Rehabilitation of motor neuron disease

Handbook of Clinical Neurology

Volumn 110, Issue , 2013, Pages 483-498

  Simmons, Zachary ^a  

^a PENN STATE COLLEGE OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84872311957     PISSN: 00729752     EISSN: None     Source Type: Book Series    
DOI: 10.1016/B978-0-444-52901-5.00041-1     Document Type: Chapter

References (179)

1. Aboussouan L.S., Khan S.U., Meeker D.P., et al. Effect of noninvasive positive-pressure ventilation on survival in amyotrophic lateral sclerosis. Ann Intern Med 1997, 127:450-453.
2. Aboussouan L.S., Khan S.U., Banerjee M., et al. Objective measures of the efficacy of noninvasive positive-pressure ventilation in amyotrophic lateral sclerosis. Muscle Nerve 2001, 24:403-409.
3. Abramson N. Quality of life: who can make the judgment?. Am J Med 1996, 100:365-366.
4. Andersen G., Vestergaard K., Riis J.O. Citalopram for post-stroke pathological crying. Lancet 1993, 342:837-839.
5. Andersen P.M., Borasio G.D., Dengler R., et al. EFNS task force on management of amyotrophic lateral sclerosis: guidelines for diagnosing and clinical care of patients and relatives. Eur J Neurol 2005, 12:921-938.
6. Ashworth N.L., Satkunam L.E., Deforge D. Treatment for spasticity in amyotrophic lateral sclerosis/motor neuron disease. Cochrane Database Syst Rev 2008, 2. CD004156.
7. Averill A.J., Kasarskis E.J., Segerstrom S.C. Psychological health in patients with amyotrophic lateral sclerosis. Amyotroph Lateral Scler 2007, 8:243-254.
8. Bach J.R. Amyotrophic lateral sclerosis: prolongation of life by noninvasive respiratory aids. Chest 2002, 122:92-98.
9. Beck A.T., Brown G., Berchick R.J., et al. Relationship between hopelessness and ultimate suicide: a replication with psychiatric outpatients. Am J Psychiatry 1990, 147:190-195.
10. Benditt J.O., Smith T.S., Tonelli M.R. Empowering the individual with ALS at the end-of-life: disease-specific advance care planning. Muscle Nerve 2001, 24:1706-1709.
11. Bensimon G., Lacomblez L., Meininger V., et al. A controlled trial of riluzole in amyotrophic lateral sclerosis. N Engl J Med 1994, 330:585-591.
12. Berry S.R., Singer P.A. The cancer specific advance directive. Cancer 1998, 82:1570-1577.
13. Beukelman D.R., Fager S., Ball L., et al. AAC for adults with acquired neurological conditions: a review. Augment Altern Commun 2007, 23:230-242.
14. Bocker F.M., Seibold I., Neundorfer B. Disability in everyday tasks and subjective status of patients with advanced amyotrophic lateral sclerosis. Fortschr Neurol Psychiatr 1990, 58:224-236.
15. Bohannon R.W. Results of resistance exercise on a patient with amyotrophic lateral sclerosis: a case report. Phys Ther 1983, 63:965-968.
16. Boitano L.J., Jordan T., Benditt J.O. Noninvasive ventilation allows gastrostomy tube placement in patients with advanced ALS. Neurology 2001, 56:413-414.
17. Borg M., Hirst F. The role of radiation therapy in the management of sialorrhea. Int J Radiat Oncol Biol Phys 1998, 41:1113-1119.
18. Bortolotti M. Laryngospasm and reflex central apnoea caused by aspiration of reflexed gastric content in adults. Gut 1989, 30:233-238.
19. Bourke S.C., Bullock R.E., Williams T.L., et al. Noninvasive ventilation in ALS: indications and effect on quality of life. Neurology 2003, 61:171-177.
20. Bradley W.G., Anderson F., Bromberg M., et al. Current management of ALS: comparison of the ALS CARE Database and the AAN Practice Parameter. Neurology 2001, 57:500-504.
21. Brady M.J., Peterman A.H., Fitchett G., et al. A case for including spirituality in quality of life measurement in oncology. Psychooncology 1999, 8:417-428.
