-
1
-
-
84876169999
-
-
Haemophilia Alliance last accessed 20th September 2011.
-
Haemophilia Alliance (2005) www.haemophiliaalliance.org.uk last accessed 20th September 2011.
-
(2005)
-
-
-
2
-
-
0007599807
-
Haemophilia and the related conditions: a survey of 187 cases
-
Biggs R, MacFarlane RG. Haemophilia and the related conditions: a survey of 187 cases. Br J Haematol 1958; 4: 1-27.
-
(1958)
Br J Haematol
, vol.4
, pp. 1-27
-
-
Biggs, R.1
MacFarlane, R.G.2
-
3
-
-
77953089296
-
Minimizing joint damage: the role of nurses in promoting adherence to hemophilia treatment
-
Khair K. Minimizing joint damage: the role of nurses in promoting adherence to hemophilia treatment. Orthop Nurs 2010; 29: 193-200.
-
(2010)
Orthop Nurs
, vol.29
, pp. 193-200
-
-
Khair, K.1
-
4
-
-
0016765477
-
Physical activity and the hemophiliac: yes or no?
-
Weigle N, Carson BR. Physical activity and the hemophiliac: yes or no? Am Correct Ther J 1975; 29: 197-205.
-
(1975)
Am Correct Ther J
, vol.29
, pp. 197-205
-
-
Weigle, N.1
Carson, B.R.2
-
5
-
-
34447133730
-
Sports and exercise in haemophilia: benefits and challenges
-
Riske B. Sports and exercise in haemophilia: benefits and challenges. Haemophilia 2007; 13 (Suppl 2): 29-30.
-
(2007)
Haemophilia
, vol.13
, Issue.SUPPL. 2
, pp. 29-30
-
-
Riske, B.1
-
6
-
-
77954841263
-
Psychosocial correlates of physical activity in adolescents with haemophilia
-
Buxbaum NP, Ponce M, Saidi P, Michaels LA. Psychosocial correlates of physical activity in adolescents with haemophilia. Haemophilia, 2010; 16: 656-61.
-
(2010)
Haemophilia
, vol.16
, pp. 656-661
-
-
Buxbaum, N.P.1
Ponce, M.2
Saidi, P.3
Michaels, L.A.4
-
7
-
-
34447120418
-
Quality of life and sports activities in patients with haemophilia
-
von Mackensen S. Quality of life and sports activities in patients with haemophilia. Haemophilia 2007; 13 (Suppl 2): 38-43.
-
(2007)
Haemophilia
, vol.13
, Issue.SUPPL. 2
, pp. 38-43
-
-
von Mackensen, S.1
-
8
-
-
84868194044
-
The impact of prophylaxis on children with severe haemophilia
-
Liesner R, Khair K, Hann IM. The impact of prophylaxis on children with severe haemophilia. Br J Haematol 1996; 92: 937-8.
-
(1996)
Br J Haematol
, vol.92
, pp. 937-938
-
-
Liesner, R.1
Khair, K.2
Hann, I.M.3
-
9
-
-
84860346032
-
The benefits of prophylaxis: views of adolescents with severe haemophilia
-
Khair K, Gibson F, Meerabeau L. The benefits of prophylaxis: views of adolescents with severe haemophilia. Haemophilia 2012; 18: e286-9.
-
(2012)
Haemophilia
, vol.18
-
-
Khair, K.1
Gibson, F.2
Meerabeau, L.3
-
10
-
-
19944417564
-
Health status and health-related quality if life of children with haemophilia from six Western European countries
-
Gringeri A, von Mackensen S, Auerswald G et al. Health status and health-related quality if life of children with haemophilia from six Western European countries. Haemophilia 2004; 10 (Suppl 1): 26-33.
