Lost in translation: Examining patient and physician perceptions of implantable cardioverter-defibrillator deactivation discussions

Circulation: Heart Failure

Volumn 5, Issue 5, 2012, Pages 660-666

  Mitar, Michael ^a   Alba, Ana C ^a   Maciver, Jane ^a   Ross, Heather ^a  

^a UNIVERSITY HEALTH NETWORK   (Canada)

Author keywords

Defibrillation; End of life care; Heart failure; Implantable cardioverter defibrillator

Indexed keywords

ARTICLE; ARTIFICIAL VENTILATION; ATTITUDE TO HEALTH; CLINICAL PRACTICE; DIALYSIS; EUTHANASIA; HEALTH CARE PLANNING; HEALTH EDUCATION; HEALTH SURVEY; HEART ELECTROPHYSIOLOGY; HEART FAILURE; HEART MUSCLE ISCHEMIA; HUMAN; IMPLANTABLE CARDIOVERTER DEFIBRILLATOR; LEGAL ASPECT; LIFE EXPECTANCY; LIVING WILL; MEDICAL ETHICS; MEDICAL ORDER; MORALITY; PALLIATIVE THERAPY; PATIENT ASSESSMENT; PATIENT CARE; PERCEPTION; PHYSICIAN ATTITUDE; PRIORITY JOURNAL; PROFESSIONAL KNOWLEDGE; PROFESSIONAL PRACTICE; PROGNOSIS; RESUSCITATION; SUDDEN DEATH; SUICIDE; SURVIVAL; TERMINALLY ILL PATIENT;

ATTITUDE OF HEALTH PERSONNEL; COMMUNICATION; COMPREHENSION; DEATH, SUDDEN, CARDIAC; DEFIBRILLATORS, IMPLANTABLE; ELECTRIC COUNTERSHOCK; EQUIPMENT FAILURE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEART FAILURE; HUMANS; PALLIATIVE CARE; PATIENT EDUCATION AS TOPIC; PATIENTS; PHYSICIAN-PATIENT RELATIONS; PHYSICIANS; PROFESSIONAL-FAMILY RELATIONS; QUALITY OF LIFE; TERMINAL CARE; WITHHOLDING TREATMENT;

EID: 84868668992     PISSN: 19413289     EISSN: 19413297     Source Type: Journal    
DOI: 10.1161/CIRCHEARTFAILURE.112.967497     Document Type: Article

References (39)

