메뉴 건너뛰기




Volumn 22, Issue 3-4, 2013, Pages 501-512

'Sustaining Place' - a grounded theory of how informal carers of people with dementia manage alterations to relationships within their social worlds

Author keywords

Citizenship; Dementia; Grounded theory; Informal carers; Stigma

Indexed keywords

AGED; ARTICLE; CAREGIVER; DEMENTIA; HUMAN; NURSING; PSYCHOLOGICAL ASPECT; SOCIAL SUPPORT; THEORETICAL MODEL; VERY ELDERLY;

EID: 84872281288     PISSN: 09621067     EISSN: 13652702     Source Type: Journal    
DOI: 10.1111/jocn.12003     Document Type: Article
Times cited : (34)

References (83)
  • 5
    • 43149117484 scopus 로고    scopus 로고
    • Achieving care and social justice for people with dementia
    • Barnes M & Brannelly T (2008) Achieving care and social justice for people with dementia. Nursing Ethics 15, 384-395.
    • (2008) Nursing Ethics , vol.15 , pp. 384-395
    • Barnes, M.1    Brannelly, T.2
  • 6
    • 33947705649 scopus 로고    scopus 로고
    • From personhood to citizenship: broadening the lens for dementia practice and research
    • Bartlett R & O'Connor D (2007) From personhood to citizenship: broadening the lens for dementia practice and research. Journal of Aging Studies 21, 107-118.
    • (2007) Journal of Aging Studies , vol.21 , pp. 107-118
    • Bartlett, R.1    O'Connor, D.2
  • 8
    • 0005708657 scopus 로고    scopus 로고
    • Dementia: historical overview
    • 3rd edn (Burns A, O'Brien J & Ames D eds). Hodder Arnold, London -
    • Berrios G (2004) Dementia: historical overview. In Dementia, 3rd edn (Burns A, O'Brien J & Ames D eds). Hodder Arnold, London, pp. 3-15.
    • (2004) Dementia , pp. 3-15
    • Berrios, G.1
  • 9
    • 33750289496 scopus 로고    scopus 로고
    • The transition to caregiving: the experience of family members embarking on the dementia caregiving career
    • Betts Adams K (2006) The transition to caregiving: the experience of family members embarking on the dementia caregiving career. Journal of Gerontological Social Work 47, 3-29.
    • (2006) Journal of Gerontological Social Work , vol.47 , pp. 3-29
    • Betts Adams, K.1
  • 10
    • 48649087990 scopus 로고    scopus 로고
    • Personal losses and relationship quality in dementia caregiving
    • Betts Adams K, McClendon M & Smyth K (2008) Personal losses and relationship quality in dementia caregiving. Dementia 7, 301-319.
    • (2008) Dementia , vol.7 , pp. 301-319
    • Betts Adams, K.1    McClendon, M.2    Smyth, K.3
  • 11
    • 84970305245 scopus 로고
    • The management of stigma by Alzheimer family caregivers
    • Blum NS (1991) The management of stigma by Alzheimer family caregivers. Journal of Contemporary Ethnography 20, 263-284.
    • (1991) Journal of Contemporary Ethnography , vol.20 , pp. 263-284
    • Blum, N.S.1
  • 12
    • 0023175863 scopus 로고
    • Intergenerational caregiving: adult caregivers and their aging parents
    • Bowers B (1987) Intergenerational caregiving: adult caregivers and their aging parents. Advances in Nursing Science 9, 20-31.
    • (1987) Advances in Nursing Science , vol.9 , pp. 20-31
    • Bowers, B.1
  • 13
    • 84872283642 scopus 로고    scopus 로고
    • Citizenship and psychiatry
    • Paper delivered at the Inaugural Seminar of the Centre for Citizenship and Community Mental Health, University of Bradford, Yorkshire, 26 June.
    • Bracken P (2003) Citizenship and psychiatry. Paper delivered at the Inaugural Seminar of the Centre for Citizenship and Community Mental Health, University of Bradford, Yorkshire, 26 June.
    • (2003)
    • Bracken, P.1
  • 15
    • 84872284986 scopus 로고    scopus 로고
    • The social construction of carers
    • 2nd edn (Johnson J & De Souza C eds). The Open University, Milton Keynes -
    • Bytheway B & Johnson J (2008) The social construction of carers. In Understanding Health and Social Care. An Introductory Reader, 2nd edn (Johnson J & De Souza C eds). The Open University, Milton Keynes, pp. 223-231.
