"It's like crossing a bridge" complexities preventing physicians from discussing deactivation of implantable defibrillators at the end of life

Journal of General Internal Medicine

Volumn 23, Issue 1 SUPPL., 2008, Pages 2-6

  Goldstein, Nathan E ^a,b   Mehta, Davendra ^a   Teitelbaum, Ezra ^a   Bradley, Elizabeth H ^c   Morrison, R Sean ^a,b  

^a MOUNT SINAI SCHOOL OF MEDICINE   (United States)

^b James J Peters Veterans Affairs Hospitals Medical Center   (United States)

^c YALE UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

Advanced technology; Communication; Implantable cardioverter defibrillator; Palliative care; Patient physician relationship

Indexed keywords

ADULT; ARTICLE; CLINICAL PRACTICE; DATA ANALYSIS; DEFIBRILLATOR; FEMALE; HUMAN; INTERVIEW; MALE; MEDICAL INSTRUMENTATION; MEDICAL PROFESSION; PATIENT CARE; PHYSICIAN; QUALITATIVE ANALYSIS;

ADULT; ADVANCE CARE PLANNING; DECISION MAKING; DEFIBRILLATORS, IMPLANTABLE; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; PHYSICIAN'S ROLE; PHYSICIAN-PATIENT RELATIONS; QUESTIONNAIRES; TERMINAL CARE; TOTAL QUALITY MANAGEMENT; UNITED STATES; WITHHOLDING TREATMENT;

EID: 37349007821     PISSN: 08848734     EISSN: 15251497     Source Type: Journal    
DOI: 10.1007/s11606-007-0237-x     Document Type: Article

References (40)

