-
1
-
-
41849095185
-
Research ethics recommendations for whole-genome research: Consensus statement
-
Caulfield T, McGuire AL, Cho M et al. Research ethics recommendations for whole-genome research: Consensus statement. Plos Biol. 6(3), e73 (2008
-
(2008)
Plos Biol
, vol.6
, Issue.3
-
-
Caulfield, T.1
McGuire, A.L.2
Cho, M.3
-
2
-
-
29944440965
-
Implications of disclosing individual results of clinical research
-
Clayton EW, Ross LF. Implications of disclosing individual results of clinical research. JAMA 295(1), 37 (2006
-
(2006)
JAMA
, vol.295
, Issue.1
, pp. 37
-
-
Clayton, E.W.1
Ross, L.F.2
-
3
-
-
84859622336
-
Taking aims seriously: Repository research and limits on the duty to return individual research findings
-
Ossorio P. Taking aims seriously: Repository research and limits on the duty to return individual research findings. Genet. Med. 14(4), 461-466 (2012
-
(2012)
Genet. Med
, vol.14
, Issue.4
, pp. 461-466
-
-
Ossorio, P.1
-
4
-
-
23344451021
-
Disclosing individual results of clinical research: Implications of respect for participants
-
Shalowitz DI, Miller FG. Disclosing individual results of clinical research: Implications of respect for participants. JAMA 294(6), 737-740 (2005
-
(2005)
JAMA
, vol.294
, Issue.6
, pp. 737-740
-
-
Shalowitz, D.I.1
Miller, F.G.2
-
5
-
-
38449089111
-
The uneasy ethical and legal underpinnings of large-scale genomic biobanks
-
Greely HT. The uneasy ethical and legal underpinnings of large-scale genomic biobanks. Annu. Rev. Genomics Hum. Genet. 8, 343-364 (2007
-
(2007)
Annu. Rev. Genomics Hum. Genet
, vol.8
, pp. 343-364
-
-
Greely, H.T.1
-
6
-
-
33750388916
-
The emergence of an ethical duty to disclose genetic research results: International perspectives
-
Knoppers BM, Joly Y, Simard J, Durocher F. The emergence of an ethical duty to disclose genetic research results: International perspectives. Eur. J. Hum. Genet. 14(11), 1170-1178 (2006
-
(2006)
Eur. J. Hum. Genet
, vol.14
, Issue.11
, pp. 1170-1178
-
-
Knoppers, B.M.1
Joly, Y.2
Simard, J.3
Durocher, F.4
-
7
-
-
33646254125
-
Reporting genetic results in research studies: Summary and recommendations of an NHLBI working group
-
Bookman EB, Langehorne AA, Eckfeldt JH et al. Reporting genetic results in research studies: Summary and recommendations of an NHLBI working group. Am. J. Med. Genet. A. 140(10), 1033-1040 (2006
-
(2006)
Am. J. Med. Genet. A.
, vol.140
, Issue.10
, pp. 1033-1040
-
-
Bookman, E.B.1
Langehorne, A.A.2
Eckfeldt, J.H.3
-
8
-
-
79951863517
-
Ethical and practical guidelines for reporting genetic research results to study participants: Updated guidelines from a national heart lung, and blood institute working group
-
Fabsitz RR, McGuire A, Sharp RR et al. Ethical and practical guidelines for reporting genetic research results to study participants: Updated guidelines from a National Heart, Lung, and Blood Institute working group. Circ. Cardiovasc. Genet. 3(6), 574-580 (2010
-
(2010)
Circ. Cardiovasc. Genet
, vol.3
, Issue.6
, pp. 574-580
-
-
Fabsitz, R.R.1
McGuire, A.2
Sharp, R.R.3
-
9
-
-
77955628265
-
Offering individual genetic research results: Context matters
-
38cm20
-
Beskow LM, Burke W. Offering individual genetic research results: Context matters. Sci. Transl. Med. 2(38), 38cm20 (2010
-
(2010)
Sci. Transl. Med
, vol.2
, Issue.38
-
-
Beskow, L.M.1
Burke, W.2
-
10
-
-
0034718152
-
Users' guides to the medical literature: XXIII qualitative research in health care b what are the results and how do they help me care for my patients?