-
(2004)
Haemophilia
, vol.10
, Issue.SUPPL. 1
, pp. 26-33
-
-
Gringeri, A.1
von Mackensen, S.2
Auerswald, G.3
-
11
-
-
0031832474
-
Assessing health related quality of life in chronically ill children with the German KINDL: first psychometric and content analytical results
-
Ravens-Sieberer U, Bullinger M. Assessing health related quality of life in chronically ill children with the German KINDL: first psychometric and content analytical results. Qual Life Res 1998; 7: 399-407.
-
(1998)
Qual Life Res
, vol.7
, pp. 399-407
-
-
Ravens-Sieberer, U.1
Bullinger, M.2
-
12
-
-
19944408601
-
Development and testing of an instrument to assess the quality of life of children with haemophilia in Europe (Haemo-QoL)
-
the Haemo-QoL group..
-
von Mackensen S, Bullinger M, the Haemo-QoL group. Development and testing of an instrument to assess the quality of life of children with haemophilia in Europe (Haemo-QoL). Haemophilia 2004; 1: 17-25.
-
(2004)
Haemophilia
, vol.1
, pp. 17-25
-
-
von Mackensen, S.1
Bullinger, M.2
-
13
-
-
73949136111
-
Development and validation of a new questionnaire for the assessment of subjective physical performance in adult patients with haemophilia-the HEP-Test-Q
-
von Mackensen S, Czepa D, Herbsleb M, Hilberg T. Development and validation of a new questionnaire for the assessment of subjective physical performance in adult patients with haemophilia-the HEP-Test-Q. Haemophilia 2010; 16: 170-8.
-
(2010)
Haemophilia
, vol.16
, pp. 170-178
-
-
von Mackensen, S.1
Czepa, D.2
Herbsleb, M.3
Hilberg, T.4
-
14
-
-
84868205594
-
-
Clinical Joint Score for children with hemophilia, unpublished.
-
Petrini P, Bergstrom BM. Clinical Joint Score for children with hemophilia, 2001, unpublished.
-
(2001)
-
-
Petrini, P.1
Bergstrom, B.M.2
-
18
-
-
35948968626
-
-
Inequalities in Young People's Health.. Edited by Candace Currie, Gabhainn Saoirse Nic, Godeau Emmanuelle, Roberts Chris, Smith Rebecca, Currie Dorothy, Picket Will, Richter Matthias, Morgan Antony, Barnekow Vivian, accessed November 28, 2011].
-
Inequalities in Young People's Health. Health Behaviour in School-Aged Children International Report from the 2005/2006 Survey. Edited by Candace Currie, Gabhainn Saoirse Nic, Godeau Emmanuelle, Roberts Chris, Smith Rebecca, Currie Dorothy, Picket Will, Richter Matthias, Morgan Antony, Barnekow Vivian, 2008. [http://www.euro.who.int/__data/assets/pdf_file/0005/53852/E91416.pdf; accessed November 28, 2011].
-
(2008)
Health Behaviour in School-Aged Children International Report from the 2005/2006 Survey
-
-
-
19
-
-
0035111631
-
Health enhancing physical activity for young people: statement of the United Kingdom Expert Consensus Conference
-
Cavill N, Biddle S, Sallis JF. Health enhancing physical activity for young people: statement of the United Kingdom Expert Consensus Conference. Pediatr Exerc Sci 2001; 13: 12-25.
-
(2001)
Pediatr Exerc Sci
, vol.13
, pp. 12-25
-
-
Cavill, N.1
Biddle, S.2
Sallis, J.F.3
-
20
-
-
33845453362
-
Understanding participation in sport and physical activity among children and adults: a review of qualitative studies
-
Allender S, Cowburn G, Foster C. Understanding participation in sport and physical activity among children and adults: a review of qualitative studies. Health Edu Res 2006; 6: 826-35.
-
(2006)
Health Edu Res
, vol.6
, pp. 826-835
-
-
Allender, S.1
Cowburn, G.2
Foster, C.3
-
21
-
-
0242386866
-
'The worst hassle is you can't play rugby': haemophilia and masculinity in New Zealand
-
Park J. 'The worst hassle is you can't play rugby': haemophilia and masculinity in New Zealand. Curr Anthropol 2000; 41: 443-52.
