A family's difficulties in caring for a cancer patient at the end of life at home in Japan

Journal of Pain and Symptom Management

Volumn 44, Issue 4, 2012, Pages 552-562

  Ishii, Yoko ^a   Miyashita, Mitsunori ^b   Sato, Kazuki ^b   Ozawa, Taketoshi ^c  

^a NASU RED CROSS HOSPITAL   (Japan)

^b TOHOKU UNIVERSITY   (Japan)

^c Megumi Home Care Clinic   (Japan)

Author keywords

Cancer patient; Difficulty; Family caregiver; Home care service; Terminal care

Indexed keywords

ADULT; AGED; ANXIETY; ARTICLE; CANCER PATIENT; CAREGIVER BURDEN; CORRELATION ANALYSIS; DISTRESS SYNDROME; FAMILY; FAMILYS DIFFICULTY SCALE; FATALITY; FEMALE; HOME CARE; HUMAN; JAPAN; LOGISTIC REGRESSION ANALYSIS; MAJOR CLINICAL STUDY; MALE; NEOPLASM; PAIN; PATIENT CARE; QUESTIONNAIRE; RATING SCALE; TERMINAL CARE;

EID: 84869203375     PISSN: 08853924     EISSN: 18736513     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2011.10.011     Document Type: Article

References (25)

1. Sanjo M, Miyashita M, Morita T, et al. Preferences regarding end-of-life cancer care and associations with good-death concepts: a population-based survey in Japan. Ann Oncol 2007;18:1539-1547. (Pubitemid 47365488)
2. Choi J, Miyashita M, Hirai K, et al. Preference of place for end-of-life cancer care and death among bereaved Japanese families who experienced home hospice care and death of a loved one. Support Care Cancer 2010;18:1445-1453.
3. Ministry of Health, Labour and Welfare. Population survey report on mortality and percentage of cause of death according to place of death. 2009. Available from http://www.e-stat.go.jp/SG1/estat/List.do?lid=000001032157. Accessed April 20, 2011.
4. Grov EK, Dahl AA, Moum T, et al. Anxiety, depression, and quality of life in caregivers of patients with cancer in late palliative phase. Ann Oncol 2005;16:1185-1191. (Pubitemid 41418323)
5. Shinjo T, Morita T, Hirai K, et al. Care for imminently dying cancer patients: family members' experiences and recommendations. J Clin Oncol 2010; 28:142-148.
6. McLaughlin D, Sullivan K, Hasson F, et al. Hospice at home service: the carer's perspective. Support Care Cancer 2007;15:163-170. (Pubitemid 46332921)
7. Grov EK, Fossa SD, Tonnessen A, et al. The caregiver reaction assessment psychometrics, and temporal stability in primary caregivers of Norwegian cancer patients in late palliative phase. Psychooncology 2006;15:517-527. (Pubitemid 44018687)
8. Cameron JI, Franche RL, Cheung AM, et al. Lifestyle interference and emotional distress in family caregiver of advanced cancer patients. Cancer 2002;94:521-527. (Pubitemid 34081384)
9. Brink P, Frise Smith T. Determinants of home death in palliative home care: using the interRAI palliative care to assess end-of-life care. Am J Hosp Palliat Med 2008;25:263-270.
10. Bakitas M, Ahles TA, Skalla K, et al. Proxy perspectives regarding end-of-life care for person with cancer. Cancer 2008;112:1854-1861. (Pubitemid 351536847)
11. Ardith Z, Doorenbos CWG, Given B, et al. Symptom experience in the last year of life among individuals with cancer. J Pain Symptom Manage 2006;32:403-412. (Pubitemid 44755109)
12. Sano T, Maeyama E, Kawa M, et al. Family caregiver's experience in caring for a patient with terminal cancer at home in Japan. Palliat Support Care 2007;5:389-395.
13. Emanuel EJ, Emanuel LL. The promise of a good death. Lancet 1998;351(Suppl 2):SII21eSII29.
14. Miyashita M, Sakai M, Iizuka H, et al. Burdens to family members in home care and related QOL factors (in Japanese). J Japanese Association Rural Med 2006;54:767-773.
15. Hiramatu M, Kondo K, Umehara K, et al. Burdens of family members and related factors in home care (The first report) (in Japanese). J Health Welfare Stat 2006;53:19-24.
16. Hiramatu M, Kondo K, Umehara K, et al. Burdens of family members and related factors in home care (The second report) (in Japanese). J Health Welfare Stat 2006;53:8-13.
17. Ishii Y, Miyashita M, Sato K, et al. Family's difficulty scale in end-of-life care: a new measure of the family's difficulties of caring for cancer patients at the end of life at home from bereaved family's perspective. J Palliat Med 2012;15:210-215.
18. Fukui S, Fukui N, Kawagoe H, et al. Predictors of place of death for Japanese patients with advanced-stage malignant disease in home care settings: a nationwide survey. Cancer 2004;101: 421-429. (Pubitemid 38890848)
19. Gomes B, Higginson IJ. Factors influencing death at home in terminally ill patients with cancer: systematic review. BMJ 2006;332:515-521.
20. Mangan PA, Taylor KL, Yabroff KR, et al. Caregiving near the end of life: unmet needs and potential solutions. Palliat Support Care 2003;1:247-259.
21. Glajchen M. The emerging role and needs of family caregivers in cancer care. J Support Oncol 2004;2:145-155. (Pubitemid 39429819)
22. Schulz R, Mendelsohn AB, Haley WE, et al. Endof- life care and the effects of bereavement on family caregivers of persons with dementia. N Engl J Med 2003;349:1936-1942. (Pubitemid 37409711)
23. Vedhara K, Shanks N, Anderson S, Lightmen S. The role of stressors and psychosocial variables in the stress process: a study of chronic caregiver stress. Psychosom Med 2000;62:374-385. (Pubitemid 30347081)
24. DeFries EL, McGuire LC, Andresen EM, et al. Caregivers of older adults with cognitive impairment. Prev Chronic Dis 2009;6:1-10.
25. Hwang SS, Chang VT, Alejandro Y, et al. Caregiver unmet needs, burden, and satisfaction in symptomatic advanced cancer patients at Veterans Affairs (VA) medical cancer. Palliat Support Care 2003;1:319-329.