Ethical considerations in REM sleep behavior disorder

CONTINUUM Lifelong Learning in Neurology

Volumn 19, Issue 1, 2013, Pages 199-203

  Vertrees, Stephanie ^a   Greenough, Glen P ^b  

^a Austin Neurology and Sleep Associates   (United States)

^b NONE

Author keywords

[No Author keywords available]

Indexed keywords

AGED; CASE REPORT; HUMAN; LACERATION; LIMB MOVEMENT; MALE; NIGHTMARE; NONREM SLEEP; PARASOMNIA; POLYSOMNOGRAPHY; REM SLEEP; RESTLESSNESS; REVIEW;

AGED; DISCLOSURE; HUMANS; MALE; NEURODEGENERATIVE DISEASES; POLYSOMNOGRAPHY; REM SLEEP BEHAVIOR DISORDER;

EID: 84873696822     PISSN: 10802371     EISSN: 15386899     Source Type: Journal    
DOI: 10.1212/01.CON.0000427223.22963.d4     Document Type: Review

References (22)

1. Schenck CH, Bundlie SR, Mahowald MW. Delayed emergence of a parkinsonian disorder in 38% of 29 older men diagnosed with idiopathic rapid eye movement sleep behaviour disorder. Neurology 1996;46(2):388-393.
2. Schenck CH, Bundlie SR, Mahowald MW. REM sleep behavior disorder (RBD): delayed emergence of parkinsonism and/or dementia in 65% of older men initially diagnosed with idiopathic RBD, and an analysis of the maximum and minimum tonic and/or phasic electromyographic abnormalities found during REM sleep. Sleep 2003;26(suppl):A316.
3. Iranzo A, Molinuevo JL, Santamaria J, et al. Rapid-eye-movement sleep behaviour disorder as an early marker for neurodegenerative disease: a descriptive study. Lancet Neurol 2006;5(7):572-577. (Pubitemid 43867426)
4. Postuma RB, Gagnon JF, Vendette M, et al. Quantifying the risk of neurodegenerative disease in idiopathic REM sleep behavior disorder. Neurology 2009;72(15):1296-1300.
5. American Academy of Sleep Medicine. The international classification of sleep disorders, second edition: diagnostic and coding manual. Westchester, IL: American Academy of Sleep Medicine, 2005.
6. Iranzo A, Santamaria J, Tolosa E. The clinical and pathophysiological relevance of REM sleep behavior disorder in neurodegenerative diseases. Sleep Med Rev 2009;13(6):385-401.
7. Gagnon JF, Bertrand JA, Génier Marchand D. Cognition in rapid eye movement sleep behavior disorder. Front Neurol 2012;3(82). Epub 2012 May 17. doi: 10.3389/fneur.2012.00082.
8. Arribas-Ayllon M. The ethics of disclosing genetic diagnosis for Alzheimer's disease: do we need a new paradigm? Br Med Bull 2011;100:7-21.
9. Hamada H, Nass R. Ethical perspectives in neurology: ethical considerations in sudden unexplained death in epilepsy. Continuum Lifelong Learning Neurol 2010;16(3):242-245.
10. Beauchamp TL, Childress JF. Principles of biomedical ethics, 6thed. New York: Oxford University Press, 2008.
11. Carpenter B, Dave J. Disclosing a dementia diagnosis: a review of opinion and practice, and a proposed research agenda. Gerontologist 2004:44(2):149-158. (Pubitemid 38541818)
12. Erde EL, Nadal EC, Scholl TO. On truth telling and the diagnosis of Alzheimer's disease. J Fam Pract 1988;26(4):401-406.
13. Robinson L, Gemski A, Abley C, et al. The transition to dementiaVindividual and family experiences of receiving a diagnosis: a review. Int Psychogeriatr 2011;23(7):1026-1043.
14. Holt GR. Timely diagnosis and disclosure of Alzheimer disease gives patients opportunities to make choices. South Med J 2011;104(12):779-780.
15. Connell CM, Roberts JS, McLaughlin SJ, Carpenter BD. Black and white adult family members' attitudes toward a dementia diagnosis. J Am Geriatr Soc 2009;57(9):1562-1568.
16. Mattsson N, Brax D, Zetterberg H. To know or not to know: ethical issues related to early diagnosis of Alzheimer's disease. Int J Alzheimers Dis 2010;4:doi:10.4061/2010/841941.
17. Robins Wahlin TB. To know or not to know: a review of behaviour and suicidal ideation in preclinical Huntington's disease. Patient Educ Couns 2007;65(3):279-287.
18. Hakimian R. Disclosure of Huntington's disease to family members: the dilemma of known but unknowing parties. Genet Test 2000;4(4):359-364. (Pubitemid 32115326)
19. Tibben A, Duivenvoorden HJ, Niermeijer MF, et al. Psychological effects of presymptomatic DNA testing for Huntington's disease in the Dutch program. Psychosom Med 1994;56(6):526-532. (Pubitemid 24373672)
20. Fisk JD, Beattie BL, Donnelly M, et al. Disclosure of the diagnosis of dementia. Alzheimers Dement 2007;3(4):404-410. (Pubitemid 47553565)
21. Lee L, Weston WW. Disclosing a diagnosis of dementia: helping learners to break bad news. Can Fam Physician 2011;57(7):851-852.
22. Marzanski M. Would you like to know what is wrong with you? On telling the truth to patients with dementia. J Med Ethics 2000;26(2):108-113. (Pubitemid 30197933)