Development of six PROMIS pediatrics proxy-report item banks

Health and Quality of Life Outcomes

Volumn 10, Issue , 2012, Pages

  Irwin, Debra E ^a   Gross, Heather E ^h   Stucky, Brian D ^b   Thissen, David ^b   DeWitt, Esi M ^c   Lai, Jin S ^d   Amtmann, Dagmar ^e   Khastou, Leyla ^e   Varni, James W ^f   DeWalt, Darren A ^g  

^a University of North Carolina at Chapel Hill   (United States)

^b University of North Carolina at Chapel Hill   (United States)

^c CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER   (United States)

^d NORTHWESTERN UNIVERSITY   (United States)

^e UNIVERSITY OF WASHINGTON   (United States)

^f TEXAS A AND M UNIVERSITY   (United States)

^g UNIVERSITY OF NORTH CAROLINA SCHOOL OF MEDICINE   (United States)

^h UNIVERSITY OF NORTH CAROLINA   (United States)

Author keywords

HRQOL; Parent proxy; Pediatrics; PRO; PROMIS; Scale development

Indexed keywords

ADOLESCENT; ARTICLE; ASTHMA; CALIBRATION; CAREGIVER; CAUCASIAN; CHILD; COGNITION; CUSTODY; DEPRESSION; EDUCATIONAL STATUS; EMOTIONAL STRESS; ETHNICITY; FATIGUE; FEEDBACK SYSTEM; FEMALE; HEALTH SURVEY; HIGH SCHOOL; HUMAN; INTERVIEW; MAJOR CLINICAL STUDY; MALE; MARRIAGE; MEDICAL INFORMATION SYSTEM; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; PAIN; PATIENT REPORTED OUTCOMES MEASUREMENT INFORMATION SYSTEM; PEDIATRICS; PEER GROUP; PHYSICAL PERFORMANCE; SCHOOL CHILD; SELF REPORT; AGE; CHILD WELFARE; CHRONIC DISEASE; COMPARATIVE STUDY; CROSS-SECTIONAL STUDY; FACTUAL DATABASE; INSTRUMENTATION; OUTCOME ASSESSMENT; PARENT; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; SENSITIVITY AND SPECIFICITY; SEX DIFFERENCE; UNITED STATES;

ADOLESCENT; AGE FACTORS; CAREGIVERS; CHILD; CHILD WELFARE; CHILD, PRESCHOOL; CHRONIC DISEASE; CROSS-SECTIONAL STUDIES; DATABASES, FACTUAL; FEMALE; HUMANS; MALE; OUTCOME ASSESSMENT (HEALTH CARE); PARENTS; PEDIATRICS; PROXY; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; SELF REPORT; SENSITIVITY AND SPECIFICITY; SEX FACTORS; UNITED STATES;

EID: 84857215971     PISSN: None     EISSN: 14777525     Source Type: Journal    
DOI: 10.1186/1477-7525-10-22     Document Type: Article

References (32)