    • (2008) Understanding Health and Social Care. An Introductory Reader , pp. 223-231
    • Bytheway, B.1    Johnson, J.2
  • 16
    • 33947642116 scopus 로고    scopus 로고
    • Dementia and social inclusion: the way forward
    • (Innes A, Archibold C & Murphy C eds). Jessica Kingsley, London -
    • Cantley C & Bowes A (2004) Dementia and social inclusion: the way forward. In Dementia and Social Exclusion (Innes A, Archibold C & Murphy C eds). Jessica Kingsley, London, pp. 255-271.
    • (2004) Dementia and Social Exclusion , pp. 255-271
    • Cantley, C.1    Bowes, A.2
  • 17
    • 41649088059 scopus 로고    scopus 로고
    • Social representations of barriers to care early in the careers of caregivers of persons with Alzheimer's disease
    • Carpentier N, Ducharme F, Kergoat MJ & Bergman H (2008) Social representations of barriers to care early in the careers of caregivers of persons with Alzheimer's disease. Research on Aging 30, 334-357.
    • (2008) Research on Aging , vol.30 , pp. 334-357
    • Carpentier, N.1    Ducharme, F.2    Kergoat, M.J.3    Bergman, H.4
  • 18
    • 70449105721 scopus 로고    scopus 로고
    • Being there for another with a serious mental illness
    • Champlin B (2009) Being there for another with a serious mental illness. Qualitative Health Research 19, 1525-1535.
    • (2009) Qualitative Health Research , vol.19 , pp. 1525-1535
    • Champlin, B.1
  • 19
    • 33645130351 scopus 로고    scopus 로고
    • Lived experiences of family caregivers of mentally ill relatives
    • Chang KH & Horrocks S (2006) Lived experiences of family caregivers of mentally ill relatives. Journal of Advanced Nursing 53, 435-443.
    • (2006) Journal of Advanced Nursing , vol.53 , pp. 435-443
    • Chang, K.H.1    Horrocks, S.2
  • 24
    • 56649121359 scopus 로고    scopus 로고
    • Understandings of dementia: explanatory models and their implications for the person with dementia and therapeutic effort
    • (Hughes J, Louw S & Sabat S eds). Oxford University Press, Oxford -
    • Downs M, Clare L & Mackenzie J (2006) Understandings of dementia: explanatory models and their implications for the person with dementia and therapeutic effort. In Dementia. Mind, Meaning and the Person (Hughes J, Louw S & Sabat S eds). Oxford University Press, Oxford, pp. 235-258.
    • (2006) Dementia. Mind, Meaning and the Person , pp. 235-258
    • Downs, M.1    Clare, L.2    Mackenzie, J.3
  • 25
    • 68749103471 scopus 로고    scopus 로고
    • Renewing everyday hope: the hope experience of family caregivers of persons with dementia
    • Duggleby W, Williams A, Wright K & Bollinger S (2009) Renewing everyday hope: the hope experience of family caregivers of persons with dementia. Issues in Mental Health Nursing 30, 514-521.
    • (2009) Issues in Mental Health Nursing , vol.30 , pp. 514-521
    • Duggleby, W.1    Williams, A.2    Wright, K.3    Bollinger, S.4
  • 26
    • 0037908786 scopus 로고    scopus 로고
    • Disability and bodies as bearers of value
    • Edwards C & Imrie R (2003) Disability and bodies as bearers of value. Sociology 37, 239-256.
    • (2003) Sociology , vol.37 , pp. 239-256
    • Edwards, C.1    Imrie, R.2
  • 31
    • 0033992787 scopus 로고    scopus 로고
    • The experience of caring for a loved one. A phenomenological study
    • Gates K (2000) The experience of caring for a loved one. A phenomenological study. Nursing Science Quarterly 13, 54-59.
    • (2000) Nursing Science Quarterly , vol.13 , pp. 54-59
    • Gates, K.1
  • 41
    • 0033216617 scopus 로고    scopus 로고
    • The gaze and visibility of the carer: a Foucauldian analysis of the discourse of informal care
    • Heaton J (1999) The gaze and visibility of the carer: a Foucauldian analysis of the discourse of informal care. Sociology of Health and Illness 21, 759-777.
