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Volumn 42, Issue 6, 2012, Pages 32-44

Normalizing Atypical Genitalia: How a Heated Debate Went Astray: How a Heated Debate Went Astray

(1)  Johnston, Josephine a  

a NONE

Author keywords

[No Author keywords available]

Indexed keywords

DEXAMETHASONE; GLUCOCORTICOID;

EID: 84869025223     PISSN: 00930334     EISSN: 1552146X     Source Type: Journal    
DOI: 10.1002/hast.82     Document Type: Article
Times cited : (4)

References (67)
  • 1
    • 84869035895 scopus 로고    scopus 로고
    • quot;Congenital Adrenal Hyperplasia," PubMedHealth, .
    • "Congenital Adrenal Hyperplasia, " PubMedHealth, http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001448/.
  • 2
    • 78651037802 scopus 로고
    • Der Genitalbefund beim Pseudohermaphroditismus femininus der kengenitalen adrenogenitalen Syndroms
    • A. Prader, "Der Genitalbefund beim Pseudohermaphroditismus femininus der kengenitalen adrenogenitalen Syndroms, " Helvetica Paediatrica Acta 9, no. 3 (1954): 231-48.
    • (1954) Helvetica Paediatrica Acta , vol.9 , Issue.3 , pp. 231-248
    • Prader, A.1
  • 3
    • 0034454269 scopus 로고    scopus 로고
    • Congenital Adrenal Hyperplasia Due to 21-Hydroxylase Deficiency
    • P.C. White and P.W. Speiser, "Congenital Adrenal Hyperplasia Due to 21-Hydroxylase Deficiency, " Endocrine Reviews 21, no. 3 (2000): 245-91.
    • (2000) Endocrine Reviews , vol.21 , Issue.3 , pp. 245-291
    • White, P.C.1    Speiser, P.W.2
  • 4
    • 84869035897 scopus 로고    scopus 로고
    • Not Fetal Cosmetology
    • Bioethics Forum, March 8, .
    • D.A. Diamond et al., "Not Fetal Cosmetology, " Bioethics Forum, March 8, 2010, http://www.thehastingscenter.org/Bioethicsforum/Post.aspx?id=4528#ixzz1YVLKNiij.
    • (2010)
    • Diamond, D.A.1
  • 5
    • 77956588420 scopus 로고    scopus 로고
    • Congenital Adrenal Hyperplasia Due to Steroid 21-Hydroxylase Deficiency: An Endocrine Society Clinical Practice Guideline
    • P.W Speiser et al., "Congenital Adrenal Hyperplasia Due to Steroid 21-Hydroxylase Deficiency: An Endocrine Society Clinical Practice Guideline, " Journal of Clinical Endocrinology and Metabolism 95, no. 9 (2010): 4133-60.
    • (2010) Journal of Clinical Endocrinology and Metabolism , vol.95 , Issue.9 , pp. 4133-4160
    • Speiser, P.W.1
  • 6
    • 0003840478 scopus 로고
    • Intersex Society of North America, (San Francisco, Calif.: Intersex Society of North America
    • Intersex Society of North America, "Recommendations for Treatment: Intersex Infants and Children, " (San Francisco, Calif.: Intersex Society of North America, 1995).
    • (1995) Recommendations for Treatment: Intersex Infants and Children
  • 7
    • 0031253158 scopus 로고    scopus 로고
    • Management of Intersexuality: Guidelines for Dealing with Individuals with Ambiguous Genitalia
    • M. Diamond and H.K. Sigmundson, "Management of Intersexuality: Guidelines for Dealing with Individuals with Ambiguous Genitalia, " Archives of Pediatrics and Adolescent Medicine 151 (1997): 1046-50.
    • (1997) Archives of Pediatrics and Adolescent Medicine , vol.151 , pp. 1046-1050
    • Diamond, M.1    Sigmundson, H.K.2
  • 8
    • 0032060848 scopus 로고    scopus 로고
    • 'Ambiguous Sex'-or Ambivalent Medicine: Ethical Issues in the Treatment of Intersexuality
    • A.D. Dreger, "'Ambiguous Sex'-or Ambivalent Medicine: Ethical Issues in the Treatment of Intersexuality, " Hastings Center Report 28, no. 3 (1998): 24-35.
