Person-centered care and quality of life of patients with dementia in long-term care facilities

Psychiatry Research

Volumn 205, Issue 1-2, 2013, Pages 103-108

  Terada, Seishi ^a   Oshima, Etsuko ^a   Yokota, Osamu ^a   Ikeda, Chikako ^a   Nagao, Shigeto ^a   Takeda, Naoya ^a   Sasaki, Ken ^b   Uchitomi, Yosuke ^a  

^a OKAYAMA UNIVERSITY   (Japan)

^b Kinoko Espoir Hospital   (Japan)

Author keywords

Activities of daily living (ADL); Cognitive function; Dementia; Person centered care; Quality of life (QOL)

Indexed keywords

AGE; AGED; ARTICLE; COGNITION; DAILY LIFE ACTIVITY; DEMENTIA; FEMALE; HOSPITAL CARE; HUMAN; LONG TERM CARE; MAJOR CLINICAL STUDY; MALE; NURSING HOME; PATIENT CARE; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE;

ACTIVITIES OF DAILY LIVING; AGED; AGED, 80 AND OVER; CAREGIVERS; DEMENTIA; FEMALE; HOMES FOR THE AGED; HOSPITALS; HUMANS; LONG-TERM CARE; MALE; PATIENT-CENTERED CARE; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 84872602299     PISSN: 01651781     EISSN: 18727123     Source Type: Journal    
DOI: 10.1016/j.psychres.2012.08.028     Document Type: Article

References (34)