    • (1999) Sociology of Health and Illness , vol.21 , pp. 759-777
    • Heaton, J.1
  • 43
    • 67649084376 scopus 로고    scopus 로고
    • The coding process and its challenges
    • (Bryant A & Charmaz K eds). Sage Publications, Los Angeles, CA -
    • Holton J (2007) The coding process and its challenges. In The Sage Handbook of Grounded Theory (Bryant A & Charmaz K eds). Sage Publications, Los Angeles, CA, pp. 265-289.
    • (2007) The Sage Handbook of Grounded Theory , pp. 265-289
    • Holton, J.1
  • 44
    • 84872309234 scopus 로고    scopus 로고
    • Opportunities and challenges of informal caregiving
    • 8th edn. (Hooyman N & Kiyak A eds). Pearson Education Inc, Boston, MA -
    • Hooyman N & Kiyak HA (2008) Opportunities and challenges of informal caregiving. In Social Gerontology: A Multidisciplinary Perspective, 8th edn. (Hooyman N & Kiyak A eds). Pearson Education Inc, Boston, MA, pp. 385-428.
    • (2008) Social Gerontology: A Multidisciplinary Perspective , pp. 385-428
    • Hooyman, N.1    Kiyak, H.A.2
  • 45
    • 12344267711 scopus 로고    scopus 로고
    • Understanding the obstacles to the recognition of and response to dementia in different European countries: a modified focus group approach using multinational, multidisciplinary expert groups
    • The Diadem Group
    • Iliffe S, De Lepeleire J, Van Hout H, Kenny G, Lewis A, Vernooij-Dassen M & The Diadem Group (2005) Understanding the obstacles to the recognition of and response to dementia in different European countries: a modified focus group approach using multinational, multidisciplinary expert groups. Aging and Mental Health 9, 1-6.
    • (2005) Aging and Mental Health , vol.9 , pp. 1-6
    • Iliffe, S.1    De Lepeleire, J.2    Van Hout, H.3    Kenny, G.4    Lewis, A.5    Vernooij-Dassen, M.6
  • 47
    • 0035378890 scopus 로고    scopus 로고
    • Patterns of elderly spousal caregiving in dementia care: an observational study
    • Jansson W, Nordberg G & Grafstrom M (2001) Patterns of elderly spousal caregiving in dementia care: an observational study. Journal of Advanced Nursing 34, 804-812.
    • (2001) Journal of Advanced Nursing , vol.34 , pp. 804-812
    • Jansson, W.1    Nordberg, G.2    Grafstrom, M.3
  • 48
    • 59649104458 scopus 로고    scopus 로고
    • Editorial: family matters
    • Keady J & Braudy Harris P (2009) Editorial: family matters. Dementia 8, 5-8.
    • (2009) Dementia , vol.8 , pp. 5-8
    • Keady, J.1    Braudy Harris, P.2
  • 49
    • 34548254857 scopus 로고    scopus 로고
    • Admiral nursing and the family care of a parent with dementia: using autobiographical narrative as grounding for negotiated clinical practice and decision-making
    • Keady J, Ashcroft-Simpson S, Halligan K & Williams S (2007) Admiral nursing and the family care of a parent with dementia: using autobiographical narrative as grounding for negotiated clinical practice and decision-making. Scandinavian Journal of Caring Sciences 21, 345-353.
    • (2007) Scandinavian Journal of Caring Sciences , vol.21 , pp. 345-353
    • Keady, J.1    Ashcroft-Simpson, S.2    Halligan, K.3    Williams, S.4
  • 50
    • 46749158316 scopus 로고    scopus 로고
    • Family caregivers' strains: comparative analysis of cancer caregiving with dementia, diabetes and frail elderly caregiving
    • Kim Y & Schulz R (2008) Family caregivers' strains: comparative analysis of cancer caregiving with dementia, diabetes and frail elderly caregiving. Journal of Aging and Health 20, 483-503.
    • (2008) Journal of Aging and Health , vol.20 , pp. 483-503
    • Kim, Y.1    Schulz, R.2
  • 51
    • 0013231797 scopus 로고    scopus 로고
    • A dialectical framework for dementia
    • (Woods RT ed.). Wiley, Chichester -
    • Kitwood T (1996) A dialectical framework for dementia. In Handbook of the Clinical Psychology of Ageing (Woods RT ed.). Wiley, Chichester, pp. 267-282.
    • (1996) Handbook of the Clinical Psychology of Ageing , pp. 267-282
    • Kitwood, T.1
  • 53
    • 0032590173 scopus 로고    scopus 로고
    • Managing courtesy stigma: the case of Alzheimer's disease
    • MacRae H (1999) Managing courtesy stigma: the case of Alzheimer's disease. Sociology of Health & Illness 21, 54-70.
