Exploring the other side of cancer care: The informal caregiver

European Journal of Oncology Nursing

Volumn 13, Issue 2, 2009, Pages 128-136

  Papastavrou, Evridiki ^a   Charalambous, Andreas ^a   Tsangari, Haritini ^b  

^a CYPRUS UNIVERSITY OF TECHNOLOGY   (Cyprus)

^b UNIVERSITY OF NICOSIA   (Cyprus)

Author keywords

Burden; Cancer; Caregiving; Coping; Depression; Informal caregiver

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; AGED; ANALYSIS OF VARIANCE; ARTICLE; CAREGIVER; DEPRESSION; EDUCATIONAL STATUS; FEMALE; GREECE; HUMAN; INCOME; MALE; MENTAL STRESS; MIDDLE AGED; NEOPLASM; NURSING; PRINCIPAL COMPONENT ANALYSIS; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; REGRESSION ANALYSIS; RISK FACTOR; SEX DIFFERENCE; STATISTICS;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; ANALYSIS OF VARIANCE; CAREGIVERS; DEPRESSION; EDUCATIONAL STATUS; FEMALE; GREECE; HUMANS; INCOME; MALE; MIDDLE AGED; NEOPLASMS; PRINCIPAL COMPONENT ANALYSIS; QUESTIONNAIRES; REGRESSION ANALYSIS; RISK FACTORS; SEX FACTORS; STRESS, PSYCHOLOGICAL;

EID: 63949085819     PISSN: 14623889     EISSN: 15322122     Source Type: Journal    
DOI: 10.1016/j.ejon.2009.02.003     Document Type: Article

References (55)

