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Volumn 34, Issue 5, 2007, Pages 369-378

Practical Aspects of Delivering Hereditary Cancer Risk Counseling

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CANCER GENETICS; CANCER PREVENTION; CANCER RISK; CANCER SCREENING; CANCER SUSCEPTIBILITY; CLINICAL PRACTICE; FAMILIAL CANCER; GENETIC COUNSELING; GENETIC DISORDER; HEALTH CARE AVAILABILITY; HIGH RISK PATIENT; HUMAN; INTERPERSONAL COMMUNICATION; PATIENT COUNSELING; PRIORITY JOURNAL; RESOURCE MANAGEMENT; RISK ASSESSMENT; TELEMEDICINE; TELEPHONE;

EID: 34848829776     PISSN: 00937754     EISSN: None     Source Type: Journal    
DOI: 10.1053/j.seminoncol.2007.07.003     Document Type: Article
Times cited : (23)

References (60)
  • 1
    • 3543088730 scopus 로고    scopus 로고
    • Genetic cancer risk assessment and counseling: recommendations of the National Society of Genetic Counselors
    • Trepanier A., Ahrens M., McKinnon W., et al. Genetic cancer risk assessment and counseling: recommendations of the National Society of Genetic Counselors. J Gene Counsel 13 (2004) 83-114
    • (2004) J Gene Counsel , vol.13 , pp. 83-114
    • Trepanier, A.1    Ahrens, M.2    McKinnon, W.3
  • 2
    • 0029864134 scopus 로고    scopus 로고
    • Statement of the American Society of Clinical Oncology: Genetic testing for cancer susceptibility
    • Statement of the American Society of Clinical Oncology: Genetic testing for cancer susceptibility. J Clin Oncol 14 (1996) 1730-1736
    • (1996) J Clin Oncol , vol.14 , pp. 1730-1736
  • 3
    • 0038501057 scopus 로고    scopus 로고
    • American Society of Clinical Oncology: American Society of Clinical Oncology policy statement update: Genetic testing for cancer susceptibility
    • American Society of Clinical Oncology: American Society of Clinical Oncology policy statement update: Genetic testing for cancer susceptibility. J Clin Oncol 21 (2003) 2397-2406
    • (2003) J Clin Oncol , vol.21 , pp. 2397-2406
  • 4
    • 0034950515 scopus 로고    scopus 로고
    • American Gastroenterological Association: American Gastroenterological Association medical position statement: hereditary colorectal cancer and genetic testing
    • American Gastroenterological Association: American Gastroenterological Association medical position statement: hereditary colorectal cancer and genetic testing. Gastroenterology 121 (2001) 195-197
    • (2001) Gastroenterology , vol.121 , pp. 195-197
  • 5
    • 0036123913 scopus 로고    scopus 로고
    • Family history and colorectal cancer screening: A survey of physicians knowledge and practice patterns
    • Shroy P.C., Barrison A.F., Ling B.S., et al. Family history and colorectal cancer screening: A survey of physicians knowledge and practice patterns. Am J Gastroenterol 97 (2002) 1031-1036
    • (2002) Am J Gastroenterol , vol.97 , pp. 1031-1036
    • Shroy, P.C.1    Barrison, A.F.2    Ling, B.S.3
  • 6
    • 0035746628 scopus 로고    scopus 로고
    • Oncologists' opinions on genetic testing for breast and ovarian cancer
    • Culver J.O., Hull J.L., Dunne D.F.B., et al. Oncologists' opinions on genetic testing for breast and ovarian cancer. Genet Med 3 (2001) 120-125
    • (2001) Genet Med , vol.3 , pp. 120-125
    • Culver, J.O.1    Hull, J.L.2    Dunne, D.F.B.3
  • 7
    • 0030901262 scopus 로고    scopus 로고