22. Bremer B.A., Walsh S.M., Simmons Z., et al. Factors supporting quality of life over time for individuals with amyotrophic lateral sclerosis: the role of positive self-perception and religiosity. Ann Behav Med 2004, 28:119-125.
23. Bromberg M.B., Forshew D.A. Comparison of instruments addressing quality of life in patients with ALS and their caregivers. Neurology 2002, 58:320-322.
24. Brooke M.M., de Lateur B.J., Diana-Rigby G.C., et al. Shoulder subluxation in hemiplegia: effects of three different supports. Arch Phys Med Rehabil 1991, 72:582-586.
25. Brooks B.R., Thisted R.A., Appel S.H., et al. Treatment of pseudobulbar affect in ALS with dextromethorphan/quinidine: a randomized trial. Neurology 2004, 63:1364-1370.
26. Brownlee A., Palovcak M. The role of augmentative communication devices in the medical management of ALS. Neurorehabilitation 2007, 22:445-450.
27. Bungener C., Piquard A., Pradat P.-F., et al. Psychopathology in amyotrophic lateral sclerosis: a preliminary study with 27 patients. Amyotroph Lateral Scler Other Motor Neuron Disord 2005, 6:221-225.
28. Butz M., Wollinsky K.H., Wiedemuth-Catrinescu U., et al. Longitudinal effects of noninvasive positive-pressure ventilation in patients with amyotrophic lateral sclerosis. Am J Phys Med Rehabil 2003, 82:597-604.
29. Carlson D. Speaking from experience: ALS patients can lead happy lives. RN 1995, 58:10.
30. Caroscio J.T., Cohen J.A., Gudesblatt M. Amitriptyline in amyotrophic lateral sclerosis. N Engl J Med 1985, 313:1478.
31. Carter G.T., Miller R.G. Comprehensive management of amyotrophic lateral sclerosis. Phys Med Rehabil Clin N Am 1998, 9:271-284.
32. Carter G.T., Weiss M.D., Lou J.-S. Modafinil to treat fatigue in amyotrophic lateral sclerosis: an open label pilot study. Am J Hosp Palliat Care 2005, 22:55-59.
33. Chen L.K., Mann W.C., Tomita M.R., et al. An evaluation of reachers for use by older persons with disabilities. Assist Technol 1998, 10:113-125.
34. Chio A., Finocchiaro E., Meineri P., et al. Safety and factors related to survival after percutaneous endoscopic gastrostomy in ALS. Neurology 1999, 53:1123.
35. Chio A., Galletti R., Finocchiaro C., et al. Percutaneous radiological gastrostomy: a safe and effective method of nutritional tube placement in advanced ALS. J Neurol Neurosurg Psychiatry 2004, 75:645-647.
36. Costa J., Rocha M.L., Ferreira J., et al. Botulinum toxin type-B improves sialorrhea and quality of life in bulbar-onset amyotrophic lateral sclerosis. J Neurol 2008, 255:545-550.
37. Cotton S.P., Levine E.G., Fitzpatrick C.M., et al. Exploring the relationships among spiritual well-being, quality of life, and psychological adjustment in women with breast cancer. Psychooncology 1999, 8:429-438.
38. Dal Bello-Haas V., Florence J.M., Kloos A.D., et al. A randomized controlled trial of resistance exercise in individuals with ALS. Neurology 2007, 68:2003-2007.
39. Damian M.S., Gorlach A., Schmidt F., et al. Modafinil for excessive daytime sleepiness in myotonic dystrophy. Neurology 2001, 56:794-796.
40. Desport J.C., Preux P.M., Truong T.C., et al. Nutritional status is a prognostic factor for survival in ALS patient. Neurology 1999, 53:1059-1063.
41. Desport J.C., Preux P.M., Truong C.T., et al. Nutritional assessment and survival in ALS patients. Amyotroph Lateral Scler Other Motor Neuron Disord 2000, 1:91-96.
42. Dieruf K., Poole J., Gregory C., et al. Comparative effectiveness of the givmohr sling in subjects with flaccid upper limbs on subluxation through radiologic analysis. Arch Phys Med Rehabil 2005, 86:2324-2329.
43. Doyle M., Phillips B. Trends in augmentative and alternative communication use by individuals with amyotrophic lateral sclerosis. Augment Altern Commun 2001, 17:167-178.