    • (1998) Hastings Center Report , vol.28 , Issue.3 , pp. 24-35
    • Dreger, A.D.1
  • 9
    • 0033867074 scopus 로고    scopus 로고
    • Long-Term Follow-Up of Female Patients with Congenital Adrenal Hyperplasia from 21-Hydroxylase Deficiency, with Special Emphasis on the Results of Vaginoplasty, " BJU International, no. 3
    • S. Krege et al., "Long-Term Follow-Up of Female Patients with Congenital Adrenal Hyperplasia from 21-Hydroxylase Deficiency, with Special Emphasis on the Results of Vaginoplasty, " BJU International 86, no. 3 (2000): 253-58
    • (2000) , vol.86 , pp. 253-58
    • Krege, S.1
  • 10
    • 0042261643 scopus 로고    scopus 로고
    • Behalf of the British Association of Paediatric Surgeons Working Party on the Surgical Management of Children Born with Ambiguous Genitalia
    • Archives of Diseases in Childhood, no. 9
    • L. Rangecroft, on behalf of the British Association of Paediatric Surgeons Working Party on the Surgical Management of Children Born with Ambiguous Genitalia, "Surgical Management of Ambiguous Genitalia, " Archives of Diseases in Childhood 88, no. 9 (2003): 799-801.
    • (2003) Surgical Management of Ambiguous Genitalia , vol.88 , pp. 799-801
    • Rangecroft, L.1
  • 11
    • 33644784511 scopus 로고    scopus 로고
    • Clinical Guidelines for the Management of Disorders of Sex Development in Childhood
    • Consortium on the Management of Disorders of Sex Development, Intersex Society of North America, August 16, .
    • Consortium on the Management of Disorders of Sex Development, "Clinical Guidelines for the Management of Disorders of Sex Development in Childhood, " Intersex Society of North America, August 16, 2006, http://www.dsdguidelines.org/files/clinical.pdf.
    • (2006)
  • 12
    • 38849102551 scopus 로고    scopus 로고
    • Sexual Function and Genital Sensitivity Following Feminizing Genitoplasty for Congenital Adrenal Hyperplasia
    • See,, no. Regarding the argument that studies such as this, using subjects operated on in the 1980s, cannot speak to current surgical methods, Crouch write, quot;most clitoral procedures were based on the dorsal neurovascular bundle preservation approach described in 1981 by Mollard, which has become the basis of current practice and has been widely used after 1985. Outcome data on surgery performed in the 1990s will not be available for some years to come when these individuals become sexually active. The current data serve as an important benchmark for future investigations of the effects of newer surgical techniques" (p. 637).
    • See N.S. Crouch et al., "Sexual Function and Genital Sensitivity Following Feminizing Genitoplasty for Congenital Adrenal Hyperplasia, " Journal of Urology 179, no. 2 (2008): 634-38. Regarding the argument that studies such as this, using subjects operated on in the 1980s, cannot speak to current surgical methods, Crouch et al. write, "most clitoral procedures were based on the dorsal neurovascular bundle preservation approach described in 1981 by Mollard, which has become the basis of current practice and has been widely used after 1985. Outcome data on surgery performed in the 1990s will not be available for some years to come when these individuals become sexually active. The current data serve as an important benchmark for future investigations of the effects of newer surgical techniques" (p. 637).
    • (2008) Journal of Urology , vol.179 , Issue.2 , pp. 634-638
    • Crouch, N.S.1
  • 13
    • 1642296556 scopus 로고    scopus 로고
    • Changing Attitudes to Sex Assignment in Intersex
    • S.M. Creighton and L.-M. Liao, "Changing Attitudes to Sex Assignment in Intersex, " BJU International 93 (2004): 659-64.
    • (2004) BJU International , vol.93 , pp. 659-664
    • Creighton, S.M.1    Liao, L.-M.2
  • 14
    • 84869046604 scopus 로고    scopus 로고
    • Hermaphrodites Speak!
    • See, Intersex Society of North America, 1997 (video); A. Dreger, ed., Hagerstown, Md.: University Publishing Group
    • See C. Chase, "Hermaphrodites Speak!" Intersex Society of North America, 1997 (video); A. Dreger, ed., Intersex in the Age of Ethics (Hagerstown, Md.: University Publishing Group, 1999).