    • The use and interpretation of commercial APC gene testing for familial adenomatous polyposis
    • Giardello F.M., Brensinger J.D., Petersen G.M., et al. The use and interpretation of commercial APC gene testing for familial adenomatous polyposis. N Engl J Med 336 (1997) 823-827
    • (1997) N Engl J Med , vol.336 , pp. 823-827
    • Giardello, F.M.1    Brensinger, J.D.2    Petersen, G.M.3
  • 8
    • 34848832112 scopus 로고    scopus 로고
    • June, http://www.nsgc.org/members_only/tools/csp_disclaimer.cfm (accessed 11/30/2006)
    • Alvarado M., Bars J., Carr A.G., et al. Cancer genetic counseling starter packet (2001). http://www.nsgc.org/members_only/tools/csp_disclaimer.cfm June, http://www.nsgc.org/members_only/tools/csp_disclaimer.cfm (accessed 11/30/2006)
    • (2001) Cancer genetic counseling starter packet
    • Alvarado, M.1    Bars, J.2    Carr, A.G.3
  • 9
    • 34848900189 scopus 로고    scopus 로고
    • How to develop and implement a cancer genetics risk assessment service: Clinical and economic considerations
    • 22-26
    • Ho C. How to develop and implement a cancer genetics risk assessment service: Clinical and economic considerations. Oncol Iss Nov/Dec (2004) 22-26
    • (2004) Oncol Iss Nov/Dec
    • Ho, C.1
  • 10
    • 33745036130 scopus 로고    scopus 로고
    • On using a cancer center cancer registry to identify newly affected women eligible for hereditary breast cancer syndrome testing: Practical considerations
    • DeMarco T.A., Loffredo C.A., Sampilo M.L., et al. On using a cancer center cancer registry to identify newly affected women eligible for hereditary breast cancer syndrome testing: Practical considerations. J Genet Counsel 15 (2006) 129-136
    • (2006) J Genet Counsel , vol.15 , pp. 129-136
    • DeMarco, T.A.1    Loffredo, C.A.2    Sampilo, M.L.3
  • 11
    • 27744475690 scopus 로고    scopus 로고
    • The challenge of recruitment
    • Affleck P. The challenge of recruitment. Nurs Res 13 (2005) 78-84
    • (2005) Nurs Res , vol.13 , pp. 78-84
    • Affleck, P.1
  • 13
    • 34848840089 scopus 로고
    • Familial cancer risk: I. Impact on today's oncology practice
    • 20-30
    • Peters J.A. Familial cancer risk: I. Impact on today's oncology practice. J Oncol Manage Sept-Oct (1994) 20-30
    • (1994) J Oncol Manage Sept-Oct
    • Peters, J.A.1
  • 14
    • 0000654091 scopus 로고    scopus 로고
    • Oncology Nursing Society: The role of the oncology nurse in cancer genetic counseling: A position paper, 1997
    • Oncology Nursing Society: The role of the oncology nurse in cancer genetic counseling: A position paper, 1997. Oncol Nurs Forum 25 (1998) 463
    • (1998) Oncol Nurs Forum , vol.25 , pp. 463
  • 15
    • 0000126307 scopus 로고    scopus 로고
    • Oncology Nursing Society: Cancer genetic testing and risk assessment counseling: A position paper, 1997
    • Oncology Nursing Society: Cancer genetic testing and risk assessment counseling: A position paper, 1997. Oncol Nurs Forum 25 (1998) 464
    • (1998) Oncol Nurs Forum , vol.25 , pp. 464
  • 16
    • 0030074994 scopus 로고    scopus 로고
    • Emotional and behavioral responses to genetic testing for susceptibility to cancer
    • Lerman C., and Croyle R.T. Emotional and behavioral responses to genetic testing for susceptibility to cancer. Oncology 10 (1996) 191-199
    • (1996) Oncology , vol.10 , pp. 191-199
    • Lerman, C.1    Croyle, R.T.2
