Design of a personal health record and health knowledge sharing system using IHE-XDS and OWL

Journal of Medical Systems

Volumn 37, Issue 2, 2013, Pages

  Lee, Li Hui ^a   Chou, Yi Ting ^a   Huang, Ean Wen ^b   Liou, Der Ming ^a  

^a NATIONAL YANG MING UNIVERSITY   (Taiwan)

^b NATIONAL TAIPEI UNIVERSITY OF NURSING AND HEALTH SCIENCES   (Taiwan)

Author keywords

Clinical Document Architecture (CDA); Cross Enterprise Document Sharing (XDS); ebXML Registry Repository (ebRIM); Personal Health Record (PHR); Web Ontology Language (OWL)

Indexed keywords

ARTICLE; HEALTH CARE PERSONNEL; HUMAN; ICD-9-CM; MEDICAL INFORMATION; MEDICAL INFORMATION SYSTEM; MEDICAL RECORD; MEDICAL TERMINOLOGY; PATIENT CARE; QUESTIONNAIRE; TAIWAN; COMPUTER LANGUAGE; COMPUTER PROGRAM; ELECTRONIC MEDICAL RECORD; ORGANIZATION AND MANAGEMENT;

ELECTRONIC HEALTH RECORDS; HEALTH INFORMATION EXCHANGE; HEALTH RECORDS, PERSONAL; PROGRAMMING LANGUAGES; SOFTWARE;

EID: 84872103826     PISSN: 01485598     EISSN: 1573689X     Source Type: Journal    
DOI: 10.1007/s10916-012-9921-4     Document Type: Article

References (46)