    • (1999) Intersex in the Age of Ethics
    • Chase, C.1
  • 15
    • 84869046608 scopus 로고    scopus 로고
    • Consortium on the Management of Disorders of Sex Development, quot;Clinical Guidelines for the Management of Disorders of Sex Development in Childhood."
    • Consortium on the Management of Disorders of Sex Development, "Clinical Guidelines for the Management of Disorders of Sex Development in Childhood."
  • 16
    • 84869035899 scopus 로고    scopus 로고
    • quot;Congenital Adrenal Hyperplasia Due to Steroid 21-Hydroxylase Deficiency."
    • Speiser et al., "Congenital Adrenal Hyperplasia Due to Steroid 21-Hydroxylase Deficiency."
    • Speiser1
  • 17
    • 33745773870 scopus 로고    scopus 로고
    • Consensus Statement on Management of Intersex Disorders
    • I.A. Hughes et al., "Consensus Statement on Management of Intersex Disorders, " Archives of Disease in Childhood 91, no. 7 (2006): 554-63.
    • (2006) Archives of Disease in Childhood , vol.91 , Issue.7 , pp. 554-563
    • Hughes, I.A.1
  • 18
    • 84869035900 scopus 로고    scopus 로고
    • quot;Surgery Considerations for Girls with Classical CAH," CARES Foundation,, accessed September 21
    • M. Moody et al., "Surgery Considerations for Girls with Classical CAH, " CARES Foundation, http://www.caresfoundation.org/productcart/pc/surgery_considerations_cah.html#surgery, accessed September 21, 2012.
    • (2012)
    • Moody, M.1
  • 19
    • 84869035898 scopus 로고    scopus 로고
    • quot;Congenital Adrenal Hyperplasia Due to Steroid 21-Hydroxylase Deficiency," .
    • Speiser et al., "Congenital Adrenal Hyperplasia Due to Steroid 21-Hydroxylase Deficiency, " 4143.
    • Speiser1
  • 20
    • 84869066731 scopus 로고    scopus 로고
    • quot;Consensus Statement on Management of Intersex Disorders," .
    • Hughes et al., "Consensus Statement on Management of Intersex Disorders, " 557.
    • Hughes1
  • 21
    • 84869046607 scopus 로고    scopus 로고
    • quot;Surgery Considerations for Girls with Classical CAH."
    • Moody et al., "Surgery Considerations for Girls with Classical CAH."
    • Moody1
  • 22
    • 84869066732 scopus 로고    scopus 로고
    • Consortium on the Management of Disorders of Sex Development, quot;Clinical Guidelines for the Management of Disorders of Sex Development in Childhood," .
    • Consortium on the Management of Disorders of Sex Development, "Clinical Guidelines for the Management of Disorders of Sex Development in Childhood, " 3.
  • 23
    • 2442607576 scopus 로고    scopus 로고
    • Health Care Professionals and Intersex Conditions
    • J. Frader et al., "Health Care Professionals and Intersex Conditions, " Archives of Pediatric and Adolescent Medicine 158, no. 5 (2004): 426-28.
    • (2004) Archives of Pediatric and Adolescent Medicine , vol.158 , Issue.5 , pp. 426-428
    • Frader, J.1
  • 24
    • 34548461184 scopus 로고    scopus 로고
    • Nerve Sparing Reduction Clitoroplasty: Analysis of Clitoral Sensitivity and Viability
    • J. Yang, D. Felsen, and D.P. Poppas, "Nerve Sparing Reduction Clitoroplasty: Analysis of Clitoral Sensitivity and Viability, " Journal of Urology 178, no. 4 (2007): 1598-1601.
    • (2007) Journal of Urology , vol.4 , Issue.178 , pp. 1598-1601
    • Yang, J.1    Felsen, D.2    Poppas, D.P.3
  • 25
    • 84869065204 scopus 로고    scopus 로고
    • Bad Vibrations
    • Bioethics Forum, June 16, .
    • A. Dreger and E.K. Feder, "Bad Vibrations, " Bioethics Forum, June 16, 2010, http://www.thehastingscenter.org/Bioethicsforum/Post.aspx?id=4730.
