Moving from PROMs to POEMs for glaucoma care: A qualitative scoping exercise

Investigative Ophthalmology and Visual Science

Volumn 53, Issue 9, 2012, Pages 5940-5947

  Somner, John E A ^a,b   Sii, Freda ^b,c   Bourne, Rupert R ^a,b   Cross, Vinette ^b,d   Burr, Jennifer M ^b,e   Shah, Peter ^b,c  

^a ANGLIA RUSKIN UNIVERSITY   (United Kingdom)

^b MOORFIELDS EYE HOSPITAL   (United Kingdom)

^c UNIVERSITY COLLEGE LONDON   (United Kingdom)

^d UNIVERSITY OF WOLVERHAMPTON   (United Kingdom)

^e UNIVERSITY OF ST ANDREWS   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; CHILD; CLINICAL ARTICLE; DAILY LIFE ACTIVITY; FEMALE; GLAUCOMA; HEALTH CARE PERSONNEL; HOSPITAL MANAGEMENT; HUMAN; MALE; MEDICAL STAFF; PATIENT CARE; PRIORITY JOURNAL; QUALITATIVE RESEARCH; QUALITY OF LIFE; QUESTIONNAIRE; SCHOOL CHILD; SOCIAL INTERACTION; TREATMENT OUTCOME; HEALTH STATUS; MIDDLE AGED; OUTCOME ASSESSMENT; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; REPRODUCIBILITY; SICKNESS IMPACT PROFILE;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; CHILD; FEMALE; GLAUCOMA; HEALTH STATUS; HUMANS; MALE; MIDDLE AGED; OUTCOME ASSESSMENT (HEALTH CARE); PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SICKNESS IMPACT PROFILE; YOUNG ADULT;

EID: 84871693706     PISSN: 01460404     EISSN: 15525783     Source Type: Journal    
DOI: 10.1167/iovs.12-10223     Document Type: Article

References (49)