44. Drory V.E., Goltsman E., Reznik G., et al. The value of muscle exercise in patients with amyotrophic lateral sclerosis. J Neurol Sci 2001, 191:133-137.
45. Elman L.B., Grossman M. Neuropsychiatric features of amyotrophic lateral sclerosis. Neurorehabilitation 2007, 22:425-429.
46. Fang F., Valdimarsdottir U., Furst C.J., et al. Suicide among patients with amyotrophic lateral sclerosis. Brain 2008, 131:2729-2733.
47. Fanos J.H., Gelinas D.F., Foster R.S., et al. Hope in palliative care: from narcissism to self-transcendence in amyotrophic lateral sclerosis. J Palliat Med 2008, 11:470-475.
48. Felgoise S.H., Stewart J.L., Bremer B.A., et al. The SEIQoL-DW for assessing quality of life in ALS: strengths and limitations. Amyotroph Lateral Scler 2009, 10:456-462.
49. Finsterer J. Bulbar and spinal muscular atrophy (Kennedy's disease): a review. Eur J Neurol 2009, 16:556-561.
50. Fitting J.-W., Paillex R., Hirt L., et al. Sniff nasal pressure: a sensitive respiratory test to assess progression of amyotrophic lateral sclerosis. Ann Neurol 1999, 46:887-893.
51. Flaherty-Craig C., Eslinger P., Stephens B., et al. A rapid screening battery to identify frontal dysfunction in patients with ALS. Neurology 2006, 67:2070-2072.
52. Foley M.P., Prax B., Crowell R., et al. Effects of assistive devices on cardiorespiratory demands in older adults. Phys Ther 1996, 76:1314-1319.
53. Forshew D.A., Bromberg M.B. A survey of clinicians' practice in the symptomatic treatment of ALS. Amyotroph Lateral Scler Other Motor Neuron Disord 2003, 4:258-263.
54. Fosarelli P. Medicine, spirituality, and patient care. JAMA 2008, 300:836-838.
55. Francis K., Bach J.R., DeLisa J.A. Evaluation and rehabilitation of patients with adult motor neuron disease. Arch Phys Med Rehabil 1999, 80:951-963.
56. Fuller Y., Trombly C.A. Effects of object characteristics on female grasp patterns. Am J Occup Ther 1997, 51:481-489.
57. Ganzini L., Johnston W.S., McFarland B.H., et al. Attitudes of patients with amyotrophic lateral sclerosis and their care givers toward assisted suicide. N Engl J Med 1998, 339:967-973.
58. Ganzini L., Johnston W.S., Silveira M.J. The final month of life in patients with ALS. Neurology 2002, 59:428-431.
59. Gauthier A., Vignola A., Calvo A., et al. A longitudinal study of qualify of life and depression in ALS patient-caregiver couples. Neurology 2007, 68:923-926.
60. Gay P.C., Edmonds L.C. Severe hypercapnia after low-flow oxygen therapy in patients with neuromuscular disease and diaphragmatic dysfunction. Mayo Clin Proc 1995, 70:327-330.
61. Gelinas D.F., O'Connor P., Miller R.G. Quality of life for ventilator-dependent ALS patients and their caregivers. J Neurol Sci 1998, 160:S134-S136.
62. Giess R., Naumann M., Werner E., et al. Injections of botulinum toxin A into the salivary glands improve sialorrhea in amyotrophic lateral sclerosis. J Neurol Neurosurg Psychiatry 2000, 69:121-123.
63. Gill T.M., Feinstein A.R. A critical appraisal of the quality of quality-of-life measurements. JAMA 1994, 272:619-626.
64. Golaszewski A. Nutrition throughout the course of ALS. Neurorehabilitation 2007, 22:431-434.
65. Goldstein L.H., Adamson M., Jeffrey L., et al. The psychological impact of MND on patients and carers. J Neurol Sci 1998, 160:114-121.
66. Goldstein L.H., Atkins L., Leigh P.N. Correlates of quality of life in people with motor neuron disease (MND). Amyotroph Lateral Scler Other Motor Neuron Disord 2002, 3:123-129.
67. Goldstein L.H., Atkins L., Landau S., et al. Predictors of psychological distress in carers of people with amyotrophic lateral sclerosis: a longitudinal study. Psychol Med 2006, 36:865-875.
