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Volumn 22, Issue 1, 2013, Pages 16-21

Enhancing family communication about genetics: Ethical and professional dilemmas

Author keywords

Family communication; Reciprical engagement model of genetic counseling (REM)

Indexed keywords

ARTICLE; CONFLICT; ETHICS; FAMILY; GENETIC COUNSELING; HUMAN; HUMAN RELATION; MEDICAL ETHICS;

EID: 84873059791     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-012-9514-x     Document Type: Conference Paper
Times cited : (37)

References (30)
  • 1
    • 0037712194 scopus 로고    scopus 로고
    • The messenger's dilemmas - Giving and getting information in genealogical mapping for hereditary cancer
    • 10.1080/1369857031000123911
    • Adelsward, V., & Sachs, L. (2003). The messenger's dilemmas - giving and getting information in genealogical mapping for hereditary cancer. Health, Risk & Society, 5(2), 125.
    • (2003) Health, Risk & Society , vol.5 , Issue.2 , pp. 125
    • Adelsward, V.1    Sachs, L.2
  • 2
    • 6444221054 scopus 로고    scopus 로고
    • The right not to know: An autonomy based approach
    • 15467071 10.1136/jme.2002.001578 1:STN:280:DC%2BD2cvpslWhtA%3D%3D
    • Andorno, R. (2004). The right not to know: an autonomy based approach. Journal of Medical Ethics, 30(5), 435-439.
    • (2004) Journal of Medical Ethics , vol.30 , Issue.5 , pp. 435-439
    • Andorno, R.1
  • 3
    • 78650979271 scopus 로고    scopus 로고
    • Do conscious thoughts cause behavior?
    • 21126180 10.1146/annurev.psych.093008.131126
    • Baumeister, R. F., Masicampo, E. J., & Vohs, K. D. (2011). Do conscious thoughts cause behavior? Annual Review of Psychology, 62(1), 331-361.
    • (2011) Annual Review of Psychology , vol.62 , Issue.1 , pp. 331-361
    • Baumeister, R.F.1    Masicampo, E.J.2    Vohs, K.D.3
  • 5
    • 0038621620 scopus 로고    scopus 로고
    • A survey of genetic counselors' strategies for addressing ethical and professional challenges in practice
    • 12735294 10.1023/A:1015275022199
    • Bower, M. A., Veach, P. M., Bartels, D. M., & LeRoy, B. S. (2002). A survey of genetic counselors' strategies for addressing ethical and professional challenges in practice. Journal of Genetic Counseling, 11(3), 163-186.
    • (2002) Journal of Genetic Counseling , vol.11 , Issue.3 , pp. 163-186
    • Bower, M.A.1    Veach, P.M.2    Bartels, D.M.3    Leroy, B.S.4
  • 8
    • 34548070446 scopus 로고    scopus 로고
    • Communication of genetic information within families: The case for familial comity
    • 10.1007/s11673-006-9022-5
    • Davey, A., Newson, A., & O'Leary, P. (2006). Communication of genetic information within families: the case for familial comity. Journal of Bioethical Inquiry, 3(3), 161-166.
    • (2006) Journal of Bioethical Inquiry , vol.3 , Issue.3 , pp. 161-166
    • Davey, A.1    Newson, A.2    O'Leary, P.3
  • 10
    • 34249651432 scopus 로고    scopus 로고
    • Communicating genetic information in families-a review of guidelines and position papers
    • 17392704 10.1038/sj.ejhg.5201822
    • Forrest, L. E., Delatycki, M. B., Skene, L., & Aitken, M. (2007). Communicating genetic information in families-a review of guidelines and position papers. European Journal of Human Genetics, 15(6), 612-618.
    • (2007) European Journal of Human Genetics , vol.15 , Issue.6 , pp. 612-618
    • Forrest, L.E.1    Delatycki, M.B.2    Skene, L.3    Aitken, M.4
  • 11
    • 40949136569 scopus 로고    scopus 로고