1. DiMarco JP. Implantable cardioverter-defibrillators. N Engl J Med. 2003;349:1836-1847. (Pubitemid 37362961)
2. Moss AJ, Zareba W, Hall WJ, Klein H, Wilber DJ, Cannom DS, Daubert JP, Higgins SL, Brown MW, Andrews ML; Multicenter Automatic Def-brillator Implantation Trial II Investigators. Prophylactic implantation of a defibrillator in patients with myocardial infarction and reduced ejection fraction. N Engl J Med. 2002;346:877-883. (Pubitemid 34984635)
3. Epstein AE, Dimarco JP, Ellenbogen KA, Estes NA 3rd, Freedman RA, Gettes LS, Gillinov AM, Gregoratos G, Hammill SC, Hayes DL, Hlatky MA, Newby LK, Page RL, Schoenfibro MH, Silka MJ, Stevenson LW, Sweeney MO; American College of Cardiology/American Heart Association Task Force on Practice; American Association for Thoracic Surgery; Society of Thoracic Surgeons. ACC/AHA/HRS 2008 guidelines for Device-Based Therapy of Cardiac Rhythm Abnormalities: executive summary. Heart Rhythm. 2008;5:934-955.
4. Simpson CS, O'Neill BJ, Sholdice MM, Dorian P, Kerr CR, Ross DB, Ross H, Brophy JM, for the Canadian Cardiovascular Society Access to Care Working Group. Canadian Cardiovascular Society commentary on implantable cardioverter defibrillators in Canada: waiting times and access to care issues. Can J Cardiol. 2005;21(Suppl A):19A-24A. (Pubitemid 46489508)
5. Moses HW, Schneider JA, Miller BD, Taylor GJ. A Practical Guide to Cardiac Pacing. 3rd ed. Boston, MA: Little, Brown; 1991:79-125.
6. Lewis WR, Luebke DL, Johnson NJ, Harrington MD, Costantini O, Auli-sio MP. Withdrawing implantable defibrillator shock therapy in terminally ill patients. Am J Med. 2006;119:892-896. (Pubitemid 44415609)
7. Mark DB, Anstrom KJ, Sun JL, Clapp-Channing NE, Tsiatis AA, Davidson-Ray L, Lee KL, Bardy GH; Sudden Cardiac Death in Heart Failure Trial Investigators. Quality of life with defibrillator therapy or amiodarone in heart failure. N Engl J Med. 2008;359:999-1008.
8. Goldstein NE, Lampert R, Bradley E, Lynn J, Krumholz HM. Management of implantable cardioverter defibrillators in end-of-life care. Ann Intern Med. 2004;141:835-838. (Pubitemid 39601176)
9. Hinton J. How reliable are relatives' retrospective reports of terminal illness? Patients and relatives' accounts compared. Soc Sci Med. 1996;43:1229-1236. (Pubitemid 26335282)
10. Irvine J, Dorian P, Baker B, O'Brien BJ, Roberts R, Gent M, Newman D, Connolly SJ. Quality of life in the Canadian Implantable Defibrillator Study (CIDS). Am Heart J. 2002;144:282-289. (Pubitemid 34879652)
11. Wallace RL, Sears SF Jr, Lewis TS, Griffs JT, Curtis A, Conti JB. Predictors of quality of life in long-term recipients of implantable cardioverter defibrillators. J Cardiopulm Rehabil. 2002;22:278-281. (Pubitemid 35024280)
12. Namerow PB, Firth BR, Heywood GM, Windle JR, Parides MK. Quality-of-life six months after CABG surgery in patients randomized to ICD versus no ICD therapy: findings from the CABG Patch Trial. Pacing Clin Electrophysiol. 1999;22:1305-1313. (Pubitemid 29485030)
13. Dunbar SB. Adaptation to the Internal Cardioverter Defibrillator [final technical report for National Institute of Nursing Research grant R01NR0304]. Atlanta, GA: Emory University; 1996.
14. Dunbar SB, Kimble LP, Jenkins LS, Hawthorne M, Dudley W, Slemmons M, Langberg JJ. Association of mood disturbance and arrhythmia events in patients after cardioverter defibrillator implantation. Depress Anxiety. 1999;9:163-168. (Pubitemid 29316079)
15. Harrington MD, Luebke DL, Lewis WR, Auliso MP, Johnson NJ. Implant-able cardioverter defibrillator (ICD) at end of life 12. J Palliat Med. 2005;8:1056-1057. (Pubitemid 41579249)
16. Kirkpatrick JN, Fedson SE, Verdino R. Ethical dilemmas in device treatment for advanced heart failure. Curr Opin Support Palliat Care. 2007;1:267-273.
17. American Heart Association:2009 Focused Update: ACCF/AHA Guidelines for the Diagnosis and Management of Heart Failure in Adults: a report of the American College of Cardiology Foundation/American Heart Association Task Force on Practice Guidelines developed in collaboration with the International Society for Heart and Lung Transplantation. Circulation. 2009;119:1977-2016.
18. Lampert R, Hayes DL, Annas GJ, Farley MA, Goldstein NE, Hamilton RM, Kay GN, Kramer DB, Mueller PS, Padeletti L, Pozuelo L, Schoen-fibro MH, Vardas PE, Wiegand DL, Zellner R, American Heart Association; American College of Cardiology; American Geriatrics Society; American Academy of Hospice and Palliative Medicine; European Heart Rhythm Association; Hospice and Palliative Nurses Association. HRS Expert Consensus Statement on the Management of Cardiovascular Im-plantable Electronic Devices (CIEDs) in patients nearing end of life or requesting withdrawal of therapy. Heart Rhythm. 2010;7:1008-1026.
