Preferences regarding end-of-life cancer care and associations with good-death concepts: A population-based survey in Japan

Annals of Oncology

Volumn 18, Issue 9, 2007, Pages 1539-1547

  Sanjo, M ^a   Miyashita, M ^a   Morita, T ^b   Hirai, K ^c   Kawa, M ^a   Akechi, T ^d   Uchitomi, Y ^e  

^a UNIVERSITY OF TOKYO   (Japan)

^b SEIREI MIKATAHARA GENERAL HOSPITAL   (Japan)

^c OSAKA UNIVERSITY   (Japan)

^d NAGOYA CITY UNIVERSITY GRADUATE SCHOOL OF MEDICAL SCIENCES   (Japan)

^e NATIONAL CANCER CENTER HOSPITAL EAST   (Japan)

Author keywords

Attitude towards death; Cross sectional studies; Neoplasm; Palliative care

Indexed keywords

ADULT; AGED; ARTICLE; ATTITUDE TO DEATH; BEREAVEMENT; CANCER MORTALITY; CANCER PALLIATIVE THERAPY; CONTROLLED STUDY; DISEASE SEVERITY; DOCTOR PATIENT RELATION; FEMALE; HEALTH BELIEF; HEALTH SURVEY; HOME CARE; HOSPITAL CARE; HUMAN; JAPAN; MALE; MEDICAL DECISION MAKING; PHYSICAL STRESS; POPULATION RESEARCH; PRIORITY JOURNAL; PROGNOSIS; PSYCHOLOGICAL ASPECT; SEDATION; TERMINAL CARE;

EID: 34548413742     PISSN: 09237534     EISSN: 15698041     Source Type: Journal    
DOI: 10.1093/annonc/mdm199     Document Type: Article

References (40)