    • (1999) Sociology of Health & Illness , vol.21 , pp. 54-70
    • MacRae, H.1
  • 55
    • 79956221587 scopus 로고    scopus 로고
    • Psychosocial interventions in dementia care research: the Interdem manifesto
    • Moniz-Cook E (2011) Psychosocial interventions in dementia care research: the Interdem manifesto. Aging and Mental Health 15, 283-290.
    • (2011) Aging and Mental Health , vol.15 , pp. 283-290
    • Moniz-Cook, E.1
  • 56
    • 0009695063 scopus 로고
    • Institutional review of qualitative research proposals: a task of no small importance
    • (Morse J ed.). Sage, Newbury Park, CA -
    • Munhall PL (1991) Institutional review of qualitative research proposals: a task of no small importance. In Qualitative Nursing Research (Morse J ed.). Sage, Newbury Park, CA, pp. 258-271.
    • (1991) Qualitative Nursing Research , pp. 258-271
    • Munhall, P.L.1
  • 57
    • 65449145879 scopus 로고    scopus 로고
    • Growing and gaining through caring for a loved one with dementia
    • Netto NR, Goh J & Yap P (2009) Growing and gaining through caring for a loved one with dementia. Dementia 8, 235-261.
    • (2009) Dementia , vol.8 , pp. 235-261
    • Netto, N.R.1    Goh, J.2    Yap, P.3
  • 59
    • 84872338492 scopus 로고    scopus 로고
    • The School of Nursing and Midwifery, Trinity College Dublin, Dublin. Available at: (accessed 9 May 2009).
    • Nolan L, McCarron M, Mc Callion P & Murphy-Lawless J (2006) Perceptions of Stigma in Dementia: an Exploratory Study. The School of Nursing and Midwifery, Trinity College Dublin, Dublin. Available at: http://www.alzheimer.ie/eng/Resources/Research/Perceptions-of-Stigma-in-Dementia-An-Exploratory-Study (accessed 9 May 2009).
    • (2006) Perceptions of Stigma in Dementia: an Exploratory Study
    • Nolan, L.1    McCarron, M.2    Mc Callion, P.3    Murphy-Lawless, J.4
  • 60
    • 33947573539 scopus 로고    scopus 로고
    • Self-identifying as a caregiver: exploring the positioning process
    • O'Connor D (2007) Self-identifying as a caregiver: exploring the positioning process. Journal of Aging Studies 21, 165.
    • (2007) Journal of Aging Studies , vol.21 , pp. 165
    • O'Connor, D.1
  • 64
    • 0025053956 scopus 로고
    • Caregiving and the stress process: an overview of concepts and their measures
    • Pearlin L, Mullan J, Semple S & Skaff M (1990) Caregiving and the stress process: an overview of concepts and their measures. The Gerontologist 30, 583-594.
    • (1990) The Gerontologist , vol.30 , pp. 583-594
    • Pearlin, L.1    Mullan, J.2    Semple, S.3    Skaff, M.4
  • 65
    • 77951541620 scopus 로고    scopus 로고
    • Citizen minds, citizen bodies: the citizenship experience and the government of mentally ill patients
    • Perron A, Rudge T & Holmes D (2010) Citizen minds, citizen bodies: the citizenship experience and the government of mentally ill patients. Nursing Philosophy 11, 100-111.
    • (2010) Nursing Philosophy , vol.11 , pp. 100-111
    • Perron, A.1    Rudge, T.2    Holmes, D.3
  • 66
    • 0036675684 scopus 로고    scopus 로고
    • Wives giving care to husbands with Alzheimer's disease: a process of interpretive caring
    • Perry J (2002) Wives giving care to husbands with Alzheimer's disease: a process of interpretive caring. Research in Nursing and Health 25, 307-316.
    • (2002) Research in Nursing and Health , vol.25 , pp. 307-316
    • Perry, J.1
  • 67
    • 70349420256 scopus 로고    scopus 로고
    • Polity, Cambridge.
    • Philips S (2007) Care. Polity, Cambridge.
    • (2007) Care
    • Philips, S.1
  • 68
    • 0037347815 scopus 로고    scopus 로고
    • Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta analysis
    • Pinquart M & Sorenson S (2003) Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta analysis. Journal of Gerontology: Psychological Sciences and Social Sciences 58B, 112-128.
