Navigating the advanced cancer experience of underserved Latinas

Supportive Care in Cancer

Volumn 20, Issue 12, 2012, Pages 3095-3104

  Nedjat Haiem, Frances R ^a   Carrion, Iraida V ^b   Ell, Kathleen ^c   Palinkas, Lawrence ^c  

^a Office of Academic Affiliations   (United States)

^b UNIVERSITY OF SOUTH FLORIDA   (United States)

^c UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

Author keywords

Advanced cancer; Cancer burden; Coping; Sociocultural; Underserved Latinos

Indexed keywords

ADULT; ADVANCED CANCER; AGED; ARTICLE; ATTITUDE TO ILLNESS; CLINICAL ARTICLE; CONCEPTUAL FRAMEWORK; COPING BEHAVIOR; DOCTOR PATIENT RELATION; ECONOMIC ASPECT; FAMILY LIFE; FEMALE; HEALTH BELIEF; HEALTH CARE SYSTEM; HISPANIC; HUMAN; HUMAN RELATION; MEDICALLY UNDERSERVED; PATIENT ATTITUDE; PERSONAL EXPERIENCE; PHENOMENOLOGY; PRIORITY JOURNAL; PURPOSIVE SAMPLE;

ADULT; AGED; COST OF ILLNESS; FEMALE; HEALTHCARE DISPARITIES; HISPANIC AMERICANS; HUMANS; MIDDLE AGED; NEOPLASMS; PHYSICIAN-PATIENT RELATIONS; RANDOMIZED CONTROLLED TRIALS AS TOPIC; SOCIAL SUPPORT; VULNERABLE POPULATIONS;

EID: 84868447849     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-012-1437-4     Document Type: Article

References (38)