    • (2010)
    • Dreger, A.1    Feder, E.K.2
  • 26
    • 84869065203 scopus 로고    scopus 로고
    • This Doctor Does What to 6-Year-Old Girls' Clitorises?
    • Slate, June 24, 2010
    • H. Rosin, "This Doctor Does What to 6-Year-Old Girls' Clitorises?" Slate, June 24, 2010, http://www.slate.com/id/2257987/
    • Rosin, H.1
  • 27
    • 84869046610 scopus 로고    scopus 로고
    • Female Genital Mutilation at Cornell University, " Slog, June 16, 2010, university.
    • D. Savage, "Female Genital Mutilation at Cornell University, " Slog, June 16, 2010, http://slog.thestranger.com/slog/archives/2010/06/16/female-genital-mutilation-at-cornell-university.
    • Savage, D.1
  • 28
    • 84869046609 scopus 로고    scopus 로고
    • Advocates for Informed Choice describes itself as an organization focused on legal advocacy for the rights of children with intersex conditions or DSDs ("differences of sex development"),, accessed October 1
    • Advocates for Informed Choice describes itself as an organization focused on legal advocacy for the rights of children with intersex conditions or DSDs ("differences of sex development"), http://aiclegal.org/about/, accessed October 1, 2012.
    • (2012)
  • 29
    • 84869066734 scopus 로고    scopus 로고
    • letter to Jerry Menikoff, director of Office for Human Research Protections, June 25, .
    • A. Tamar-Mattis, letter to Jerry Menikoff, director of Office for Human Research Protections, June 25, 2010, http://aiclegal.files.wordpress.com/2010/06/poppas-ohrp-letter.pdf.
    • (2010)
    • Tamar-Mattis, A.1
  • 30
    • 84869035902 scopus 로고    scopus 로고
    • Weill Medical College Says Poppas' Surgical Procedure Is Standard
    • Cornell Daily Sun, October 5.
    • M.C. Ristorucci, "Weill Medical College Says Poppas' Surgical Procedure Is Standard, " Cornell Daily Sun, October 5, 2010, http://cornellsun.com/node/43845.
    • (2010)
    • Ristorucci, M.C.1
  • 31
    • 84869065209 scopus 로고    scopus 로고
    • Advocates for Informed Choice, quot;Poppas Update: Federal Agency Declines to Take Action on 'Clitoral Sensitivity Tests' on Children," May 31, .
    • Advocates for Informed Choice, "Poppas Update: Federal Agency Declines to Take Action on 'Clitoral Sensitivity Tests' on Children, " May 31, 2011, http://aiclegal.org/presscenter/update-federal-agency-declines-to-take-action-on-clitoral-sensitivity-tests-on-children/.
    • (2011)
  • 32
    • 84869065206 scopus 로고    scopus 로고
    • U.S. Department of Health and Human Services, 45 CFR 46.102.
    • U.S. Department of Health and Human Services, 45 CFR 46.102.
  • 33
    • 77950662467 scopus 로고    scopus 로고
    • Congenital Adrenal Hyperplasia Due to 21-Hydroxylase Deficiency: A Paradigm for Prenatal Diagnosis and Treatment
    • S. Nimkarn and M.I. New, "Congenital Adrenal Hyperplasia Due to 21-Hydroxylase Deficiency: A Paradigm for Prenatal Diagnosis and Treatment, " Annals of the New York Academy of Sciences 1192 (2010): 5-11.
    • (2010) Annals of the New York Academy of Sciences , vol.1192 , pp. 5-11
    • Nimkarn, S.1    New, M.I.2
  • 34
    • 77956568802 scopus 로고    scopus 로고
    • Prenatal Dexamethasone Use for the Prevention of Virilization in Pregnancies at Risk for Classical Congenital Adrenal Hyperplasia Because of 21-Hydroxylase (CYP21A2) Deficiency: A Systematic Review and Meta-Analyses
    • 438-39.
    • M. Fernández-Balsells et al., "Prenatal Dexamethasone Use for the Prevention of Virilization in Pregnancies at Risk for Classical Congenital Adrenal Hyperplasia Because of 21-Hydroxylase (CYP21A2) Deficiency: A Systematic Review and Meta-Analyses, " Clinical Endocrinology 73, no. 4 (2010): 436-44, at 438-39.