1. Annestedt L., Emstahl S., Ingvad B., and Samuelsson S.M. Family caregiving in Dementia: An analysis of the caregiver's burden and the "breaking point" when home care becomes inadequate. Scandinavian Journal of Public Health 28 (2000) 23-31
2. Braun M., Mikulincer M., Rydall A., Walsh A., and Rodin G. Hidden morbidity in cancer: spouse caregivers. Journal of Clinical Oncology 25 30 (October 20) (2007) 4829-4834
3. Boyle P., and Ferlay J. Cancer incidence and mortality in Europe, 2004. Annals of Oncology: Official Journal of the European Society for Medical Oncology/ESMO 16 3 (2005) 481-488
4. Cain R., Maclean M., and Sellick S. Giving support and getting help: informal caregivers' experiences with palliative care services. Palliative & Supportive Care 2 3 (2004) 265-272
5. Chan C.W., and Chang A.M. Stress associated with tasks for family caregivers of patients with cancer in Hong Kong. Cancer Nursing 22 4 (1999) 260-265
6. Charalambous A., Papadopoulos R., and Beadsmoore A. Listening to the voices of patients with cancer their advocates and their nurses: a hermeneutic-phenomenological study of quality nursing care. European Journal of Oncology Nursing 12 5 (2008) 436-442
7. Cho M.H., Dodd M.J., Lee K.A., Padilla G., and Slaughter R. Self-reported sleep quality in family caregivers of gastric cancer patients who are receiving chemotherapy in Korea. Journal of Cancer Education: the Official Journal of the American Association for Cancer Education 21 1 Suppl (2006) S37-S41
8. Chumbler N.R., Grimm J.W., Cody M., and Beck C. Gender, kinship and caregiver burden: the case of community-dwelling memory impaired seniors. International Journal of Geriatric Psychiatry 18 8 (2003) 722-732
9. Cyprus Statistical Services. National Statistics for 2003 (2003), Statistical Service, Nicosia
10. Dumont S., Turgeon J., Allard P., Gagnon P., Charbonneau C., and Vezina L. Caring for a loved one with advanced cancer: determinants of psychological distress in family caregivers. Journal of Palliative Medicine 9 4 (2006) 912-921
11. Ferrell B.R., Grant M., Borneman T., Juarez G., and ter Veer A. Family caregiving in cancer pain management. Journal of Palliative Medicine 2 2 (1999) 185-195
12. Fortinsky R.H., Kercher K., and Burant C.J. Measurement and correlates of family caregiver self-efficacy for managing dementia. Aging & Mental Health 6 2 (2002) 153-160
13. George D., and Mallery P. SPSS for Windows Step by Step: a Simple Guide and Reference. 11.0 Update. fourth ed. (2003), Allyn & Bacon, Boston
14. Gilbar O. Gender as a predictor of burden and psychological distress of elderly husbands and wives of cancer patients. Psycho-Oncology 8 4 (1999) 287-294
15. Gilbar O. The elderly cancer patient and his spouse: two perceptions of burden of caregiving. Journal of Gerontological Social Work 21 314 (1994) 149-157
16. Given B.A., Given C.W., Helms E., Stommel M., and DeVoss D.N. Determinants of family care giver reaction. New and recurrent cancer. Cancer Practice 5 1 (1997) 17-24
17. Given B., Wyatt G., Given C., Sherwood P., Gift A., DeVoss D., and Rahbar M. Burden and depression among caregivers of patients with cancer at the end of life. Oncology Nursing Forum 31 6 (2004) 1105-1117
18. Given C.W., Given B., Azzouz F., Kozachik S., and Stommel M. Predictors of pain and fatigue in the year following diagnosis among elderly cancer patients. Journal of Pain and Symptom Management 21 6 (2001) 456-466
19. Glajchen M. The emerging role and needs of family caregivers in cancer care. The Journal of Supportive Oncology 2 2 (2004) 145-155
20. Goldstein N.E., Concato J., Fried T.R., Kasl S.V., Johnson-Hurzeler R., and Bradley E.H. Factors associated with caregiver burden among caregivers of terminally ill patients with cancer. Journal of Palliative Care 20 1 (2004) 38-43
21. Grunfeld E., Coyle D., and Whelan T. Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers. CMAJ 170 12 (2004) 1795-1801
22. Hagedoorn M., Buunk B.P., Kuijer R.G., Wobbes T., and Sanderman R. Couples dealing with cancer: role and gender differences regarding psychological distress and quality of life. Psycho-Oncology 9 3 (2000) 232-242
23. Haley W.E. Family caregivers of elderly patients with cancer: understanding and minimizing the burden of care. The Journal of Supportive Oncology 1 4 Suppl 2 (2003) 25-29
24. Haley W.E., LaMonde L.A., Han B., Narramore S., and Schonwetter R. Family caregiving in hospice: effects on psychological and health functioning among spousal caregivers of hospice patients with lung cancer or dementia. The Hospice Journal 15 4 (2001) 1-18
25. Hanratty B., Holland P., Jacoby A., and Whitehead M. Financial stress and strain associated with terminal cancer-a review of the evidence. Palliative Medicine 21 7 (2007) 595-607
26. Higginson I.J., and Gao W. Caregiver assessment of patients with advanced cancer: concordance with patients, effect of burden and positivity. Health and Quality of Life Outcomes 6 (2008) 42
27. Hudson P.L., Aranda S., and Kristjanson L.J. Meeting the supportive needs of family caregivers in palliative care: challenges for health professionals. Journal of Palliative Medicine 7 1 (2004) 19-25