68. Gordon P.H., Mitsumoto H. Symptomatic therapy and palliative aspects of clinical care. Motor Neuron Disorders and Related Diseases 2007, Vol. 82:389-424. Elsevier, Amsterdam. 3rd edn. A.A. Eisen, P.J. Shaw (Eds.).
69. Gormley M.E., O'Brien C.E., Yablon S.A. A clinical overview of treatment decisions in the management of spasticity. Muscle Nerve 1997, S6:14-20.
70. Grace J., Malloy P.F. Frontal Systems Behavior Scale Professional Manual 2001, Psychological Assessment Resources, Inc., Lutz, FL.
71. Gregory S., Siderowf A., Golaszewski A.L., et al. Gastrostomy insertion in ALS patients with low vital capacity: respiratory support and survival. Neurology 2002, 58:485-487.
72. Grossman A.B., Woolley-Levine S., Bradley, et al. Detecting neurobehavioral changes in amyotrophic lateral sclerosis. Amyotroph Lateral Scler 2007, 8:56-61.
73. Harriman M., Morrison M., Hay J., et al. Use of radiotherapy for control of sialorrhea in patients with amyotrophic lateral sclerosis. J Otolaryngol 2001, 30:242-245.
74. Hayashi H., Oppenheimer E.A. ALS patients on TPPV: totally locked-in state, neurologic findings and ethical implications. Neurology 2003, 61:135-137.
75. Hecht M.J., Graesel E., Tigges S., et al. Burden of care in amyotrophic lateral sclerosis. J Palliat Med 2003, 17:327-333.
76. Hogg K.E., Goldstein L.H., Leigh P.N. The psychological impact of motor neurone disease. Psychol Med 1994, 24:625-632.
77. Iannaccone S., Ferini-Strambi L. Pharmacologic treatment of emotional lability. Clin Neuropharmacol 1996, 19:532-535.
78. Jackson C.E., Rosenfeld J., Moore D.H., et al. A preliminary evaluation of a prospective study of pulmonary function studies and symptoms of hypoventilation in ALS/MND patients. J Neurol Sci 2001, 191:75-78.
79. Jackson C.E., Gronseth G., Rosenfeld J., et al. Randomized double-blind study of botulinum toxin type B for sialorrhea in ALS patients. Muscle Nerve 2009, 39:137-143.
80. Jenkinson C., Fitzpatrick R., Swash M., et al. The ALS health profile study: quality of life of amyotrophic lateral sclerosis patients and carers in Europe. J Neurol 2000, 247:835-840.
81. Johnstone B., Franklin K.L., Yoon D.P., et al. Relationships among religiousness, spirituality, and health for individuals with stroke. J Clin Psychol Med Settings 2008, 15:308-313.
82. Kanaan N., Sawaya R. Nocturnal leg cramps: clinically mysterious and painful: but manageable. Geriatrics 2001, 56(34):39-42.
83. Kaub-Wittemer D., von Steinbuchel N., Wasner M., et al. Quality of life and psychosocial issues in ventilated patients with amyotrophic lateral sclerosis and their caregivers. J Pain Symptom Manage 2003, 26:890-896.
84. Keresz A., Davidson W., Fox H. Frontal behavioral inventory: diagnostic criteria for frontal lobe dementia. Can J Neurol Sci 1997, 24:29-36.
85. Kilmer D.D. Response to resistive strengthening exercise training in humans with neuromuscular disease. Am J Phys Med Rehabil 2002, 81:S121-S126.
86. King D.E., Bushwick B. Beliefs and attitudes of hospital inpatients about faith healing and prayer. J Fam Pract 1994, 39:349-352.
87. Kleopa K.A., Sherman M., Neal B., et al. Bipap improves survival and rate of pulmonary function decline in patients with ALS. J Neurol Sci 1999, 164:82-88.
88. Kling C., Persson A., Gardulf A. The ADL ability and use of technical aids in persons with late effects of polio. Am J Occup Ther 2002, 56:457-461.
89. Krivickas L.S. Exercise in neuromuscular disease. J Clin Neuromuscul Dis 2003, 5:29-39.
90. Krivickas L.S., Shockley L., Mitsumoto H. Home care of patients with amyotrophic lateral sclerosis (ALS). J Neurol Sci 1997, 152:S82-S89.
