Community members as recruiters of human subjects: Ethical considerations

American Journal of Bioethics

Volumn 10, Issue 3, 2010, Pages 3-11

  Simon, Christian ^a,b   Mosavel, Maghboeba ^c  

^a UNIVERSITY OF IOWA   (United States)

^b Division of Cardiac Anesthesia   (United States)

^c VIRGINIA COMMONWEALTH UNIVERSITY   (United States)

Author keywords

Participatory research; Peer driven research; Recruitment ethics

Indexed keywords

ARTICLE; ECONOMICS; EPIDEMIOLOGY; ETHICS; HUMAN; INFORMED CONSENT; INTERNATIONAL COOPERATION; METHODOLOGY; ORGANIZATION AND MANAGEMENT; PARTICIPATORY RESEARCH; PATIENT SELECTION; PEER GROUP; PERSUASIVE COMMUNICATION; PSYCHOLOGICAL ASPECT; RESEARCH SUBJECT; SOCIAL SUPPORT; SOUTH AFRICA; TRUST;

COERCION; COMMUNITY-BASED PARTICIPATORY RESEARCH; HUMANS; INFORMED CONSENT; INTERNATIONAL COOPERATION; PATIENT SELECTION; PEER GROUP; RESEARCH DESIGN; RESEARCH SUBJECTS; SAMPLING STUDIES; SELECTION BIAS; SOCIAL SUPPORT; SOUTH AFRICA; TRUST;

EID: 77949337464     PISSN: 15265161     EISSN: 15360075     Source Type: Journal    
DOI: 10.1080/15265160903585578     Document Type: Article

References (26)

1. Abdul-Quader, A. S., D. D. Heckathorn, K. Sabin, and T. Saidel. 2006. Implementation and analysis of respondent driven sampling: Lessons learned from the field. Journal of Urban Health 83(6 Suppl): i1-5.
2. Atkinson, R., and J. Flint. 2001. Accessing hidden and hard-to-reach populations: Snowball research strategies. Social Research Update 33: 1-4.
3. Bailie, R. S., C. E. Selvey, D. Bourne, and D. Bradshaw. 1996. Trends in cervical cancer mortality in South Africa. International Journal of Epidemiology 25(3): 488-493.
4. Bianchi, A., D. Bishara, P. Enekwe, B. Frost, A. Kastning, and J. Tiffany. 2003. Friends inviting friends: Participant-driven recruitment in an HIV prevention research project. Community Youth Development Journal 4(1): 26-31.
5. Borfitz, D. 2008. India becoming favored destination for clinical trials. BiolTWorld. Available at: http://www.bio-itworld.com/newsitems/2008/jan/22-clinical-trials-india.
6. Broadhead, V., T. Volkanevsky, M. Rydanova, et al. 2006. Peer- driven HIV interventions for drug injectors in Russia: First year impact results of a field experiment. International Journal of Drug Policy 17(5): 379-392.
7. Christensen, J. A., and J. P. Orlowski. 2005. Bounty-hunting and finder's fees. IRB 27(3): 16-19.
8. Dickert, N., and J. Sugarman. 2005. Ethical goals of community consultation in research. American Journal of Public Health 95(7): 1123-1127.
9. Griffiths, P., M. Gossop, B. Powis, and J. Strang. 1993. Reaching hidden populations of drug users by privileged access interviewers: Methodological and practical issues Addiction 88(12): 1617-1626.
10. Heckathorn, D. D. 1997. Respondent-driven sampling: A new approach to the study of hidden populations. Social Problems 44(2): 174-199.
11. Johns Hopkins IRB. 2006. Recruiting study subjects and reason-able payment (renumeration). Available from http://irb.jhmi.edu/Guidelines/remuneration.html#bonus
12. Lype, G. 2004. Clinical trials: Why India is irresistible. Rediff.com, business section. Available from http://www.rediff.com/money/2004/dec/22spec.htm.
13. Margolis, L. H. 2000. Taking names: The ethics of indirect recruitment in research on sexual networks. Journal of Law, Medicine and Ethics 28(2): 159-164.
14. Minkler, M., and N. Wallerstein. 2003. Community based participatory research for health. San Francisco, CA: Jossey-Bass.
15. Molyneux, S., C. Gikonyo, V. Marsh, and P. Bejon. 2007. Incorpo-rating a quiz into informed consent processes: Qualitative study of participants' reactions. Malaria Journal 6: 145.
16. Mosavel, M., C. Simon, D. van Stade, and M. Buchbinder. 2005. Community-based participatory research (CBPR) in South Africa: Engaging multiple constituents to shape the research question. So-cial Science & Medicine 61(12): 2577-2587.
17. Mosavel, M., C. Simon, C. Oakar, and S. Meyer. 2009. Cervical cancer attitudes and beliefs-A Cape Town community responds on World Cancer Day. Journal of Cancer Education 24(2): 114-119.
18. Oakley, A. 1981. Subject women. Oxford: Martin Robertson.
19. Rounsaville, D. B., K. Hunkele, C. J. Easton, C. Nich, and K. M. Carroll. 2008. Making consent more informed: Preliminary results from a multiple-choice test among probation-referred marijuana users entering a randomized clinical trial. Journal of the American Academy of Psychiatry Law 36(3): 354-359.
20. Sergeyev, B., T. Oparina, T. P. Rumyantseva, et al. 1999. HIV prevention in Yaroslavl, Russia: A peer-driven intervention and needle exchange. Journal of Drug Issues 29(4): 777-803.
21. Simon, C., M. Mosavel, and D. van Stade. 2007. Ethical challenges in the design and conduct of locally relevant international health research. Social Science & Medicine 64(9): 1960-1969.
22. Simon, C., and M. Mosavel. 2008. Key conceptual issues in the forging of culturally competent community health initiatives: A South African example. Cambridge Quarterly of Healthcare Ethics 17(2): 195-205.
23. Tiffany, J. S. 2006. Respondent-driven sampling in participatory research contexts: Participant-driven recruitment. Journal of Urban Health 83(6 Suppl.): i113-124.
24. Tindana, P. O., J. A. Singh, C. S. Tracy, R. E. Upshur, A. S. Daar, P. A. Singer, J. Frohlich, and J. V. Lavery. 2007. Grand challenges in global health: Community engagement in research in developing countries. PLoS Med 4(9): e273.
25. UNAIDS. 2007. Ethical considerations in biomedical HIV prevention trials. In Joint United Nations Programme on HIV/AIDS (UN-AIDS) and World Health Organization. Geneva: UNAIDS.
26. University of Toronto. 2003. Policy on the offer and acceptance of finders fees or completion fees in research involving human subjects. Available from: http://www.facmed.utoronto.ca/Page1076.aspx.