19. Goldstein NE, Mehta D, Siddiqui S, Teitelbaum E, Zeidman J, Singson M, Pe E, Bradley EH, Morrison RS. "That's like an act of suicide" patients' attitudes toward deactivation of implantable defibrillators. J Gen Intern Med. 2008;23 Suppl 1:7-12. (Pubitemid 350295388)
20. Kobza R, Erne P. End-of-life decisions in ICD patients with malignant tumors. Pacing Clin Electrophysiol. 2007;30:845-849. (Pubitemid 46955404)
21. Stewart GC, Weintraub JR, Pratibhu PP, Semigran MJ, Camuso JM, Brooks K, Tsang SW, Anello MS, Nguyen VT, Lewis EF, Nohria A, Desai AS, Gi-vertz MM, Stevenson LW. Patient expectations from implantable defibril-lators to prevent death in heart failure. J Card Fail. 2010;16:106-113.
22. Kirkpatrick JN, Gottlieb M, Sehgal P, Patel R, Verdino RJ. Deactivation of implantable cardioverter defibrillators in terminal illness and end of life care. Am J Cardiol. 2012;109:91-94.
23. Dickens BM. Chapter 5. Legal implications of ICD therapy. Can J Car-diol. 2000;16:1319-1324.
24. Paola FA, Walker RM. Deactivating the implantable cardioverter-defibril- lator: a biofxture analysis. South Med J. 2002;23:321-337.
25. Kelley AS, Reid MC, Miller DH, Fins JJ, Lachs MS. Implantable cardio-verter-defibrillator deactivation at the end of life: a physician survey. Am Heart J. 2009;157:702-8.e1.
26. Sherazi S, Daubert JP, Block RC, Jeevanantham V, Abdel-Gadir K, DiS-alle MR, Haley JM, Shah AH. Physicians' preferences and attitudes about end-of-life care in patients with an implantable cardioverter-defibrillator. Mayo Clin Proc. 2008;83:1139-1141.
27. Kapa S, Mueller PS, Hayes DL, Asirvatham SJ. Perspectives on withdrawing pacemaker and implantable cardioverter-defibrillator therapies at end of life: results of a survey of medical and legal professionals and patients. Mayo Clin Proc. 2010;85:981-990.
28. Kramer DB, Kesselheim AS, Brock DW, Maisel WH. Ethical and legal views of physicians regarding deactivation of cardiac implantable electrical devices: a quantitative assessment. Heart Rhythm. 2010;7:1537-1542.
29. Goldstein NE, Mehta D, Teitelbaum E, Bradley EH, Morrison RS. "It's like crossing a bridge" complexities preventing physicians from discussing deactivation of implantable defibrillators at the end of life. J Gen Intern Med. 2008;23 Suppl 1:2-6. (Pubitemid 350295386)
30. Marinskis G, van Erven L; EHRA Scientific Initiatives Committee. Deac-tivation of implanted cardioverter-defibrillators at the end of life: results of the EHRA survey. Europace. 2010;12:1176-1177.
31. Morrison LJ, Calvin AO, Nora H, Porter Storey C Jr. Managing cardiac devices near the end of life: a survey of hospice and palliative care providers. Am J Hosp Palliat Care. 2010;27:545-551.
32. Kelley AS, Mehta SS, Reid MC. Management of patients with ICDs at the end of life (EOL): a qualitative study. Am J Hosp Palliat Care. 2008;25:440-446.
33. Mueller PS, Jenkins SM, Bramstedt KA, Hayes DL. Deactivating implanted cardiac devices in terminally ill patients: practices and attitudes. Pacing Clin Electrophysiol. 2008;31:560-568. (Pubitemid 351595284)
34. Hauptman PJ, Swindle J, Hussain Z, Biener L, Burroughs TE. Physician attitudes toward end-stage heart failure: a national survey. Am J Med. 2008;121:127-135. (Pubitemid 351199454)
35. Allen LA, Stevenson LW, Grady KL, Goldstein NE, Matlock DD, Arnold RM, Cook NR, Felker GM, Francis GS, Hauptman PJ, Havranek EP, Krumholz HM, Mancini D, Riegel B, Spertus JA; American Heart Association; Council on Quality of Care and Outcomes Research; Council on Cardiovascular Nursing; Council on Clinical Cardiology; Council on Cardiovascular Radiology and Intervention; Council on Cardiovascular Surgery and Anesthesia. Decision making in advanced heart failure: a scientific statement from the American Heart Association. Circulation. 2012;125:1928-1952.
36. Heart Failure Society of America. Executive summary: HFSA 2006 Comprehensive Heart Failure Practice Guideline. J Card Fail. 2006;12:10-38.
37. Goldstein N, Carlson M, Livote E, Kutner JS. Brief communication: management of implantable cardioverter-defibrillators in hospice: a nationwide survey. Ann Intern Med. 2010;152:296-299.
38. Mueller PS, Hook CC, Hayes DL. Ethical analysis of withdrawal of pacemaker or implantable cardioverter-defibrillator support at the end of life. Mayo Clin Proc. 2003;78:959-963. (Pubitemid 36936127)
39. Berger JT. The ethics of deactivating implanted cardioverter defibrillators. Ann Intern Med. 2005;142:631-634. (Pubitemid 40529960)