    • (2010) Clinical Endocrinology , vol.73 , Issue.4 , pp. 436-444
    • Fernández-Balsells, M.1
  • 35
    • 84869066737 scopus 로고    scopus 로고
    • quot;Congenital Adrenal Hyperplasia Due to Steroid 21-Hydroxylase Deficiency," .
    • Speiser et al., "Congenital Adrenal Hyperplasia Due to Steroid 21-Hydroxylase Deficiency, " 4137.
    • Speiser1
  • 36
    • 84869046614 scopus 로고    scopus 로고
    • Fetal Cosmetology
    • Bioethics Forum, February 8, .
    • H. Lindemann, E.K. Feder, and A. Dreger, "Fetal Cosmetology, " Bioethics Forum, February 8, 2010, http://www.thehastingscenter.org/Bioethicsforum/Post.aspx?id=4470#ixzz1hIiqdmYU.
    • (2010)
    • Lindemann, H.1    Feder, E.K.2    Dreger, A.3
  • 37
    • 84869046612 scopus 로고    scopus 로고
    • Prenatal Dex: Update and Omnibus Reply
    • quot;Not Fetal Cosmetology." In a subsequent post, Dreger, Feder, and Lindemann thank Diamond for pointing this out. They do not respond to or debate the claim that surgery to allow "normal urination and future sexual function" is medically necessary in childhood., and, Bioethics Forum, March 18, .
    • Diamond et al., "Not Fetal Cosmetology." In a subsequent post, Dreger, Feder, and Lindemann thank Diamond et al. for pointing this out. They do not respond to or debate the claim that surgery to allow "normal urination and future sexual function" is medically necessary in childhood. A. Dreger, E. Feder, and H. Lindemann, "Prenatal Dex: Update and Omnibus Reply, " Bioethics Forum, March 18, 2010, http://www.thehastingscenter.org/Bioethicsforum/Post.aspx?id=4569&blogid=140.
    • (2010)
    • Diamond1    Dreger, A.2    Feder, E.3    Lindemann, H.4
  • 38
    • 84869046611 scopus 로고    scopus 로고
    • These authors have also argued that dexamethasone treatment should not be administered at all to women at risk for carrying CAH-affected female fetuses, so presumably their position is that it should not be administered, but if it is administered, there should at least be an IRB involved and the possibility of collecting data on safety and efficacy.
    • These authors have also argued that dexamethasone treatment should not be administered at all to women at risk for carrying CAH-affected female fetuses, so presumably their position is that it should not be administered, but if it is administered, there should at least be an IRB involved and the possibility of collecting data on safety and efficacy.
  • 39
    • 84869046615 scopus 로고    scopus 로고
    • quot;Letter of Concern from Bioethicists to FDA Office of Pediatric Therapeutics, the HHS Office for Human Research Protections and Others," (undated),, accessed October 1, 2012.
    • E. Feder et al., "Letter of Concern from Bioethicists to FDA Office of Pediatric Therapeutics, the HHS Office for Human Research Protections and Others, " (undated), http://fetaldex.org/letter_bioethics.html, accessed October 1, 2012.
    • Feder, E.1
  • 40
    • 84869065211 scopus 로고    scopus 로고
    • quot;Prenatal Dexamethasone Use for the Prevention of Virilization in Pregnancies at Risk for Classical Congenital Adrenal Hyperplasia because of 21-Hydroxylase (CYP21A2) Deficiency," at 441 and 442.
    • Fernández-Balsells et al., "Prenatal Dexamethasone Use for the Prevention of Virilization in Pregnancies at Risk for Classical Congenital Adrenal Hyperplasia because of 21-Hydroxylase (CYP21A2) Deficiency, " at 441 and 442.
    • Fernández-Balsells1
  • 41
    • 84869046616 scopus 로고    scopus 로고
    • quot;Congenital Adrenal Hyperplasia Due to Steroid 21-Hydroxylase Deficiency," .
    • Speiser et al., "Congenital Adrenal Hyperplasia Due to Steroid 21-Hydroxylase Deficiency, " 4137.
    • Speiser1
  • 42
    • 84869064817 scopus 로고    scopus 로고
    • Preventing Homosexuality (and Uppity Women) in the Womb?
