Relatives' perspective on the terminally ill patients who died after euthanasia or physician-assisted suicide: A retrospective cross-sectional interview study in the Netherlands

Death Studies

Volumn 31, Issue 1, 2007, Pages 1-15

  Georges, Jean Jacques ^a   Onwuteaka Philipsen, Bregje D ^a   Muller, Martien T ^a   Van Der Wal, Gerrit ^a   Van Der Heide, Agnes ^b   Van Der Maas, Paul J ^b  

^a VU UNIVERSITY MEDICAL CENTER   (Netherlands)

^b ERASMUS MEDICAL CENTER   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; ATTITUDE TO DEATH; CANCER PATIENT; CONVALESCENCE; DYING; EUTHANASIA; FEMALE; HOPELESSNESS; HUMAN; HUMAN DIGNITY; INTERVIEW; MAJOR CLINICAL STUDY; MALE; NETHERLANDS; PHYSICIAN; RELATIVE; RETROSPECTIVE STUDY; SPOUSE; SUICIDE; TERMINAL DISEASE; TERMINALLY ILL PATIENT;

ACTIVITIES OF DAILY LIVING; CROSS-SECTIONAL STUDIES; EUTHANASIA, ACTIVE; FAMILY; FEMALE; HUMANS; INTERVIEWS; MALE; NETHERLANDS; QUALITY OF LIFE; RIGHT TO DIE; SUICIDE, ASSISTED; TERMINALLY ILL;

EID: 33751543127     PISSN: 07481187     EISSN: 10917683     Source Type: Journal    
DOI: 10.1080/07481180600985041     Document Type: Article

References (26)