91. Lacomblez L., Bensimon G., Leigh P.N., et al. Dose-ranging study of riluzole in amyotrophic lateral sclerosis. Lancet 1996, 347:1425-1431.
92. Lauterbach E.C., Schweri M.M. Amelioration of pseudobulbar affect by fluoxetine: possible alteration of dopamine-related pathophysiology by a selective serotonin reuptake inhibitor. J Clin Psychopharmacol 1991, 11:392-393.
93. Lawson I.R., MacLeod R.D.M. The use of imipramine (" Tofranil") and other drugs in organic emotionalism. Br J Psychiatry 1969, 115:281-285.
94. Lewis M., Rushanan S. The role of physical therapy and occupational therapy in the treatment of amyotrophic lateral sclerosis. Neurorehabilitation 2007, 22:451-461.
95. Lillo P., Mioshi E., Zoing M.C., et al. How common are behavioural changes in amyotrophic lateral sclerosis?. Amyotroph Lateral Scler 2011, 12: 45--51.
96. Lomen-Hoerth C., Murphy J., Langmore S., et al. Are amyotrophic lateral sclerosis patients cognitively normal?. Neurology 2003, 60:1094-1097.
97. Lou J.-S., Reeves A., Benice T., et al. Fatigue and depression are associated with poor quality of life in ALS. Neurology 2003, 60:122-123.
98. Lyall R.A., Donaldson N., Fleming T., et al. A prospective study of quality of life in ALS patients treated with noninvasive ventilation. Neurology 2001, 57:153-156.
99. Mackenzie I.R.A., Rademakers R., Neumann M. TDP-43 and FUS in amyotrophic lateral sclerosis and frontotemporal dementia. Lancet Neurol 2010, 9:995-1007.
100. Mandler R.N., Anderson F.A., Miller R.G., et al. The ALS patient care database: insights into end-of-life care in ALS. Amyotroph Lateral Scler Other Motor Neuron Disord 2001, 2:203-208.
101. Marquardt G., Lorenz R. Intrathecal baclofen for intractable spasticity in amyotrophic lateral sclerosis. J Neurol 1999, 246:619-620.
102. Mathus-Vliegen L.M.H., Louwerse L.S., Merkus M.P., et al. Percutaneous endoscopic gastrostomy in patients with amyotrophic lateral sclerosis and impaired pulmonary function. Gastrointest Endosc 1994, 40:463-469.
103. Maxfield C.L., Pohl J.M., Colling K. Advance directives: a guide for patient discussions. Nurse Pract 2003, 28:38-47.
104. Mazzini L., Corra T., Zaccala M., et al. Percutaneous endoscopic gastrostomy and enteral nutrition in amyotrophic lateral sclerosis. J Neurol 1995, 242:695-698.
105. McDonald E.R., Hillel A., Wiedenfeld S.A. Evaluation of the psychological status of ventilatory-supported patients with ALS/MND. Palliat Med 1996, 10:35-41.
106. Meijer J.-W.G., van Kuijk A.A., Guerts A.C.H., et al. Acute deterioration of bulbar function after botulinum toxin treatment for sialorrhea in amyotrophic lateral sclerosis. Am J Phys Med Rehabil 2008, 87:321-324.
107. Mezaki T., Kaji R., Kohara N., et al. Development of general weakness in a patient with amyotrophic lateral sclerosis after focal botulinum toxin injection. Neurology 1996, 46:845-846.
108. Miller R.G. Role of fatigue in limiting physical activities in humans with neuromuscular diseases. Am J Phys Med Rehabil 2002, 81:S99-S107.
109. Miller R.G., Rosenberg J.A., Gelinas D.F., et al. Practice parameter: the care of the patient with amyotrophic lateral sclerosis (an evidence-based review). Neurology 1999, 52:1311-1323.
110. Minkoff K., Bergman E., Beck A.T., et al. Hopelessness, depression, and attempted suicide. Am J Psychiatry 1973, 130:455-459.
