The adaptation of the Sheffield Profile for Assessment and Referral for Care (SPARC) to the polish clinical setting for needs assessment of advanced cancer patients

Journal of Pain and Symptom Management

Volumn 44, Issue 6, 2012, Pages 916-922

  Leppert, Wojciech ^a   Majkowicz, Mikolaj ^b   Ahmedzai, Sam H ^c  

^a POZNAN UNIVERSITY OF MEDICAL SCIENCES   (Poland)

^b MEDICAL UNIVERSITY OF GDANSK   (Poland)

^c UNIVERSITY OF SHEFFIELD   (United Kingdom)

Author keywords

Advanced cancer; patient needs; quality of life; reliability; validity

Indexed keywords

ADULT; ADVANCED CANCER; AGED; ARTICLE; BREAST TUMOR; CANCER PALLIATIVE THERAPY; CANCER PATIENT; COLON TUMOR; CONSTRUCT VALIDITY; CONTENT VALIDITY; CRONBACH ALPHA COEFFICIENT; DAY CARE; FEMALE; FOLLOW UP; HOME CARE; HUMAN; INTERNAL CONSISTENCY; LARYNX TUMOR; LUNG TUMOR; MAJOR CLINICAL STUDY; MALE; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; NEEDS ASSESSMENT; OVARY TUMOR; PATIENT REFERRAL; POLAND; PRIMARY TUMOR; PROSTATE TUMOR; SHEFFIELD PROFILE FOR ASSESSMENT AND REFERRAL FOR CARE; SYMPTOM; THYROID TUMOR; UTERINE CERVIX TUMOR;

ADULT; AGED; AGED, 80 AND OVER; DECISION MAKING; FEMALE; GREAT BRITAIN; HUMANS; MALE; MIDDLE AGED; NEEDS ASSESSMENT; NEOPLASMS; PALLIATIVE CARE; POLAND; PREVALENCE; QUESTIONNAIRES; REFERRAL AND CONSULTATION; REPRODUCIBILITY OF RESULTS; RISK FACTORS; SENSITIVITY AND SPECIFICITY; TERMINAL CARE; TREATMENT OUTCOME;

EID: 84870481391     PISSN: 08853924     EISSN: 18736513     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2011.12.286     Document Type: Article

References (21)

1. D.F. Cella, and D.S. Tulsky Measuring quality of life today: methodological aspects Oncology 4 1990 29 38
2. E. Bruera, N. Kuehn, M.J. Miller, P. Selmser, and K. Macmillan The Edmonton Symptom Assessment System (ESAS): a simple method for the assessment of palliative care patients J Palliat Care 7 1991 6 9
3. M. Majkowicz, Z. Czuszynska, W. Leppert, and J. Maszkowska-Kopij Practical application of ESAS (Edmonton Symptom Assessment System) in palliative care. [in Polish] Nowotwory 48 1998 847 857
4. N.K. Aaronson, S. Ahmedzai, B. Bergman for the European Organization for Research and Treatment of Cancer Study Group on Quality of Life The European Organization for Research and Treatment of Cancer QLQ-C 30: a quality-of-life instrument for use in international clinical trials in oncology J Natl Cancer Inst 85 1993 365 376
5. M. Groenvold, M.A. Petersen, and N.K. Aaronson The development of the EORTC QLQ-C15-PAL: a shortened questionnaire for cancer patients in palliative care Eur J Cancer 42 2006 55 64
6. Y. Suarez-Del-Real, S. Allende-Perez, and A. Alferez-Mancera Validation of the Mexican-Spanish version of the EORTC QLQ-C15-PAL questionnaire for the evaluation of health-related quality of life in patients on palliative care Psychooncology 20 2011 889 896
7. I.J. Higginson, S. Hart, J. Koffman, L. Selman, and R. Harding Needs assessment in palliative care: an appraisal of definitions and approaches used J Pain Symptom Manage 33 2007 500 505
8. N. Ahmed, J.C. Bestall, and S.H. Ahmedzai Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals Palliat Med 18 2004 525 542
9. J.C. Bestall, N. Ahmed, and S.H. Ahmedzai Access and referral to specialist palliative care: by patients' and professionals' experiences Int J Palliat Nurs 10 2004 381 389
10. S. Ahmedzai Quality of life measurement in palliative care: philosophy, science or pontification? Prog Palliat Care 1 1993 6 10
11. N. Ahmed, J.C. Bestall, S.A. Payne, B. Noble, and S.H. Ahmedzai The use of cognitive interviewing methodology in the design and testing of a screening tool for supportive and palliative care needs Support Care Cancer 17 2009 665 673
12. L. Dewolf, M. Koller, G. Velikova on behalf of the EORTC Quality of Life Group EORTC Quality of Life Group translation procedure 3rd ed. 2009 EORTC Brussels, Belgium Available from www.eortc.be Accessed January 3, 2011
13. H.A. Murray What should psychologists do about psychoanalysis? J Abnorm Soc Psychol 35 1940 150 175
14. A.H. Maslow A theory of human motivation Psychol Rev 50 1943 370 396
15. P.E. Meehl Needs (Murray, 1938) and state variables (Skinner, 1938) Psychol Rep 70 1992 407 450
16. P.M. Fayers, and D. Machin Factor analysis P.M. Fayers, D. Machin, Quality of life. Assessment, analysis and interpretation 2001 John Wiley & Sons, Ltd. Chichester, UK 91 116
17. B.L. Arnold Mapping hospice patients' perception and verbal communication of end-of-life needs: an exploratory mixed methods inquiry BMC Palliat Care 10 2011 1
18. D. Kenrick, V. Griskevicius, S.L. Neuberg, and M. Schaller Renovating the pyramid of needs: contemporary extensions built upon ancient foundations Perspect Psychol Sci 5 2010 292 314
19. C. Lo, D. Burman, and N. Swami Validation of the QUAL-EC for assessing quality of life in patients with advanced cancer Eur J Cancer 47 2011 554 560
20. A.T. Johnsen, M.A. Petersen, L. Pedersen, and M. Groenvold Development and initial validation of the Three-Levels-of-Needs Questionnaire for self-assessment of palliative needs in patients with cancer J Pain Symptom Manage 41 2011 1025 1039
21. W. Leppert, and J. Luczak A holistic approach to palliative care in Poland Eur J Palliat Care 14 2007 80 83