  • 17
    • 0028353474 scopus 로고
    • Psychological issues in genetic testing for breast cancer susceptibility
    • Lerman C. Psychological issues in genetic testing for breast cancer susceptibility. Arch Intern Med 15 (1994) 609-615
    • (1994) Arch Intern Med , vol.15 , pp. 609-615
    • Lerman, C.1
  • 18
    • 34848912606 scopus 로고    scopus 로고
    • Pettersen B, Doyle DL, Cohen L, et al: Primer on Billing and Reimbursement, November 1, 2003. Available at http://www.nsgc.org/members_only/tools/br_index.cfm (accessed 11/28/2006)
  • 19
    • 34848898961 scopus 로고    scopus 로고
    • National Society of Genetic Counselors. Billing and Reimbursement Toolkit. Available at http://www.nsgc.org/members_only/tools/br_index.cfm (accessed 11/30/2006)
  • 20
    • 2642567707 scopus 로고    scopus 로고
    • Cancer genetics services: A systematic review of the economic evidence and issues
    • Griffith A.G., Edwards R.T., Gray J., et al. Cancer genetics services: A systematic review of the economic evidence and issues. Br J Cancer 90 (2004) 1697-1703
    • (2004) Br J Cancer , vol.90 , pp. 1697-1703
    • Griffith, A.G.1    Edwards, R.T.2    Gray, J.3
  • 21
    • 34848836430 scopus 로고    scopus 로고
    • Myriad Genetic Laboratories, Inc. Genetic testing for hereditary cancer syndromes: Billing for patient education. Available at http://www.myriadresourceguide.com/billing/billing.htm (accessed 11/21/2006)
  • 22
    • 34848851985 scopus 로고    scopus 로고
    • Draft Report of the Secretary's Advisory Committee on Genetics, Health, and Society: Coverage and reimbursement of genetic tests and services
    • Draft Report of the Secretary's Advisory Committee on Genetics, Health, and Society: Coverage and reimbursement of genetic tests and services. Public Comment Draft (2005) 1-54
    • (2005) Public Comment Draft , pp. 1-54
  • 23
    • 34848830910 scopus 로고    scopus 로고
    • American Medical Association. The Current Procedural Coding System. Available at http://www.ama-asn.org/ama/pub/category/3113.html (accessed 11/30/2006)
  • 24
    • 34848830182 scopus 로고    scopus 로고
    • United States Department of Health and Human Services-Centers for Disease Control and Prevention. The International Classification of Diagnoses, Ninth Revision, Clinical Modification (ICD-9-CM). Available at http://www.cdc.gov/nchs/about/otheract/icd9/abticd9.htm (accessed 11/30/2006)
  • 25
    • 34848851403 scopus 로고    scopus 로고
    • Myriad Genetic Laboratories, Inc. Myriad reimbursement assistance service (MRAP). Available at http://www.myriadtests.com/mrap.htm (accessed 10/16/2006)
  • 26
    • 34848927232 scopus 로고    scopus 로고
    • Myriad Genetic Laboratories, Inc: External Price List (4/15/06). Available upon request at info @myriad.com
  • 27
    • 34848881969 scopus 로고    scopus 로고
    • City of Hope National Medical Center: Clinical molecular diagnosis laboratory. Available at http://www.cityof hope.org/cmdl/ (accessed 11/28/2006)
  • 28
    • 34848872872 scopus 로고    scopus 로고
    • Myriad Genetic Laboratories, Inc. Available at www.myriad.com (accessed 11/27/2006)
  • 29
    • 26044455928 scopus 로고    scopus 로고
    • Writing effective insurance justification letters for cancer genetic testing: a streamlined approach
