Proximity, Ethical Dilemmas, and Community Research Workers

AJOB Primary Research

Volumn 3, Issue 4, 2012, Pages 19-29

  Richman, Kenneth A ^a   Alexander, Leslie B ^b   True, Gala ^c  

^a MASSACHUSETTS COLLEGE OF PHARMACY AND HEALTH SCIENCES   (United States)

^b BRYN MAWR COLLEGE   (United States)

^c VETERANS AFFAIRS MEDICAL CENTER   (United States)

Author keywords

community engaged research; data collection and management; data integrity; ethics of care; grounded theory; marginalized populations; relational ethics; research ethics

Indexed keywords

EID: 84868686743     PISSN: 21507716     EISSN: 21507724     Source Type: Journal    
DOI: 10.1080/21507716.2012.714837     Document Type: Article

References (44)

1. Alexander, L. B. and Richman, K. A. 2008. Ethical dilemmas in evaluations using indigenous research workers. American Journal of Evaluation, 29(1): 73-85.
2. American Anthropological Association. 1998. AAA code of ethics Available at: http://www.aaanet.org/committees/ethics/ethcode.htm (accessed December 29, 2011)
3. American Sociological Association. 1999. Code of ethics and policies and procedures of the ASA Committee on Professional Ethics, Washington, DC: American Sociological Association.
4. Anderson, M. S., Horn, A. S., Risbey, K. R., Ronning, E. A., De Vries, R. and Martinson, B. C. 2007. What do mentoring and training in the responsible conduct of research have to do with scientists' misbehavior? Findings from a national survey of NIH-funded scientists. Academic Medicine: Journal of the Association of American Medical Colleges, 82(9): 853-860.
5. Bean, S. and Silva, D. S. 2010. Betwixt & between: Peer recruiter proximity in community-based research. American Journal of Bioethics, 10(3): 18-19.
6. Botes, A. 2000. A comparison between the ethics of justice and the ethics of care. Journal of Advanced Nursing, 32(5): 1071-1075.
7. De Vries, R. 2011. The uses and abuses of moral theory in bioethics. Ethical Theory and Moral Practice, 14(4): 419-430.
8. Dickson-Swift, V., James, E. L., Kippen, S. and Liamputtong, P. 2006. Blurring boundaries in qualitative health research on sensitive topics. Qualitative Health Research, 16(6): 853-871.
9. Dubois, J. M., Bailey-Burch, B.Bustillos, D. 2011. Ethical issues in mental health research: the case for community engagement. Current Opinion in Psychiatry, 24(3): 208-214.
10. Fisher, C. B. 1997. A relational perspective on ethics-in-science decision making for research with vulnerable populations. IRB: Review of Human Subjects Research, 19: 1-4.
11. Fisher, C. B. 1999. Relational ethics and research with vulnerable populations. Reports on research involving persons with mental disorders that may affect decision-making capacity, Rockville, MD: National Bioethics Advisory Commission. Commissioned Papers by the National Bioethics Advisory Commission Available at: http://www.bioethics.gov/reports/past_commissions/nbac_mental2.pdf (accessed on October 26, 2009)
12. Fisher, C. B. 2000. "Relational ethics in psychological research: One feminist's journey". In Practicing feminist ethics in psychology, Edited by: Brabeck, M. 125-142. Washington, DC: American Psychological Association.
13. Fisher, C. B. 2004. Ethics in drug abuse and related HIV risk research. Applied Developmental Science, 8(2): 91-103.
14. Fisher, C. B., True, G., Alexander, L. and Fried, A. L. "Under review. Moral distress, moral practice and ethical climate in community-based drug use research: Views from the frontline".
15. Fisher, J. A. 2006. Co-ordinating "ethical" clinical trials: The role of research coordinators in the contract research industry. Sociology of Health & Illness, 28(6): 678-694.
16. Flicker, S., Roche, B. and Guta, A. 2010. Peer research in action III: Ethical issues, Toronto, ON: The Wellesley Institute.
17. Geissler, P. W., Kelly, A., Imoukhuede, B. and Pool, R. 2008. "He is now like a brother, I can even give him some blood"-Relational ethics and material exchanges in a malaria vaccine "trial community" in The Gambia. Social Science & Medicine, 67(5): 696-707.
18. Griffiths, P., Gossop, M., Powis, B. and Strang, J. 1993. Reaching hidden populations of drug users by privileged access interviewers: methodological and practical issues. Addiction (Abingdon, England), 88(12): 1617-1626.
19. Held, V. 1995a. "Introduction". In Justice and care: Essential readings in feminist ethics, Virginia Held. Boulder, CO: Westview Press.
