Male caregivers of patients with breast and gynecologic cancer: Experiences from caring for their spouses and partners

Cancer Nursing

Volumn 35, Issue 6, 2012, Pages 402-410

  Lopez, Violeta ^a   Copp, Gina ^b   Molassiotis, Alexander ^c  

^a The Australian National University   (Australia)

^b MIDDLESEX UNIVERSITY   (United Kingdom)

^c UNIVERSITY OF MANCHESTER   (United Kingdom)

Author keywords

Breast cancer; Caregiving; Caring; Gender; Gynecologic cancer; Longitudinal; Male; Protection; Qualitative design

Indexed keywords

ADULT; AGED; ARTICLE; BREAST CANCER; CAREGIVER; CAREGIVER BURDEN; CAREGIVER SUPPORT; CLINICAL ARTICLE; COGNITION; DESCRIPTIVE RESEARCH; EXPLORATORY RESEARCH; FEMALE; GYNECOLOGIC CANCER; HUMAN; INTERVIEW; LONGITUDINAL STUDY; MASCULINITY; PATIENT CARE; PERSONAL EXPERIENCE; PHYSICAL ACTIVITY; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; SELF CARE; SPOUSE; STRESS;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; BREAST NEOPLASMS; CAREGIVERS; FEMALE; GENDER IDENTITY; GENITAL NEOPLASMS, FEMALE; HOME NURSING; HUMANS; INTERPERSONAL RELATIONS; INTERVIEWS AS TOPIC; LONGITUDINAL STUDIES; MALE; MIDDLE AGED; NEEDS ASSESSMENT; QUALITATIVE RESEARCH; QUALITY OF LIFE; RISK ASSESSMENT; SEXUAL PARTNERS; SOCIAL SUPPORT; SOCIOECONOMIC FACTORS; SPOUSES; STRESS, PSYCHOLOGICAL;

EID: 84868301024     PISSN: 0162220X     EISSN: 15389804     Source Type: Journal    
DOI: 10.1097/NCC.0b013e318231daf0     Document Type: Article

References (40)