    • Increased genetic counseling support improves communication of genetic information in families
    • 18344705 10.1097/GIM.0b013e318164540b
    • Forrest, L. E., Burke, J., Bacic, S., & Amor, D. J. (2008). Increased genetic counseling support improves communication of genetic information in families. Genetics in Medicine, 10(3), 167-172.
    • (2008) Genetics in Medicine , vol.10 , Issue.3 , pp. 167-172
    • Forrest, L.E.1    Burke, J.2    Bacic, S.3    Amor, D.J.4
  • 12
    • 77952746890 scopus 로고    scopus 로고
    • Genetic health professionals and the communication of genetic information in families: Practice during and after a genetic consultation
    • 20503321
    • Forrest, L. E., Delatycki, M. B., Curnow, L., Skene, L., & Aitken, M. (2010). Genetic health professionals and the communication of genetic information in families: practice during and after a genetic consultation. American Journal of Medical Genetics. Part A, 152A(6), 1458-1466.
    • (2010) American Journal of Medical Genetics. Part A , vol.152 , Issue.6 , pp. 1458-1466
    • Forrest, L.E.1    Delatycki, M.B.2    Curnow, L.3    Skene, L.4    Aitken, M.5
  • 13
    • 35948951100 scopus 로고    scopus 로고
    • Why we do what we do: Commentary on a reciprocal-engagement model of genetic counseling practice
    • 17926124 10.1007/s10897-007-9118-z
    • Fox, M., Weil, J., & Resta, R. (2007). Why we do what we do: commentary on a reciprocal-engagement model of genetic counseling practice. Journal of Genetic Counseling, 16(6), 729.
    • (2007) Journal of Genetic Counseling , vol.16 , Issue.6 , pp. 729
    • Fox, M.1    Weil, J.2    Resta, R.3
  • 14
    • 21544456087 scopus 로고    scopus 로고
    • Facilitating family communication about predictive genetic testing: Proband's perceptions
    • 15959644 10.1007/s10897-005-0412-3
    • Gaff, C., Collins, V., Symes, T., & Halliday, J. (2005). Facilitating family communication about predictive genetic testing: proband's perceptions. Journal of Genetic Counseling, 14(2), 133-140.
    • (2005) Journal of Genetic Counseling , vol.14 , Issue.2 , pp. 133-140
    • Gaff, C.1    Collins, V.2    Symes, T.3    Halliday, J.4
  • 15
    • 84863619665 scopus 로고    scopus 로고
    • Facilitating family communication about genetics in practice
    • C. Gaff C. Bylund (eds) Oxford University Press New York
    • Gaff, C., Galvin, K., & Bylund, C. (2010). Facilitating family communication about genetics in practice. In C. Gaff & C. Bylund (Eds.), Family communication about genetics. Theory and practice. New York: Oxford University Press.
    • (2010) Family Communication about Genetics. Theory and Practice
    • Gaff, C.1    Galvin, K.2    Bylund, C.3
  • 16
    • 21544458035 scopus 로고    scopus 로고
    • A practical account of autonomy: Why genetic counseling is especially well suited to the facilitation of informed autonomous decision making
    • 15959640 10.1007/s10897-005-4067-x
    • Hodgson, J., & Spriggs, M. (2005). A practical account of autonomy: why genetic counseling is especially well suited to the facilitation of informed autonomous decision making. Journal of Genetic Counseling, 14(2), 89-97.
    • (2005) Journal of Genetic Counseling , vol.14 , Issue.2 , pp. 89-97
    • Hodgson, J.1    Spriggs, M.2
  • 17
    • 0036886866 scopus 로고    scopus 로고
    • Comparison of genetic services with and without genetic registers: Access and attitudes to genetic counselling services among relatives of genetic clinic patients