1. Buxton AE, Lee KL, Fisher JD, Josephson ME, Prytowsky EN, Hafley GA. Randomized study of the prevention of sudden death in patients with coronary artery disease. N Engl J Med 1993;341(25):1882-90.
2. Moss AJ, Hall WJ, Cannom DS, et al. Improved survival with an implanted defibrillator in patients with coronary disease at high risk for ventricular arrhythmia. N Engl J Med. 1996;335(26):1933-40.
3. Moss AJ, Zareba W, Hall WJ, et al. Prophylactic implantation of a defibrillator in patients with myocardial infarction and reduced ejection fraction. N Engl J Med. 2002;346(12):877-83.
4. Bardy GH, Lee KL, Mark DB, et al. Amiodarone or an implantable cardioverter-defibrillator for congestive heart failure. N Engl J Med. 2005;352(3):225-37.
5. Goldstein NE, Lampert R, Bradley EH, Lynn J, Krumholz HM. Management of implantable cardioverter defibrillators in end-of-life care. Ann Intern Med. 2004;141:835-38.
6. Glikson M, Friedman PA. The implantable cardioverter defibrillator. Lancet. 2001;357:1107-17.
7. Eckert M, Jones T. How does an implantable cardioverter defibrillator (ICD) affect the lives of patients and their families? Int J Nurs Pract. 2002;8:152-57.
8. Sears SF, Conti J. Quality of life and psychological functioning of ICD patients. Heart. 2002;87:488-93.
9. Kadish A, Dyer A, Daubert JP, et al. Prophylactic defibrillator implantation in patients with nonischemic dilated cardiomyopathy. N Engl J Med. 2004;350(21):2151-8.
10. Bristow MR, Saxon LA, Boehmer J, et al. Cardiac-resynchronization therapy with or without an implantable defibrillator in advanced chronic heart failure. N Engl J Med. 2004;350(21):2140-50.
11. Gillick MR. Medicare coverage for technological innovations-time for new criteria? N Engl J Med. 2004;350(21):2199-203.
12. Brown D. Medicare to cover heart devices. The Washington Post 2003 June 7;A04.
13. Hlatky MA, Sanders GD, Owens DK. Evidence-based medicine and policy: the case of the implantable cardioverter defibrillator. Health Aff (Millwood). 2005;24(1):42-51.
14. Sofaer S. Qualitative methods: what are they and why use them? Health Serv Res. 1999;34(5 Pt 2):1101-18.
15. Sofaer S. Qualitative research methods. Int J Qual Health Care. 2002;14(4):329-36.
16. Strauss A, Corbin JM. Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory. Thousand Oaks: SAGE Publications, Inc.; 1998.
17. McCracken G. The Long Interview. Thousand Oaks, CA: Sage Publications; 1988.
18. Strauss A, Corbin JM. Basics of Qualitative Research: Grounded Theory Procedures and Techniques. 2nd Edition. San Francisco: Sage Publications; 1990.
19. Glaser B, Strauss A. The Discovery of Grounded Theory: Strategies for Qualitative Research Chicago. Aldine Publishing Company; 1967.
20. Bradley EH, Curry L, Devers K. Qualitative data for health services research: developing taxonomy, themes, and theory. Health Serv Res. 2007. DOI: 10.1111/j.1475-6773.2006.00684.x
21. Patton MQ. Qualitative Research and Evaluation Methods. San Francisco: Sage Publications; 2001.
22. Lynn J, Goldstein NE. Advance care planning for fatal chronic illness: avoiding commonplace errors and unwarranted suffering. Ann Intern Med. 2003;138(10):812-8.
23. Morrison RS, Morrison EW, Glickman DF. Physician reluctance to discuss advance directives. An empiric investigation of potential barriers. Arch Intern Med. 1994;154(20):2311-8.
24. Curtis JR. Communicating about end-of-life care with patients and families in the intensive care unit. Crit Care Clin. 2004;20(3):363-80.
25. Weiner JS, Cole SA. Three principles to improve clinician communication for advance care planning: overcoming emotional, cognitive, and skill barriers. J Palliat Med. 2004;7(6):817-29.
26. Perry E, Swartz R, Smith-Wheelock L, Westbrook J, Buck C. Why is it difficult for staff to discuss advance directives with chronic dialysis patients? J Am Soc Nephrol. 1996;7(10):2160-8.
27. Luce JM, Alpers A. Legal aspects of withholding and withdrawing life support from critically ill patients in the United States and providing palliative care to them. Am J Respir Crit Care Med. 2000;162:2029-32.
28. Faber-Langendoen K, Bartels DM. Process of forgoing life-sustaining treatment in a university hospital: an empirical study. Crit Care Med. 1992;20(5):570-7.
29. Farber NJ, Simpson P, Salam T, Collier VU, Weiner J, Boyer EG. Physicians' decisions to withhold and withdraw life-sustaining treatment. Arch Intern Med. 2006;166(5):560-4.
30. Solomon MZ, O'Donnell L, Jennings B, et al. Decisions near the end of life: professional views on life-sustaining treatments. Am J Public Health. 1993;83(1):14-23.
31. Holley JL, Foulks CJ, Moss AH. Nephrologists' reported attitudes about factors influencing recommendations to initiate or withdraw dialysis. J Am Soc Nephrol. 1991;1(12):1284-8.
32. Hamel MB, Davis RB, Teno JM, et al. Older age, aggressiveness of care, and survival for seriously ill, hospitalized adults. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Ann Intern Med. 1999;131(10):721-8.
33. Cohen LM, Germain MJ, Poppel DM. Practical considerations in dialysis withdrawal: "to have that option is a blessing". JAMA. 2003;289(16):2113-9.
34. Phillips RS, Hamel MB, Teno JM, et al. Patient race and decisions to withhold or withdraw life-sustaining treatments for seriously ill hospitalized adults. SUPPORT investigators. study to understand prognoses and preferences for outcomes and risks of treatments. Am J Med. 2000;108(1):14-9.
35. Marr L, Weissman DE. Withdrawal of ventilatory support from the dying adult patient. J Support Oncol. 2004;2(3):283-8.
36. Rubenfeld GD. Principles and practice of withdrawing life-sustaining treatments. Crit Care Clin. 2004;20(3):435-51, ix.
37. Cook D, Rocker G, Marshall J, et al. Withdrawal of mechanical ventilation in anticipation of death in the intensive care unit. N Engl J Med. 2003;349(12):1123-32.
38. Robinson K, Sutton S, von Gunten CF, et al. Assessment of the Education for Physicians on End-of-Life Care (EPEC) Project. J Palliat Med. 2004;7(5):637-45.
39. Weiner JS, Arnold RM, Curtis JR, Back AL, Rounsaville B, Tulsky JA. Manualized communication interventions to enhance palliative care research and training: rigorous, testable approaches. J Palliat Med. 2006;9(2):371-81.
40. Back AL, Arnold RM, Baile WF, Tulsky JA, Fryer-Edwards K. Approaching difficult communication tasks in oncology. CA Cancer J Clin. 2005;55(3):164-77.