1. Do, N. V., Barnhill, R., Heermann-Do, K. A., Salzman, K. L., and Gimbel, R. W., The military health system's personal health record pilot with Microsoft HealthVault and Google Health. J. Am. Med. Inform. Assoc. 18(2):118-124, 2011. doi: 10.1136/jamia.2010.004671.
2. Eysenbach, G., Medicine 2.0: Social networking, collaboration, participation, apomediation, and openness. J. Med. Internet Res. 10(3):e22, 2008. doi: 10.2196/jmir.1030.
3. Adida, B., Sanyal, A., Zabak, S., Kohane, I. S., and Mandl, K. D., (3041305) Indivo x: developing a fully substitutable personally controlled health record platform. In: AMIA Annu Symp Proc. pp 6-10, 2010.
4. Halamka, J. D., Mandl, K. D., and Tang, P. C., Early experiences with Personal Health Records. J. Am. Med. Inform. Assoc. 15(1):1-7, 2008. doi: 10.1197/jamia.M2562.
5. United States Departments of Vertrans Affairs my healthvet. https://www.myhealth.va.gov/mhv-portal-web/. Accessed 24 August, 2011.
6. Markle Foundation, (2003) Connecting for health: a public-private collaborative. The Personal Health Working Group: Final Report. July 1, 2003.
7. Bodenreider, O., Biomedical ontologies in action: Role in knowledge management, data integration and decision support. Yearb. Med. Inform. 67-79, 2008.
8. Archer, N., Fevrier-Thomas, U., Lokker, C., McKibbon, K. A., and Straus, S. E., Personal health records: A scoping review. J. Am. Med. Inform. Assoc. 18(4):515-522, 2011. doi: 10.1136/amiajnl-2011-000105.
9. Tang, P., Ash, J., Bates, D., Overhage, J., and Sands, D., Personal Health Records: Definitions, benefits, and strategies for overcoming barriers to adoption. J. Am. Med. Inform. Assoc. 13(2):121-126, 2006.
10. American Health Information Management Association, American Medical Informatics Association, The value of Personal Health Records: A joint position statement for consumers of health care. J. AHIMA 78(4):22-24, 2007.
11. Takeda, H., Matsumura, Y., Kuwata, S., Nakano, H., Sakamoto, N., and Yamamoto, R., Architecture for networked electronic patient record systems. Int. J. Med. Inform. 60(2):161-167, 2000.
12. Aden, T., and Eichelberg, M., Cross-enterprise search and access to clinical information based on IHE retrieve information, 2005.
13. Frost, J. H., and Massagli, M. P., Social uses of personal health information within PatientsLikeMe, an online patient community: What can happen when patients have access to one another's data. J. Med. Internet Res. 10(3):e15, 2008. doi: 10.2196/jmir.1053.
14. ACC, HIMSS, RSNA, IT infrastructure technical framework integration profiles volume 2 revision 4.0. vol 2. Integrating the Healthcare Enterprise, 2007.
15. Van De Belt, T. H., Engelen, L. J., Berben, S. A., and Schoonhoven, L., Definition of health 2.0 and medicine 2.0: A systematic review. J. Med. Internet Res. 12(2):e18, 2010. doi: 10.2196/jmir.1350.
16. Giustini, D., Web 3.0 and medicine. BMJ 335(7633):1273-1274, 2007. doi: 10.1136/bmj.39428.494236.BE.
17. U.S. National Library of Medicine, (2012) MedlinePlus connect: technical information. http://www.nlm.nih.gov/medlineplus/connect/technical.html. Accessed 15 May 2012.
18. Myers, M. F., and Gabbard, G. O., The physician as patient: a clinical handbook for mental health professionals. American Psychiatric Publishing, VA, 2008.
19. Kamel, B., Harvey, F., Foudsari, A., Bellazzi, R., Hernando, M., Deutsch, T., Cramp, D., and Carson, E., A proposed semantic framework for diabetes education content management, customisation and delivery within the M2DM project. Comput. Methods Programs Biomed. 83(3):188-197, 2006.
20. Dossia Service Corporation, (2011) Health content application. http://www.dossia.org/. Accessed 25 August 2011.
21. Boulos, M., Roudsari, A., and Carson, E., A dynamic problem to knowledge linking semantic Web Service based on clinical codes. Med. Inf. Internet Med. 27(3):127-137, 2002.
22. Boulos, M., A first look at HealthCyberMap medical semantic subject search engine. Technol. Health Care 12(1):33-41, 2004.
23. Boulos, M., Roudsari, A., and Carson, E., Towards a semantic medical Web: HealthCyberMap's tool for building an RDF metadata base of health information resources based on the Qualified Dublin Core Metadata Set. Med. Sci. Monit. 8(7):124-136, 2002.
24. Eichelberg, M., Aden, T., Riesmeier, J., Dogac, A., and Laleci, G., Electronic health record standards - a brief overview. In: 2006.
25. Healthcare Information Technology Standards Panel, (2009) Comparison of CCR/CCD and CDA documents. http://publicaa.ansi.org/sites/apdl/hitspadmin/ Matrices/HITSP-09-N-451.pdf. Accessed 24th May 2012.
26. OASIS ebXML. http://www.ebxml.org. Accessed 22 August, 2011.
27. Song, D., Liu, W., He, Y., and He, K., Ontology application in software component registry to achieve semantic interoperability. In: Information Technology: Coding and Computing, Washington, DC, USA, 4-6 April 2005. IEEE Computer Society, pp 181-186.
28. Dogac, A., Laleci, G. B., Aden, T., and Eichelberg, M., Enhancing IHE XDS for federated clinical affinity domain support. IEEE Trans. Inf. Technol. Biomed. 11(2):213-221, 2007.
29. Dogac, A., Laleci, G., Kabak, Y., Unal, S., Heard, S., Beale, T., Elkin, P., Najmi, F., Mattocks, C., and Webber, D., Exploiting ebXML registry semantic constructs for handling archetype metadata in healthcare informatics. Int. J. Metadata Semant. Ontologies 1(1):21-36, 2006.
30. Dogac, A., Kabak, Y., and Laleci, G., Enriching ebXML registries with OWL ontologies for efficient service discovery. In: pp 69-76, 2004.
31. Dogac, A., Kabak, Y., Laleci, G., Mattocks, C., Najmi, F., and Pollock, J., Enhancing ebXML registries to make them OWL aware. Distrib. Parallel Dat 18(1):9-36, 2005.
32. Roh, Y., Kim, H., Kim, H., Kim, M., and Son, J., Semantic business registry information model. In: International Conference on Convergence Information Technology, Washington, DC, USA, 2007. IEEE Computer Society, pp 2142-2145.
33. Mattocks, C., Managing medical ontologies using OWL and an e-business registry/repository. In: XML 2004, Washington, DC, USA, 2004.
34. Liu, W., and He, K., Design and realization of ebXML registry classification model based on ontology. In: Information Technology: Coding and Computing, Washington, DC, USA, 2005. IEEE Computer Society pp 809-814.
35. The Regenstrief Institute Inc, (2011) Logical Observation Identifiers Names and Codes (LOINC). The Regenstrief Institute Inc. http://loinc.org. Accessed 15 October 2011.
36. Integrating the Healthcare Enterprise, IHE Patient Care Coordination (PCC) technical framework. vol 2. Integrating the Healthcare Enterprise, 2011.
37. ebXML Registry Profile for Web Ontology Language (OWL), OASIS, 2006.
38. Frassica, J. J., Frequency of laboratory test utilization in the intensive care unit and its implications for large-scale data collection efforts. J. Am. Med. Inform. Assoc. JAMIA 12(2):229-233, 2005. doi: 10.1197/jamia.M1604.
39. dom4j.org dom4j. http://www.dom4j.org/. Accessed 4th August 2011.
40. Frassica, J. J., Frequency of laboratory test utilization in the intensive care unit and its implications for large scale data collection efforts. AMIA Annu. Symp. AMIA Symp. AMIA Symp. 844, 2003.
41. Khan, A. N., Griffith, S. P., Moore, C., Russell, D., Rosario, A. C., Jr., and Bertolli, J., Standardizing laboratory data by mapping to LOINC. J. Am. Med. Inform. Assoc. JAMIA 13(3):353-355, 2006. doi: 10.1197/jamia.M1935.
42. hk-doctor.com, Medical dictionary on-line for Chinese. http://www.hk-doctor.com/html/dict.php, 2012.
43. Baorto, D. M., Cimino, J. J., Parvin, C. A., and Kahn, M. G., Combining laboratory data sets from multiple institutions using the logical observation identifier names and codes (LOINC). Int. J. Med. Inform. 51(1):29-37, 1998.
44. Olivier Bodenreider Issues in mapping LOINC laboratory tests to SNOMED CT. In: AMIA 2008 Symposium Proceedings. p 54, 2008.
45. Christine, de la L., Michael, P. M., and Paul, W. PatientsLikeMe, a data-sharing online community: benfits for patient with Epilepsy. Paper presented at the 63rd Annual Meeting of the American Academy of Neurology, Honolulu, USA, 9-16 April, 2011.
46. Boulos, M., Harvey, F., Roudsari, A., Bellazzi, R., Hernando, M., Deutsch, T., Cramp, D., and Carson, E., A proposed semantic framework for diabetes education content management, customisation and delivery within the M2DM project. Comput. Methods Programs Biomed. 83(3):188-197, 2006.