    • 12471223 10.1136/jmg.39.12.e85 1:STN:280:DC%2BD38jht1emtg%3D%3D
    • Kerzin-Storrar, L., Wright, C., Williamson, P. R., Fryer, A., Njindou, A., Quarrell, O., et al. (2002). Comparison of genetic services with and without genetic registers: access and attitudes to genetic counselling services among relatives of genetic clinic patients. Journal of Medical Genetics, 39(12), e85.
    • (2002) Journal of Medical Genetics , vol.39 , Issue.12 , pp. 85
    • Kerzin-Storrar, L.1    Wright, C.2    Williamson, P.R.3    Fryer, A.4    Njindou, A.5    Quarrell, O.6
  • 18
    • 0030868986 scopus 로고    scopus 로고
    • Psychological aspects of genetic counseling. XI. Nondirectiveness revisited
    • 9382137 10.1002/(SICI)1096-8628(19971017)72:2<164: AID-AJMG8>3.0.CO;2-V 1:STN:280:DyaK1c%2FisFKlsQ%3D%3D
    • Kessler, S. (1997). Psychological aspects of genetic counseling. XI. Nondirectiveness revisited. American Journal of Medical Genetics, 72, 164-171.
    • (1997) American Journal of Medical Genetics , vol.72 , pp. 164-171
    • Kessler, S.1
  • 19
    • 21244473319 scopus 로고    scopus 로고
    • Genetic uptake in BRCA-mutation families is related to emotional and behavioral communication characteristics of index patients
    • 15951961 10.1007/s10689-004-7991-2
    • Landsbergen, K., Verhaak, C., Kraaimaat, F., & Hoogerbrugge, N. (2005). Genetic uptake in BRCA-mutation families is related to emotional and behavioral communication characteristics of index patients. Familial Cancer, 4(2), 115-119.
    • (2005) Familial Cancer , vol.4 , Issue.2 , pp. 115-119
    • Landsbergen, K.1    Verhaak, C.2    Kraaimaat, F.3    Hoogerbrugge, N.4
  • 20
    • 84856478157 scopus 로고    scopus 로고
    • Ethical perspectives
    • C. Gaff C. Bylund (eds) Oxford University Press New York
    • Leonard, S. J., & Newson, A. J. (2010). Ethical perspectives. In C. Gaff & C. Bylund (Eds.), Family communication about genetics (pp. 199-214). New York: Oxford University Press.
    • (2010) Family Communication about Genetics , pp. 199-214
    • Leonard, S.J.1    Newson, A.J.2
  • 21
    • 0034627216 scopus 로고    scopus 로고
    • Ethical debate - Results of genetic testing: When confidentiality conflicts with a duty to warn relatives
    • 11110744 10.1136/bmj.321.7274.1464 1:STN:280:DC%2BD3M7hsF2msQ%3D%3D
    • Leung, W. C. (2000). Ethical debate - results of genetic testing: when confidentiality conflicts with a duty to warn relatives. British Medical Journal, 321(7274), 1464-1465.
    • (2000) British Medical Journal , vol.321 , Issue.7274 , pp. 1464-1465
    • Leung, W.C.1
  • 22
    • 1342324941 scopus 로고    scopus 로고
    • Confidentiality and serious harm in genetics - Preserving the confidentiality of one patient and preventing harm to relatives
    • 14673475 10.1038/sj.ejhg.5201118
    • Lucassen, A., & Parker, M. (2004). Confidentiality and serious harm in genetics - preserving the confidentiality of one patient and preventing harm to relatives. European Journal of Human Genetics, 12(2), 93-97.
    • (2004) European Journal of Human Genetics , vol.12 , Issue.2 , pp. 93-97
    • Lucassen, A.1    Parker, M.2
  • 23
    • 79953760489 scopus 로고    scopus 로고
    • The genetic counseling outcome scale: A new patient-reported outcome measure for clinical genetics services
    • 21255005 10.1111/j.1399-0004.2011.01636.x 1:STN:280: DC%2BC3MvhtlGnsw%3D%3D