    • Shappel H.L., and Matloff E.T. Writing effective insurance justification letters for cancer genetic testing: a streamlined approach. J Genet Counsel 10 (2001) 331-341
    • (2001) J Genet Counsel , vol.10 , pp. 331-341
    • Shappel, H.L.1    Matloff, E.T.2
  • 30
    • 34848921223 scopus 로고    scopus 로고
    • Myriad Genetic Laboratories, Inc. Sample LMNs. Available at http://www.myriadtests.com/provider/doc/lmn.brac.doc (accessed 11/30/2006)
  • 31
    • 34848918575 scopus 로고    scopus 로고
    • Centers for Medicare and Medicaid Services. Medicare Coverage Database. Available at http://www.cms.hhs.gov/mcd/viewlcd.asp?lcd_id=9741&lcd_version=13&show=all (accessed 11/30/2006)
  • 32
    • 34848860535 scopus 로고    scopus 로고
    • Centers for Medicare and Medicaid Services. Available at http://www.cms.hhs.gov/home/medicaid.asp (accessed 11/30/2006)
  • 33
    • 34848895495 scopus 로고    scopus 로고
    • Financial Hardship Assistance Packet (PDF format). Available upon request from info @ myriad.com (accessed 11/30/2006)
  • 34
    • 0032528265 scopus 로고    scopus 로고
    • The concise handbook of familial cancer syndromes. Mayo Familial Cancer Program
    • Lindor N.M., and Greene M.H. The concise handbook of familial cancer syndromes. Mayo Familial Cancer Program. J Natl Cancer Inst 90 (1998) 1039-1071
    • (1998) J Natl Cancer Inst , vol.90 , pp. 1039-1071
    • Lindor, N.M.1    Greene, M.H.2
  • 36
    • 0024801278 scopus 로고
    • Projecting individualized probabilities of developing breast cancer for white females who are being examined annually
    • Gail M.H., Brinton L.A., Byar D.B., et al. Projecting individualized probabilities of developing breast cancer for white females who are being examined annually. J Natl Cancer Inst 81 (1989) 1879-1886
    • (1989) J Natl Cancer Inst , vol.81 , pp. 1879-1886
    • Gail, M.H.1    Brinton, L.A.2    Byar, D.B.3
  • 37
    • 0027956481 scopus 로고
    • Quantitating familial cancer risk: A resource for clinical oncologists
    • Offit K., and Brown K. Quantitating familial cancer risk: A resource for clinical oncologists. J Clin Oncol 12 (1994) 1724-1736
    • (1994) J Clin Oncol , vol.12 , pp. 1724-1736
    • Offit, K.1    Brown, K.2
  • 38
    • 34848894880 scopus 로고    scopus 로고
    • CancerGene. Available at http://www4.southwestern.edu/breasthealth/cagene/default.asp (accessed 11/30/2006)
  • 39
    • 33749357455 scopus 로고    scopus 로고
    • Evaluation of models to predict BRCA germline mutations
    • Kang H.H., Williams R., Leary J., et al. Evaluation of models to predict BRCA germline mutations. Br J Cancer 95 (2006) 914-920
    • (2006) Br J Cancer , vol.95 , pp. 914-920
    • Kang, H.H.1    Williams, R.2    Leary, J.3
  • 40
    • 4544245238 scopus 로고    scopus 로고
    • The "duty to warn" a patient's family members about hereditary disease risks
    • Offit K., Groeger E., Turner S., et al. The "duty to warn" a patient's family members about hereditary disease risks. JAMA 292 (2004) 1469-1473
    • (2004) JAMA , vol.292 , pp. 1469-1473
    • Offit, K.1    Groeger, E.2    Turner, S.3
  • 41
    • 0035339930 scopus 로고    scopus 로고
    • BRCA1/2 testing: Complex themes in result interpretation
    • Peshkin B.A., DeMarco T.A., Brogan B.M., et al. BRCA1/2 testing: Complex themes in result interpretation. J Clin Oncol 19 (2001) 2555-2565
    • (2001) J Clin Oncol , vol.19 , pp. 2555-2565
    • Peshkin, B.A.1    DeMarco, T.A.2    Brogan, B.M.3
