Behind the scenes: The changing roles of parents in the transition from child to adult diabetes service

Diabetic Medicine

Volumn 28, Issue 8, 2011, Pages 994-1000

  Allen, D ^a   Channon, S ^b   Lowes, L ^a   Atwell, C ^a   Lane, C ^a  

^a School of Nursing and Midwifery Studies   (United Kingdom)

^b CARDIFF AND VALE UNIVERSITY HEALTH BOARD   (United Kingdom)

Author keywords

Carers; Mothers; Transition; Young people

Indexed keywords

ADULT; AGED; ARTICLE; DIABETES MELLITUS; FEMALE; HEALTH CARE POLICY; HEALTH CARE PRACTICE; HEALTH CARE QUALITY; HUMAN; MAJOR CLINICAL STUDY; MALE; MOTHER; POPULATION DYNAMICS; PUBLIC HEALTH SERVICE; QUALITATIVE ANALYSIS; ROLE CHANGE; SEMI STRUCTURED INTERVIEW;

ADOLESCENT; CONTINUITY OF PATIENT CARE; DELIVERY OF HEALTH CARE; DIABETES MELLITUS; FEMALE; GREAT BRITAIN; HEALTH POLICY; HUMANS; MALE; PARENTS; PRACTICE GUIDELINES AS TOPIC; TIME FACTORS; YOUNG ADULT;

EID: 79960226678     PISSN: 07423071     EISSN: 14645491     Source Type: Journal    
DOI: 10.1111/j.1464-5491.2011.03310.x     Document Type: Article

References (27)

1. Morris A, Boyle DI, McMahon AD, Greene SA, MacDonald TM, Newton RW. Adherence to insulin treatment, glycaemic control, and ketoacidosis in insulin-dependent diabetes mellitus. Lancet 1997; 350: 1505-1510.
2. Pound N, Sturrock ND, Jeffcoate WJ. Age-related changes in glycated haemoglobin in patients with insulin-dependent diabetes mellitus. Diabet Med 1996; 13: 510-513.
3. Greene S. The adolescent with diabetes. In: Macfarlane A, ed. Adolescent Medicine. London: Royal College of Physicians of London, 1996: 97-103.
4. Flemming E. The transition of adolescents with diabetes from the children's health care service into the adult health care service: a review of the literature. J Clin Nurs 2002; 11: 560-567.
5. Viner R. Transition from paediatric to adult care. Bridging the gaps or passing the buck. Arch Dis Child 1999; 81: 271-275.
6. Veralto G, Muggeo M, Bonora E, Corbellini M, Bressan F, de Marco R. Attending the diabetes centres is associated with increased 5-year survival probability of diabetic patients. Diabetes Care 1996; 19: 211-213.
7. Donnovan JL, Blake DR. Patient non-compliance: deviance or reasoned decision-making. Soc Sci Med 1992; 24: 507-513.
8. Allen D, Gregory JW. The transition from children's to adult diabetes services: understanding the 'problem'. Diabet Med 2009; 26: 162-166.
9. Valentine G. Boundary crossings: transitions from childhood to adulthood. Children's Geographies 2003; 1: 37-52.
10. Brannen J. Discourses of adolescence: young peoples's independence and autonomy within families. In: Brannen J, O'Brien M, eds. Children in Families - Research and Policy. London: Falmer Press, 1996: 114-129.
11. Prout A. Sickness as a Dominant Symbol in Life Course Transitions:An illustrated theoretical framework. Sociol Health Illn 1989; 11: 337-359.
12. Rasmussen B, O'Connell B, Dunning P, Cox H. Young women with type 1 diabetes' management of turning points and transitions. Qual Health Res 2007; 17: 300-310.
13. Williams C. Mothers, Young People and Chronic Illness. Aldershot: Ashgate, 2002.
14. La Greca A, Auslander W, Greco P, Spetter D, Fisher E, Santiago J. I get by with a little help from my family and friends: adolescents' support for diabetes care. J Pediatr Psychol 1995; 20: 449-476.
15. La Greca AM, Bearman KJ. The Diabetes Social Support Questionnaire-Family Version: Evaluating adolescents' diabetes-specific support from family members. J Pediatr Psychol 2002; 27: 665-676.
16. Skinner T, Hampson S. Social support and personal models of diabetes in relation to self-care and well-being in adolescents with type 1 diabetes mellitus. J Adolesc 1998; 21: 703-715.
17. Wysocki T, Taylor A, Hough B, Linscheif T, Yeates K, Naglieri J. Deviation from developmentally appropriate self-care autonomy. Diabetes Care 1996; 19: 119-125.
18. Allen D, Cohen D, Robling M, Hood K, Atwell C, Lane C et al. The transition from paediatric to adult diabetes services: what works, for whom and in what circumstances? Final report. NIHR Service Delivery and Organisation programme. 2010. Available at: Last accessed 17 April 2011.
19. Corbin J, Strauss A. Managing chronic illness at home: three lines of work. Qual Sociol 1985; 8: 224-247.
20. Corbin J, Strauss A. Unending Work and Care; Managing Chronic Illness at Home. San Francisco/London: Jossey-Bass Publishers, 1988.
21. Strauss A, Fagerhaugh S, Suczek B, Wiener C. The Social Organization of Medical Work. Chicago: University of Chicago Press, 1985.
22. Bowes S, Lowes L, Warner J, Gregory JW. Chronic sorrow in parents of children with type 1 diabetes 7-10years after diagnosis. J Adv Nurs 2009; 65: 992-1000.
23. Rosen D. Transition from paediatric to adult-orientated health care for adolescents with chronic illness or disability. Adolesc Med 1994; 5: 241-248.
24. Holdsworth C, Morgan D. Transitions in Context: Leaving Home, Independence and Adulthood. Maidenhead: Open University Press, 2005.
25. Langford W, Lewis C, Solomon Y, Warin J. Family Understandings:Closeness, Authority and Independence in Families with Teenagers. York: Family Policy Studies Centre, 2001.
26. Parker G, Corden A, Heaton J. Synthesis and Conceptual Analysis of the SDO Programme's Research on Continuity of Care. York: Social Policy Research Unit, University of York, 2009.
27. Hanna K, Juarez B, Lenss S, Guthrie D. Parent-adolescent communication and support for diabetes management as reported by adolescents with type 1 diabetes. Issues Compr Pediatr Nurs 2003; 26: 145-158.