20. Held, V., ed. 1995b. Justice and care: Essential readings in feminist ethics, Boulder, CO: Westview Press.
21. Karnieli-Miller, O., Strier, R. and Pessach, L. 2009. Power relations in qualitative research. Qualitative Health Research, 19(2): 279-289.
22. Kingori, P. and Garrets, R. 2010. Data fabrication as a "tool" to resolve ethical dilemmas in clinical research in low-income settings Unpublished
23. Krieger, J. W., Takaro, T. K., Song, L. and Weaver, M. 2005. The Seattle-King County Healthy Homes Project: A randomized, controlled trial of a community health worker intervention to decrease exposure to indoor asthma triggers. American Journal of Public Health, 95(4): 652-659.
24. Lee, R. M. 1994. Dangerous fieldwork, Thousand Oaks, CA: Sage.
25. Lee-Treweek, G. and Linkogle, S. 2000. Danger in the field: Ethics and risk in social research, London, UK: Routledge.
26. Mannan, I., Rahman, S. M.Sania, A. 2008. Can early postpartum home visits by trained community health workers improve breastfeeding of newborns?. Journal of Perinatology: Official Journal of the California Perinatal Association, 28(9): 632-640.
27. Mock, J., McPhee, S. J.Nguyen, T. 2007. Effective lay health worker outreach and media-based education for promoting cervical cancer screening among Vietnamese American women. American Journal of Public Health, 97(9): 1693-1700.
28. Molyneux, S., Kamuya, D. and Marsh, V. 2010. Community members employed on research projects face crucial, often under-recognized, ethical dilemmas. American Journal of Bioethics, 10(3): 24-26.
29. Mosavel, M., Ahmed, R., Daniels, D. and Simon, C. 2011. Community researchers conducting health disparities research: ethical and other insights from fieldwork journaling. Social Science & Medicine, 73(1): 145-152.
30. National Institute on Minority Health and Health Disparities. 2011. Home page. Available at: http://www.nimhd.nih.gov (accessed March 17, 2011)
31. Noddings, N. 2003. Caring: A feminine approach to ethics and moral education, 2nd ed., Berkeley: University of California Press.
32. Price, A., Hill, C.A. and Thompson, J. 2004. "Interviewer falsification of survey data". In The 2004 joint statistical meeting, Toronto 329. Abstract. Available at: http://www.amstat.org/meetings/jsm/2004/onlineprogram/index.cfm?fuseaction=abstract_details&abstractid =300368
33. Rachels, J. 2003. The elements of moral philosophy, 4th ed., Boston, MA: McGraw-Hill.
34. Roche, B., Guta, A. and Flicker, S. 2010. Peer research in action I: Models of practice, Toronto, ON: The Wellesley Institute.
35. Scott, C. K. and White, W. L. 2005. Ethical issues in the conduct of longitudinal studies of addiction treatment. Journal of Substance Abuse Treatment, 28(suppl.1): S91-S101.
36. Sherwin, S. 1992. "Feminist and medical ethics: Two different approaches to contextual ethics". In Feminist perspectives in medical ethics, Edited by: Homes, H. B. and Purdy, L. M. 17-31. Indianapolis: University of Indiana Press.
37. Sherwin, S. 2005. "Belmont revisited through a feminist lens". In Belmont revisited: Ethical considerations for research with human subjects, Edited by: Childress, J., Meslin, E. M. and Shapiro, H. T. 148-164. Washington, DC: Georgetown University Press.
38. Shore, N. 2007. Community-based participatory research and the ethics review process. Journal of Empirical Research on Human Research Ethics: An International Journal, 2(1): 31-41.
39. Shore, N., Brazauskas, R.Drew, E. 2010. Understanding community-based processes for research ethics review: a national study. American Journal of Public Health, 101(suppl.1): S359-S364.
40. Sieber, J. E. 2010. Introduction: points to consider in community-engaged research. Journal of Empirical Research on Human Research Ethics, 5(1): 3-5.
41. Simon, C. and Mosavel, M. 2010. Community members as recruiters of human subjects: ethical considerations. American Journal of Bioethics, 10(3): 3-11.
42. Stacey, J. 1988. Can there be a feminist ethnography?. Women's Studies International Forum, 11(1): 21-27.
43. True, G., Alexander, L. and Fisher, C. B. 2012. Addressing ethical challenges in urban drug addiction research: Lessons from community research workers, Washington, D.C.: Quest for Research Excellence Conference. March 16
44. Gala, L, Alexander, B. and Richman, K. A. 2011. Misbehaviors of front-line research personnel and the integrity of community-based research. Journal of Empirical Research in Human Research Ethics True, 6(2): 3-12.