Transition from pediatric to adult healthcare: Assessment of specific needs of patients with chronic endocrine conditions

Hormone Research in Paediatrics

Volumn 78, Issue 4, 2012, Pages 247-255

  Godbout, Ariane ^a,b   Tejedor, Isabelle ^b,d   Malivoir, Sabine ^b,d   Polak, Michel ^c,d   Touraine, Philippe ^b,d  

^a CENTRE HOSPITALIER DE L UNIVERSITÉ DE MONTRÉAL   (Canada)

^b PITIÉ SALPÊTRIÈRE HOSPITAL   (France)

^c HÔPITAL NECKER ENFANTS MALADES   (France)

^d Centre des Maladies Endocriniennes Rares de la Croissance   (France)

Author keywords

Adolescents; Congenital adrenal hyperplasia; Growth hormone deficiency; Hypogonadotropic hypogonadism; Transition

Indexed keywords

ARTICLE; CHILD; CHILD HEALTH CARE; CONGENITAL ADRENAL HYPERPLASIA; ENDOCRINE DISEASE; FEMALE; GROWTH HORMONE DEFICIENCY; HUMAN; HYPOGONADOTROPIC HYPOGONADISM; MAJOR CLINICAL STUDY; MALE; MEDICAL CARE; PATIENT CARE; PATIENT SATISFACTION; PRIORITY JOURNAL; PROSPECTIVE STUDY; QUESTIONNAIRE;

ADOLESCENT; ADULT; AGE FACTORS; CHRONIC DISEASE; CONTINUITY OF PATIENT CARE; DELIVERY OF HEALTH CARE; ENDOCRINE SYSTEM DISEASES; ENDOCRINOLOGY; FEMALE; HUMANS; MALE; NEEDS ASSESSMENT; PEDIATRICS; QUESTIONNAIRES; TRANSITION TO ADULT CARE; YOUNG ADULT;

EID: 84870461816     PISSN: 16632818     EISSN: 16632826     Source Type: Journal    
DOI: 10.1159/000343818     Document Type: Article

References (29)

1. Kennedy A, Sawyer SM: Transition from pediatric to adult services: are we getting it right? Curr Opin Pediatr 2008; 20: 403-409.
2. Rapley P, Davidson PM: Enough of the problem: a review of time for health care transition solutions for young adults with a chronic illness. J Clin Nurs 2010; 19: 313-323.
3. Betz C, Smith K: Measuring health care transition planning outcomes: challenges and issues. Int J Child Adolesc Health 2011; 3: 463-472.
4. Pai AL, Schwartz LA: Introduction to the special section: health care transitions of adolescents and young adults with pediatric chronic conditions. J Pediatr Psychol 2011; 36: 129-133.
5. American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians -American Society of Internal Medicine: Consensus statement on health care transitions for young adults with special health care needs. Pediatrics 2002; 110: 1304-1306.
6. Kaufman M, Pinzon J and the Adolescent Medicine Committee: Canadian Paediatric Society, position statement. Transition to adult care for youth with special health care needs. Paediatr Child Health 2007; 12: 785-788.
7. Algozzine B, Browder D, Karvonen M, Test D, Wood W: Effects of interventions to promote self-determination for individuals with disabilities. Rev Educ Res 2001; 71: 219-277.
8. Betz CL: Transition of adolescents with special health care needs: review and analysis of the literature. Issues Compr Pediatr Nurs 2004; 27: 179-241.
9. Viner R: Barriers and good practice in transition from paediatric to adult care. J R Soc Med 2001; 94: 2-4.
10. Blum R, Garell D, Hodgman CH, Jorissen TW, Okinow NA, Orr DP, Slap GB: Transition from child-centred to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. J Adolesc Health 1993; 14: 570-576.
11. Fleming E, Carter B, Gillibrand W: The transition of adolescents with diabetes from the children's health care service into the adult health care service: a review of the literature. J Clin Nurs 2002; 11: 560-567.
12. Shaw T, DeLaet D: Transition of adolescents to young adulthood for vulnerable populations. Pediatr Rev 2010; 31: 497-505.
13. Tucker LB, Cabral DA: Transition of the adolescent patient with rheumatic disease: issues to consider. Pediatr Clin North Am 2005; 52: 641-652.
14. King GA, Baldwin PJ, Currie M, Evans J: Planning successful transitions from school to adult roles for youth with disabilities. Child Health Care 2005; 34: 193-216.
15. Haydock-White P, Gallay L: Youth with special health care needs and disabilities in transition to adulthood; in Osgood DW, Foster EM, Flanagan C, Ruth GR (eds): On Your Own without a Net: The Transition to Adulthood for Vulnerable Populations. Chicago, University of Chicago Press, 2005, pp 349-374.
16. Berkowitz S: Transitioning adolescents to adult care: putting theory into practice. Minn Med 2009; 92: 42-44.
17. Stewart D: Transition to adult services for young people with disabilities: current evidence to guide future research. Dev Med Child Neurol 2009; 51: 169-173.
18. Pugeat M, Nicolino M: From paediatric to adult endocrinology care: the challenge of the transition period. Pediatr Endocrinol Rev 2009; 6: 519-522.
19. White PC, Speiser PW: Congenital adrenal hyperplasia due to 21-hydroxylase deficiency. Endocr Rev 2000; 21: 245-291.
20. Stanhope R: Transition from paediatric to adult endocrinology: hypopituitarism. Growth Horm IGF Res 2004; 14: 85-88.
21. Cook DM, Yuen KC, Biller BM, Kemp SF, Vance ML; American Association of Clinical Endocrinologists: American Association of Clinical Endocrinologists medical guidelines for clinical practice for growth hormone use in growth hormone-deficient adults and transition patients -2009 update. Endocr Pract 2009; 15: 1-29.
22. Radovik S, DiVall S: Approach to the growth hormone-deficient child during transition to adulthood. J Clin Endocrinol Metab 2007; 92: 1195-1200.
23. Aimaretti G, Corneli G, Rovere S, Croce CG, Ghigo E, Procopio M: Is growth hormone therapy useful to preserve bone mass in transition-phase patients with growth hormone deficiency? J Endocrinol Invest 2005; 28: 1-5.
24. Fatio S, Dirlewanger M, Meier CA, Schwitzgebel V: Traitement par hormone de croissance: phase de transition de l'enfance à l'âge adulte. Rev Méd Suisse 2005; 6: 426-431.
25. Kruse B, Riepe FG, Krone N, Bosinski HAG, Kloehn S, Partsch CJ, Sippell WG, Mönig H: Congenital adrenal hyperplasia -how to improve the transition from adolescence to adult life. Exp Clin Endocrinol Diabetes 2004; 112: 343-355.
26. Arlt W, Willis DS, Wild SH, Krone N, Doherty EJ, Hahner S, Han TS, Carroll PV, Conway GS, Rees DA, Stimson RH, Walker BR, Connell JM, Ross RJ and United Kingdom Congenital Adrenal Hyperplasia Adult Study Executive (CaHASE): Health status of adults with congenital adrenal hyperplasia: a cohort study of 203 patients. J Clin Endocrinol Metab 2010; 95: 5110-5121.
27. Auchus RJ: Management of the adult with congenital adrenal hyperplasia. Int J Pediatr Endocrinol 2010; 2010: 614107.
28. Conway SG: Congenital Adrenal hyperplasia: adolescence and transition. Horm Res 2007; 68: 155-157.
29. Speiser PW: Congenital adrenal hyperplasia: transition from childhood to adulthood. J Endocrinol Invest 2001; 24: 681-691.