    • (2003) Journal of Gerontology: Psychological Sciences and Social Sciences , vol.58 B , pp. 112-128
    • Pinquart, M.1    Sorenson, S.2
  • 69
    • 0034975225 scopus 로고    scopus 로고
    • Comments on research in the social sciences pertaining to Alzheimer's disease: a more humble approach
    • Post S (2001) Comments on research in the social sciences pertaining to Alzheimer's disease: a more humble approach. Aging and Mental Health 5, S17-S19.
    • (2001) Aging and Mental Health , vol.5
    • Post, S.1
  • 70
    • 77952771512 scopus 로고    scopus 로고
    • Prince M & Jackson J (eds) Alzheimer Disease International, London.
    • Prince M & Jackson J (eds) (2009) World Alzheimer Report 2009. Alzheimer Disease International, London.
    • (2009) World Alzheimer Report 2009
  • 71
    • 0010965110 scopus 로고
    • The politics of Alzheimer's disease: a case study in apocalyptic demography
    • (Minkler M & Estes CL eds). Baywood Publishing, New York, NY -
    • Robertson A (1991) The politics of Alzheimer's disease: a case study in apocalyptic demography. In Critical Perspectives on Aging: The Political and Moral Economy of Growing Old (Minkler M & Estes CL eds). Baywood Publishing, New York, NY, pp. 135-150.
    • (1991) Critical Perspectives on Aging: The Political and Moral Economy of Growing Old , pp. 135-150
    • Robertson, A.1
  • 73
    • 0000690906 scopus 로고
    • Social accountability and the social construction of 'You'
    • (Shotter J & Gergen K eds). Sage Publications, London -
    • Shotter J (1989) Social accountability and the social construction of 'You'. In Texts of Identity (Shotter J & Gergen K eds). Sage Publications, London, pp. 133-151.
    • (1989) Texts of Identity , pp. 133-151
    • Shotter, J.1
  • 76
    • 0032042403 scopus 로고    scopus 로고
    • Process consent: a model for enhancing informed consent in mental health nursing
    • Usher K & Arthur D (1998) Process consent: a model for enhancing informed consent in mental health nursing. Journal of Advanced Nursing 27, 692-697.
    • (1998) Journal of Advanced Nursing , vol.27 , pp. 692-697
    • Usher, K.1    Arthur, D.2
  • 77
    • 42649112415 scopus 로고    scopus 로고
    • Engagement in activities: experiences of persons with dementia and their caregiving spouses
    • Vikstrom S, Josephson S, Stigsdotter-Neely A & Nygard L (2008) Engagement in activities: experiences of persons with dementia and their caregiving spouses. Dementia 7, 251-270.
    • (2008) Dementia , vol.7 , pp. 251-270
    • Vikstrom, S.1    Josephson, S.2    Stigsdotter-Neely, A.3    Nygard, L.4
  • 78
    • 33847736298 scopus 로고    scopus 로고
    • Mother-adult-daughter relationships within dementia care: a critical analysis
    • Ward-Griffin C, Oudshoorn A, Clark K & Bol N (2007) Mother-adult-daughter relationships within dementia care: a critical analysis. Journal of Family Nursing 13, 13-32.
    • (2007) Journal of Family Nursing , vol.13 , pp. 13-32
    • Ward-Griffin, C.1    Oudshoorn, A.2    Clark, K.3    Bol, N.4
  • 80
    • 0024511243 scopus 로고
    • Family caregiving for a relative with Alzheimer dementia: coping with negative choices
    • Wilson H (1989a) Family caregiving for a relative with Alzheimer dementia: coping with negative choices. Nursing Research 38, 94-98.
    • (1989) Nursing Research , vol.38 , pp. 94-98
    • Wilson, H.1
  • 81
    • 0024615242 scopus 로고
    • Family caregivers: the experience of Alzheimer's disease
    • Wilson H (1989b) Family caregivers: the experience of Alzheimer's disease. Applied Nursing Research 2, 40-45.
    • (1989) Applied Nursing Research , vol.2 , pp. 40-45
    • Wilson, H.1
  • 82
    • 0028502874 scopus 로고
    • Becoming strangers: the changing family caregiving relationship in Alzheimer's disease
    • Wuest J, King Ericson P & Noerager Stern P (1994) Becoming strangers: the changing family caregiving relationship in Alzheimer's disease. Journal of Advanced Nursing 20, 437-443.
    • (1994) Journal of Advanced Nursing , vol.20 , pp. 437-443
    • Wuest, J.1    King Ericson, P.2    Noerager Stern, P.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.