Burden of caregivers of patients in Vegetative State and Minimally Conscious State

Acta Neurologica Scandinavica

Volumn 127, Issue 1, 2013, Pages 10-18

  Giovannetti, A M ^a   Leonardi, M ^a   Pagani, M ^a   Sattin, D ^a   Raggi, A ^a  

^a DEPARTMENT OF NEUROSURGERY   (Italy)

Author keywords

Anxiety; Burden; Caregivers; Depression; Minimally Conscious State; Vegetative State

Indexed keywords

ADULT; ARTICLE; BECK DEPRESSION INVENTORY; CAREGIVER BURDEN; CHRONIC PATIENT; COPING BEHAVIOR; CROSS-SECTIONAL STUDY; DEPRESSION; DISEASE DURATION; DISTRESS SYNDROME; EMPLOYMENT STATUS; FAMILY STRESS; FEMALE; HEALTH; HUMAN; MAJOR CLINICAL STUDY; MALE; MARRIAGE; MENTAL HEALTH; MINIMALLY CONSCIOUS STATE; NEEDS ASSESSMENT; OBSERVATIONAL STUDY; PATIENT SATISFACTION; PERSISTENT VEGETATIVE STATE; REHABILITATION CARE; SHORT FORM 12; SOCIAL SUPPORT; STATE TRAIT ANXIETY INVENTORY;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; ANALYSIS OF VARIANCE; CAREGIVERS; DEPRESSION; FEMALE; HUMANS; MALE; MIDDLE AGED; PERSISTENT VEGETATIVE STATE; PSYCHIATRIC STATUS RATING SCALES; QUESTIONNAIRES; RETROSPECTIVE STUDIES; STATISTICS, NONPARAMETRIC; STRESS, PSYCHOLOGICAL; TIME FACTORS;

EID: 84870796335     PISSN: 00016314     EISSN: 16000404     Source Type: Journal    
DOI: 10.1111/j.1600-0404.2012.01666.x     Document Type: Article

References (40)

