Misunderstandings about prognosis: An approach for palliative care consultants when the patient does not seem to understand what was said

Journal of Palliative Medicine

Volumn 16, Issue 1, 2013, Pages 91-95

  Jacobsen, Juliet ^a,c   Thomas, Jane Delima ^b,c   Jackson, Vicki A ^a,c  

^a MASSACHUSETTS GENERAL HOSPITAL   (United States)

^b BRIGHAM AND WOMEN S HOSPITAL   (United States)

^c HARVARD MEDICAL SCHOOL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; AVOIDANCE BEHAVIOR; BRAIN METASTASIS; CANCER PALLIATIVE THERAPY; CASE REPORT; CONFUSION; CONSULTATION; COPING BEHAVIOR; DIFFERENTIAL DIAGNOSIS; DOCTOR PATIENT RELATION; HOPE; HUMAN; INTERPERSONAL COMMUNICATION; MALE; MEDICAL INFORMATION; PALLIATIVE THERAPY; PATIENT ATTITUDE; PROGNOSIS; TREATMENT PLANNING; VISCERAL METASTASIS;

ADAPTATION, PSYCHOLOGICAL; ADULT; COMMUNICATION BARRIERS; COMPREHENSION; HUMANS; INTERPROFESSIONAL RELATIONS; LUNG NEOPLASMS; MALE; PALLIATIVE CARE; PROBLEM SOLVING; PROFESSIONAL-PATIENT RELATIONS; PROGNOSIS; REFERRAL AND CONSULTATION; TERMINALLY ILL;

EID: 84872392910     PISSN: 10966218     EISSN: 15577740     Source Type: Journal    
DOI: 10.1089/jpm.2012.0142     Document Type: Article

References (29)

1. Deep KS, Griffith CH, Wilson JF: Discussing preferences for cardiopulmonary resuscitation: What do resident physicians and their hospitalized patients think was decided? Patient Educ Couns 2008;72(1):20-25.
2. Jenkins V, Solis-Trapala I, Langridge C, Catt S, Talbot DC, Fallowfield LJ: What oncologists believe they said and what patients believe they heard: An analysis of phase I trial discussions. J Clin Oncol 2011;29(1):61-68.
3. Fried TR, Bradley EH, O'Leary J: Prognosis communication in serious illness: Perceptions of older patients, caregivers, and clinicians. J Am Geriatr Soc 2003;51(10):1398-1403.
4. Eidinger RN, Schapira DV: Cancer patients' insight into their treatment, prognosis, and unconventional therapies. Cancer 1984;53(12):2736-2740.
5. Mackillop WJ, Stewart WE, Ginsburg AD, Stewart SS: Cancer patients' perceptions of their disease and its treatment. Br J Cancer 1988;58(3):355-358.
6. Temel JS, Greer JA, Admane S, Jackson VA, Billings JA, Dahlin CM, et al.: Illness understanding in patients with advanced lung cancer. J Clin Oncol 2009;27(15s).
7. Stone D, Patton B, Heen S, Fisher R: Difficult Conversations: How to Discuss What Matters Most. New York: Penguin Group; 1999.
8. Goold SD, Williams B, Arnold RM: Conflicts regarding decisions to limit treatment: A differential diagnosis. JAMA 2000;283(7):909-914.
9. Jedlicka-Kohler I, Gotz M, Eichler I: Parents' recollection of the initial communication of the diagnosis of cystic fibrosis. Pediatrics 1996;97(2):204-209.
10. Jansen J, Butow PN, van Weert JC, van Dulmen S, Devine RJ, Heeren TJ, et al.: Does age really matter? Recall of information presented to newly referred patients with cancer. J Clin Oncol 2008;26(33):5450-5457.
11. West HF, Baile WF: "Tell me what you understand:" The importance of checking for patient understanding. J Support Oncol 2010;8(5):216-218.
12. Chan WC: Being aware of the prognosis: How does it relate to palliative care patients' anxiety and communication difficulty with family members in the Hong Kong Chinese context? J Palliat Med 2011;14(9):997-1003.
13. Kagawa-Singer M, Blackhall LJ: Negotiating cross-cultural issues at the end of life: "You got to go where he lives." JAMA 2001;286(23):2993- 3001.
14. Chochinov HM, Tataryn DJ, Wilson KG, Ennis M, Lander S: Prognostic awareness and the terminally ill. Psychosomatics 2000;41(6):500-504.
15. Jacobsen J, Jackson VA. A communication approach for oncologists: Understanding patient coping and communicating about bad news, palliative care, and hospice. J Natl Compr Canc Netw 2009;7(4):475-480.
16. Weisman A: On Dying and Denying. New York: Behavioral Publications; 1972.
17. Schenker Y, Smith AK, Arnold RM, Fernandez A: "Her husband doesn't speak much English:" Conducting a family meeting with an interpreter. J Palliat Med 2011;22.
18. Castro CM, Wilson C, Wang F, Schillinger D: Babel babble: Physicians' use of unclarified medical jargon with patients. Am J Health Behav 2007;31(S1):S85-S95.
19. Deuster L, Christopher S, Donovan J, Farrell M: A method to quantify residents' jargon use during counseling of standardized patients about cancer screening. J Gen Intern Med 2008;23(12):1947-1952.
20. Wada T, Wada M, Wada M, Onishi H: Characteristics, interventions, and outcomes of misdiagnosed delirium in cancer patients. Palliat Support Care 2010;8(2):125-131.
21. Marchington KL, Carrier L, Lawlor PG: Delirium masquerading as depression. Palliat Support Care 2012;10(1):59-62.
22. Lamont EB, Christakis NA: Complexities in prognostication in advanced cancer: "To help them live their lives the way they want to." JAMA 2003;290(1):98-104.
23. Christakis NA, Lamont EB: Extent and determinants of error in doctors' prognoses in terminally ill patients: Prospective cohort study. BMJ 2000;320(7233):469-472.
24. Selby D, Chakraborty A, Lilien T, Stacey E, Zhang L, Myers J: Clinician accuracy when estimating survival duration: The role of the patient's performance status and time-based prognostic categories. J Pain SymptomManage 2011;42(4):578-588.
25. Von Roenn JH, von Gunten CF: Setting goals to maintain hope. J Clin Oncol 2003;21(3):570-574.
26. Evans WG, Tulsky JA, Back AL, Arnold RM: Communication at times of transitions: How to help patients cope with loss and re-define hope. Cancer J 2006;12(5):417-424.
27. Curtis JR, Engelberg R, Young JP, Vig LK, Reinke LF, Wenrich MD, et al.: An approach to understanding the interaction of hope and desire for explicit prognostic information among individuals with severe chronic obstructive pulmonary disease or advanced cancer. J Palliat Med 2008; 11(4):610-620.
28. Gordon EJ, Daugherty CK: Hitting you over the head: Oncologists' disclosure of prognosis to advanced cancer patients. Bioethics 2003;17(2):142-168.
29. Maciejewski PK, Prigerson HG: Uncomfortably numb: How emotional numbness modifies the effect of end-of-life discussions on care. J Pain Symptom Manage 2012 (Epub ahead of print).