111. Mitsumoto H. Caregiver assessment: summary. Amyotroph Lateral Scler Other Motor Neuron Disord 2002, 3:S31-S34.
112. Mitsumoto H., Chad D.A., Pioro E.P. Amyotrophic Lateral Sclerosis 1998, FA Davis, Philadelphia.
113. Mitsumoto H., Davidson M., Moore D., et al. Percutaneous endoscopic gastrostomy (PEG) in patients with ALS and bulbar dysfunction. Amyotroph Lateral Scler Other Motor Neuron Disord 2003, 4:177-185.
114. Moore M.J., Moore P.B., Shaw P.J. Mood disturbances in motor neurone disease. J Neurol Sci 1998, 160:S53-S56.
115. Morgan R.K., McNally S., Alexander M., et al. Use of sniff nasal-inspiratory force to predict survival in amyotrophic lateral sclerosis. Am J Respir Crit Care Med 2005, 171:269-274.
116. Moss A.H., Casey P., Stocking C.B., et al. Home ventilation for amyotrophic lateral sclerosis: outcomes, costs, and patient, family, and physician attitudes. Neurology 1993, 43:438-443.
117. Moss A.H., Oppenheimer E.A., Casey P., et al. Patients with amyotrophic lateral sclerosis receiving long-term mechanical ventilation: advance care planning and outcomes. Chest 1996, 110:249-255.
118. Mueller P.S., Plevak D.J., Rummans T.A. Religious involvement, spirituality, and medicine: implications for clinical practice. Mayo Clin Proc 2001, 76:1225-1235.
119. Mukund J., Kaplan M., Senno R.G., et al. Pathological crying and laughing: treatment with sertraline. Arch Phys Med Rehabil 1996, 77:1309-1311.
120. Murphy P.L., Albert S.M., Weber C.M., et al. Impact of spirituality and religiousness on outcomes in patients with ALS. Neurology 2000, 55:1581-1584.
121. Murphy V., Felgoise S.H., Walsh S.M., et al. Problem-solving skills predict quality of life and psychological morbidity in ALS caregivers. Amyotroph Lateral Scler 2009, 10:147-153.
122. Mytko J.J., Knight S.J. Body, mind and spirit: towards the integration of religiosity and spirituality in cancer quality of life research. Psychooncology 1999, 8:439-450.
123. Neary D., Snowden J.S., Gustafson L., et al. Frontotemporal lobar degeneration: a consensus on clinical diagnostic criteria. Neurology 1998, 51:1546-1554.
124. Neppelberg E., Haugen D.F., Thorsen L., et al. Radiotherapy reduces sialorrhea in amyotrophic lateral sclerosis. Eur J Neurol 2007, 14:1373-1377.
125. Neudert C., Oliver D., Wasner M., et al. The course of the terminal phase in patients with amyotrophic lateral sclerosis. J Neurol 2001, 248:612-616.
126. Neudert C., Wasner M., Borasio G.D. Patients' assessment of quality of life instruments: a randomized study of SIP, SF-36 and SEIQoL-DW in patients with amyotrophic lateral sclerosis. J Neurol Sci 2001, 191:103-109.
127. Newall A.R., Orser R., Hunt M. The control of oral secretions in bulbar ALS/MND. J Neurol Sci 1996, 139:43-44.
128. Newrick P.G., Langton-Hewer R. Pain in motor neuron disease. J Neurol Neurosurg Psychiatry 1985, 48:838-840.
129. Newsom-Davis I.C., Lyall R.A., Leigh P.N., et al. The effect of non-invasive positive pressure ventilation (NIPPV) on cognitive function in amyotrophic lateral sclerosis (ALS): a prospective study. J Neurol Neurosurg Psychiatry 2001, 71:482-487.
130. O'Brien T., Kelly M., Saunders C. Motor neuron disease: a hospice perspective. BMJ 1992, 304:471-473.
131. Oliver D. Ethical issues in palliative care - an overview. Palliat Med 1993, 7:15-20.
132. Oliver D. The quality of care and symptom control - the effects on the terminal phase of ALS/MND. J Neurol Sci 1996, 139:134-136.
133. Olney R.K., Murphy J., Forshew D., et al. The effects of executive and behavioral dysfunction on the course of ALS. Neurology 2005, 65:1774-1777.
134. Ondo W.G., Fayle R., Atassi F., et al. Modafinil for daytime somnolence in Parkinson's disease: double blind, placebo controlled parallel trial. J Neurol Neurosurg Psychiatry 2005, 76:1636-1639.