-
Evidence-Based Medicine Working Group
-
Giacomini MK, Cook DJ. Users' guides to the medical literature: XXIII. Qualitative research in health care B. What are the results and how do they help me care for my patients? Evidence-Based Medicine Working Group. JAMA 284(4), 478-482 (2000
-
(2000)
JAMA
, vol.284
, Issue.4
, pp. 478-482
-
-
Giacomini, M.K.1
Cook, D.J.2
-
11
-
-
27844518793
-
Three approaches to qualitative content analysis
-
Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual. Health Res. 15(9), 1277-1288 (2005
-
(2005)
Qual. Health Res
, vol.15
, Issue.9
, pp. 1277-1288
-
-
Hsieh, H.F.1
Shannon, S.E.2
-
12
-
-
84859595869
-
The legal risks of returning results of genomics research
-
Clayton EW, McGuire AL. The legal risks of returning results of genomics research. Genet. Med. 14(4), 473-477 (2012
-
(2012)
Genet. Med
, vol.14
, Issue.4
, pp. 473-477
-
-
Clayton, E.W.1
McGuire, A.L.2
-
13
-
-
84859577332
-
Exploring concordance and discordance for return of incidental findings from clinical sequencing
-
Green RC, Berg JS, Berry GT et al. Exploring concordance and discordance for return of incidental findings from clinical sequencing. Genet. Med. 14(4), 405-410 (2012
-
(2012)
Genet. Med
, vol.14
, Issue.4
, pp. 405-410
-
-
Green, R.C.1
Berg, J.S.2
Berry, G.T.3
-
14
-
-
33745905942
-
The incidentalome: A threat to genomic medicine
-
Kohane IS, Masys DR, Altman RB. The incidentalome: A threat to genomic medicine. JAMA 296(2), 212-215 (2006
-
(2006)
JAMA
, vol.296
, Issue.2
, pp. 212-215
-
-
Kohane, I.S.1
Masys, D.R.2
Altman, R.B.3
-
15
-
-
84857855694
-
Disclosing pathogenic genetic variants to research participants: Quantifying an emerging ethical responsibility
-
Cassa CA, Savage SK, Taylor PL, Green RC, McGuire AL, Mandl KD. Disclosing pathogenic genetic variants to research participants: Quantifying an emerging ethical responsibility. Genome Res. 22(3), 421-428 (2012
-
(2012)
Genome Res
, vol.22
, Issue.3
, pp. 421-428
-
-
Cassa, C.A.1
Savage, S.K.2
Taylor, P.L.3
Green, R.C.4
McGuire, A.L.5
Mandl, K.D.6
-
16
-
-
34248647304
-
Reestablishing the researcher-patient compact
-
Kohane IS, Mandl KD, Taylor PL, Holm IA, Nigrin DJ, Kunkel LM. Reestablishing the researcher-patient compact. Science 316(5826), 836-837 (2007
-
(2007)
Science
, vol.316
, Issue.5826
, pp. 836-837
-
-
Kohane, I.S.1
Mandl, K.D.2
Taylor, P.L.3
Holm, I.A.4
Nigrin, D.J.5
Kunkel, L.M.6
-
17
-
-
0018869385
-
Informed consent: How much does the patient understand?
-
Bergler JH, Pennington AC, Metcalfe M, Freis ED. Informed consent: How much does the patient understand? Clin. Pharmacol. Ther. 27(4), 435-440 (1980
-
(1980)
Clin. Pharmacol. Ther
, vol.27
, Issue.4
, pp. 435-440
-
-
Bergler, J.H.1
Pennington, A.C.2
Metcalfe, M.3
Freis, E.D.4
-
18
-
-
0035944839
-
Quality of informed consent in cancer clinical trials: A cross-sectional survey
-
Joffe S, Cook EF, Cleary PD, Clark JW, Weeks JC. Quality of informed consent in cancer clinical trials: A cross-sectional survey. Lancet 358(9295), 1772-1777 (2001
-
(2001)
Lancet
, vol.358
, Issue.9295
, pp. 1772-1777
-
-
Joffe, S.1
Cook, E.F.2
Cleary, P.D.3
Clark, J.W.4
Weeks, J.C.5
-
20
-
-
59849085993
-
Assessing the understanding of biobank participants
-
Ormond KE, Cirino AL, Helenowski IB, Chisholm RL, Wolf WA. Assessing the understanding of biobank participants. Am. J. Med. Genet. Part A 149A(2), 188-198 (2009
-
(2009)
Am. J. Med. Genet. Part A
, vol.A149
, Issue.2
, pp. 188-198
-
-
Ormond, K.E.1
Cirino, A.L.2
Helenowski, I.B.3
Chisholm, R.L.4
Wolf, W.A.5
-
21
-
-
33845725166
-
Informed consent and subject motivation to participate in a large, population-based genomics study: The marshfield clinic personalized medicine research project
-
McCarty CA, Nair A, Austin DM, Giampietro PF. Informed consent and subject motivation to participate in a large, population-based genomics study: The Marshfield Clinic Personalized Medicine Research Project. Community Genet. 10(1), 2-9 (2007
-
(2007)
Community Genet
, vol.10
, Issue.1
, pp. 2-9
-
-
McCarty, C.A.1
Nair, A.2
Austin, D.M.3
Giampietro, P.F.4
|