Factors that influence parents' experiences with results disclosure after newborn screening identifies genetic carrier status for cystic fibrosis or sickle cell hemoglobinopathy

Patient Education and Counseling

Volumn 90, Issue 3, 2013, Pages 378-385

  Collins, Jenelle L ^a   La Pean, Alison ^a   O'Tool, Faith ^a   Eskra, Kerry L ^a   Roedl, Sara J ^a   Tluczek, Audrey ^b   Farrell, Michael H ^a  

^a MEDICAL COLLEGE OF WISCONSIN   (United States)

^b UNIVERSITY OF WISCONSIN MADISON   (United States)

Author keywords

Cystic fibrosis carrier; Genetic carrier detection; Genetic counseling; Heterozygote; Newborn screening; Parental anxiety; Patient preferences; Patient provider communication; Psychosocial outcomes; Results disclosure; Sickle cell trait

Indexed keywords

ADULT; ARTICLE; ATTITUDE TO ILLNESS; CONTROLLED STUDY; COPING BEHAVIOR; CYSTIC FIBROSIS; DISEASE ASSOCIATION; EMOTION; FEMALE; FOLLOW UP; HEMOGLOBINOPATHY; HETEROZYGOTE; HUMAN; INFANT; MALE; MEDICAL INFORMATION; NEWBORN SCREENING; OUTCOME ASSESSMENT; PARENTAL ATTITUDE; PERSONAL EXPERIENCE; PHYSICIAN ATTITUDE; PRIORITY JOURNAL; PROFESSIONAL KNOWLEDGE; QUANTITATIVE ANALYSIS; SICKLE CELL HEMOGLOBINOPATHY; VERBAL COMMUNICATION;

ADULT; CARRIER STATE; CYSTIC FIBROSIS; DISCLOSURE; FEMALE; GENETIC COUNSELING; GENETIC TESTING; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEMOGLOBIN SC DISEASE; HUMANS; INFANT, NEWBORN; INTERVIEWS AS TOPIC; MALE; PARENTS; QUALITATIVE RESEARCH;

EID: 84873444679     PISSN: 07383991     EISSN: 18735134     Source Type: Journal    
DOI: 10.1016/j.pec.2011.12.007     Document Type: Article

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