1. Ader DN. Developing the Patient-Reported Outcomes Measurement Information System (PROMIS). Medical Care 2007, 45(Suppl 1):S1-S2. 10.1097/01.mlr.0000260537.45076.74, 18027399.
2. Cella D, Yount S, Rothrock N, Gershon R, Cook K, Reeve B, Ader DN, Fries JF, Bruce B, Rose M. The Patient-Reported Outcomes Measurement Information System (PROMIS): Progress of an NIH Roadmap Cooperative Group during its first two years. Medical Care 2007, 45(Suppl 1):S3-S11. 10.1097/01.mlr.0000258615.42478.55, 17909380.
3. Irwin DE, Stucky BD, Langer MM, Thissen D, DeWitt EM, Lai JS, Varni JW, Yeatts K, DeWalt DA. An item response analysis of the pediatric PROMIS anxiety and depressive symptoms scales. Quality of Life Research 2010, 19:595-607. 10.1007/s11136-010-9619-3, 3158603, 20213516.
4. Irwin DE, Stucky BD, Thissen D, DeWitt EM, Lai JS, Yeatts K, Varni JW, DeWalt DA. Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey. Qual Life Res 2010, 19(4):585-594. 10.1007/s11136-010-9618-4, 3157238, 20204706.
5. Varni JW, Stucky BD, Thissen D, DeWitt EM, Irwin DE, Lai JS, Yeatts K, DeWalt DA. PROMIS Pediatric Pain Interference Scale: An item response theory analysis of the pediatric pain item bank. J Pain 2010, 11:1109-1119. 10.1016/j.jpain.2010.02.005, 3129595, 20627819.
6. DeWitt EM, Stucky BD, Thissen D, Irwin DE, Langer M, Varni JW, Lai JS, Yeatts KB, DeWalt DA. Construction of the eight item PROMIS Pediatric Physical Function Scales: Built using Item Response Theory. Journal of Clinical Epidemiology 2011,
7. Irwin DE, Stucky BD, Langer MM, Thissen D, DeWitt EM, Lai JS, Yeatts K, Varni JW, DeWalt DA. PROMIS Pediatric Anger Scale: An item response theory analysis. Quality of Life Research 2011,
8. The PROMIS Domain Framework. http://www.nihpromis.org/measures/domainframework last accessed 10 Feb. 2012.
9. Yeatts K, Stucky BD, Thissen D, Irwin DE, Varni JW, DeWitt EM, Lai JS, DeWalt DA. Construction of the Pediatric Asthma Impact Scale (PAIS) for the Patient-Reported Outcomes Measurement Information System (PROMIS). J Asthma 2010, 2010(47):295-302.
10. Sprangers MAG, Aaronson NK. The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: A review. Journal of Clinical Epidemiology 1992, 45:743-760. 10.1016/0895-4356(92)90052-O, 1619454.
11. Achenbach TM, McConaughy SH, Howell CT. Child/adolescent behavioral and emotional problems: Implications of cross-informant correlations for situational specificity. Psychological Bulletin 1987, 101:213-232.
12. Upton P, Lawford J, Eiser C. Parent-child agreement across child health-related quality of life instruments: A review of the literature. Quality of Life Research 2008, 17:895-913. 10.1007/s11136-008-9350-5, 18521721.
13. Cremeens J, Eiser C, Blades M. Factors influenecing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. Health and Qual Life Outcomes 2006, 4:58-65.
14. Eiser C, Moore R. Can parents rate their child's health-related quality of life? Results of a systematic review. Qual Life Res 2002, 10:347-357.
15. Varni JW, Katz ER, Seid M, Quiggins DJL, Friedman-Bender A, Castro CM. The Pediatric Cancer Quality of Life Inventory (PCQL): I. Instrument development, descriptive statistics, and cross-informant variance. J Behav Med 1998, 21:179-204. 10.1023/A:1018779908502, 9591169.
16. Eiser C, Jenney M. Measuring quality of life. Arch Dis Child 2007, 92:348-350. 10.1136/adc.2005.086405, 2083670, 17376942.
17. Varni JW, Limbers CA, Burwinkle TM. Parent proxy-report of their children's health-related quality of life: an analysis of 13,878 parents' reliability and validity across age subgroups using the PedsQL 4.0 Generic Core Scales. Health and Quality Life Outcomes 2007, 5:2.
18. Campo JV, Comer DM, Jansen-Mcwilliams L, Gardner W, Kelleher KJ. Recurrent pain, emotional distress, and health service use in childhood. J Pediatr 2002, 141(1):76-83. 10.1067/mpd.2002.125491, 12091855.
19. Janicke DM, Finney JW, Riley AW. Children's health care use: a prospective investigation of factors related to care-seeking. Med Care 2001, 39(9):990-1001. 10.1097/00005650-200109000-00009, 11502956.
20. Varni JW, Burwinkle TM, Lane MM. Health-related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and application. Health Qual Life Outcomes 2005, 3:34. 10.1186/1477-7525-3-34, 1156928, 15904527.
21. DeWalt D, Rothrock N, Yount S, Stone AA. PROMIS Cooperative Group: Evaluation of Item Candidates: The PROMIS qualitative item review. Medical Care 2007, 45(Suppl 1):S12-S21. 10.1097/01.mlr.0000254567.79743.e2, 2810630, 17443114.
22. Walsh TR, Irwin DE, Meier A, Varni JW, DeWalt D. The use of focus groups in the development of the PROMIS Pediatric Item Bank. Qual Life Res 2008, 17:725-735. 10.1007/s11136-008-9338-1, 2424212, 18427951.
23. Irwin DE, Varni JW, Yeatts K, DeWalt D. Cognitive interviewing methodology in the development of a pediatric item bank: A Patient Reported Outcomes Measurement Information System (PROMIS) Study. Health and Quality of Life Outcomes 2009, 7(3):1-10. 2633318, 19134191.
24. Varni JW, Thissen D, Stucky BD, Liu Y, Gorder H, Irwin DE, DeWitt EM, Lai JS, Amtmann D, DeWalt DA. PROMIS Parent Proxy Report Scales: An Item Response Theory Analysis of the Parent Proxy Report Item Bank. Qual Life Res 2011,
25. Varni JW, Burwinkle TM, Rapoff MA, Kamps JL, Olson N. The PedsQL in pediatric asthma: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and Asthma Module. J Behav Med 2004, 27:297-318.
26. Robitail S, Simeoni MC, Erhart M, Ravens-Sieberer U, Bruil J, Auquier P. European Kidscreen Group. J Adolesc Health 2006, 39(4):596. e1-10. Epub 2006 Jul 10.
27. Ravens-Sieberer U, Gosch A, Rajmil L, Erhart M, Bruil J, Duer W, Auquier P, et al. KIDSCREEN-52 Quality of Life Measure for Children and Adolescents. Expert Review of Pharmacoeconomics and Outcomes Research 2005, 5:353-364. 10.1586/14737167.5.3.353, 19807604.
28. The KIDSCREEN Group Europe The KIDSCREEN Questionnaires Handbook. 2006, Pabst Science Publishers, The KIDSCREEN Group Europe.
29. Varni JW, Burwinkle TM, Seid M, Skarr D. The PedsQL 4.0 as a Pediatric Population Health Measure: Feasibility, Reliability, and Validity. Ambulatory Pediatrics 2003, 3:329-341. 10.1367/1539-4409(2003)003<0329:TPAAPP>2.0.CO;2, 14616041.
30. Levi RB, Drotar D. Health-related quality of life in childhood cancer: Discrpancy in parent-child reports. Int J Cancer 1999, 12:58-64.
31. Chang P, Yeh C. Agreement between child self-report and parent proxy-report to evaluate quality of life in children with cancer. Pyscho Onc 2005, 14:125-134.
32. Yeh CH, Chang CW, Chang PC. Evaluating quality of life in children with cancer using children's self-reports and parent-proxy reports. Nursing Res 2005, 54:354-362.