메뉴 건너뛰기




Volumn 30, Issue 1, 2013, Pages 34-44

Understanding Pediatric Palliative Care: What It Is and What It Should Be

Author keywords

life threatening illness; pediatric oncology; pediatric palliative care; psychological support; stem cell transplant

Indexed keywords

ADOLESCENT; ARTICLE; BEREAVEMENT; CHILD; HUMAN; HUMAN RELATION; PALLIATIVE THERAPY; PEDIATRICS;

EID: 84873470383     PISSN: 10434542     EISSN: 15328457     Source Type: Journal    
DOI: 10.1177/1043454212471725     Document Type: Article
Times cited : (20)

References (49)
  • 1
    • 0034241612 scopus 로고    scopus 로고
    • Palliative care for children
    • Palliative care for children.Pediatrics. 2000;106:351-357.
    • (2000) Pediatrics , vol.106 , pp. 351-357
  • 2
    • 10644268485 scopus 로고    scopus 로고
    • A study into the educational needs of children's hospice doctors: A descriptive quantitative and qualitative survey
    • Amery J.,Lapwood S.A study into the educational needs of children's hospice doctors: A descriptive quantitative and qualitative survey.Palliative Medicine. 2004;18:727-733.
    • (2004) Palliative Medicine , vol.18 , pp. 727-733
    • Amery, J.1    Lapwood, S.2
  • 4
    • 0033857066 scopus 로고    scopus 로고
    • SPIKES: A six-step protocol for delivering bad news: Application to the patient with cancer
    • Baile W. F.,Buckman R.,Lenzi R.,Glober G.,Beale E. A.,Kudelka A. P.SPIKES: A six-step protocol for delivering bad news: Application to the patient with cancer.Oncologist. 2000;5:302-311.
    • (2000) Oncologist , vol.5 , pp. 302-311
    • Baile, W.F.1    Buckman, R.2    Lenzi, R.3    Glober, G.4    Beale, E.A.5    Kudelka, A.P.6
  • 5
    • 20644449052 scopus 로고    scopus 로고
    • Silence is not golden: Communicating with children dying from cancer
    • Beale E. A.,Baile W. F.,Aaron J.Silence is not golden: Communicating with children dying from cancer.Journal of Clinical Oncology. 2005;23:3629-3636.
    • (2005) Journal of Clinical Oncology , vol.23 , pp. 3629-3636
    • Beale, E.A.1    Baile, W.F.2    Aaron, J.3
  • 6
    • 0038010556 scopus 로고    scopus 로고
    • Patient problems, advanced practice nurse (APN) interventions, time and contacts among five patient groups
    • Brooten D.,Youngblut J. A.,Deatrick J.,Naylor M.,York R.Patient problems, advanced practice nurse (APN) interventions, time and contacts among five patient groups.Journal of Nursing Scholarship. 2004;35 (1): 73-79.
    • (2004) Journal of Nursing Scholarship , vol.35 , Issue.1 , pp. 73-79
    • Brooten, D.1    Youngblut, J.A.2    Deatrick, J.3    Naylor, M.4    York, R.5
  • 7
    • 24944583189 scopus 로고    scopus 로고
    • The initiative for pediatric palliative care: An interdisciplinary educational approach for healthcare professionals
    • Browning D. M.,Solomon M. Z.The initiative for pediatric palliative care: An interdisciplinary educational approach for healthcare professionals.Journal of Pediatric Nursing. 2005;20:326-334.
    • (2005) Journal of Pediatric Nursing , vol.20 , pp. 326-334
    • Browning, D.M.1    Solomon, M.Z.2
  • 8
    • 84873418725 scopus 로고    scopus 로고
    • Center to Advance Palliative Care,Retrieved from
    • Center to Advance Palliative Care. (2012). Building a hospital-based palliative care program. Retrieved from http://www.capc.org/building-a-hospital-based-palliative-care-program/case/support-from-capc/capc_publications/making-the-case.pdf.
    • (2012) Building a hospital-based palliative care program
  • 9
    • 16644362648 scopus 로고    scopus 로고
    • Hospital staff and family perspectives regarding quality of pediatric palliative care