    • McAllister, M., Wood, A. M., Dunn, G., Shiloh, S., & Todd, C. (2011). The genetic counseling outcome scale: a new patient-reported outcome measure for clinical genetics services. Clinical Genetics, 79(5), 413-424.
    • (2011) Clinical Genetics , vol.79 , Issue.5 , pp. 413-424
    • McAllister, M.1    Wood, A.M.2    Dunn, G.3    Shiloh, S.4    Todd, C.5
  • 24
    • 33745025710 scopus 로고    scopus 로고
    • A new definition of genetic counseling: National Society of Genetic Counselors' task force report
    • 16761103 10.1007/s10897-005-9014-3
    • Resta, R., Biesecker, B. B., Bennett, R. L., Blum, S., Estabrooks Hahn, S., Strecker, M. N., et al. (2006). A new definition of genetic counseling: National Society of Genetic Counselors' task force report. Journal of Genetic Counseling, 15(2), 77-83.
    • (2006) Journal of Genetic Counseling , vol.15 , Issue.2 , pp. 77-83
    • Resta, R.1    Biesecker, B.B.2    Bennett, R.L.3    Blum, S.4    Estabrooks Hahn, S.5    Strecker, M.N.6
  • 25
    • 84856460719 scopus 로고    scopus 로고
    • Legal perspectives
    • C. Gaff C. Bylund (eds) Oxford University Press New York
    • Skene, L., & Forrest, L. E. (2010). Legal perspectives. In C. Gaff & C. Bylund (Eds.), Family communication about genetics (pp. 215-226). New York: Oxford University Press.
    • (2010) Family Communication about Genetics , pp. 215-226
    • Skene, L.1    Forrest, L.E.2
  • 26
    • 33747057716 scopus 로고    scopus 로고
    • Letting the family know: Balancing ethics and effectiveness when notifying relatives about genetic testing for a familial disorder
    • 16371501 10.1136/jmg.2005.039172 1:STN:280:DC%2BD28vmtVOmtw%3D%3D
    • Suthers, G. K., Armstrong, J., McCormack, J., & Trott, D. (2006). Letting the family know: balancing ethics and effectiveness when notifying relatives about genetic testing for a familial disorder. Journal of Medical Genetics, 43(8), 665-670.
    • (2006) Journal of Medical Genetics , vol.43 , Issue.8 , pp. 665-670
    • Suthers, G.K.1    Armstrong, J.2    McCormack, J.3    Trott, D.4
  • 28
    • 35948985063 scopus 로고    scopus 로고
    • Coming full circle: A reciprocal-engagement model of genetic counseling practice
    • 17934802 10.1007/s10897-007-9113-4
    • Veach, P. M., Bartels, D. M., & LeRoy, B. S. (2007). Coming full circle: a reciprocal-engagement model of genetic counseling practice. Journal of Genetic Counseling, 16, 713-728.
    • (2007) Journal of Genetic Counseling , vol.16 , pp. 713-728
    • Veach, P.M.1    Bartels, D.M.2    Leroy, B.S.3
  • 29
    • 0031216113 scopus 로고    scopus 로고
    • Respect for autonomy" in genetic counseling: An analysis and a proposal
    • 11655205 10.1023/A:1025628322278
    • White, M. T. (1997). "Respect for autonomy" in genetic counseling: an analysis and a proposal. Journal of Genetic Counseling, 6(3), 297-313.
    • (1997) Journal of Genetic Counseling , vol.6 , Issue.3 , pp. 297-313
    • White, M.T.1
  • 30
    • 0031929071 scopus 로고    scopus 로고
    • Decision-making through dialogue: Reconfiguring autonomy in genetic counseling
    • 9564083 10.1023/A:1009976119490 1:STN:280:DyaK1c3hvVensA%3D%3D
    • White, M. T. (1998). Decision-making through dialogue: reconfiguring autonomy in genetic counseling. Theoretical Medicine and Bioethics, 19(1), 5-19.
    • (1998) Theoretical Medicine and Bioethics , vol.19 , Issue.1 , pp. 5-19
    • White, M.T.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.