    • Dreger, Feder, and Lindemann, quot;Prenatal Dex";, and, Bioethics Forum, June 29, .
    • Dreger, Feder, and Lindemann, "Prenatal Dex"; A. Dreger, E. Feder, and A. Tamar-Mattis, "Preventing Homosexuality (and Uppity Women) in the Womb?" Bioethics Forum, June 29, 2010, http://www.thehastingscenter.org/Bioethicsforum/Post.aspx?id=4754&blogid=140.
    • (2010)
    • Dreger, A.1    Feder, E.2    Tamar-Mattis, A.3
  • 43
    • 84869046621 scopus 로고    scopus 로고
    • Nimkarn and New, quot;Congenital Adrenal Hyperplasia Due to 21-Hydroxylase Deficiency," .
    • Nimkarn and New, "Congenital Adrenal Hyperplasia Due to 21-Hydroxylase Deficiency, " 9.
  • 44
    • 84869065216 scopus 로고    scopus 로고
    • quot;Psychologic Development after Early-Prenatal Dexamethasone Exposure Work Statement,", accessed October 1, M.I. New, untitled document from a grant proposal,, accessed October 1, 2012.
    • M.I. New, "Psychologic Development after Early-Prenatal Dexamethasone Exposure Work Statement, " http://fetaldex.org/FOIA_files/12.97%20suppressing%20masculinization.pdf, accessed October 1, 2012; M.I. New, untitled document from a grant proposal, http://fetaldex.org/FOIA_files/12.97%20spectrum%20of%20behavioral%20effects%20-%20risks.pdf, accessed October 1, 2012.
    • (2012)
    • New, M.I.1
  • 45
    • 84869046620 scopus 로고    scopus 로고
    • Dreger, Feder, and Lindemann, quot;Prenatal Dex"; Dreger, Feder, and Tamar-Mattis, quot;Preventing Homosexuality (and Uppity Women) in the Womb?"
    • Dreger, Feder, and Lindemann, "Prenatal Dex"; Dreger, Feder, and Tamar-Mattis, "Preventing Homosexuality (and Uppity Women) in the Womb?"
  • 46
    • 77956414385 scopus 로고    scopus 로고
    • On Cultural Sanctions for Shaping our Children's Genitalia
    • 56.
    • J. Lantos, "On Cultural Sanctions for Shaping our Children's Genitalia, " American Journal of Bioethics 10, no. 9 (2010): 55-57, at 56.
    • (2010) American Journal of Bioethics , vol.10 , Issue.9 , pp. 55-57
    • Lantos, J.1
  • 47
    • 84869065210 scopus 로고    scopus 로고
    • director, Division of Compliance Oversight, Office for Human Research Protections, letter to Ellen K. Feder and Alice Dreger, September 2, .
    • K.C. Borror, director, Division of Compliance Oversight, Office for Human Research Protections, letter to Ellen K. Feder and Alice Dreger, September 2, 2010, http://fetaldex.org/correspondence_files/OHRP_response_Sept_2_2010.pdf.
    • (2010)
    • Borror, K.C.1
  • 48
    • 84869065212 scopus 로고    scopus 로고
    • Bio-Thesiometer
    • See & Bio-Medical Instrument Company,, accessed October 1
    • See "Bio-Thesiometer, " Bio-Medical Instrument Company, http://www.biothesiometer.com, accessed October 1, 2012.
    • (2012)
  • 49
    • 0035147187 scopus 로고    scopus 로고
    • Provider Encouragement of Breast-Feeding: Evidence from a National Survey
    • M.C. Lu et al., "Provider Encouragement of Breast-Feeding: Evidence from a National Survey, " Obstetrics and Gynecology 97, no. 2 (2001): 290-95
    • (2001) Obstetrics and Gynecology, no. 2 , vol.97 , pp. 290-95
    • Lu, M.C.1
  • 50
    • 12744279922 scopus 로고    scopus 로고
    • In Surgical Ethics, ed. L.B. McCullough, J.W. Jones, and B.A. Brody (New York: Oxford University Press
    • A. Lustig and P. Scardino, "Elective Patients, " in Surgical Ethics, ed. L.B. McCullough, J.W. Jones, and B.A. Brody (New York: Oxford University Press, 1998)
    • (1998) Elective Patients
    • Lustig, A.1    Scardino, P.2
  • 51
    • 84869028398 scopus 로고    scopus 로고
    • What's Special about the Surgical Context?
