Understanding participant behavior trajectories in online health support groups using automatic extraction methods

GROUP'12 - Proceedings of the ACM 2012 International Conference on Support Group Work

Volumn , Issue , 2012, Pages 179-188

  Wen, Miaomiao ^a   Rosé, Carolyn Penstein ^a  

^a Carnegie Mellon University   (United States)

Author keywords

Cancer trajectory; Disease event; Natural language analysis; Online support groups

Indexed keywords

AUTOMATIC ANALYSIS METHOD; AUTOMATIC EXTRACTION; BEHAVIOR PATTERNS; CASE STUDY ANALYSIS; DESIGN ENVIRONMENT; EMPIRICAL VALIDATION; NATURAL LANGUAGE ANALYSIS; ONLINE COMMUNITIES; ONLINE SUPPORT; QUANTITATIVE METHODOLOGY; SMALL SCALE; USER BEHAVIORS;

DISEASES; TRAJECTORIES;

BEHAVIORAL RESEARCH;

EID: 84870256850     PISSN: None     EISSN: None     Source Type: Conference Proceeding    
DOI: 10.1145/2389176.2389205     Document Type: Conference Paper

References (27)

1. K. Arthur. The Illness Narratives. Suffering, Healing, and the Human Condition. Basic Books, New York, 1988.
2. A. Barak, M. Boniel-Nissim, and J. Suler. Fostering empowerment in online support groups. Computers in Human Behavior, 24(5):1867 - 1883, 2008.
3. D. M. Blei, A. Y. Ng, and M. I. Jordan. Latent dirichlet allocation. Journal of Machine Learning Research, 3:993-1022, 2003.
4. J. M. Corbin and A. Strauss. In Chronic Illness Trajectory Framework: The Corbin and Strauss Nursing Model. Elsevier, New York, 1992.
5. K. P. Davison, J. W. Pennebaker, and S. S. Dickerson. Who talks? the social psychology of illness support groups. American Psychologist, 55(2):205 - 217, 2000.
6. V. Eidelman. Inferring activity time in news through event modeling. In Proc. ACL-HLT2008, Student Research Workshop, pages 13-18, 2008.
7. G. Eysenbach. The impact of the internet on cancer outcomes. CA: A Cancer Journal for Clinicians, 53(6):356-371, 2003.
8. A. W. Frank. The Wounded Storyteller. Body, Illness, and Ethics. The University of Chicago Press, Ltd., London, 1995.
9. P. Gianfortoni, D. Adamson, and C. P. Rośe. Modeling of stylistic variation in social media with stretchy patterns. In Workshop on Modeling of Dialects and Language Varieties at EMNLP2011, pages 49-59, 2011.
10. M. Hanson Frost, V. J. Suman, T. A. Rummans, A. M. Dose, M. Taylor, P. Novotny, R. Johnson, and R. E. Evans. Physical, psychological and social well-being of women with breast cancer: the influence of disease phase. Psycho-Oncology, 9(3):221-231, 2000.
11. B. A. Hilton. Getting back to normal: the family experience during early stage breast cancer. Oncology Nursing Forum, 23(4):605-614, 1996.
12. K. Luker, K. Beaver, S. Leinster, and G. R. Owens. Information needs and sources of information for women with breast cancer: A follow-up study. Journal of Advanced Nursing, 23:487-495, 1996.
13. I. Mani and G. Wilson. Robust temporal processing of news. In Proc. of ACL-2000, pages 69-76, 2000.
14. E. Mayfield and C. P. Rośe. LightSIDE: Open Source Machine Learning for Text Accessible to Non-Experts. In Invited chapter in the Handbook of Automated Essay Grading (in press), 2012.
15. T. Morris, H. S. Greer, and P. White. Psychological and social adjustment to mastectomy: a two-year follow-up study. Cancer, 40(5):2381-2387, 1977.
16. D. Nguyen and C. P. Rośe. Language use as a reflection of socialization in online communities. In Workshop on Language in Social Media at ACL2011, pages 76-85, 2011.
17. T. Noro, T. Inui, H. Takamura, and M. Okumura. Time period identificaiton of events in text. In Proc. COLING-ACL2006, pages 1153-1160, 2006.
18. R. I. Overberg, L. L. Alpay, J. Verhoef, and J. H. M. Zwetsloot-Schonk. Illness stories on the internet: what do breast cancer patients want at the end of treatment? Psycho-Oncology, 16(10):937-944, 2007.
19. R. S. and C. Q. Internet community group participation: Psychosocial benefits for women with breast cancer. Journal of Computer Mediated Communication, 10(4), 2005.
20. B. F. Sharf and M. L. Vanderford. Illness narratives and the social construction of health. Lawrence Erlbaum Associates, NJ, 2003.
21. P. Trief and D.-S. M. Counseling needs of women with breast cancer: what the women tell us. The Journal of Psychosocial Nursing and Mental Health Services, 34(5):24-29, 1996.
22. B. van der Molen. Relating information needs to the cancer experience: Themes from six cancer narratives. European Journal of Cancer Care, 9:48-54, 2000.
23. S. H. Vicki, P. Snyder, and H. Seltman. Psychological and physical adjustment to breast cancer over 4 years: Identifying distinct trajectories of change. Health Psychology, 23(1):3-15, 2004.
24. Y. Wang, R. Kraut, and J. Levine. To stay or leave? the relationship of emotional and informational support to commitment in online health support groups. In ACM Conference on Computer Supported Cooperative Work, pages 833-842, 2012.
25. K.-Y. Wen and D. H. Gustafson. Needs assessment for cancer patients and their families. Health and Quality of Life Outcomes, 2(11), 2004.
26. K.-Y. Wen, F. McTavish, G. Kreps, M.Wise, and D. Gustafson. From diagnosis to death: A case study of coping with breast cancer as seen through online discussion group messages. Journal of Computer-Mediated Communication, 16:331-361, 2011.
27. I. H. Witten and E. Frank. Data Mining: Practical Machine Learning Tools and Techniques, second edition. Elsevier, San Francisco, 2005.