.7
, pp. 433-445
-
-
Landgraf, J.M.1
Maunsell, E.2
Speechley, K.N.3
Bullinger, M.4
Campbell, S.5
Abetz, L.6
Ware, J.E.7
-
4
-
-
20544478425
-
Preliminary psychometric evaluation of the Child Health Ratings Inventories (CHRIs) and Disease-Specific Impairment Inventory-HSCT (DSII-HSCT) in parents and children
-
10.1007/s11136-005-1004-2, 16110940
-
Parsons SK, Shih MC, Mayer DK, Barlow SE, Supran SE, Levy SL, Greenfield S, Kaplan SH. Preliminary psychometric evaluation of the Child Health Ratings Inventories (CHRIs) and Disease-Specific Impairment Inventory-HSCT (DSII-HSCT) in parents and children. Qual Life Res 2005, 14:1613-1625. 10.1007/s11136-005-1004-2, 16110940.
-
(2005)
Qual Life Res
, vol.14
, pp. 1613-1625
-
-
Parsons, S.K.1
Shih, M.C.2
Mayer, D.K.3
Barlow, S.E.4
Supran, S.E.5
Levy, S.L.6
Greenfield, S.7
Kaplan, S.H.8
-
5
-
-
33750939818
-
Maternal perspectives on children's health-related quality of life during the first year after pediatric hematopoietic stem cell transplant
-
Parsons SK, Shih MC, DuHamel KN, Ostroff J, Mayer DK, Austin J, Martini DR, Williams SE, Mee L, Sexson S. Maternal perspectives on children's health-related quality of life during the first year after pediatric hematopoietic stem cell transplant. J Pediatr Psychol 2006, 31:1100-1115.
-
(2006)
J Pediatr Psychol
, vol.31
, pp. 1100-1115
-
-
Parsons, S.K.1
Shih, M.C.2
DuHamel, K.N.3
Ostroff, J.4
Mayer, D.K.5
Austin, J.6
Martini, D.R.7
Williams, S.E.8
Mee, L.9
Sexson, S.10
-
6
-
-
0027475541
-
Adolescent health status measurement: development of the Child Health and Illness Profile
-
Starfield B, Bergner M, Ensminger M, Riley A, Ryan S, Green B, McGauhey P, Skinner A, Kim S. Adolescent health status measurement: development of the Child Health and Illness Profile. Pediatrics 1993, 91:430-435.
-
(1993)
Pediatrics
, vol.91
, pp. 430-435
-
-
Starfield, B.1
Bergner, M.2
Ensminger, M.3
Riley, A.4
Ryan, S.5
Green, B.6
McGauhey, P.7
Skinner, A.8
Kim, S.9
-
7
-
-
0033073557
-
The PedsQL: measurement model for the pediatric quality of life inventory
-
10.1097/00005650-199902000-00003, 10024117
-
Varni JW, Seid M, Rode CA. The PedsQL: measurement model for the pediatric quality of life inventory. Med Care 1999, 37:126-139. 10.1097/00005650-199902000-00003, 10024117.
-
(1999)
Med Care
, vol.37
, pp. 126-139
-
-
Varni, J.W.1
Seid, M.2
Rode, C.A.3
-
8
-
-
21244467182
-
KIDSCREEN-52 quality-of-life measure for children and adolescents
-
10.1586/14737167.5.3.353, 19807604
-
Ravens-Sieberer U, Gosch A, Rajmil L, Erhart M, Bruil J, Duer W, Auquier P, Power M, Abel T, Czemy L. KIDSCREEN-52 quality-of-life measure for children and adolescents. Expert Rev Pharmacoecon Outcomes Res 2005, 5:353-364. 10.1586/14737167.5.3.353, 19807604.