135. Oskoui M., Kaufmann P. Spinal muscular atrophy. Neurotherapeutics 2008, 5:499-506.
136. Park J.H., Kang S.-W. Percutaneous radiologic gastrostomy in patients with amyotrophic lateral sclerosis on noninvasive ventilation. Arch Phys Med Rehabil 2009, 90:1026-1029.
137. Pijnenburg Y.A.L., Samspon E.L., Harvey R.J., et al. Vulnerability to neuroleptic side effects in frontotemporal lobar degeneration. Int J Geriatr Psychiatry 2003, 18:67-72.
138. Pizzi A., Carlucci G., Falsini C., et al. Application of a volar static splint in poststroke spasticity of the upper limb. Arch Phys Med Rehabil 2005, 86:1855-1859.
139. Rabkin J.G., Wagner G.L., Del Bene M. Resilience and distress among amyotrophic lateral sclerosis patients and caregivers. Psychosom Med 2000, 62:271-279.
140. Rabkin J.G., Albert S.M., Tider T., et al. Predictors and course of elective long-term mechanical ventilation: a prospective study of ALS patients. Amyotroph Lateral Scler 2006, 7:86-95.
141. Rabkin J.G., Gordon P.H., McElhiney M., et al. Modafinil treatment of fatigue in patients with ALS: a placebo-controlled study. Muscle Nerve 2009, 39:297-303.
142. Rammohan K., Rosenberg J., Lynn D., et al. Efficacy and safety of modafinil (Provigil) for the treatment of fatigue in multiple sclerosis: a two centre phase 2 study. J Neurol Neurosurg Psychiatry 2002, 72:179-183.
143. Restivo D.A., Lanza S., Marchese-Ragona R., et al. Improvement of masseter spasticity by botulinum toxin facilitates PEG placement in amyotrophic lateral sclerosis. Gastroenterology 2002, 123:1749-1750.
144. Riley B.B., Perna R., Tate D.G., et al. Types of spiritual well-being among persons with chronic illness: their relation to various forms of quality of life. Arch Phys Med Rehabil 1998, 79:258-264.
145. Ringholz G.M., Appel S.H., Bradshaw M., et al. Prevalence and patterns of cognitive impairment in sporadic ALS. Neurology 2005, 65:586-590.
146. Rippon G.A., Scarmeas N., Gordon P.H., et al. An observational study of cognitive impairment in amyotrophic lateral sclerosis. Arch Neurol 2006, 63:345-352.
147. Robbins R.A., Simmons Z., Bremer B.A., et al. Quality of life in ALS is maintained as physical function declines. Neurology 2001, 56:442-444.
148. Rocha J.A., Reis C., Simoes F., et al. Diagnostic investigation and multidisciplinary management in motor neuron disease. J Neurol 2005, 252:1435-1447.
149. Roth G. The sock donner. Am J Occup Ther 1969, 1:75-76.
150. Schiffer R.B., Cash J., Herndon R.M. Treatment of emotional lability with low-dosage tricyclic antidepressants. Psychosomatics 1983, 24:1094-1096.
151. Schiffer R.B., Herndon R.M., Rudick R.A. Treatment of pathologic laughing and weeping with amitriptyline. N Engl J Med 1985, 312:1480-1482.
152. Seliger G.M., Hornstein A. Serotonin, fluoxetine, and pseudobulbar affect. Neurology 1989, 39:1400.
153. Shader R.I. Does lithium both cause and treat pseudobulbar affect?. J Clin Psychopharmacol 1992, 12:360.
154. Shaw A.S., Ampong M.A., Rio A., et al. Entristar skin-level gastrostomy tube: primary placement with radiologic guidance in patients with amyotrophic lateral sclerosis. Radiology 2004, 233:392-399.
155. Silverstein M.D., Stocking C.B., Antel J.P., et al. Amyotrophic lateral sclerosis and life-sustaining therapy: patients' desires for information, participation in decision making, and life-sustaining therapy. Mayo Clin Proc 1991, 66:906-913.
156. Simmons Z. Management strategies for patients with amyotrophic lateral sclerosis from diagnosis through death. Neurologist 2005, 11:257-270.
