Improving end of life care for people with dementia: A rapid participatory appraisal

BMJ Supportive and Palliative Care

Volumn 2, Issue 2, 2012, Pages 108-114

  Sampson, Elizabeth L ^a,c   Mandal, Uttara ^b   Holman, Amanda ^c   Greenish, Wendy ^d   Dening, Karen Harrison ^e   Jones, Louise ^c  

^a BARNET ENFIELD AND HARINGEY MENTAL HEALTH NHS TRUST   (United Kingdom)

^b CENTRAL AND NORTH WEST LONDON NHS FOUNDATION TRUST   (United Kingdom)

^c UNIVERSITY COLLEGE LONDON   (United Kingdom)

^d Marie Curie Cancer Care   (United Kingdom)

^e DEMENTIA UK   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

AGED; CAREGIVER; CLINICAL COMPETENCE; COST; DEATH; DEMENTIA; ECONOMICS; ETHICS; FEMALE; HOSPITAL ADMISSION; HUMAN; MALE; MEDICAL AUDIT; MIDDLE AGED; PATIENT CARE; SOCIOECONOMICS; STANDARDS; STATISTICS AND NUMERICAL DATA; TERMINAL CARE; UNITED KINGDOM; VERY ELDERLY;

ADVANCE CARE PLANNING; AGED; AGED, 80 AND OVER; CAREGIVERS; CLINICAL COMPETENCE; COSTS AND COST ANALYSIS; DEATH; DEMENTIA; FEMALE; HUMANS; LONDON; MALE; MEDICAL AUDIT; MIDDLE AGED; PATIENT ADMISSION; SOCIOECONOMIC FACTORS; TERMINAL CARE;

EID: 84873103253     PISSN: 2045435X     EISSN: 20454368     Source Type: Journal    
DOI: 10.1136/bmjspcare-2011-000177     Document Type: Article

References (23)

1. Knapp M, Privette A. Dementia UK. London: Alzheimer's Society 2007.
2. Ferri CP, Prince M, Brayne C, et al. Global prevalence of dementia: a Delphi consensus study. Lancet 2005; 366: 2112-2117.
3. Brayne C, Gao L, Dewey M, et al. Dementia before death in ageing societies-the promise of prevention and the reality. PLoS Med 2006; 3: e397.
4. Morrison RS, Siu AL. Survival in end-stage dementia following acute illness. JAMA 2000; 284: 47-52.
5. Sampson EL, Gould V, Lee D, et al. Differences in care received by patients with and without dementia who died during acute hospital admission: a retrospective case note study. Age Ageing 2006; 35: 187-189.
6. Banerjee S, Owen J. Living well with dementia: A National Dementia Strategy. London: Department of Health 2009.
7. Department of Health. End of life care strategy: Promoting high quality care for all adults at the end of life. London: Department of Health 2008.
8. Sampson EL, Robinson L. End of life care in dementia: Building bridges for effective multidisciplinary care. Dementia 2009; 8: 331-34
9. Sampson EL, Burns A, Richards M. Improving end-of-life care for people with dementia. Br J Psychiatry 2011; 199: 357-359.
10. Leykum LK, Pugh JA, Lanham HJ, et al. Implementation research design: integrating participatory action research into randomized controlled trials. Implement Sci 2009; 4: 69.
11. Murray SA, Graham LJ. Practice based health needs assessment: use of four methods in a small neighbourhood. BMJ 1995; 310: 1443-1448.
12. Fergus CJ, Chinn DJ, Murray SA. Assessing and improving out-of-hours palliative care in a deprived community: a rapid appraisal study. Palliat Med 2010; 24: 493-500.
13. Iliffe S, Lenihan P, Wallace P, et al. Applying community-oriented primary care methods in British general practice: a case study. Br J Gen Pract 2002; 52: 646-651.
14. Addicott R, Dewar S. Improving choice at end of life. London: King's Fund 2008.
15. Haringey Council. http://www.haringey.gov.uk/about _ haringey/fact _ file.htm (accessed 10 November 2011).
16. Curtis L. http://www.pssru.ac.uk/uc/uc2009contents.htm (accessed 12 December 2010).
17. Alzheimer's Society. Counting the Cost: Caring for people with dementia on hospital wards. London: Alzheimer's Society 2009.
18. Froggatt K, Vaughan S, Bernard C, et al. Advance Planning in Care Homes for Older People: A survey of current practice. Lancaster: International Observatory on End of Life Care 2008.
19. Brown CS, Lloyd S, Murray SA. Using consecutive Rapid Participatory Appraisal studies to assess, facilitate and evaluate health and social change in community settings. BMC Public Health 2006; 6: 68.
20. Greenhalgh T, Robert G, Macfarlane F, et al. Diffusion of innovations in service organizations: systematic review and recommendations. Milbank Q 2004; 82: 581-629.
21. Cummings T, Worley C. Organisation development and Change. Cincinnati, Ohio: South-Western College Publishing 1997.
22. Locock L, Dopson S, Chambers D, et al. Understanding the role of opinion leaders in improving clinical effectiveness. Soc Sci Med 2001; 53: 745-757.
23. Iles V, Sutherland K. Organisational Change. A review for healthcare managers, professionals and researchers. London: National Co-ordinating Centre for NHS 2008.