The challenge of delivering endocrine care and successful transition to adult services in adolescents with congenital adrenal hyperplasia: Experience in a single centre over 18 years

Clinical Endocrinology

Volumn 78, Issue 1, 2013, Pages 23-28

  Gleeson, Helena ^a   Davis, Joanne ^b   Jones, Julie ^b   O'Shea, Elaine ^b   Clayton, Peter E ^b,c  

^a LEICESTER ROYAL INFIRMARY   (United Kingdom)

^b ROYAL MANCHESTER CHILDREN S HOSPITAL   (United Kingdom)

^c UNIVERSITY OF MANCHESTER   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

FLUDROCORTISONE; HYDROCORTISONE;

ADOLESCENT; ADULT; ARTICLE; CONGENITAL ADRENAL HYPERPLASIA; ELECTRONIC MEDICAL RECORD; FEMALE; FOLLOW UP; HEALTH SERVICE; HEALTH STATUS; HOSPITAL MANAGEMENT; HUMAN; MAJOR CLINICAL STUDY; MALE; PATIENT CARE; PRIORITY JOURNAL; REPRODUCTIVE HEALTH; SEX DIFFERENCE;

ADOLESCENT; ADRENAL HYPERPLASIA, CONGENITAL; ADULT; DELIVERY OF HEALTH CARE; FEMALE; HUMANS; MALE; MIDDLE AGED; PEDIATRICS; TRANSITION TO ADULT CARE; YOUNG ADULT;

EID: 84871024644     PISSN: 03000664     EISSN: 13652265     Source Type: Journal    
DOI: 10.1111/cen.12053     Document Type: Article

References (20)

1. Arlt, W., Willis, D.S., Wild, S.H., et al., et al. (2010) Health status of adults with congenital adrenal hyperplasia: a cohort study of 203 patients. The Journal of Clinical Endocrinology and Metabolism, 95, 5110-5121.
2. Body, D., (2006) Transition: getting it right for young people. Department of Health, Child Health and Maternity Services Branch, 271558, 1-48.
3. Allen, D., Channon, S., Lowes, L., et al. (2011) Behind the scenes: the changing roles of parents in the transition from child to adult diabetes service. Diabetic Medicine, 28, 994-1000.
4. de Beaufort, C., Jarosz-Chobot, P., Frank, M., et al. (2010) Transition from pediatric to adult diabetes care: smooth or slippery?. Pediatric Diabetes, 11, 24-27.
5. Nakhla, M., Daneman, D., To, T., et al. (2009) Transition to adult care for youths with diabetes mellitus: findings from a Universal Health Care System. Pediatrics, 124, e1134-e1141.
6. Neu, A., Losch-Binder, M., Ehehalt, S., et al. (2010) Follow-up of adolescents with diabetes after transition from paediatric to adult care: results of a 10-year prospective study. Experimental and Clinical Endocrinology & Diabetes, 118, 353-355.
7. Perry, L., Steinbeck, K.S., Dunbabin, J.S., et al. (2010) Lost in transition? Access to and uptake of adult health services and outcomes for young people with type 1 diabetes in regional New South Wales The Medical Journal of Australia, 193, 444-449.
8. Price, C.S., Corbett, S., Lewis-Barned, N., et al. (2011) Implementing a transition pathway in diabetes: a qualitative study of the experiences and suggestions of young people with diabetes. Child Care Health Development, 37, 852-860.
9. Conway, G.S., (2007) Congenital adrenal hyperplasia: adolescence and transition. Hormone Research, 68 (Suppl 5), 155-157.
10. Dorr, H.G., &, Schofl, C., (2009) Congenital adrenal hyperplasia and growth hormone deficiency. Special care in transition to adulthood. Internist (Berl), 50, 1202 1204, 1206 passim.
11. Kruse, B., Riepe, F.G., Krone, N., et al., et al. (2004) Congenital adrenal hyperplasia-how to improve the transition from adolescence to adult life. Experimental and Clinical Endocrinology & Diabetes, 112, 343-355.
12. Speiser, P.W., (2001) Congenital adrenal hyperplasia: transition from chil dhood to adulthood. Journal of Endocrinological Investigation, 24, 681-691.
13. Harrington, J., Pena, A.S., Gent, R., et al. (2012) Adolescents with congenital adrenal hyperplasia due to 21-hydroxylase deficiency have vascular dysfunction. Clinical Endocrinology (Oxf), 76, 837-842.
14. Roche, E.F., Charmandari, E., Dattani, M.T., et al. (2003) Blood pressure in children and adolescents with congenital adrenal hyperplasia (21-hydroxylase deficiency): a preliminary report. Clinical Endocrinology (Oxf), 58, 589-596.
15. Volkl, T.M., Simm, D., Beier, C., et al. (2006) Obesity among children and adolescents with classic congenital adrenal hyperplasia due to 21-hydroxylase deficiency. Pediatrics, 117, e98-e105.
16. Volkl, T.M., Simm, D., Dotsch, J., et al. (2006) Altered 24-hour blood pressure profiles in children and adolescents with classical congenital adrenal hyperplasia due to 21-hydroxylase deficiency. The Journal of Clinical Endocrinology and Metabolism, 91, 4888-4895.
17. Wasniewska, M., Balsamo, A., Valenzise, M., et al., et al. (2011) Increased large artery intima media thickness in adolescents with either classical or non-classical congenital adrenal hyperplasia. Journal of Endocrinological Investigation [Epub ahead of print].
18. Kirk, J., &, Clayton, P., (2006) Specialist services and transitional care in paediatric endocrinology in the UK and Ireland. Clinical Endocrinology (Oxf), 65, 59-63.
19. Kipps, S., Bahu, T., Ong, K., et al., et al. (2002) Current methods of transfer of young people with Type 1 diabetes to adult services. Diabetic Medicine, 19, 649-654.
20. Allen, D., (2010) The transition from paediatric to adult diabetes services: what works, for whom and in what circumstances? (TCADS). HS & DR Project, 08/1504/107, 1-100.