    • Contro N.,Larson J.,Scofield S.,Sourkes B.,Cohen H. J.Hospital staff and family perspectives regarding quality of pediatric palliative care.Pediatrics. 2004;114:1248-1252.
    • (2004) Pediatrics , vol.114 , pp. 1248-1252
    • Contro, N.1    Larson, J.2    Scofield, S.3    Sourkes, B.4    Cohen, H.J.5
  • 10
    • 84887827478 scopus 로고    scopus 로고
    • Helping patients cope with death (Letter to the editor)
    • Cooney G. A.Helping patients cope with death (Letter to the editor).New York Times. 2009;:A20.
    • (2009) New York Times
    • Cooney, G.A.1
  • 12
    • 79951892656 scopus 로고    scopus 로고
    • Grief and bereavement in pediatric palliative care
    • In FerrellB. R.CoyleN. (Eds.), Ferrell B. R.Coyle N., ed
    • Davies B.,Limbo R.,Jin J.Oxford textbook of palliative nursing. 2010). Grief and bereavement in pediatric palliative care. In FerrellB. R.CoyleN. (Eds.), Oxford textbook of palliative nursing (3rd ed., pp. 1081-1097). New York, NY: Oxford University Press.Ferrell B. R.Coyle N., ed. New York, NY: Oxford University Press; 2010:1081-1097.
    • (2010) Oxford Textbook of Palliative Nursing , pp. 1081-1097
    • Davies, B.1    Limbo, R.2    Jin, J.3
  • 14
    • 35748937988 scopus 로고    scopus 로고
    • Searching for "the dying point": Providers' experiences with palliative care in pediatric acute care
    • Docherty S.,Miles M.,Brandon D.Searching for "the dying point": Providers' experiences with palliative care in pediatric acute care.Pediatric Nursing. 2007;33:335-341.
    • (2007) Pediatric Nursing , vol.33 , pp. 335-341
    • Docherty, S.1    Miles, M.2    Brandon, D.3
  • 16
    • 84873439303 scopus 로고    scopus 로고
    • Duarte, CA: American Association of Colleges of Nursing and City of Hope National Medical Center
    • Pediatric palliative care: Faculty guide. Duarte, CA: American Association of Colleges of Nursing and City of Hope National Medical Center; 2007:.
    • (2007) Pediatric Palliative Care: Faculty Guide
  • 18
    • 0037264598 scopus 로고    scopus 로고
    • Spiritual care needs of hospitalized children and their families: A national survey of pastoral of pastoral care providers' perceptions
    • Feudtner C.,Haney J.,Dimmers M.Spiritual care needs of hospitalized children and their families: A national survey of pastoral of pastoral care providers' perceptions.Pediatrics. 2003;111:e67-e72.
    • (2003) Pediatrics , vol.111
    • Feudtner, C.1    Haney, J.2    Dimmers, M.3
  • 20
    • 77958163352 scopus 로고    scopus 로고
    • Pediatric palliative care in childhood cancer nursing: From diagnosis to cure or end of life
    • Foster T. L.,Lafond D. A.,Reggio C.,Hinds P. S.Pediatric palliative care in childhood cancer nursing: From diagnosis to cure or end of life. Seminars in Oncology Nursing; 2010; 2010. 205.
    • (2010) Seminars in Oncology Nursing , vol.205
    • Foster, T.L.1    Lafond, D.A.2    Reggio, C.3    Hinds, P.S.4
  • 21
    • 84875695701 scopus 로고    scopus 로고
    • NHPCO's pediatric standards: A key step in advancing care for America's children
    • Retrieved from
    • FriebertS.HuffS. (2009, February). NHPCO's pediatric standards: A key step in advancing care for America's children. NewsLine. Retrieved from http://www.nhpco.org/files/public/quality/Peds-Standards_article_NL-0209.pdf.
    • (2009) NewsLine
    • Friebert, S.1    Huff, S.2
  • 23
    • 84887822879 scopus 로고    scopus 로고
    • At the end, offering not a cure but comfort
    • Hartocollis A.At the end, offering not a cure but comfort.New York Times. 2009;:A1 A16 A19.
    • (2009) New York Times , pp. 16-19
    • Hartocollis, A.1
  • 24
    • 0035155498 scopus 로고    scopus 로고
    • Attitudes and practices among pediatric oncologists regarding the end-of-life care: Results of the 1998 American Society of Clinical Oncology Survey