-
(2000)
Curr Anthropol
, vol.41
, pp. 443-452
-
-
Park, J.1
-
22
-
-
33646348978
-
The best experts: the narratives of those who have a genetic condition
-
Petersen A. The best experts: the narratives of those who have a genetic condition. Social Sci Med 2006; 63: 32-42.
-
(2006)
Social Sci Med
, vol.63
, pp. 32-42
-
-
Petersen, A.1
-
23
-
-
0035236929
-
Pathways of disadvantage?, Walking as a mode of transport among low income mothers
-
Bostock L. Pathways of disadvantage?, Walking as a mode of transport among low income mothers. Health Soc Care Community 2001; 9: 11-8.
-
(2001)
Health Soc Care Community
, vol.9
, pp. 11-18
-
-
Bostock, L.1
-
25
-
-
34248562653
-
Participation in sports and physical activity of haemophilia patients
-
Fromme A, Dreeskamp K, Pollmann H, Thorwesten L, Mooren FC, Völker K. Participation in sports and physical activity of haemophilia patients. Haemophilia 2007; 13: 323-7.
-
(2007)
Haemophilia
, vol.13
, pp. 323-327
-
-
Fromme, A.1
Dreeskamp, K.2
Pollmann, H.3
Thorwesten, L.4
Mooren, F.C.5
Völker, K.6
-
26
-
-
70350516594
-
Athletic participation in severe hemophilia: bleeding and joint outcomes in children on prophylaxis
-
Ross C, Goldenberg NA, Hund D, Manco-Johnson MJ. Athletic participation in severe hemophilia: bleeding and joint outcomes in children on prophylaxis. Pediatrics 2009; 124: 1267-72.
-
(2009)
Pediatrics
, vol.124
, pp. 1267-1272
-
-
Ross, C.1
Goldenberg, N.A.2
Hund, D.3
Manco-Johnson, M.J.4
-
28
-
-
65449132346
-
Physical activity participation and bleeding characteristics in young patients with severe haemophilia
-
Tiktinsky R, Kenet G, Dvir Z et al. Physical activity participation and bleeding characteristics in young patients with severe haemophilia. Haemophilia 2009; 15: 695-700.
-
(2009)
Haemophilia
, vol.15
, pp. 695-700
-
-
Tiktinsky, R.1
Kenet, G.2
Dvir, Z.3
-
30
-
-
33747151609
-
Physical fitness, functional ability and quality of life in children with severe haemophilia: a pilot study
-
van der Net J, Vos RC, Engelbert RH, van den Berg MH, Helders PJ, Takken T. Physical fitness, functional ability and quality of life in children with severe haemophilia: a pilot study. Haemophilia 2006; 12: 494-9.
-
(2006)
Haemophilia
, vol.12
, pp. 494-499
-
-
van der Net, J.1
Vos, R.C.2
Engelbert, R.H.3
van den Berg, M.H.4
Helders, P.J.5
Takken, T.6
-
31
-
-
37749033557
-
The Haemo-QoL Index: developing a short measure for health-related quality of life assessment in children and adolescents with haemophilia
-
the Haemo-QoL Group..
-
Pollak E, Mühlan H, v. Mackensen S, Bullinger M & the Haemo-QoL Group. The Haemo-QoL Index: developing a short measure for health-related quality of life assessment in children and adolescents with haemophilia. Haemophilia 2006; 12: 384-92.
-
(2006)
Haemophilia
, vol.12
, pp. 384-392
-
-
Pollak, E.1
Mühlan, H.2
v Mackensen, S.3
Bullinger, M.4
-
32
-
-
63349100589
-
Physical fitness in children with haemophilia and the effect of overweight
-
Douma-van Riet DC, Engelbert RH, van Genderen FR, Ter Horst-De Ronde MT, de Goede-Bolder A, Hartman A. Physical fitness in children with haemophilia and the effect of overweight. Haemophilia 2009; 15: 519-27.
