Found in translation: Decoding local understandings of genetics and heredity in a Yup'ik Eskimo community

Public Understanding of Science

Volumn 22, Issue 1, 2013, Pages 80-90

  West, Kathleen M ^a   Hopkins, Scarlett E ^a   Hopper, Kim J ^b   Mohatt, Gerald V ^a   Boyer, Bert B ^a  

^a UNIVERSITY OF ALASKA FAIRBANKS   (United States)

^b Department of Medicine   (United States)

Author keywords

back translation; Center for Alaska Native Health Research; community based participatory research; genetic concepts; public understanding of science; science communication; Yup'ik Eskimo

Indexed keywords

EID: 84872291481     PISSN: 09636625     EISSN: 13616609     Source Type: Journal    
DOI: 10.1177/0963662510397224     Document Type: Article

References (28)

1. Alexie O,Barnes S,Domnick GMumigcistet Kalikait. Bethel, AK: Yup'ik Language Center, University of Alaska Fairbanks; 1990:.
2. Bohannon PHow Culture Works. New York: The Free Press; 1995:.
3. Boyer BB,Mohatt GV,Lardon C,Plaetke R,Luick BR,Hutchinson SH,de Mayolo GA,Ruppert E,Bersamin A.Building a community-based participatory research center to investigate obesity and diabetes in Alaska Natives.International Journal of Circumpolar Health. 2005;64 (3): 281-290.
4. Boyer BB,Mohatt GV,Pasker RL,Drew EM,McGlone KK.Sharing results from complex disease genetics studies: A community-based participatory research approach.International Journal of Circumpolar Health. 2007;66 (1): 19-30.
5. Briggs CLLearning How to Ask: A Sociolinguistic Appraisal of the Role of the Interview in Social Science Research. Cambridge: Cambridge University Press; 1986:39-60.
6. Brislin RW.Back-translation for cross-cultural research.Journal of Cross-Cultural Psychology. 1970;1 (3): 185-216.
7. Charmaz KConstructing Grounded Theory: A Practical Guide through Qualitative Analysis. Thousand Oaks, CA: Sage Publications; 2007:.
8. Emerson RM,Pollner M.On the use of members' responses to researchers' accounts.Human Organization. 1988;47 (3): 189-198.
9. Fienup-Riordan ABoundaries and Passages: Rule and Ritual in Yup'ik Eskimo Oral Tradition. Norman, OK: University of Oklahoma Press; 1994:.
10. Fienup-Riordan AWise Words of the Yup'ik People: We Talk to You Because We Love You. Lincoln, NE: University of Nebraska Press; 2005:.
11. Flaherty JA,Gavilia M,Pathak D,Mitchell T,Wintrob R,Richman JA,Birz S.Developing instruments for cross-cultural psychiatric research.Journal of Nervous and Mental Disease. 1988;176 (5): 257-263.
12. Freed AO.Interviewing through an interpreter.Social Work. 1988;33 (4): 315-319.
13. Hsin-Chun Tsai J,Choe JH,Mu Chen Lim J,Acorda E,Chan NL,Taylor V,Tu S-P.Developing culturally competent health knowledge: Issues of data analysis of cross-cultural, cross-language qualitative research.International Journal of Qualitative Methods. 2004;3 (4): 16-27.
14. Israel BA,Schulz J,Parker EA,Becker AB,Allen AJ,Guzman JRCommunity-Based Participatory Research for Health. Minkler MWallerstein N, ed. San Francisco: Jossey-Bass; 2003:53-76.
15. Jacobson SAYup'ik Eskimo Dictionary. Fairbanks: Alaska Native Language Center, University of Alaska; 1984:.
16. Kawagley AOA Yupiaq Worldview. 2006) A Yupiaq Worldview, 2nd edn.Long Grove, IL: Waveland Press, Inc.Long Grove, IL: Waveland Press, Inc; 2006:.
17. Lopez GI,Figueroa M,Connor SE,Malinski SL.Translation barriers in conducting qualitative research with Spanish speakers.Qualitative Health Research. 2008;18 (12): 1729-1737.
18. Maneesriwongul W,Dixon JK.Instrument translation process: A methods review.Journal of Advanced Nursing. 2004;48 (2): 175-186.
19. Community-Based Participatory Research for Health. Minkler MWallerstein N, ed. San Francisco: Jossey-Bass; 2003:.
20. Mohatt GV,Rasmus SM,Thomas L,Allen J,Hazel K,Hensel C.Tied together like a woven hat: Protective pathways to Alaska Native sobriety.Harm Reduction Journal. 2004;1 (10):.
21. Morrow PCornell University; 1987:.
22. Napoleon HYuuyaraq: The Way of the Human Being. Madsen E, ed. Fairbanks: Alaska Native Knowledge Network; 1996:.
23. O'NeilJD (1984) Is it cool to be an Eskimo? A study of stress, identity, coping, and health among Canadian Inuit young adult men. Doctoral Dissertation, University of California, San Francisco.
24. Shaw A,Ahmed M.Translating genetics leaflets into languages other than English: Lessons from an assessment of Urdu materials.Journal of Genetic Counseling. 2004;13 (4): 321-342.
25. Temple B.Watch your tongue: Issues in translation and cross-cultural research.Sociology. 1997;31 (3): 607-618.
26. Temple B,Edwards R.Interpreters/translators and cross-language research: Reflexivity and border crossings.International Journal of Qualitative Methods. 2002;1 (2): 1-12.
27. Twinn S.An exploratory study examining the influence of translation on the validity and reliability of qualitative data in nursing research.Journal of Advanced Nursing. 1997;26 (2): 418-423.
28. Wolsko C,Lardon C,Hopkins S,Ruppert E.Conceptions of wellness among the Yup'ik of the Yukon-Kuskokwim Delta: The vitality of social and natural connection.Ethnicity and Health. 2006;11 (4): 345-363.