1. Back, A. L., Wallace, J. L., Starks, H. E., & Pearlman, R. A. (1996). Physician-assisted suicide and euthanasia in Washington State. Patient requests and physician responses. Journal of the American Medical Association, 275, 919-925.
2. Emanuel, E. J. (2002). Euthanasia and physician-assisted suicide. A review of the empirical data from the United States. Archive of Internal Medicine, 162, 142-152.
3. Emanuel, E. J., Fairclough, D. L., & Emanuel, L. L. (2000). Attitudes and desires related to euthanasia and physician-assisted suicide among terminally ill patients and their caregivers. Journal of the American Medical Association, 284, 2460-2468.
4. Francke, A. L. & Willems, D. L. (2000). Palliative care today and tomorrow. Facts, views and scenario. Maarssen, The Netherlands: Elsevier gezondheidszorg.
5. Georges, J. J., Onwuteaka-Philipsen, B. D., van der Heide, A., van der Wal, G., & van der Maas, P. J. (2005). Symptoms, treatment and "dying peacefully" in terminally ill cancer patients: a prospective study. Supportive Care in Cancer, 13, 160-168.
6. Georges, J. J., Onwuteaka-Philipsen, B. D., van der Heide, A., van der Wal, G., & van der Maas, P. J. (2006). Requests to forgo potentially life-prolonging treatment and to hasten death in terminally ill cancer patients: a prospective study. Journal of Pain and Symptom Management, 31, 100-110.
7. Haverkate, I., van der Heide, A., Onwuteaka-Philipsen, B. D., van der Maas, P. J., & van der Wal, G. (2001). The emotional impact on physicians of hastening the death of a patient. The Medical Journal of Australia, 175, 519-522.
8. Higginson, I., Priest, P., & McCarthy, M. (1994). Are bereaved family members a valid proxy for a patient's assessment of dying? Social Science & Medicine, 38, 553-557.
9. Hinton, J. (1996). How reliable are relatives' retrospective reports of terminal illness? Patients' and relatives account compared. Social Science & Medicine, 43, 1229-1236.
10. Jansen-van der Weide, M. C., Onwuteaka-Philipsen, B. D., & van der Wal, G. (2005). Granted, undecided, withdrawn and refused requests for euthanasia and physician-assisted suicide. Archive of Internal Medicine, 165, 1698-1704.
11. Jones, J. M., Huggins, M. A., Rydall, A. C., & Rodin, G. M. (2003). Symptomatic distress, hopelessness, and the desire for hastened death in hospitalised cancer patients. Journal of Psychosomatic Research, 55, 411-418.
12. Kelly, B., Burnett, P., Pelusi, D., Badger, S., Varghese, F., & Robertson, M. (2003). Factors associated with the wish to hasten death: A study of patients with terminal illness. Psychological Medicine, 33, 75-81.
13. Klinkenberg, M., Smit, J. H., Deeg, D. J. H., Willems, D. L., Onwuteaka-Philipsen, B. D., & van der Wal, G. (2003). Proxy reporting in after death interviews: The use of proxy respondents in retrospective assessment of chronic diseases and symptom burden in the terminal phase of life. Palliative Medicine, 17, 191-201.
14. Mak, Y. Y. & Elwyn, G. (2005). Voices of the terminally ill: Uncovering the meaning of desire for euthanasia. Palliative Medicine, 19, 343-350.
15. Materstvedt, L. J. & Kaasa, S. (2002). Euthanasia and physician-assisted suicide in Scandinava-with a conceptual suggestion regarding international research in relation to the phenomena. Palliative Medicine, 16, 17-32.
16. McPherson, C. J. & Addington-Hall, J. M. (2003). Judging the quality of care at the end of life: Can proxies provide reliable information? Social Science & Medicine, 56, 95-109.
17. Meier, D. E., Emmons, C. A., Litke, A., Wallenstein, S., & Morrison, S. (2003). Characteristics of patients requesting and receiving physician-assisted death. Archive of Internal Medicine, 163, 1537-1542.
18. Mitchell, K. (2004). Physician commitment in end of life care-perspectives from New-Zealand and the Netherlands. Social Science & Medicine, 59, 775-785.
19. Onwuteaka-Philipsen, B. D., van der Heide, A., Koper, D., Keij-Deerenberg, I., Rietjens, J. A. C., Rurup, M. L., Vrakking, A. M., Georges, J. J., Muller, M. T., van der Wal, G., & van der Maas, P. J. (2003). Euthanasia and other end-of-life decisions in the Netherlands in 1990, 1995, and 2001. The Lancet, 362, 395-399.
20. Rabow, M. W., Hauser, J. M., & Adams, J. (2004). Supporting family caregivers at the end of life: "They don't know what they don't know." Journal of the American Medical Association, 291, 483-491.
21. Sullivan, A. D., Hedberg, K., & Hopkins, D. (2001). Legalized physician-assisted suicide in Oregon, 1998-2000. The New England Journal of Medicine, 344, 605-607.
22. Swarte, N. B., van der Lee, M. L., van der Bom, J. G., van den Bout, J., & Heintz, A. P. (2003). Effects of euthanasia on the bereaved family and friends: A cross sectional study. British Medical Journal, 327, 189.
23. Van der Heide, A., Deliens, L., Faisst, K., Nilstun, T., Norup, M., Paci, E., van der Wal, G., & van der Maas, P. J. (2003). End-of-life decision-making in six European countries: Descriptive study. The Lancet, 362, 345-350.
24. Van der Maas, P. J., van der Wal, G., Haverkate, I., de Graaff, C. L., Kester, J. G., Onwuteaka-Philipsen, B. D., van der Heide, A., Bosma, J. M., & Willems, D. L. (1996). Euthanasia, physician-assisted suicide, and other medical practices involving the end of life in the Netherlands, 1990-1995. The New England Journal of Medicine, 335, 1699-1705.
25. Van der Wal, G., van der Heide, A., Onwuteaka-Philipsen, B. D., & van der Maas, P. J. (2003). Medical decisions at the end of life. Practice and the euthanasia review procedure. Utrecht, The Netherlands: de Tijdstroom.
26. Van der Wal, G. & van der Maas, P. J. (1996). Euthanasia and other decisions concerning the end-of-life. Den Haag, The Netherlands: SDU Uitgevers.