  • 42
    • 0346248450 scopus 로고    scopus 로고
    • Across the spectrum: cases studies in genetic counseling for breast and ovarian cancer susceptibility
    • DeMarco T.A., Peshkin B.N., and Brogan B.B. Across the spectrum: cases studies in genetic counseling for breast and ovarian cancer susceptibility. J Genet Counsel 10 (2001) 379-395
    • (2001) J Genet Counsel , vol.10 , pp. 379-395
    • DeMarco, T.A.1    Peshkin, B.N.2    Brogan, B.B.3
  • 43
    • 34848843829 scopus 로고    scopus 로고
    • National Human Genome Research Institute: Genetic discrimination. Available at http://www.genome.gov/10002077#2 (accessed 11/27/2006)
  • 44
    • 34848877837 scopus 로고    scopus 로고
    • Georgetown University Health Policy Institute: Consumer guides for getting and keeping health insurance. Available at http://www.healthinsuranceinfo.net (accessed 11/30/2006)
  • 45
    • 17844401190 scopus 로고    scopus 로고
    • Controversies and ethical issues in cancer-genetics clinics
    • Harris M., Winship I., and Spriggs M. Controversies and ethical issues in cancer-genetics clinics. Lancet Oncol 6 (2005) 301-310
    • (2005) Lancet Oncol , vol.6 , pp. 301-310
    • Harris, M.1    Winship, I.2    Spriggs, M.3
  • 46
    • 34848853633 scopus 로고    scopus 로고
    • Council on Ethical and Judicial Affairs of the American Medical Association, Opinion E-2.131: Disclosure of familial risk in genetic testing: American Medical Association, code of medical ethics. Available at: http://www.ama-assn.org/apps/pf_new/pf_online?f_n=resultLink&doc=policyfiles/HnE/E-2.131.HTM&s_t=familial+risk&catg=AMA/HnE&catg=AMA/BnGnC&catg=AMA/DIR&&nth=1&&st_p=0&nth=1& (accessed November 27, 2006)
  • 47
    • 0031991614 scopus 로고    scopus 로고
    • Professional disclosure of familial genetic information
    • Knoppers B., Strom C., Clayton E., et al. Professional disclosure of familial genetic information. Am J Hum Genet 62 (1998) 474-483
    • (1998) Am J Hum Genet , vol.62 , pp. 474-483
    • Knoppers, B.1    Strom, C.2    Clayton, E.3
  • 48
    • 12144274337 scopus 로고    scopus 로고
    • Telegenetics: The next phase in the provision of genetic services?
    • Mitchell J.A., and Demiris G. Telegenetics: The next phase in the provision of genetic services?. Genet Med 7 (2005) 1-2
    • (2005) Genet Med , vol.7 , pp. 1-2
    • Mitchell, J.A.1    Demiris, G.2
  • 49
    • 26244439644 scopus 로고    scopus 로고
    • An assessment of the efficacy of cancer genetic counseling using real-time videoconferencing technology (telemedicine) compared to face-to-face consultations
    • Coelho J.J., Arnold A., Nayler J., et al. An assessment of the efficacy of cancer genetic counseling using real-time videoconferencing technology (telemedicine) compared to face-to-face consultations. Eur J Cancer 41 (2005) 2257-2261
    • (2005) Eur J Cancer , vol.41 , pp. 2257-2261
    • Coelho, J.J.1    Arnold, A.2    Nayler, J.3
  • 50
    • 0034022488 scopus 로고    scopus 로고
    • Recommendations for telephone counseling
    • Ormond K.E., Haun J., Cook L., et al. Recommendations for telephone counseling. J Genet Counsel 9 (2000) 63-71
    • (2000) J Genet Counsel , vol.9 , pp. 63-71
    • Ormond, K.E.1    Haun, J.2    Cook, L.3
  • 51
    • 0034103430 scopus 로고    scopus 로고
    • Commentary: What is and is not telephone counseling?
