Evolution of quality of life, mental health, and coping strategies in amyotrophic lateral sclerosis: A pilot study

Journal of Palliative Medicine

Volumn 15, Issue 11, 2012, Pages 1181-1184

  Montel, Sébastien ^a   Albertini, Laurence ^a,b   Desnuelle, Claude ^b   Spitz, Elisabeth ^a  

^a UNIVERSITÉ DE LORRAINE   (France)

^b UNIVERSITY HOSPITAL OF NICE   (France)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AMYOTROPHIC LATERAL SCLEROSIS; ANALGESIA; ANXIETY DISORDER; ARTICLE; CLINICAL ARTICLE; COPING BEHAVIOR; DEPRESSION; DISEASE COURSE; DISEASE DURATION; DISEASE SEVERITY; DISTRESS SYNDROME; EMOTIONALITY; FEMALE; FUNCTIONAL STATUS; HUMAN; MALE; MENTAL HEALTH; PAIN; PATIENT CARE; PILOT STUDY; PSYCHOSOCIAL CARE; QUALITY OF LIFE; SHORT FORM 36; SLEEP DISORDER; SOCIAL INTERACTION; SOCIAL PSYCHOLOGY; WILCOXON SIGNED RANKS TEST;

ADAPTATION, PSYCHOLOGICAL; AMYOTROPHIC LATERAL SCLEROSIS; DISEASE PROGRESSION; FRANCE; HUMANS; INTERVIEWS AS TOPIC; MENTAL HEALTH; OUTPATIENT CLINICS, HOSPITAL; PALLIATIVE CARE; PILOT PROJECTS; QUALITY OF LIFE; QUESTIONNAIRES; SICKNESS IMPACT PROFILE;

EID: 84868314317     PISSN: 10966218     EISSN: 15577740     Source Type: Journal    
DOI: 10.1089/jpm.2012.0162     Document Type: Article

References (20)

1. Winter Y, Schepelmann K, Spottke AE, Claus D, Grothe C, et al.: Health-related quality of life in ALS, myasthenia gravis and facioscapulohumeral muscular dystrophy. J Neurol 2010;257(9):1473-1481.
2. De Groot IJ, Post MW, van Heuveln T, Van den Berg LH, Lindeman E: Cross-sectional and longitudinal correlations between disease progression and different health-related quality of life domains in persons with amyotrophic lateral sclerosis. Amyotroph Lateral Scler 2007;8(6):356-361. (Pubitemid 350176934)
3. Cupp J, Simmons Z, Berg A, Felgoise SH, Walsh SM, Stephens HE: Psychological health in patients with ALS is maintained as physical function declines. Amyotroph Lateral Scler 2011;12(4):290-296.
4. Roach AR, Averill AJ, Segerstrom SC, Kasarskis EJ: The dynamics of quality of life in ALS patients and caregivers. Ann Behav Med 2009;37(2):197-206.
5. Kurt A, Nijboer F, Matuz T, Kü bler A: Depression and anxiety in individuals with amyotrophic lateral sclerosis: Epidemiology and management. CNS Drugs 2007;21(4):279-291. (Pubitemid 46598449)
6. Averill AJ, Kasarskis EJ, Segerstrom SC: Psychological health in patients with amyotrophic lateral sclerosis. Amyotroph Lateral Scler 2007;8(4):243-254. (Pubitemid 47190229)
7. Ferentinos P, Paparrigopoulos T, Rentzos M, Zouvelou V, Alexakis T, Evdokimidis I : Amyotroph Lateral Scler 2011; 12(4):297-302.
8. Montel S, Bungener C: The coping and quality of life in 135 subjects with Multiple Sclerosis. Mult Scler 2007;13: 393-401. (Pubitemid 46706001)
9. Montel S, Bonnet AM, Bungener C: Quality of life in relation to mood, coping strategies and dyskinesia in Parkinson's disease. J Ger Psych Neurol 2009;22(2):95-102.
10. Chan Chee C, Gourier-Fre'ry C, Guignard R, Beck F: The current state of mental health surveillance in France. Sante Publique 2011;23 Suppl 6:S13-S29.
11. Lazarus R, Folkman S: Stress, Appraisal and Coping. New York: Springer, 1984.
12. Montel S, Albertini L, Spitz E: Coping strategies as related to medical and demographic data in ALS. Acta Neurol Scand 2012;125:136-141.
13. Montel S, Albertini L, Spitz E: Coping strategies in relation with quality of life in ALS. J Muscle & Nerve 2012;45:131-134.
14. Brooks BR, Miller RG, Swash M, Munsat TL: El Escorial revisited: Revised criteria for the diagnosis of Amyotrophic Lateral Sclerosis. ALS 2000;1:193-199.
15. Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, et al.: The ALSFRS-R: A revised ALS functional rating scale that incorporates assessments of respiratory function. Neurol Sci 1999;169:13-21. (Pubitemid 29502501)
16. Muller L, Spitz E: Multidimensional assessment of coping: Validation of the Brief COPE among French population. Encephale 2003;29(6):507-518. (Pubitemid 38100496)
17. Leplège A, Ecosse E, Verdier A, Perneger TV: The French SF- 36 Health Survey: Translation, cultural adaptation and preliminary psychometric evaluation. J Clin Epidemiol 1998;11: 1013-1024.
18. Goodchild ME, Ducan-Jones P: Chronicity and the General Health Questionnaire. Brit J Psychiatry 1985;146:55-61. (Pubitemid 15153339)
19. Rabkin JG, Albert SM, Del Bene ML, O'Sullivan I, Tider T, Rowland LP, Mitsumoto H: Prevalence of depressive disorders and change over time in late-stage ALS. Neurology 2005;65(1):62-67. (Pubitemid 40967777)
20. Tedman BM, Young CA, Williams IR: Assessment of depression in patients with motor neuron disease and other neurologically disabling illness. J Neurol Sci 1997;152 Suppl 1:S75-S79. (Pubitemid 27505295)