1. Berwick DM. Medical associations: guilds or leaders? BMJ. 1997;314:1564-1565.
2. Institute of Medicine, Committee on Quality of Health Care in America. Crossing the Quality Chasm: A New Health System for the 21st Century. Washington, DC; National Academy Press, 2001.
3. Darzi A. High Quality Care for All: NHS Next Stage Review Final Report. London: Department of Health; 2008.
4. Glen FC, Crabb DP, Garway-Heath DF. The direction of research into visual disability and quality of life in glaucoma. BMC Ophthalmol. 2011;11:19.
5. Willke RJ, Burke LB, Erickson P. Measuring treatment impact: a review of patient-reported outcomes and other efficacy endpoints in approved product labels. Control Clin Trials. 2004;25:535-552.
6. World Health Organization. International Classification of Functioning, Disability and Health. Geneva, Switzerland: World Health Organization; 2007.
7. Fenwick E, Pesudovs K, Rees G, et al. The impact of diabetic retinopathy: understanding the patient's perspective. Br J Ophthalmol. 2011;95:774-782.
8. Khadka J, Pesudovs K, McAlinden C, Vogel M, Kernt M, Hirneiss C. Reengineering the glaucoma quality of life-15 questionnaire with rasch analysis. Invest Ophthalmol Vis Sci 2011;52:6971-6977.
9. Mangione CM, Berry S, Spritzer K, et al. Identifying the content area for the 51-item National Eye Institute Visual Function Questionnaire: results from focus groups with visually impaired persons. Arch Ophthalmol. 1998;116:227-233.
10. Williams A. EuroQol-a new facility for the measurement of health-related quality of life. Health Policy. 1990;16:199-208.
11. Burr JM, Kilonzo M, Vale L, Ryan M. Developing a preferencebased glaucoma utility index using a discrete choice experiment. Optom Vis Sci. 2007;84:797-808.
12. Chang CH, Cella D, Masters GA, et al. Real-time clinical application of quality-of-life assessment in advanced lung cancer. Clin Lung Cancer. 2002;4:104-109.
13. Chumbler NR, Kobb R, Harris L, et al. Healthcare utilization among veterans undergoing chemotherapy: the impact of a cancer care coordination/home-telehealth program. J Ambul Care Manage. 2007;30:308-317.
14. Dawson J, Doll H, Fitzpatrick R, Jenkinson C, Carr AJ. The routine use of patient reported outcome measures in healthcare settings. BMJ. 2010;340:c186.
15. Chalkidou K, Levine R, Dillon A. Helping poorer countries make locally informed health decisions. BMJ. 2010;341:c3651.
16. Donaldson G. Patient-reported outcomes and the mandate of measurement. Qual Life Res. 2008;17:1303-1313.
17. Velikova G, Booth L, Smith AB, et al. Measuring quality of life in routine oncology practice improves communication and patient well-being: a randomized controlled trial. J Clin Oncol. 2004;22:714-724.
18. Massof RW, Rubin GS. Visual function assessment questionnaires. Surv Ophthalmol. 2001;45:531-548.
19. Che Hamzah J, Burr JM, Ramsay CR, Azuara-Blanco A, Prior M. Choosing appropriate patient-reported outcomes instrument for glaucoma research: a systematic review of vision instruments. Qual Life Res. 2011;20:1141-1158.
20. Vandenbroeck S, De Geest S, Zeyen T, Stalmans I, Dobbels F. Patient-reported outcomes (PRO's) in glaucoma: a systematic review. Eye. 2011;25:555-577.
21. Tosh J, Brazier J, Evans P, Longworth L. A review of generic preference-based measures of health-related quality of life in visual disorders. Value Health. 2011;15:118-127.
22. Severn P, Fraser S, Finch T, May C. Which quality of life score is best for glaucoma patients and why? BMC Ophthalmology. 2008;8:2.
23. Staa TP, Goldacre B, Gulliford M, et al. Pragmatic randomised trials using routine electronic health records: putting them to the test. BMJ. 2012;344:e55.
24. Pesudovs K, Burr JM, Harley C, Elliott DB. The development, assessment, and selection of questionnaires. Optom Vis Sci. 2007;84:663-674.
25. Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77-101.
26. Prior M, Hamzah JC, Francis J, et al. Pre-validation methods for developing a patient reported outcome instrument. BMC Med Res Methodol. 2011;11:112.
27. Longworth L, Longson C. NICE methodology for technology appraisals. Pharmacoeconomics. 2008;26:729-732.
28. Benson T, Sizmur S, Whatling J, Arikan S, McDonald D, Ingram D. Evaluation of a new short generic measure of health status: HowRu. Inform Prim Care. 2010;18:89-101.
29. Duffey RJ, Leaming D. US trends in refractive surgery: 2003 ISRS/AAO survey. J Refract Surg. 2005;21:87-91.
30. Odberg T, Jakobsen JE, Hultgren SJ, Halseide R. The impact of glaucoma on the quality of life of patients in Norway. Acta Ophthalmol Scand. 2001;79:116-120.
31. van Nispen R, Knol D, Langelaan M, van Rens G. Re-evaluating a vision-related quality of life questionnaire with item response theory (IRT) and differential item functioning (DIF) analyses. BMC Med Res Methodol. 2011;11:125.
32. Lamoureux EL, Pallant JF, Pesudovs K, Hassell JB, Keeffe JE. The impact of vision impairment questionnaire: an evaluation of its measurement properties using rasch analysis. Invest Ophthalmol Vis Sci. 2006;47:4732-4741.
33. Lamoureux EL, Ferraro JG, Pallant JF, Pesudovs K, Rees G, Keeffe JE. Are standard instruments valid for the assessment of quality of life and symptoms in glaucoma? Optometry Vis Sci. 2007;84:789-796.
34. Van Gestel A, Webers C, Beckers H, et al. The relationship between visual field loss in glaucoma and health-related quality-of-life. Eye. 2010;24:1759-1769.
35. Brazier J, Tsuchiya A. Preference-based condition-specific measures of health: what happens to cross programme comparability? Health Econ. 2010;19:125-129.
36. Janz NK, Wren PA, Lichter PR, Musch DC, Gillespie BW, Guire KE. Quality of life in newly diagnosed glaucoma patients: the Collaborative Initial Glaucoma Treatment Study. Ophthalmology. 2001;108:887-897.
37. Pesudovs K. Item banking: a generational change in patientreported outcome measurement. Optom Vis Sci. 2010;87:285-293.
38. Cella D, Gershon R, Lai JS, Choi S. The future of outcomes measurement: item banking, tailored short-forms, and computerized adaptive assessment. Qual Life Res. 2007;16:133-141.
39. McAlinden C, Gothwal VK, Khadka J, Wright TA, Lamoureux EL, Pesudovs K. A head-to-head comparison of 16 cataract surgery outcome questionnaires. Ophthalmology. 2011;118: 2374-2381.
40. Browne J, Jamieson L, Lewsey J, van der Meulen J. Patient Reported Outcome Measures (PROMs) in Elective Surgery. Report to the Department of Health, December 12, 2007. Available at: http://www.lshtm.ac.uk/php/hsrp/research/ proms_report_12_dec_07.pdf. Accessed February 29, 2012.
41. Fung CH, Hays RD. Prospects and challenges in using patientreported outcomes in clinical practice. Qual Life Res. 2008;17: 1297-1302.
42. Black N, Browne J, Van Der Meulen J, Jamieson L, Copley L, Lewsey J. Is there overutilisation of cataract surgery in England? Br J Ophthalmol. 2009;93:13-17.
43. Sizmur SRD. Key Domains of the Experience of Hospital Outpatients. Oxford, UK: Picker Institute Europe; 2010. Discussion paper 2.
44. Aaronson NK, Snyder C. Using patient-reported outcomes in clinical practice: proceedings of an International Society of Quality of Life Research conference. Qual Life Res. 2008;17: 1295.
45. Allwood D, Hildon Z, Black N. Clinicians' views of formats of performance comparisons [published online ahead of print November 20, 2011]. J Eval Clin Pract. doi:10.1111/j. 1365-2753.2011.01777.x.
46. Devlin NJ, Appleby J. Getting the Most Out of PROMs. Putting Health Outcomes at the Heart of NHS Decision-Making. London, UK: The King's Fund, Office of Health Economics; 2010.
47. Burge P, Devlin N, Appleby J, Gallo F, Nason E, Ling T. Understanding Patients' Choices at the Point of Referral. Santa Monica, CA: Rand Corporation; 2006.
48. Warrian KJ, Altangerel U, Spaeth GL. Performance-based measures of visual function. Surv Ophthalmol. 2010;55:146-161.
49. Wei H, Sawchyn AK, Myers JS, et al. A clinical method to assess the effect of visual loss on the ability to perform activities of daily living. Br J Ophthalmol. 2012;96:735-741.