1. Collings S. Informal Caregivers of People With Schizophrenia: Literature Review. PhD thesis. Wellington, 2006
2. Goodhead A, Mcdonald J. Informal Caregivers Literature Review: A report prepared for the National Health Committee July 2007
3. Gould D. Family caregivers and the health care system. In: Levine C, Murray T, eds. The Cultures of Caregiving: Conflict and Common Ground Among Families, Health Professionals, and Policy Makers, Baltimore: The John Hopkins University Press, 2004, 5-34.
4. Tresch DD, Sims FH, Duthies EH Jr, Goldstein MD. Patients in a persistent vegetative state attitudes and reactions of family members. J Am Geriatr Soc 1991;39:17-21.
5. Mccullagh E, Bringstocke G, Donaldson N, Karla L. Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke 2005;36:2181-6.
6. Leiknes I, Tysnes O-B, Aarsland D, Larsen JP. Caregiver distress associated with neuropsychiatric problems in patients with early Parkinson's disease: the Norwegian ParkWest study. Acta Neurol Scand 2010;122:418-24.
7. Uwakwe R, Modebe I. Disability and care-giving in old age in a Nigerian community. Niger J Clin Pract 2007;10:58-65.
8. Andrieu S, Balardy L, Gillette-Guyonnet S et al. Burden Experienced by informal caregivers assisting Alzheimer's patients in the REAL.FR study. Rev Med Interne 2003;3:351s-9s.
9. Ho SC, Chan A, Woo J et al. Impact of caregiving on health related quality of life:a comparative population-based study of caregivers of elderly persons and non caregivers. J Gerontol A Biol Sci Med Sci 2009;64A:873-9.
10. Pinquart M, Sörensen S. Differences between caregivers and non caregivers in psychological health and physical health: a meta-analysis. Psychol Aging 2003;18:250-67.
11. Anderson CS, Linto J, Stewart-Wynne EG. A population based assessment of the impact and burden of care-giving for long-term stroke survivors. Stroke 1995;26:843-9.
12. Yamamoto MN, Aneshensel CS, Levy-Storms L. Patterns of family visiting with institutionalized elders: the case of dementia. J Gerontol A Biol Sci Med Sci 2002;57:S234-46.
13. Tzidkiahu T, Sazbon L, Solzi P. Characteristic reactions of relatives of post-coma unawareness patients in the process of adjusting to loss. Brain Inj 1994;2:159-65.
14. Garlo K, O'leary JR, Van Ness PH, Fried TR. Burden in caregivers of older adults with advanced illness. J Am Geriatr Soc 2010;58:2315-22.
15. Billings AG, Moos RH. The role of coping responses and social resources in attenuating the stress of life events. J Behav Med 1981;4:139-57.
16. Cooper C, Katona C, Orrell M, Livingston G. Coping strategies, anxiety and depression in caregivers of people with Alzheimer's disease. Int J Geriatr Psychiatry 2008;23:929-36.
17. Engel GL. The need for a new medical model: a challenge for biomedicine. Science, 1977;196:129-36, ISSN 0036-8075 (print)/ISSN 1095-9203 (web) DOI: 10.1126/science.847460.
18. The Multi-Society Task Force on PVS. Medical aspects of the persistent vegetative state (first of two parts). N Engl J Med 1994;330:1499-508.
19. The Multi-Society Task Force on PVS. Medical aspects of the persistent vegetative state (second of two parts). N Engl J Med 1994;330:1572-9.
20. Laureys S, Owen AM, Schiff ND. Brain function in coma, vegetative state, and related disorders. Lancet Neurol 2004;3:537-46.
21. Schulz R, O'brien A, Czaja S et al. Dementia caregiver intervention research In search of clinical significance. Gerontologist 2002;42:589-602.
22. Monti MM, Laureys S, Owen AM. The vegetative state. BMJ 2010;341:c3765.
23. Giacino JT, Ashwal S, Childs N et al. The minimally conscious state: definition and diagnostic criteria. Neurology 2002;58:349-53.
24. Aldred H, Gott M, Gariballa S. Advanced heat failure: Impact on older patient and informal carers. J Adv Nurs 2005;49:116-24.
25. Pinto RA, Holanda MA, Medeiros MM et al. Assessment of the burden of caregiving for patients with chronic obstructive pulmonary disease. Respir Med 2007;101:2402-8.
26. Strauss DJ, Shavelle RM, Ashwal S. Life expectancy and median survival time in the permanent vegetative state. Pediatr Neurol 1999;21:626-31.
27. Katz S, Florian V. A comprehensive theoretical model of psychological reaction to loss. Int J Psychiatry Med 1986-1987;16:325-45.
28. Florian V, Lahav V. The family's coping patterns following a severe head injury of one of its members. Soc Welfare 1987;8:137-56.
29. Marsh N, Kersel D, Havill J, Sleigh J. Caregiver burden at 1 year following severe traumatic brain injury. Brain Inj 1998;12:1045-59.
30. Chiambretto P, Vanoli D. Family reactions to the vegetative state: a follow-up after 5 years. GItal Med Lav Ergon 2006;28:15-21.
31. Rossi Ferrario S, Bacchetta M, Omarini G, Zotti AM. Il family strain questionnaire: una proposta per il Caregiving assessment. Psicologia Salute 1998;3:119-27.
32. Carver CS, Scheier MF, Weintraub JK. Assessing coping strategies: a theoretically based approach. J Pers Soc Psychol 1989;56:267-83.
33. Sica C, Novara C, Dorz S, Sanavio E. Coping Orientation to Problems Experienced (COPE): traduzione e adattamento italiano. Bollet Psic Appl 1997;223:25-34.
34. Moroni L, Sguazzin C, Filipponi L et al. Caregiver need assessment: a questionnaire for caregiver demand. G Ital Med Lav Ergon 2008;30:B84-90.
35. Ware JE, Kosinski M, Keller SD. SF-12: How to score the SF-12 Physical and Mental Health Summary Scales. Boston: The Health Institute, New England Medical Center, 1995.
36. Apolone G, Mosconi P, Quattrociocchi L, Granicolo EAL, Groth N, Ware JE Jr. Questionario sullo stato di salute SF-12 Versione Italiana. Istituto di Ricerche Farmacologiche Mario Negri. http://crc.marionegri.it/qdv/downloads/SF12%20Manuale.pdf (accessed 08 September 2011).
37. Ghisi M, Flebus GB, Montano A, Sanavio E, Sica C Beck Depression Inventory II. Italian Version. Firenze: Editore Giunti O.S., 2006.
38. Predabissi L, Santinello M. Spielberger's State-Trait Anxiety Inventory (Form Y) Italian Version. Firenze: Editore Giunti O.S., 1989.
39. Giovannetti AM, Pagani M, Sattin D et al. Children in vegetative state and minimally conscious state: patients' condition and caregivers' burden. Sci World J, 2012; 232149.
40. Zampolini M. GISCAR research about serious acquired brain lesions. Methodology and preliminary data. Giorn. Ita. di Med. Riab. 2003;17:15-30.