    • In Surgically Shaping Children: Technology, Ethics and the Pursuit of Normality, ed. E. Parens (Baltimore, Md.: Johns Hopkins University Press.
    • W.E. Mouradian, "What's Special about the Surgical Context?" in Surgically Shaping Children: Technology, Ethics and the Pursuit of Normality, ed. E. Parens (Baltimore, Md.: Johns Hopkins University Press, 2006), 125-54.
    • (2006) , pp. 125-54
    • Mouradian, W.E.1
  • 52
    • 84869065213 scopus 로고    scopus 로고
    • quot;Support Dr. Poppas" Facebook page,, accessed October 1, 2012.
    • "Support Dr. Poppas" Facebook page, https://www.facebook.com/group.php?gid=112890762105471#!/group.php?gid=112890762105471&v=wall, accessed October 1, 2012.
  • 53
    • 84898501781 scopus 로고    scopus 로고
    • What to Expect When You Have the Child You Weren't Expecting
    • At 261 in, ed. Parens
    • A.D. Dreger, "What to Expect When You Have the Child You Weren't Expecting, " in Surgically Shaping Children, ed. Parens, 253-66, at 261.
    • Surgically Shaping Children , pp. 253-66
    • Dreger, A.D.1
  • 54
    • 69249207268 scopus 로고    scopus 로고
    • In Their Best Interests: Parents' Experience of Atypical Genitalia
    • in, ed. Parens
    • E. Feder, "In Their Best Interests: Parents' Experience of Atypical Genitalia, " in Surgically Shaping Children, ed. Parens, 189-210.
    • Surgically Shaping Children , pp. 189-210
    • Feder, E.1
  • 55
    • 78649269684 scopus 로고    scopus 로고
    • Navigating Growth Attenuation in Children with Profound Disabilities: Children's Interests, Family Decision-Making, and Community Concerns
    • B.S. Wilfond et al., "Navigating Growth Attenuation in Children with Profound Disabilities: Children's Interests, Family Decision-Making, and Community Concerns, " Hastings Center Report 40, no. 6 (2010): 27-40.
    • (2010) Hastings Center Report , vol.40 , Issue.6 , pp. 27-40
    • Wilfond, B.S.1
  • 56
    • 84898496610 scopus 로고    scopus 로고
    • The Power of Parents and the Agency of Children
    • in, ed. Parens
    • H. Lindemann, "The Power of Parents and the Agency of Children, " in Surgically Shaping Children, ed. Parens, 176-88.
    • Surgically Shaping Children , pp. 176-188
    • Lindemann, H.1
  • 57
    • 0025397610 scopus 로고
    • What About the Family? The Role of Family Interests in Medical Decision Making
    • J. Hardwig, "What About the Family? The Role of Family Interests in Medical Decision Making, " Hastings Center Report 20, no. 2 (1990): 5-10.
    • (1990) Hastings Center Report , vol.20 , Issue.2 , pp. 5-10
    • Hardwig, J.1
  • 58
    • 59949088648 scopus 로고    scopus 로고
    • Eyes Wide Open: Surgery to Westernize the Eyes of an Asian Child
    • A. Ouellette, "Eyes Wide Open: Surgery to Westernize the Eyes of an Asian Child, " Hastings Center Report 39, no. 1 (2009): 15-18.
    • (2009) Hastings Center Report , vol.39 , Issue.1 , pp. 15-18
    • Ouellette, A.1
  • 59
    • 84869046619 scopus 로고    scopus 로고
    • Do I Make You Uncomfortable?
    • in, ed. Parens
    • C. Aspinall, "Do I Make You Uncomfortable?" in Surgically Shaping Children, ed. Parens, 13-28.
    • Surgically Shaping Children , pp. 13-28
    • Aspinall, C.1
  • 60
    • 84898510274 scopus 로고    scopus 로고
    • Thinking about Surgically Shaping Children
    • in, ed. Parens
    • E. Parens, "Thinking about Surgically Shaping Children, " in Surgically Shaping Children, ed. Parens, xiii-xxx.
