Why do we want the right to die? A systematic review of the international literature on the views of patients, carers and the public on assisted dying

Palliative Medicine

Volumn 27, Issue 1, 2013, Pages 13-26

  Hendry, Maggie ^a   Pasterfield, Diana ^a   Lewis, Ruth ^a   Carter, Ben ^a   Hodgson, Daniel ^b   Wilkinson, Clare ^a  

^a BANGOR UNIVERSITY   (United Kingdom)

^b CARDIFF UNIVERSITY   (United Kingdom)

Author keywords

assisted suicide; euthanasia; qualitative research; Systematic review

Indexed keywords

ARTICLE; ASSISTED DYING; ATTITUDE; DYING; EUTHANASIA; HUMAN; MEDLINE; PATIENT AUTONOMY; PSYCINFO; QUALITY OF LIFE; SYSTEMATIC REVIEW; TERMINAL CARE;

CAREGIVERS; HUMANS; PERSONAL AUTONOMY; PUBLIC OPINION; QUALITY OF LIFE; RELIGION; RIGHT TO DIE; SUICIDE, ASSISTED;

EID: 84871595100     PISSN: 02692163     EISSN: 1477030X     Source Type: Journal    
DOI: 10.1177/0269216312463623     Document Type: Article

References (45)

1. Market Research Services. Appendix 7: public opinion on the legalisation of euthanasia/PAS: a research review. Select committee on Assisted Dying for the Terminally Ill Bill, First report, 2007, http://www.publications.parliament.uk/ pa/ld200405/ldselect/ldasdy/86/8617.htm
2. Dyer C. Debbie Purdy fails to win protection for her husband to help her die. BMJ. 2009 ; 338: b742
3. Dyer C. Parents will not be prosecuted over son's suicide. BMJ. 2008 ; 337: a2990
4. BBC News. France rejects right-to-die plea, http://news.bbc.co.uk/1/hi/ 7301566.stm (accessed 17 July 2012).
5. CBC News Canada. The fight for the right to die, http://www.cbc.ca/news/ canada/story/2012/06/15/f-assisted-suicide.html (accessed 17 July 2012).
6. GuardianT. Terry Pratchett's BBC documentary reopens debate on assisted dying, http://www.guardian.co.uk/books/2011/jun/07/terry-pratchett-bbc-assisted- dying (accessed 18 July 2012).
7. The Telegraph. Sir Michael Caine: I asked a doctor to end my father's life, http://www.telegraph.co.uk/culture/culturenews/8051852/Sir-Michael-Caine- I-asked-a-doctor-to-end-my-fathers-life.html (accessed 18 July 2012).
8. Express.co.uk. Grant backs assisted suicide campaign, http://www.express.co.uk/posts/view/250618/Grant-backs-assisted-suicide- campaign-Grant-backs-assisted-suicide-campaign-Grant-backs-assisted-suicide- campaign-Grant-backs-assisted-suicide (accessed 17 July 2012).
9. Dickinson GE, Clark D, Winslow M, et al. US physicians' attitudes concerning euthanasia and physician-assisted death: a systematic literature review. Mortality. 2005 ; 10 (1). 43-52
10. Gielen J, Van Den Branden S, Broeckaert B. Attitudes of European physicians toward euthanasia and physician-assisted suicide: a review of the recent literature. J Palliat Care. 2008 ; 24 (3). 173-184
11. McCormack R, Clifford M, Conroy M. Attitudes of UK doctors towards euthanasia and physician-assisted suicide: a systematic literature review. Palliat Med. 2011 ; 26 (1). 23-33
12. Materstvedt LJ, Clark D, Ellershaw J, et al. Euthanasia and physician-assisted suicide: a view from an EAPC Ethics Task Force. Palliat Med. 2003 ; 17: 97-101
13. DIGNITAS. Accompanied suicide, http://www.dignitas.ch/index.php?option= com-content;view=articleid=20Itemid=60lang=en (2012, accessed 18 April 2012)
14. Undertaking systematic reviews of research on effectiveness: CRD's guidance for those carrying out or commissioning reviews. 2 nd ed.York: NHS CRD, University of York, 2001. York: NHS CRD, University of York ; 2001 :
15. Harden A, Garcia J, Oliver S, et al. Applying systematic review methods to studies of people's views: an example from public health research. J Epidemiol Community Health. 2004 ; 58: 794-800
16. Moher D, Liberati A, Tetzlaff J, et al. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. BMJ. 2009 ; 339: 332-339
17. National Institute for Health and Clinical Excellence. The guidelines manual 2009. Appendix I: methodology checklist: qualitative studies, http://www.nice.org.uk/aboutnice/howwework/developingniceclinicalguidelines/ clinicalguidelinedevelopmentmethods/GuidelinesManual2009.jsp (2009, accessed 5 January 2011).
18. Crombie I.K The pocket guide to critical appraisal. London: BMJ Publishing Group ; 1996 :
19. Major CH, Savin-Baden M An introduction to qualitative research synthesis: managing the information explosion in social science research. London: Routledge ; 2010 :
20. Ritchie JSL Analysing qualitative data. Bryman A Burgess RG, ed. London: Routledge ; 1994: 173-194.