    • Wang V.O. Commentary: What is and is not telephone counseling?. J Genet Counsel 9 (2000) 73-82
    • (2000) J Genet Counsel , vol.9 , pp. 73-82
    • Wang, V.O.1
  • 52
    • 3543033508 scopus 로고    scopus 로고
    • Assessment of the effectiveness of genetic counseling by telephone compared to a clinic visit
    • Sangha K.K., Dircks A., and Laglois S. Assessment of the effectiveness of genetic counseling by telephone compared to a clinic visit. J Genet Counsel 13 (2003) 171-184
    • (2003) J Genet Counsel , vol.13 , pp. 171-184
    • Sangha, K.K.1    Dircks, A.2    Laglois, S.3
  • 53
    • 34848845014 scopus 로고    scopus 로고
    • National Institutes of Health, Clinical Trials. Telephone-based genetic counseling or standard genetic counseling in women at risk of carrying the BRCA1 or BRCA2 mutation-Identifier-NCT00287898. Available at http://www.clinicaltrials.gov (accessed 10/13/2006)
  • 54
    • 33746924564 scopus 로고    scopus 로고
    • Genes on the web: Direct to consumer marketing of genetic testing
    • Wolfberg A.J. Genes on the web: Direct to consumer marketing of genetic testing. N Engl J Med 355 (2006) 543-545
    • (2006) N Engl J Med , vol.355 , pp. 543-545
    • Wolfberg, A.J.1
  • 55
    • 34848848782 scopus 로고    scopus 로고
    • DNA direct. http://www.dnadirect.com (accessed 10/13/2006)
  • 56
    • 0141576776 scopus 로고    scopus 로고
    • Direct to consumer marketing of genetic tests for cancer: Buyer beware
    • Gray S., and Olopode O.I. Direct to consumer marketing of genetic tests for cancer: Buyer beware. J Clin Oncol 21 (2003) 3191-3193
    • (2003) J Clin Oncol , vol.21 , pp. 3191-3193
    • Gray, S.1    Olopode, O.I.2
  • 57
    • 0042525886 scopus 로고    scopus 로고
    • Direct-to-consumer sales of genetic services on the internet
    • Gollust S.E., Wilfond B.S., and Hill S.C. Direct-to-consumer sales of genetic services on the internet. Genet Med 5 (2003) 332-337
    • (2003) Genet Med , vol.5 , pp. 332-337
    • Gollust, S.E.1    Wilfond, B.S.2    Hill, S.C.3
  • 58
    • 3242763836 scopus 로고    scopus 로고
    • Effect of a computer-based decision aid on knowledge, perceptions, and intentions about genetic testing for breast cancer susceptibility: A randomized controlled trial
    • Green M.J., Peterson S.K., Baker M.W., et al. Effect of a computer-based decision aid on knowledge, perceptions, and intentions about genetic testing for breast cancer susceptibility: A randomized controlled trial. JAMA 292 (2004) 442-452
    • (2004) JAMA , vol.292 , pp. 442-452
    • Green, M.J.1    Peterson, S.K.2    Baker, M.W.3
  • 59
    • 2942594827 scopus 로고    scopus 로고
    • Development of an interactive decision aid for female BRCA1/BRCA2 carriers
    • Kaufman E.M., Peshkin B.N., Lawrence W.F., et al. Development of an interactive decision aid for female BRCA1/BRCA2 carriers. J Genet Counsel 12 (2003) 109-129
    • (2003) J Genet Counsel , vol.12 , pp. 109-129
    • Kaufman, E.M.1    Peshkin, B.N.2    Lawrence, W.F.3
  • 60
    • 23044452932 scopus 로고    scopus 로고
    • Genetic services for familial cancer patients: A follow-up survey of national cancer institute cancer centers
    • Epplein M., Koon K.P., Ramsey S.D., et al. Genetic services for familial cancer patients: A follow-up survey of national cancer institute cancer centers. J Clin Oncol 23 (2005) 4713-4718
    • (2005) J Clin Oncol , vol.23 , pp. 4713-4718
    • Epplein, M.1    Koon, K.P.2    Ramsey, S.D.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.