1. American Psychiatric Association Diagnostic and Statistical Manual of Mental Disorders 1994, APA, Washington, DC. 4th ed.
2. Brod M., Stewart A.L., Sands L., Walton P. Conceptualization and measurement of quality of life in dementia: the dementia quality of life instrument (DQoL). Gerontologist 1999, 39:25-35.
3. Cronbach L., Meehl P. Construct validity in psychological tests. Psychological Bulletin 1955, 52:281-302.
4. Dewing J. Dementia. Part 1: Person-centred care. Professional Nurse 1999, 14:585-588.
5. Edelman P., Fulton B.R., Kuhn D., Chang C.H. A comparison of three methods of measuring dementia-specific quality of life: perspectives of residents, staff, and observers. Gerontologist 2005, 45(Suppl. 1):27-36.
6. Ettema T.P., Dröes R.M., de Lange J., Mellenbergh G.J., Ribbe M.W. QUALIDEM: development and evaluation of a dementia specific quality of life instrument. Scalability, reliability and internal structure. International Journal of Geriatric Psychiatry 2007, 22:549-556.
7. Hoe J., Hancock G., Livingston G., Orrell M. Quality of life of people with dementia in residential care homes. British Journal of Psychiatry 2006, 188:460-464.
8. Hoe J., Katona C., Orrell M., Livingston G. Quality of life in dementia: care recipient and caregiver perceptions of quality of life in dementia: the LASER-AD study. International Journal of Geriatric Psychiatry 2007, 22:1031-1036.
9. Hoe J., Katona C., Roch B., Livingston G. Use of the QOL-AD for measuring quality of life in people with severe dementia-the LASER-AD study. Age and Ageing 2005, 34:130-135.
10. Hughes C., Lapane K., Kerse N. Prescribing for older people in nursing homes: challenges for the future. International Journal of Older People Nursing 2011, 6:63-70.
11. Hurt C., Bhattacharyya S., Burns A., Camus V., Liperoti R., Marriott A., Nobili F., Robert P., Tsolaki M., Vellas B., Verhey F., Byrne E.J. Patient and caregiver perspectives of quality of life in dementia. An investigation of the relationship to behavioural and psychological symptoms in dementia. Dementia and Geriatric Cognitive Disorders 2008, 26:138-146.
12. Kitwood T. Person and process in dementia. International Journal of Geriatric Psychiatry 1993, 8:541-545.
13. Kitwood T. Dementia Reconsidered: The Person Comes First 1997, McGraw-Hill, Maidenhead, UK.
14. Kurz X., Scuvee-Moreau J., Vernooij-Dassen M., Dresse A. Cognitive impairment, dementia and quality of life in patients and caregivers. Acta Neurologica Belgica 2003, 103:24-34.
15. Logsdon R.G., Gibbons L.E., McCurry S.M., Teri L. Assessing quality of life in older adults with cognitive impairment. Psychosomatic Medicine 2002, 64:510-519.
16. McKhann G., Drachman D., Folstein M., Katzman R., Price D., Stadlan E.M. Clinical diagnosis of Alzheimer's disease: report of the NINCDS-ADRDA Work Group under the auspices of Department of Health and Human Services Task Force on Alzheimer's disease. Neurology 1984, 34:939-944.
17. Murray L.M., Boyd S. Protecting personhood and achieving quality of life for older adults with dementia in the U.S. health care system. Journal of Aging and Health 2009, 21:350-373.
18. Nishimura T., Kobayashi T., Hariguchi S., Takeda M., Fukunaga T., Inoue O., Kondo H., Niigawa H., Tanaka S., Yamashita M. Scales for mental state and daily living activities for the elderly: clinical behavioral scales for assessing demented patients. International Psychogeriatrics 1993, 5:117-134.
19. Normann H.K., Asplund K., Norberg A. Attitudes of registered nurses towards patients with severe dementia. Journal of Clinical Nursing 1999, 8:353-359.
20. Post S.G. Key issues in the ethics of dementia care. Neurologic Clinics 2000, 18:1011-1022.
21. Pritchard E. Dementia. Part 2: Person-centred assessment. Professional Nurse 1999, 14:655-660.
22. Ready R.E., Ott B.R. Quality of life measures for dementia. Health and Quality of Life Outcomes 2003, 1:11.
23. Román G.C., Tatemichi T.K., Erkinjuntti T., Cummings J.L., Masdeu J.C., Garcia J.H., Amaducci L., Orgogozo J.M., Brun A., Hofman A., Moody D.M., O'Brien M.D., Yamaguchi T., Grafman J., Drayer B.P., Bennett D.A., Fisher M., Ogata J., Kokmen E., Bermejo F., Wolf P.A., Gorelick P.B., Bick K.L., Pajeau A.K., Bell M.A., DeCarli C., Culebras A., Korczyn A.D., Bogousslavsky J., Hartmann A., Scheinberg P. Vascular dementia: diagnostic criteria for research studies. Report of the NINDS-AIREN International Workshop. Neurology 1993, 43:250-260.
24. Sabat S.R. Capacity for decision-making in Alzheimer's disease: selfhood, positioning and semiotic people. Australian and New Zealand Journal of Psychiatry 2005, 39:1030-1035.
25. Schiffczyk C., Romero B., Jonas C., Lahmeyer C., Müller F., Riepe M.W. Generic quality of life assessment in dementia patients: a prospective cohort study. BMC Neurology 2010, 10:48.
26. Sjögren K., Lindkvist M., Sandman P.O., Zingmark K., Edvardsson D. Psychometric evaluation of the Swedish version of the Person-Centered Care Assessment Tool (P-CAT). International Psychogeriatrics 2011, 24:406-415.
27. Snow A.L., Dani R., Souchek J., Sullivan G., Ashton C.M., Kunik M.E. Comorbid psychosocial symptoms and quality of life in patients with dementia. American Journal of Geriatric Psychiatry 2005, 13:393-401.
28. Spector A., Orrell M. Quality of life (QoL) in dementia: a comparison of the perceptions of people with dementia and care staff in residential homes. Alzheimer Disease & Associated Disorders 2006, 20:160-165.
29. Terada S., Ishizu H., Fujisawa Y., Yamamoto S., Fujita D., Yamamoto T., Hirao A., Tokura J., Katayama K., Ikuta F., Nakaji R., Ohnishi M., Nishinaka T., Haraguchi T., Yokota O., Namba T., Sato S., Nagao T., Iguchi K., Nakashima Y., Sasaki K., Kuroda S. A preliminary questionnaire survey on quality of life in patients with dementia. Rinsho Seishin Igaku 2001, 30:1105-1120. (in Japanese).
30. Terada S., Ishizu H., Fujisawa Y., Fujita D., Yokota O., Nakashima H., Haraguchi T., Ishihara T., Yamamoto S., Sasaki K., Nakashima Y., Kuroda S. Development and evaluation of a health-related quality of life questionnaire for the elderly with dementia in Japan. International Journal of Geriatric Psychiatry 2002, 17:851-858.
31. Van Der Steen J.T., Van Soest-Poortvliet M.C., Achterberg W.P., Ribbe M.W., De Vet H.C. Family perceptions of wishes of dementia patients regarding end-of-life care. International Journal of Geriatric Psychiatry 2011, 26:217-220.
32. Winzelberg G.S., Williams C.S., Preisser J.S., Zimmerman S., Sloane P.D. Factors associated with nursing assistant quality-of-life ratings for residents with dementia in long-term care facilities. Gerontologist 2005, 45(Suppl. 1):106-114.
33. Zimmerman S., Sloane P.D., Heck E., Maslow K., Schulz R. Introduction: dementia care and quality of life in assisted living and nursing homes. Gerontologist 2005, 45(Suppl. 1):5-7.
34. Zimmerman S., Sloane P.D., Williams C.S., Reed P.S., Preisser J.S., Eckert J.K., Boustani M., Dobbs D. Dementia care and quality of life in assisted living and nursing homes. Gerontologist 2005, 45(Suppl. 1):133-146.