-
(2005)
Expert Rev Pharmacoecon Outcomes Res
, vol.5
, pp. 353-364
-
-
Ravens-Sieberer, U.1
Gosch, A.2
Rajmil, L.3
Erhart, M.4
Bruil, J.5
Duer, W.6
Auquier, P.7
Power, M.8
Abel, T.9
Czemy, L.10
-
9
-
-
84857215971
-
Development of six PROMIS pediatrics proxy-report item banks
-
10.1186/1477-7525-10-22, 3312870, 22357192
-
Irwin DE, Gross HE, Stucky BD, Thissen D, Dewitt EM, Lai JS, Amtmann D, Khastou L, Varni JW, DeWalt DA. Development of six PROMIS pediatrics proxy-report item banks. Health Qual Life Outcomes 2012, 10:22. 10.1186/1477-7525-10-22, 3312870, 22357192.
-
(2012)
Health Qual Life Outcomes
, vol.10
, pp. 22
-
-
Irwin, D.E.1
Gross, H.E.2
Stucky, B.D.3
Thissen, D.4
Dewitt, E.M.5
Lai, J.S.6
Amtmann, D.7
Khastou, L.8
Varni, J.W.9
DeWalt, D.A.10
-
10
-
-
0026877917
-
The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection
-
1593914
-
Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992, 30:473-483. 1593914.
-
(1992)
Med Care
, vol.30
, pp. 473-483
-
-
Ware, J.E.1
Sherbourne, C.D.2
-
11
-
-
69249213491
-
Development of physical and mental health summary scores from the patient-reported outcomes measurement information system (PROMIS) global items
-
10.1007/s11136-009-9496-9, 2724630, 19543809
-
Hays RD, Bjorner JB, Revicki DA, Spritzer KL, Cella D. Development of physical and mental health summary scores from the patient-reported outcomes measurement information system (PROMIS) global items. Qual Life Res 2009, 18:873-880. 10.1007/s11136-009-9496-9, 2724630, 19543809.
-
(2009)
Qual Life Res
, vol.18
, pp. 873-880
-
-
Hays, R.D.1
Bjorner, J.B.2
Revicki, D.A.3
Spritzer, K.L.4
Cella, D.5
-
12
-
-
0024240878
-
Regimen-related toxicity in patients undergoing bone marrow transplantation
-
Bearman SI, Appelbaum FR, Buckner CD, Petersen FB, Fisher LD, Clift RA, Thomas ED. Regimen-related toxicity in patients undergoing bone marrow transplantation. J Clin Oncol 1988, 6:1562-1568.
-
(1988)
J Clin Oncol
, vol.6
, pp. 1562-1568
-
-
Bearman, S.I.1
Appelbaum, F.R.2
Buckner, C.D.3
Petersen, F.B.4
Fisher, L.D.5
Clift, R.A.6
Thomas, E.D.7
-
13
-
-
33845945922
-
Coefficient alpha and the internal structure of tests
-
Cronbach LJ. Coefficient alpha and the internal structure of tests. Psychometrika 1951, 16:297-334.
-
(1951)
Psychometrika
, vol.16
, pp. 297-334
-
-
Cronbach, L.J.1
-
15
-
-
67649985273
-
Parental depression and family environment predict distress in children prior to stem-cell transplantation
-
2731658, 19322103
-
Jobe-Shields L, Alderfer M, Barrera M, Vannatta K, Currier J, Phipps S. Parental depression and family environment predict distress in children prior to stem-cell transplantation. J Dev Behav Pediatr 2009, 30:140-146. 2731658, 19322103.
-
(2009)
J Dev Behav Pediatr
, vol.30
, pp. 140-146
-
-
Jobe-Shields, L.1
Alderfer, M.2
Barrera, M.3
Vannatta, K.4
Currier, J.5
Phipps, S.6
-
16
-
-
0033837623
-
Quality of life and behavioral adjustment after pediatric bone marrow transplantation
-
10982290
-
Barrera M, Boyd-Pringle LA, Sumbler K, Saunders F. Quality of life and behavioral adjustment after pediatric bone marrow transplantation. Bone Marrow Transplant 2000, 26:427-435. 10982290.