-
(2009)
Haemophilia
, vol.15
, pp. 519-527
-
-
Douma-van Riet, D.C.1
Engelbert, R.H.2
van Genderen, F.R.3
Ter Horst-De Ronde, M.T.4
de Goede-Bolder, A.5
Hartman, A.6
-
33
-
-
84876196223
-
Fit for life - fitness levels of young hemophiliacs today
-
Scharrer I, Schramm W. eds.. Heidelberg: Springer
-
Seuser A., Kurme A, Trunz E et al. Fit for life - fitness levels of young hemophiliacs today. In: Scharrer I, Schramm W. eds. 34th Hemophilia Symposion Hamburg 2003. Heidelberg: Springer, 2005:232-7.
-
(2005)
34th Hemophilia Symposion Hamburg 2003
, pp. 232-237
-
-
Seuser, A.1
Kurme, A.2
Trunz, E.3
-
34
-
-
63049103071
-
Sport and physical fitness recommendations for young hemophilias
-
Scharrer I, Schramm W eds.. Heidelberg: Springer
-
Seuser A, Kurme A, Wallny T, Trunz-Carlisi E, Ochs S, Brackmann HH. Sport and physical fitness recommendations for young hemophilias. In: Scharrer I, Schramm W eds. 33rd Hemophilia Symposion Hamburg 2002. Heidelberg: Springer, 2004: 66-73.
-
(2004)
33rd Hemophilia Symposion Hamburg 2002
, pp. 66-73
-
-
Seuser, A.1
Kurme, A.2
Wallny, T.3
Trunz-Carlisi, E.4
Ochs, S.5
Brackmann, H.H.6
-
35
-
-
0242350525
-
Young people's socialisation into sport: a case study of an athletics club
-
MacPhail A, Gorley T, Kirk D. Young people's socialisation into sport: a case study of an athletics club. Sport Educ Soc 2003; 8: 251-67.
-
(2003)
Sport Educ Soc
, vol.8
, pp. 251-267
-
-
MacPhail, A.1
Gorley, T.2
Kirk, D.3
-
36
-
-
0030013165
-
Sports and haemophilia: antagonist or protagonist
-
Buzzard B. Sports and haemophilia: antagonist or protagonist. Clin Orthop Relat Res 1996; 328: 25-30.
-
(1996)
Clin Orthop Relat Res
, vol.328
, pp. 25-30
-
-
Buzzard, B.1
-
37
-
-
11044229061
-
Risks and benefits of sports and fitness activities for people with haemophilia
-
Mulder K, Cassis F, Seuser A, Narayan P, Dalzell R, Poulsen W. Risks and benefits of sports and fitness activities for people with haemophilia. Haemophilia 2004; 10: 161-3.
-
(2004)
Haemophilia
, vol.10
, pp. 161-163
-
-
Mulder, K.1
Cassis, F.2
Seuser, A.3
Narayan, P.4
Dalzell, R.5
Poulsen, W.6
-
38
-
-
62149133452
-
Haemophilia care in adolescents-compliance and lifestyle issues
-
Petrini P, Seuser A. Haemophilia care in adolescents-compliance and lifestyle issues. Haemophilia 2009; 15 (Suppl 1): 15-9.
-
(2009)
Haemophilia
, vol.15
, Issue.SUPPL. 1
, pp. 15-19
-
-
Petrini, P.1
Seuser, A.2
-
39
-
-
34447127749
-
Orthopaedic issues in sports for persons with haemophilia
-
Seuser A, Boehm P, Kurme A, Schumpe G, Kurnik K. Orthopaedic issues in sports for persons with haemophilia. Haemophilia 2007; 13(Suppl 2): 47-52.
-
(2007)
Haemophilia
, vol.13
, Issue.SUPPL. 2
, pp. 47-52
-
-
Seuser, A.1
Boehm, P.2
Kurme, A.3
Schumpe, G.4
Kurnik, K.5
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