    • Hilden J. M.,Emanuel E. J.,Fairclough D. L.,Link M. P.,Foley K. M.,Clarridge B. C.,Mayer R. J.Attitudes and practices among pediatric oncologists regarding the end-of-life care: Results of the 1998 American Society of Clinical Oncology Survey.Journal of Clinical Oncology. 2001;19:205-212.
    • (2001) Journal of Clinical Oncology , vol.19 , pp. 205-212
    • Hilden, J.M.1    Emanuel, E.J.2    Fairclough, D.L.3    Link, M.P.4    Foley, K.M.5    Clarridge, B.C.6    Mayer, R.J.7
  • 25
    • 32044444109 scopus 로고    scopus 로고
    • Palliative care for infants, children, adolescents, and their families
    • Himelstein B.Palliative care for infants, children, adolescents, and their families.Journal of Palliative Medicine. 2006;9:163-181.
    • (2006) Journal of Palliative Medicine , vol.9 , pp. 163-181
    • Himelstein, B.1
  • 27
    • 0023987623 scopus 로고
    • Adolescent hopefulness in illness and health
    • Hinds P. S.Adolescent hopefulness in illness and health.Advances in Nursing Science. 1988;10:79-88.
    • (1988) Advances in Nursing Science , vol.10 , pp. 79-88
    • Hinds, P.S.1
  • 30
    • 44449156827 scopus 로고    scopus 로고
    • Communicating with children and families: From everyday interactions to skill in conveying distressing information
    • Levetown M.Communicating with children and families: From everyday interactions to skill in conveying distressing information.Pediatrics. 2008;121:e1441-e1460.
    • (2008) Pediatrics , vol.121
    • Levetown, M.1
  • 33
    • 0034811062 scopus 로고    scopus 로고
    • The SEGUE framework for teaching and assessing communication skills
    • Makoul G.The SEGUE framework for teaching and assessing communication skills.Patient Education & Counseling. 2001;45:23-34.
    • (2001) Patient Education & Counseling , vol.45 , pp. 23-34
    • Makoul, G.1
  • 35
    • 77953965508 scopus 로고    scopus 로고
    • The caring continuum: Role of the pediatric critical care advanced practice nurse in palliative care program development
    • Mauricio R. V.,Okhuysen-Cawley R.The caring continuum: Role of the pediatric critical care advanced practice nurse in palliative care program development.Critical Care Nursing Quarterly. 2010;33:292-297.
    • (2010) Critical Care Nursing Quarterly , vol.33 , pp. 292-297
    • Mauricio, R.V.1    Okhuysen-Cawley, R.2
  • 36
    • 0036157109 scopus 로고    scopus 로고
    • Parental perspectives on end-of-life care in the pediatric intensive care unit
    • Meyer E. C.,Burns J. P.,Griffith J. L.,Truog R. D.Parental perspectives on end-of-life care in the pediatric intensive care unit.Critical Care Medicine. 2002;30:226-231.
    • (2002) Critical Care Medicine , vol.30 , pp. 226-231
    • Meyer, E.C.1    Burns, J.P.2    Griffith, J.L.3    Truog, R.D.4
  • 37
    • 67849111486 scopus 로고    scopus 로고
    • Caring for dying children: Assessing the needs of the pediatric palliative care nurse
    • Morgan D.Caring for dying children: Assessing the needs of the pediatric palliative care nurse.Pediatric Nursing. 2009;35 (2): 86-90.
    • (2009) Pediatric Nursing , vol.35 , Issue.2 , pp. 86-90
    • Morgan, D.1
  • 38
    • 73549117927 scopus 로고    scopus 로고
    • National Consensus Project for Quality Palliative Care, (2nd ed.). Pittsburgh, PA: Author. Retrieved from
    • National Consensus Project for Quality Palliative Care. (2009). Clinical practice guidelines for quality palliative care (2nd ed.). Pittsburgh, PA: Author. Retrieved from http://www.nationalconsensusproject.org.
    • (2009) Clinical practice guidelines for quality palliative care
  • 40
    • 78751521726 scopus 로고    scopus 로고