21. Swallow V, Newton J, Lottum CV. How to manage and display qualitative data using 'Framework' and Microsoft Excel. J Clin Nurs. 2003 ; 12: 610-612
22. Richie J, Lewis J, Elam G Qualitative research practice a guide for social science students and researchers. Ritchie J Lewis J, ed. Thousand Oaks, CA: Sage ; 2003 :
23. Baeke G, Wils JP, Broeckaert B. 'We are (not) the master of our body': elderly Jewish women's attitudes towards euthanasia and assisted suicide. Ethn Health. 2011 ; 16 (3). 259-278
24. Chapple A, Ziebland S, McPherson A, et al. What people close to death say about euthanasia and assisted suicide: a qualitative study. J Med Ethics. 2006 ; 32 (12). 706-710
25. Daskal FC, Hougham GW, Sachs GA. Physician-assisted suicide: interviews with patients with dementia and their families. Ann Longterm Care. 1999 ; 7 (8). 293-298
26. Dees M, Vernooij-Dassen M, Dekkers W, et al. 'Unbearable suffering':a qualitative study on the perspectives of patients who request assistance in dying. J Med Ethics. 2011 ; 37 (12). 727-734
27. Drum CE, White G, Taitano G, et al. The Oregon Death with Dignity Act: results of a literature review and naturalistic inquiry. Disabil Health J. 2010 ; 3 (1). 3-15
28. Eliott JA, Olver IN. Dying cancer patients talk about euthanasia. Soc Sci Med. 2008 ; 67 (4). 647-656
29. Fadem P, Minkler M, Perry M, et al. Attitudes of people with disabilities toward physician-assisted suicide legislation: broadening the dialogue. J Health Polit Policy Law. 2003 ; 28 (6). 977-1001
30. Georges J-J, Onwuteaka-Philipsen BD, Muller MT, et al. Relatives' perspective on the terminally ill patients who died after euthanasia or physician-assisted suicide: a retrospective cross-sectional interview study in the Netherlands. Death Stud. 2007 ; 31 (1). 1-15
31. Johansen S, Holen JC, Kaasa S, et al. Attitudes towards, and wishes for, euthanasia in advanced cancer patients at a palliative medicine unit. Palliat Med. 2005 ; 19 (6). 454-460
32. Kuuppelomaki M. Attitudes of cancer patients, their family members and health professionals toward active euthanasia. Eur J Cancer Care (Engl). 2000 ; 9 (1). 16-21
33. Lavery JV, Boyle J, Dickens BM, et al. Origins of the desire for euthanasia and assisted suicide in people with HIV-1 or AIDS: a qualitative study. Lancet. 2001 ; 358 (9279). 362-367
34. Mak YYW, Elwyn G. Voices of the terminally ill: uncovering the meaning of desire for euthanasia. Palliat Med. 2005 ; 19 (4). 343-350
35. Morrow E. Attitudes of women from vulnerable populations toward physician-assisted death: a qualitative approach. J Clin Ethics. 1997 ; 8 (3). 279-289
36. Pearlman RA, Hsu C, Starks H, et al. Motivations for physician-assisted suicide: patient and family voices. J Gen Intern Med. 2005 ; 20 (3). 234-239
37. Wilson KG, Scott JF, Graham ID, et al. Attitudes of terminally ill patients toward euthanasia and physician-assisted suicide. Arch Intern Med. 2000 ; 160 (16). 2454-2460
38. Winland-Brown JE, John , Mary Q. Public's perceptions of a good death and assisted suicide. Issues in Interdisciplinary Care. 2001 ; 3 (2). 137-144
39. Dees MK, Vernooij-Dassen MJ, Dekkers WJ, et al. Unbearable suffering of patients with a request for euthanasia or physician-assisted suicide: an intergrative review. Psychooncology. 2010 ; 19 (4). 339-352
40. DIGNITAS. Statistics, http://www.dignitas.ch/index.php?option=com- content&;view=article&id=32&Itemid=34&lang=en (accessed 18 July 2012).
41. Scope. Poll shows disabled people's fears over assisted suicide, http://www.scope.org.uk/news/poll-on-assisted-suicide (2011, accessed 7 December 2011).
42. Clery E, McLean S, Phillips M Quickening death: the euthanasia debate. British Social Attitudes: 2006-2007 The 23rd report. London: Sage ; 2007 :
43. Verbakel E, Jaspers E. A comparative study on permissiveness toward euthanasia: religiosity, slippery slope, autonomy, and death with dignity. Public Opin Q. 2010 ; 74 (1). 109-139
44. ChambaereKCentenoCHernandezEA. Palliative care development in countries with a euthanasia law. Report for the Commission on Assisted Dying briefing papers, London, UK: Commission on Assisted Dying; 2011. (http://www. commissiononassisteddying.co.uk/wp-content/uploads/2011/10/EAPC-Briefing-Paper- Palliative-Care-in-Countries-with-a-Euthanasia-Law.pdf).
45. NoyesJPopayJPearsonA. Chapter 20: qualitative research and Cochrane reviews. In: HigginsJPTGreenS (eds) Cochrane handbook for systematic reviews of interventions, Version 5.1.0 (updated March 2011). The Cochrane Collaboration, 2011. Available from www.cochrane-handbook.org.