1. American Cancer Society (2011) Cancer facts and figures for Hispanics/Latinos 2009-2011. 2011 on October 11, 2011, from www.cancer.org/ Research/CancerFactsFigures/CancerFacts FiguresforHispanicsLatinos/ff-hispanics- latinos-2009-2011-pdf]
2. Institute of Medicine (2003) Unequal treatment: Confronting racial and ethnic disparities in healthcare. National Academies, Washington, D.CC
3. Shavers VL, Brown ML (2002) Racial and ethnic disparities in the receipt of cancer treatment. J Natl Cancer Inst 94(5):334-57
4. Office of Minority Health and Health Disparities (2010) Hispanic or Latino populations. November 3, 2011 from www.cdc.gov/omhd/populations/HL/hl. htmm
5. Freeman HP (2004) Poverty, culture, and social injustice: determinants of cancer disparities. CA Cancer J Clin 54(2):72-77
6. Bernal H (1996) Delivering culturally competent care. In: Barry P (ed) psychosocial nursing: care of physically ill patients and their families. Lippincott, Philadelphiaa
7. Perez D, SribneyW, Rodríguez M (2009) Perceived discrimination and self-reported quality of care among Latinos in the United States. Journal of General Internal Medicine 24(3):548-554
8. Gregg J, Curry RH (1994) Explanatory models for cancer among African-American women at two Atlanta neighborhood health centers: the implications for a cancer screening program. Soc Sci Med 39(4):519-26
9. Betancourt JR, Maina A, Cervantes MC (2011) In: Williams RA (ed) Perspective: barriers to eliminating disparities in clinical practice - lessons from the IOM report "unequal treatment" healthcare disparities at the crossroads with healthcare reform. Springer, New York, pp 97-114
10. Enguidanos S, Yip J, Wilber K (2005) Ethnic variation in site of death of older adults dually eligible for Medicaid and Medicare. J Am Geriatr Soc 53(8):1411-6
11. Colon M (2005) Hospice and Latinos: a review of the literature. J Soc Work End Life Palliat Care 1(2):27-43
12. Haas JS, Earle CC, Orav JE, Brawarsky P, Neville BA, Acevedo- Garcia D et al (2007) Lower use of hospice by cancer patients who live in minority versus white areas. J Gen Intern Med 22(3):396-399
13. Bade KR, Murphy J, Sullivan MC (1999) Lessons from the field - health care experiences and preferences in a Latino community. Bioethics Forum 15(4):33-42
14. Tellez-Giron P (2007) Providing culturally sensitive end-of-life care for the Latino/a community. Wmj 106(7):402-6
15. Nedjat-Haiem FR, Lorenz KA, Ell K, Hamilton A, Palinkas L (2012) Experiences with advanced cancer among Latinas in a public healthcare system. J Pain Symptom Manage (In Press))
16. Royak-Schaler R, Gadalla S, Lemkau J, Ross D, Alexander C, Scott D (2006) Family perspectives on communication with healthcare providers during end-of-life cancer care. Oncol Nurs Forum 33(4):753-60
17. Ashing-Giwa KT, Padilla GV, Bohórquez DE, Tejero JS, Garcia M (2006) Understanding the breast cancer experience of Latina women. J Psychosoc Oncol 24(3):19-52
18. Garces IC, Scarinci IC, Harrison L (2006) An examination of sociocultural factors associated with health and health care seeking among Latina immigrants. J Immigr Minor Health 8 (4):377-85
19. Larkey LK, Hecht ML, Miller K, Alatorre C (2001) Hispanic cultural norms for health-seeking behaviors in the face of symptoms. Health Educ Behav 28(1):65-80
20. Yeo S (2004) Language barriers and access to care. Annu Rev Nurs Res 22:59-73
21. Kleinman A (1980) Patients and healers in the context of culture. University of California Press, Berkeleyy
22. Ell K, Quon B, Quinn DI, Dwight-Johnson M, Wells A, Lee PJ et al (2007) Improving treatment of depression among low-income patients with cancer: the design of the ADAPt-C study. Gen Hosp Psychiatry 29(3):223-31
23. Patton MQ (2002) Qualitative research & evaluation methods, 3rd edn. Sage, Thousand Oakss
24. Padgett DK (2008) Qualitative methods in social work research, 2nd edn. Sage, Thousand Oakss
25. Heaton J (2004) Reworking qualitative data. Sage, Londonn
26. Muhr T (2004) User's manual for ATLAS.ti 5.0, 2nd edn. Scientific Software Development, Berlinn
27. Smith JA, Flowers P, Larkin M (2009) Interpretative phenomenological analysis: Theory, method, and research. Sage, Londonn
28. Lim JW, Gonzalez P, Wang-Letzkus MF, Ashing-Giwa KT (2009) Understanding the cultural health belief model influencing health behaviors and health-related quality of life between Latina and Asian-American breast cancer survivors. Support Care Cancer 17 (9):1137-47
29. Levine EG, Aviv C, Yoo G, Ewing C, Au A (2009) The benefits of prayer on mood and well-being of breast cancer survivors. Support Care Cancer 17(3):295-306
30. Padilla YC, Villalobos G (2007) Cultural responses to health among Mexican American women and their families. Fam Community Health 30(1 Suppl):S24-33
31. Smith AK, Sudore RL, Pérez-Stable EJ (2009) Palliative care for Latino patients and their families. JAMA: J Am Med Assoc 301 (10):1047-1057
32. Kramer BJ, Kavanaugh M, Trentham-Dietz A, Walsh M, Yonker JA (2010) Predictors of family conflict at the end of life: the experience of spouses and adult children of persons with lung cancer. Gerontologist 50(2):215-25
33. Ferrell BR, Smith SL, Ervin KS, Itano J, Melancon C (2003) A qualitative analysis of social concerns of women with ovarian cancer. Psychooncology 12(7):647-63
34. KelleyAS WNS, Sarkisian CA (2010) Opiniones: end-of-life care preferences and planning of older Latinos. J Am Geriatr Soc 58 (6):1109-16
35. Carrion IV (2010) Communicating terminal diagnoses to Hispanic patients. Palliat Support Care 8(2):117-23
36. Buki LP, Borrayo EA, Feigal BM, Carrillo IY (2008) Latina breast cancer survivors' lived experiences: diagnosis, treatment, and beyond. Cultur Divers Ethnic Minor Psychol 14 (2):163-7
37. Salander P (2002) Bad news from the patient's perspective: an analysis of the written narratives of newly diagnosed cancer patients. Social Science & Medicine 55(5):721-732
38. Ashing-Giwa KT, Kagawa-Singer M, Padilla GV, Tejero JS, Hsiao E, Chhabra R et al (2004) The impact of cervical cancer and dysplasia: a qualitative, multiethnic study. Psychooncology 13 (10):709-728