    • The effect of an educational program on pediatric nurses' perspectives toward providing spiritual care
    • O'Shea E. R.,Wallace M.,Quinn Griffin M.,Fitzpatrick J. J.The effect of an educational program on pediatric nurses' perspectives toward providing spiritual care.Journal of Pediatric Nursing. 2011;26:34-43.
    • (2011) Journal of Pediatric Nursing , vol.26 , pp. 34-43
    • O'Shea, E.R.1    Wallace, M.2    Quinn Griffin, M.3    Fitzpatrick, J.J.4
  • 41
    • 75149169347 scopus 로고    scopus 로고
    • A unitary-caring conceptual model for advanced practice nursing in palliative care
    • Reed S.A unitary-caring conceptual model for advanced practice nursing in palliative care.Holistic Nursing Practice. 2010;24 (1): 23.
    • (2010) Holistic Nursing Practice , vol.24 , Issue.1 , pp. 23
    • Reed, S.1
  • 42
    • 0034012470 scopus 로고    scopus 로고
    • Medical education about end-of-life care in the pediatric setting: Principles, challenges, and opportunities
    • Sahler O. J. Z.,Frager G.,Levetown M.,Cohn F. G.,Lipson M. A.Medical education about end-of-life care in the pediatric setting: Principles, challenges, and opportunities.Pediatrics. 2000;105:575-584.
    • (2000) Pediatrics , vol.105 , pp. 575-584
    • Sahler, O.J.Z.1    Frager, G.2    Levetown, M.3    Cohn, F.G.4    Lipson, M.A.5
  • 44
    • 77951095281 scopus 로고    scopus 로고
    • Assessment of advanced practice palliative care nursing competencies in nurse practitioner students: Implications for the integration of ELNEC curricular modules
    • Shea J.,Grossman S.,Wallace M.,Lange J.Assessment of advanced practice palliative care nursing competencies in nurse practitioner students: Implications for the integration of ELNEC curricular modules.Journal of Nursing Education. 2010;49:183-189.
    • (2010) Journal of Nursing Education , vol.49 , pp. 183-189
    • Shea, J.1    Grossman, S.2    Wallace, M.3    Lange, J.4
  • 45
    • 79951925275 scopus 로고    scopus 로고
    • Pediatric hospice and palliative care
    • In FerrellB. R.CoyleN. (Eds.), New York, NY: Oxford University Press
    • Sumner L. H.Oxford textbook of palliative nursing. 2010). Pediatric hospice and palliative care. In FerrellB. R.CoyleN. (Eds.), Oxford textbook of palliative nursing (3rd ed., pp. 997-1017). New York, NY: Oxford University Press.Ferrell B. R.Coyle N., ed. New York, NY: Oxford University Press; 2010:997-1017.
    • (2010) Oxford Textbook of Palliative Nursing , pp. 997-1017
    • Sumner, L.H.1
  • 46
    • 35348887136 scopus 로고    scopus 로고
    • Place and provision of palliative care for children with progressive cancer: A study by the Paediatric Oncology Nurses' Forum/United Kingdom Children's Cancer Study Group Palliative Care Working Group
    • Vickers J.,Thompson A.,Collins G. S.,Childs M.,Hain R.Place and provision of palliative care for children with progressive cancer: A study by the Paediatric Oncology Nurses' Forum/United Kingdom Children's Cancer Study Group Palliative Care Working Group.Journal of Clinical Oncology. 2007;25:4472-4476.
    • (2007) Journal of Clinical Oncology , vol.25 , pp. 4472-4476
    • Vickers, J.1    Thompson, A.2    Collins, G.S.3    Childs, M.4    Hain, R.5
  • 49
    • 0035469389 scopus 로고    scopus 로고
    • Caring for dying infants: Experiences of neonatal intensive care nurses in Hong Kong
    • Yam B. M.,Rossiter J. C.,Cheung K. Y.Caring for dying infants: Experiences of neonatal intensive care nurses in Hong Kong.Journal of Clinical Nursing. 2001;10:651-659.
    • (2001) Journal of Clinical Nursing , vol.10 , pp. 651-659
    • Yam, B.M.1    Rossiter, J.C.2    Cheung, K.Y.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.