1. Grunfeld E, Coyle D, Whelan T, et al. Family caregiver burden: Results of a longitudinal study of breast cancer patients and their principal caregivers. CMAJ. 2004;170(12):1795-1801.
2. Hinnen C, Ranchor AV, Baas PC, Sanderman R, Hagedoorn M. Partner support and distress in women with breast cancer: The role of patients' awareness of support and level of mastery. Psychol Health. 2009;24: 439-455.
3. Nijboer C, Triemstra M, Tempelar R, Mulder M, Sanderman R, van den Bos G. Patterns of caregiver experiences among partners of cancer patients. Gerontologist. 2000;40(6):738-746.
4. Rhee YS, Yun YH, Park S, et al. Depression in family caregivers of cancer patients: The feeling of burden as a predictor of depression. J Clin Oncol. 2008;46(36):5890-5895.
5. Kim Y, Spillers RL. Quality of life of family caregivers at 2 years after a relative's cancer diagnosis. Psychooncology. 2009;19:431-440.
6. Papastavrou E, Charalambus A, Tsangari H. Exploring the other side of cancer care: The informal caregiver. Eur J Oncol Nurs. 2009;13:128-136.
7. Tamayo GJ, Broxson A, Munsell M, Cohen MZ. Caring for the caregiver. Oncol Nurs Forum. 2010;37(1):E50-E57.
8. Cochrane JJ, Goering PN, Rogers J. The mental health of informal caregivers in Ontario: An epidemiological survey. Am J Public Health. 1997;87: 2002-2007.
9. Rivera HR. Depression symptoms in cancer caregivers. Clin J Oncol Nurs. 2009;13(2):195-202.
10. Molassiotis A, Wilson B, Blair S, Howe T, Cavet J. Unmet supportive care needs, psychological well-being and quality of life in patients living with multiple myeloma and their partners. Psychooncology. 2011;20(1):88-97.
11. Molassiotis A, Wilson B, Blair S, Howe T, Cavet J. Living with multiple myeloma: Experiences of patients and their informal caregivers. Support Care Cancer. 2011;19(1):101-111.
12. Grov EK, Fossa SD, Sørebø Ø, Dahl AA. Primary caregivers of cancer patients in the palliative phase: A path analysis of variables influencing burden. Social Sci Med. 2006;63:2429-2439.
13. Hwang SS, Chang VT, Alejandro Y, et al. Caregiver unmet needs, burden, and satisfaction in symptomatic advanced cancer patients at a Veterans Affairs (VA) medical centre. Palliat Support Care. 2003;1:319-329.
14. Hagedoorn M, Kuijer RG, Buunk BP, DeJong GM, Woobs T. Marital satisfaction in patients with cancer: Does support from intimate partners benefit those who need it most? Health Psychol. 2000;19(3):274-282.
15. Hagedoorn M, Buunk BP, Kuijer RG, Wobbes T, Sanderman R. Couples dealing with cancer: Role and gender differences regarding psychological distress and quality of life. Psychooncology. 2000;9:232-242.
16. Sherman KA, Kasparian NA, Mireskandan S. Psychological adjustment among male partners in response to women's breast/ovarian cancer risk: A theoretical review of the literature. Psychooncology. 2009;19:1-11.
17. Hodgson JK, Shields CG, Rousseau SL. Disengaging communication in later-life couples coping with breast cancer. Fam Syst Health. 2003;21(2): 145-163.
18. Holland JC, Resnik I. Pathways for psychosocial care of cancer survivors. Cancer. 2005;104(suppl 11):2624-2637.
19. Vitaliano PP, Scanlan JM, Zhang J, Savage MV, Hirsch IB, Siegler IC. A path model of chronic stress, the metabolic syndrome, and coronary heart disease. Psychosom Med. 2002;64(3):418-435.
20. Stenberg U, Ruland CM, Miaskowski C. Review of the literature on the effects of caring for a patient with cancer. Psychooncology. 2010;19(10): 1013-1025.
21. Scherbring M. Effects of caregiver perception of preparedness on burden in an oncology population. Oncol Nurs Forum. 2002;29(6):E70-E76.
22. Bigattit SM, Brown LF, Steiner JL, Mikller KD. Breast cancer in a wife: How a husband cope and how well it works. Cancer Nurs. 2011;34(3): 193-201.
23. Kim Y, Loscalzo MJ, Wellisch DK, Spillers RL. Gender differences in caregiving stress among caregivers of cancer survivors. Psychooncology. 2006; 15:1086-1092.
24. Matthews BA. Role and gender difference in cancer-related distress: A comparison of survivor and caregiver self-reports. Oncol Nurs Forum. 2003; 30(3):493-499.
25. Fergus KD, Gay RE. Relationship vulnerabilities during breast cancer: Patients and partner perspectives. Psychooncology. 2009;18:1311-1322.
26. Sandelowski M. Real qualitative researchers do not count: The use of numbers in qualitative research. Res Nurs Health. 2001;24:230-240.
27. Molassiotis A, Zheng Y, Denton-Cardew L, Swindell R, Brunton L. Symptoms experienced by cancer patients during the first year from diagnosis: Patient and informal caregiver ratings and agreement. Palliat Support Care. 2010;(3):313-324.
28. Molassiotis A, Lowe M, Blackhall F, Lorigan P. A qualitative exploration of a respiratory distress symptom cluster in lung cancer: Cough, breathlessness and fatigue. Lung Cancer. 2011;71:94-102.
29. Johansson E, Wilson B, Brunton L, Tishelman C, Molassiotis A. Symptoms before, during, and 14 months after the beginning of treatment as perceived by patients with lymphoma. Oncol Nurs Forum. 2010;37(2):E105-E113.
30. Molassiotis A, Wilson B, Brunton L, Chaudhary H, Gattamaneni R, McBain C. Symptom experience in patients with primary brain tumours: A longitudinal exploratory study. Eur J Oncol Nurs. 2010;14(5):410-416.
31. Grbich C. Qualitative Data Analysis: An Introduction. London, UK: Sage Publications; 2009.
32. Krefting L. Rigor in qualitative research: The assessment of trustworthiness. Am J Occup Ther. 1991;45(3):214-222.
33. Rolfe G. Validity, trustworthiness and rigour: Quality and the idea of qualitative research. J Adv Nurs. 2006;53(3):304-310.
34. Glajchen M. The emerging role and need of family caregivers in cancer care. J Support Oncol. 2004;2(2):145-155.
35. Sherman DW, Haber J, Hoskin C, et al. Differences in physical, emotional, and social adjustment of intimate, family, and nonfamily patientpartner dyads based on a breast cancer intervention study. Oncol Nurs Forum. 2009;36(4):E185-E197.
36. Hasson-Ohayon I, Goldzweig G, Braun M, Galinsky D. Women with advanced breast cancer and their spouses: Diversity of support and psychological distress. Psychooncology. 2010;19:1195-1204.
37. Calasanti T, King N. Taking 'women's work' 'like a man': Husbands' experiences of care work. Gerontologist. 2007;47:516-527.
38. Morgan MA. Considering the patient-partner relationship in cancer care: Coping strategies for couple. Clin J Oncol. 2009;13(1):65-72.
39. Scott JL, Halford WK, Ward BG. United we stand? The effects of a couple-coping intervention on adjustment to early stage breast or gynaecological cancer. J Consult Clin Psychol. 2004;72(6):1122-1135.
40. Baucom DH, Porter LS, Kirby JS, et al. A couple-based intervention for female breast cancer. Psychooncology. 2008;18:267-283.