28. Karademas E. Translating in Greek a psychometric tool to measure coping strategies in stressful situations. Psychology 5 3 (1998) 260-273
29. Kim H.S., Yeom H.A., Seo Y.S., Kim N.C., and Yoo Y.S. Stress and coping strategies of patients with cancer. A Korean study. Cancer Nursing 25 6 (2002) 425-431
30. Kim Y., Kashy D.A., and Evans T.V. Age and attachment style impact stress and depressive symptoms among caregivers: a prospective investigation. Journal of Cancer Survivorship: Research and Practice 1 1 (2007) 35-43
31. Kris A.E., Cherlin E.J., Prigerson H., Carlson M.D., Johnson-Hurzeler R., Kasl S.V., and Bradley E.H. Length of hospice enrollment and subsequent depression in family caregivers: 13-month follow-up study. The American Journal of Geriatric Psychiatry: Official Journal of the American Association for Geriatric Psychiatry 14 3 (2006) 264-269
32. Kroenke C.H., Hankinson S.E., Schernhammer E.S., Colditz G.A., Kawachi I., and Holmes M.D. Caregiving stress, endogenous sex steroid hormone levels, and breast cancer incidence. American Journal of Epidemiology 159 11 (2004) 1019-1027
33. Lazarus R.S., and Folkman S. Stress, Appraisal and Coping (1984), Springer, New York
34. Lyons K., Zarit S., Sayers A., and Whitlatch C. Caregiving as dyadic process: perspectives from caregiver and receiver. Journal of Gerontology: Psychological Sciences 57B 3 (2002) 195-204
35. Lowenstein A., and Gilbar O. The perception of caregiving burden on the part of elderly cancer patients, spouses, and adult children. Families, Systems, & Health 18 (2000) 337-346
36. Madianos M.G., Gournas G., and Stefanis C.N. Depressive symptoms and depression among elderly people in Athens. Acta psychiatrica Scandinavica 86 4 (1992) 320-326
37. McMillan S.C., Small B.J., and Weitzner M. Impact of coping skills intervention with family caregivers of hospice patients with cancer: a randomized clinical trial. Cancer 106 1 (2006) 214-222
38. Nijboer C., Tempelaar R., Triemstra M., van den Bos G.A., and Sanderman R. The role of social and psychologic resources in caregiving of cancer patients. Cancer 91 5 (2001) 1029-1039
39. Nijboer C., Triemstra M., Tempelaar R., Mulder M., Sanderman R., and van den Bos G.A. Patterns of caregiver experiences among partners of cancer patients. The Gerontologist 40 6 (2000) 738-746
40. Northouse L.L., Mood D., Templin T., Mellon S., and George T. Couples' patterns of adjustment to colon cancer. Social Science & Medicine 50 2 (2000) 271-284
41. Papastavrou E., Kalokerinou A., Papacostas S.S., Tsangari H., and Sourtzi P. Caring for a relative with dementia: family caregiver burden. Journal of Advanced Nursing 58 5 (2007) 446-457
42. Raddloff L. The center for epidemiological studies-depression scale: a self report depression scale for research in the general population. Applied Psychological Measurements 3 (1977) 385-401
43. Raveis V.H., and Karus D.G. Elderly cancer patients: correlates of depressive symptomatology. Journal of Psychosocial Oncology 17 2 (1999)
44. Schulman-Green D., McCorkle R., Curry L., Cherlin E., Johnson-Hurzeler R., and Bradley E. At the crossroads: making the transition to hospice. Palliative & Supportive Care 2 4 (2004) 351-360
45. Schulz R., and Beach S.R. Caregiving as a risk factor for mortality: the Caregiver Health Effects Study. JAMA: The Journal of the American Medical Association 282 23 (1999) 2215-2219
46. Soskolne V., Halevy-Levin S., and Ben-Yehuda A. The context of caregiving, kinship tie and health: a comparative study of caregivers and non-caregivers. Women & Health 45 2 (2007) 75-94
47. Stetz K.M., and Brown M.A. Physical and psychosocial health in family caregiving: a comparison of AIDS and cancer caregivers. Public Health Nursing (Boston, Mass.) 21 6 (2004) 533-540
48. Stommel M., Given C.W., and Given B.A. The cost of cancer home care to families. Cancer 71 (1993) 1867-1874
49. Stommel M., Given B.A., and Given C.W. Depression and functional status as predictors of death among cancer patients. Cancer 94 10 (2002) 2719-2727
50. Tang S.T., Li C.-Y., and Liao Y.-C. Factors associated with depressive distress among Taiwanese family caregivers of cancer patients at the end of life. Palliative Medicine 21 3 (2007) 249-257
51. Van Pelt D.C., Milbrandt E.B., Qin L., Weissfeld L., et al. Informal caregiver burden among survivors of prolonged mechanical ventilation. American Journal of Respiratory Critical Care Medicine 175 (2007) 167-173
52. Weitzner M.A., McMillan S.C., and Jacobsen P.B. Family caregiver quality of life: differences between curative and palliative cancer treatment settings. Journal of Pain and Symptom Management 17 6 (1999) 418-428
53. Whitlatch C.J., Zarit S.H., and von Eye A. Efficacy of interventions with caregivers: a reanalysis. The Gerontologist 31 1 (1991) 9-14
54. Zarit S.H., Reever K.E., and Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. The Gerontologist 20 6 (1980) 649-655
55. Zarit S.H., Todd P.A., and Zarit J.M. Subjective burdens of husbands and wives as caregivers: a longitudinal study. Gerontologist 26 (1986) 260-266