    • Surgically Shaping Children
    • Parens, E.1
  • 61
    • 84863652111 scopus 로고    scopus 로고
    • This view is explicitly endorsed by Dreger, Feder, and Tamar-Mattis in "Prenatal Dexamethasone for Congenital Adrenal Hyperplasia,", no. (): -, at 279: "The problem we see in the use of prenatal dexamethasone for CAH.. is that.. [it] has sometimes been promoted.. for uses that are not legitimately medical."
    • This view is explicitly endorsed by Dreger, Feder, and Tamar-Mattis in "Prenatal Dexamethasone for Congenital Adrenal Hyperplasia, " Journal of Bioethics Inquiry 9, no. 3 (2012): 277-94, at 279: "The problem we see in the use of prenatal dexamethasone for CAH.. is that.. [it] has sometimes been promoted.. for uses that are not legitimately medical."
    • (2012) Journal of Bioethics Inquiry , vol.9 , Issue.3 , pp. 277-294
  • 62
    • 84898496971 scopus 로고    scopus 로고
    • The Seduction of the Surgical Fix
    • Lisa Abelow Hedley talks about her concern that, as a parent of a child with achondroplasia contemplating elective surgery on her child's legs, she risks sending the message: "We love you, you're perfect the way you are.. now change.", in, ed. Parens, at 46.
    • Lisa Abelow Hedley talks about her concern that, as a parent of a child with achondroplasia contemplating elective surgery on her child's legs, she risks sending the message: "We love you, you're perfect the way you are.. now change." L.A. Hedley, "The Seduction of the Surgical Fix, " in Surgically Shaping Children, ed. Parens, 43-48, at 46.
    • Surgically Shaping Children , pp. 43-48
    • Hedley, L.A.1
  • 63
    • 84869065217 scopus 로고    scopus 로고
    • Support Dr. Poppas
    • quot; Facebook page,, accessed October 1
    • "Support Dr. Poppas" Facebook page, https://www.facebook.com/group.php?gid=112890762105471#!/group.php?gid=112890762105471&v=wall, accessed October 1, 2012.
    • (2012)
  • 64
    • 0037433669 scopus 로고    scopus 로고
    • The Effect of Clitoral Surgery on Sexual Outcome in Individuals Who Have Intersex Conditions with Ambiguous Genitalia: A Cross-Sectional Study
    • C.L. Minto et al., "The Effect of Clitoral Surgery on Sexual Outcome in Individuals Who Have Intersex Conditions with Ambiguous Genitalia: A Cross-Sectional Study, " Lancet 361 (2003): 1252-57
    • (2003) Lancet , vol.361 , pp. 1252-57
    • Minto, C.L.1
  • 65
    • 84869065214 scopus 로고    scopus 로고
    • Sexual Function and Genital Sensitivity Following Feminizing Genitoplasty for Congenital Adrenal Hyperplasia."
    • Crouch et al., "Sexual Function and Genital Sensitivity Following Feminizing Genitoplasty for Congenital Adrenal Hyperplasia."
    • Crouch1
  • 66
    • 39049131701 scopus 로고    scopus 로고
    • Type of Mutation and Surgical Procedure Affect Long-Term Quality of Life for Women with Congenital Adrenal Hyperplasia
    • A. Nordenskjöld et al., "Type of Mutation and Surgical Procedure Affect Long-Term Quality of Life for Women with Congenital Adrenal Hyperplasia, " Journal of Clinical Endocrinological Metabolism 93, no. 2 (2008): 380-86
    • (2008) Journal of Clinical Endocrinological Metabolism, no. 2 , vol.93 , pp. 380-86
    • Nordenskjöld, A.1
  • 67
    • 2442551034 scopus 로고    scopus 로고
    • Psychosexual Outcome in Women Affected by Congenital Adrenal Hyperplasia Due to 21-Hydroxylase Deficiency
    • A. Wisniewski et al., "Psychosexual Outcome in Women Affected by Congenital Adrenal Hyperplasia Due to 21-Hydroxylase Deficiency, " Journal of Urology 171 (2004): 2497-2501.
    • (2004) Journal of Urology , vol.171 , pp. 2497-2501
    • Wisniewski, A.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.