1. Emanuel EJ, Emanuel LL. The promise of a good death. Lancet 1998; 351 (Suppl 2): SII21-29.
2. Stewart AL, Teno J, Patrick DL, Lynn J. The concept of quality of life of dying persons in the context of health care. J Pain Symptom Manage 1999; 17: 93-108.
3. Chen H, Haley WE, Robinson BE et al. Decisions for hospice care in patients with advanced cancer. J Am Geriatr Soc 2003; 51: 789-797.
4. Higginson IJ, Sen-Gupta GJ. Place of care in advanced cancer: A qualitative systematic literature review of patient preferences. J Palliat Med 2000; 3: 287-300.
5. Minister's Secretariat, Ministry of Health, Labour and Welfare. Report on Opinion Survey Regarding End of Life Care. (In Japanese). http://www.mhlw.go.jp/shingi/2004/2007/s0723-2008.html (2 April 2007, date last accessed).
6. Townsend J, Frank AO, Fermont D et al. Terminal cancer care and patients' preference for place of death: A prospective study. BMJ 1990; 301: 415-417.
7. Hagerty RG, Butow PN, Ellis PA et al. Cancer patient preferences for communication of prognosis in the metastatic setting. J Clin Oncol 2004; 22: 1721-1730.
8. Yun YH, Lee CG, Kim SY et al. The attitudes of cancer patients and their families toward the disclosure of terminal illness. J Clin Oncol 2004; 22: 307-314.
9. Matsumura S, Fukuhara S, Bito S. Preferences regarding the disclosure of cancer diagnosis and related factors in Japan. (In Japanese). Nihon-iji-shinpo 1997; 3830: 37-42.
10. Emanuel EJ, Fairclough DL, Daniels ER et al. Euthanasia and physician-assisted suicide: Attitudes and experiences of oncology patients, oncologists, and the public. Lancet 1996; 347: 1805-1810.
11. Morita T, Hiral K, Okazaki Y. Preferences for palliative sedation therapy in the Japanese general population. J Palliat Med 2002; 5: 375-385.
12. Wilson KG, Scott JF, Graham ID et al. Attitudes of terminally ill patients toward euthanasia and physician-assisted suicide. Arch Intern Med 2000; 160: 2454-2460.
13. Hirai K, Miyashita M, Morita T et al. Good death in Japanese cancer care: A qualitative study. J Pain Symptom Manage 2006; 31: 140-147.
14. Payne SA, Langley-Evans A, Hillier R. Perceptions of a 'good' death: A comparative study of the views of hospice staff and patients. Palliat Med 1996; 10: 307-312.
15. Steinhauser KE, Clipp EC, McNeilly M et al. In search of a good death: observations at patients, families, and providers. Ann Intern Med 2000; 132: 825-832.
16. Suarez-Almazor ME, Newman C, Hanson J et al. Attitudes of terminally ill cancer patients about euthanasia and assisted suicide: Predominance of psychosocial determinants and beliefs over symptom distress and subsequent survival. J Clin Oncol 2002; 20: 2134-2141.
17. Vig EK, Davenport NA, Pearlman RA. Good deaths, bad deaths, preferences for the end of life: A qualitative study of geriatric outpatients. J Am Geriatr Soc 2002; 50: 1541-1548.
18. Charlton RC. Attitudes towards care of the dying: A questionnaire survey of general practice attenders. Fam Pract 1991; 8: 356-359.
19. Maeyama E, Kawa M, Miyashita M et al. Multiprofessional team approach in palliative care units in Japan. Support Care Cancer 2003; 11: 509-515.
20. Fukui S, Kawagoe H, Masako S et al. Determinants of the place of death among terminally ill cancer patients under home hospice care in Japan. Palliat Med 2003; 17: 445-453.
21. Miyashita M, Sanjo M, Morita T et al. Good death in Japanese cancer care: A Nationwide Quantitative Study. Ann Oncol 2007; 18: 1090-1097.
22. Morita T, Miyashita M, Shibagaki M et al. Knowledge and beliefs about end-of-life care and the effects of specialized palliative care: A population-based survey in Japan. J Pain Symptom Manage 2006; 31: 306-316.
23. Chiu TY, Hu WY, Chuang RB et al. Terminal cancer patients' wishes and influencing factors toward the provision of artificial nutrition and hydration in Taiwan. J Pain Symptom Manage 2004; 27: 206-214.
24. Curtis JR, Patrick DL, Caldwell ES et al. Why don't patients and physicians talk about end-of-life care? Barriers to communication for patients with acquired immunodeficiency syndrome and their primary care clinicians. Arch Intern Med 2000; 160: 1690-1696.
25. Emanuel EJ, Fairclough D, Clarridge BC et al. Attitudes and practices of U.S. oncologists regarding euthanasia and physician-assisted suicide. Ann Intern Med 2000; 133: 527-532.
26. Lamont EB, Christakis NA. Prognostic disclosure to patients with cancer near the end of life. Ann Intern Med 2001; 134: 1096-1105.
27. McClement SE, Degner LF, Harlos MS. Family beliefs regarding the nutritional care of a terminally ill relative: A qualitative study. J Palliat Med 2003; 6: 737-748.
28. Morita T, Akechi T, Ikenaga M et al. Late referrals to specialized palliative care service in Japan. J Clin Oncol 2005; 23: 2637-2644.
29. Ronaldson S, Devery K. The experience of transition to palliative care services: Perspectives of patients and nurses. Int J Palliat Nurs 2001; 7: 171-177.
30. Silveira MJ, DiPiero A, Gerrity MS et al. Patients' knowledge of options at the end of life: Ignorance in the face of death. JAMA 2000; 284: 2483-2488.
31. Weiss SC, Emanuel LL, Fairclough DL et al. Understanding the experience of pain in terminally ill patients. Lancet 2001; 357: 1311-1315.
32. Yabroff KR, Mandelblatt JS, Ingham J. The quality of medical care at the end-of-life in the USA: Existing barriers and examples of process and outcome measures. Palliat Med 2004; 18: 202-216.
33. Agresti A. An Introduction to Categorical Data Analysis. New York: Wiley 1996.
34. Hosmer DW, Lemeshow S. Applied Logistic Regression. New York: Wiley 2000.
35. Minister's Secretariat, Ministry of Health, Labour and Welfare. Vital Statistics. 2003 http://dbtk.mhlw.go.jp/toukel/data/010/2003/toukeihyou/ 0004649/t0095927/JC0050000_0004001.html (2 April 2007, date last accessed).
36. Thomas C, Morris SM, Clark D. Plate of death: Preferences among cancer patients and their carers. Soc Sci Med 2004; 58: 2431-2444.
37. Aitini E, Cetto GL. A good death for cancer patients: Still a dream? Ann Oncol 2006; 17: 733-734.
38. Ganzini L, Nelson HD, Schmidt TA et al. Physicians' experiences with the Oregon Death with Dignity Act. N Engl J Med 2000; 342: 557-563.
39. Fried TR, Byers AL, Gallo WT et al. Prospective study of health status preferences and changes in preferences over time in older adults. Arch Intern Med 2006; 166: 890-895.
40. EPEC Project. The Negotiating Goals of Care. http://www.epec.net/EPEC/ Webpages/Ecommerce/itemDetail.cfm?productID=85(2 April 2007, date last accessed).