-
(2000)
Bone Marrow Transplant
, vol.26
, pp. 427-435
-
-
Barrera, M.1
Boyd-Pringle, L.A.2
Sumbler, K.3
Saunders, F.4
-
17
-
-
84877599272
-
-
National Cancer Institute, September: Presentation at the Patient-Reported Outcomes Assessment in Cancer Trials, for the Journeys to Recovery Study
-
Parsons SK, Shih MC, Ratichek S, Recklitis CJ, Chang G, . for the Journeys to Recovery Study Establishing the Baseline in Longitudinal Evaluation of Health-Related Quality of Life (HRQL): The Pediatric Hematopoietic Stem Cell Transplantation (HSCT) Example 2006, 2006. National Cancer Institute, September: Presentation at the Patient-Reported Outcomes Assessment in Cancer Trials, for the Journeys to Recovery Study.
-
(2006)
Establishing the Baseline in Longitudinal Evaluation of Health-Related Quality of Life (HRQL): The Pediatric Hematopoietic Stem Cell Transplantation (HSCT) Example
, pp. 2006
-
-
Parsons, S.K.1
Shih, M.C.2
Ratichek, S.3
Recklitis, C.J.4
Chang, G.5
-
18
-
-
0002105479
-
Application of random-effects pattern-mixture models for missing data in longitudinal studies
-
Hedeker D, Gibbons R. Application of random-effects pattern-mixture models for missing data in longitudinal studies. Psychol Methods 1997, 2:64-78.
-
(1997)
Psychol Methods
, vol.2
, pp. 64-78
-
-
Hedeker, D.1
Gibbons, R.2
-
19
-
-
0035432179
-
PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations
-
10.1097/00005650-200108000-00006, 11468499
-
Varni JW, Seid M, Kurtin PS. PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care 2001, 39:800-812. 10.1097/00005650-200108000-00006, 11468499.
-
(2001)
Med Care
, vol.39
, pp. 800-812
-
-
Varni, J.W.1
Seid, M.2
Kurtin, P.S.3
-
20
-
-
84863609759
-
Comparing longitudinal assessments of quality of life by patient and parent in newly diagnosed children with cancer: the value of both raters' perspectives
-
Epub ahead of print 2011 Aug 6, 10.1007/s11136-011-9986-4, 21822735
-
Parsons SK, Fairclough DL, Wang J, Hinds PS. Comparing longitudinal assessments of quality of life by patient and parent in newly diagnosed children with cancer: the value of both raters' perspectives. Qual Life Res 2012, 21:915-923. Epub ahead of print 2011 Aug 6, 10.1007/s11136-011-9986-4, 21822735.
-
(2012)
Qual Life Res
, vol.21
, pp. 915-923
-
-
Parsons, S.K.1
Fairclough, D.L.2
Wang, J.3
Hinds, P.S.4
-
21
-
-
84863719198
-
Differences in mothers' and fathers' health-related quality of life after pediatric SCT: a longitudinal study
-
10.1038/bmt.2011.206, 22041851
-
Barrera M, Atenafu E, Doyle J, Berlin-Romalis D, Hancock K. Differences in mothers' and fathers' health-related quality of life after pediatric SCT: a longitudinal study. Bone Marrow Transplant 2012, 47:934-939. 10.1038/bmt.2011.206, 22041851.
-
(2012)
Bone Marrow Transplant
, vol.47
, pp. 934-939
-
-
Barrera, M.1
Atenafu, E.2
Doyle, J.3
Berlin-Romalis, D.4
Hancock, K.5
-
22
-
-
54949087062
-
The relationship between proxy reported health-related quality of life and parental distress: gender differences
-
Davis E, Davies B, Waters E, Priest N. The relationship between proxy reported health-related quality of life and parental distress: gender differences. Child Care Health Dev 2008, 34:830-837.
-
(2008)
Child Care Health Dev
, vol.34
, pp. 830-837
-
-
Davis, E.1
Davies, B.2
Waters, E.3
Priest, N.4
|