157. Simmons Z., Bremer B.A., Robbins R.A., et al. Quality of life in ALS depends on factors other than strength and physical function. Neurology 2000, 55:388-392.
158. Simmons Z., Felgoise S.H., Bremer B.A., et al. The ALSSQOL: balancing physical and non-physical factors in assessing quality of life in ALS. Neurology 2006, 67:1659-1664.
159. Singer P.A. Disease-specific advance directives. Lancet 1994, 344:594-596.
160. Singer P.A., Thiel E.C., Salit I., et al. The HIV-specific advance directive. J Gen Intern Med 1997, 12:729-735.
161. Stalpers L.J.A., Moser E.C. Results of radiotherapy for drooling in amyotrophic lateral sclerosis. Neurology 2002, 58:1308.
162. Stambler N., Charatan M., Cedarbaum J.M., et al. Prognostic indicators of survival in ALS. Neurology: 1998, 50:66-72.
163. Thornton F.J., Fotheringham T., Alexander M., et al. Amyotrophic lateral sclerosis: enteral nutrition provision - endoscopic or radiologic gastrostomy?. Radiology 2002, 224:713-717.
164. Toepfer M., Folwaczny C., Klauser A., et al. Gastrointestinal dysfunction in amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord 1999, 1:15-19.
165. Toepfer M., Folwaczny C., Lochmuller H., et al. Noninvasive (13)C-octanoic acid breath test shows delayed gastric emptying in patients with amyotrophic lateral sclerosis. Digestion 1999, 60:567-571.
166. Trail M., Nelson N., Van J.N., et al. Wheelchair use by patients with amyotrophic lateral sclerosis: a survey of user characteristics and selection preferences. Arch Phys Med Rehabil 2001, 82:98-102.
167. Traynor B.J., Alexander M., Corr B., et al. An outcome study of riluzole in amyotrophic lateral sclerosis: a population-based study in Ireland, 1996-2000. J Neurol 2003, 250:473-479.
168. Traynor B.J., Alexander M., Corr B., et al. Effect of a multidisciplinary amyotrophic lateral sclerosis (ALS) clinic on ALS survival: a population based study, 1996-2000. J Neurol Neurosurg Psychiatry 2003, 74:1258-1261.
169. Udaka T., Yamao S., Nagata H., et al. Pathological laughing and crying treated with levodopa. Arch Neurol 1984, 41:1095-1096.
170. Van den Berg J.P., Kalmijn S., Lindeman E., et al. Multidisciplinary ALS care improves quality of life in patients with ALS. Neurology 2005, 65:1264-1267.
171. Veldink J.H., Wokke J.H.J., van der Wal G., et al. Euthanasia and physician-assisted suicide among patients with amyotrophic lateral sclerosis in the Netherlands. N Engl J Med 2002, 346:1638-1644.
172. Verma A., Steele J. Botulinum toxin improves sialorrhea and quality of living in bulbar amyotrophic lateral sclerosis. Muscle Nerve 2006, 34:235-237.
173. Verschueren A., Monnier A., Attarian S., et al. Enteral and parenteral nutrition in the later stages of ALS: an observational study. Amyotroph Lateral Scler 2009, 10:42-46.
174. Vignola A., Guzzo A., Calvo A., et al. Anxiety undermines quality of life in ALS patients and caregivers. Eur J Neurol 2008, 15:1231-1236.
175. Walsh S.M., Bremer B.A., Felgoise S.H., et al. Religiousness is related to quality of life in patients with ALS. Neurology 2003, 60:1527-1529.
176. Wicks P., Abrahams S., Masi D., et al. Prevalence of depression in a 12-month consecutive sample of patients with ALS. Eur J Neurol 2007, 14:993-1001.
177. Wilkinson J.E., Saper R.B., Rosen A.K. Prayer for health and primary care: results from the 2002 National Health Interview Survey. Fam Med 2008, 40:638-644.
178. Winterholler M.G., Heckmann J.G., Hecht M., et al. Recurrent trismus and stridor in an ALS patient: successful treatment with botulinum toxin. Neurology 2002, 58:502-503.
179. Young J.M., Marshall C.L., Anderson E.J. Amyotrophic lateral sclerosis patients' perspectives on use of mechanical ventilation. Health Soc Work 1994, 19:253-260.