The Transition of Adolescents with Chronic Respiratory Illness to Adult Care

Paediatric Respiratory Reviews

Volumn 13, Issue 4, 2012, Pages 230-235

  Srivastava, Shelley A ^a   Elkin, Sarah L ^b   Bilton, Diana ^c  

^a IMPERIAL COLLEGE HEALTHCARE NHS TRUST   (United Kingdom)

^b ST MARY S HOSPITAL   (United Kingdom)

^c ROYAL BROMPTON HOSPITAL   (United Kingdom)

Author keywords

Adolescent; Chronic disease; Chronic illness; Respiratory; Transition

Indexed keywords

ADOLESCENT DISEASE; BREATHING EXERCISE; CHRONIC RESPIRATORY TRACT DISEASE; DOCTOR PATIENT RELATION; HEALTH INSURANCE; HEALTH PRACTITIONER; HEALTH PROGRAM; HUMAN; NATIONAL HEALTH SERVICE; PATIENT CARE; PATIENT EDUCATION; PHYSICIAN ATTITUDE; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; REVIEW; SOCIAL LIFE; TEAMWORK;

ADOLESCENT; CYSTIC FIBROSIS; HUMANS; TRANSITION TO ADULT CARE; YOUNG ADULT;

EID: 84867627473     PISSN: 15260542     EISSN: 15260550     Source Type: Journal    
DOI: 10.1016/j.prrv.2012.05.004     Document Type: Review

References (48)

1. Department of Health National Service Framework for Children Report. Transition: getting it right for young people. 2006.
2. Michaud PA, Suris JC, Viner R. World Health Organisation Report. The adolescent with a chronic conditon. 2007.
3. Bryon M., Madge S. Transition from paediatric to adult care: psychological principles. J R Soc Med 2001, 94(suppl 40):5-7.
4. Britto M.T., Garrett J.M., Dugliss M.A.J., et al. Risky Behavior in Teens With Cystic Fibrosis or Sickle Cell Disease: A Multicenter Study. Pediatrics 1998, 101:250-256.
5. McDonagh J.E. Growing up and moving on: Transition from pediatric to adult care. Pediatr Transplant 2005, 9:364-372.
6. Leak A.M. Improving adolescent rheumatology services in the UK. Rheumatology 2000, 39:575-579.
7. Blum R.W. Transition to adult health care: Setting the stage. J Adolesc Health 1995, 17:3-5.
8. Watson A.R. Problems and pitfalls of transition from paediatric to adult renal care. Pediatr Nephrol 2005, 20:113-117.
9. Carroll Gl, Massarelli E., Opzoomer A., et al. Adolescents with chronic disease: Are they receiving comprehensive health care?. J Adolesc Health 1983, 4:261-265.
10. Suris J.C., Parera N., Puig C. Chronic illness and emotional distress in adolescence. J Adolesc Health 1996, 19:153-156.
11. Goldenring J., Rosen D. Getting into adolescent heads: an essential update. Contemp Pediatr 2004, 21:64-90.
12. McDonagh J.E. Young people first, juvenile idiopathic arthritis second: Transitional care in rheumatology. Arthritis Rheum 2008, 59:1162-1170.
13. Viner R.M. Transition of care from paediatric to adult services: one part of improved health services for adolescents. Arch Dis Child 2008, 93:160-163.
14. American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, American Society of Internal Medicine. A Consensus Statement on Health Care Transitions for Young Adults With Special Health Care Needs. Pediatrics 2002; 110:1304-1306.
15. Somerville J. Management of adults with congenital heart disease: an increasing problem. Annu Rev Med 1997, 48:283-293.
16. Watson A.R. Non-compliance and transfer from paediatric to adult transplant unit. Pediatr Nephrol 2000, 14:469-472.
17. Kipps S., Bahu T., Ong K., et al. Current methods of transfer of young people with Type 1 diabetes to adult services. Diabet Med 2002, 19:649-654.
18. Insabella G., Grey M., Knafl G., Tamborlane W. The transition to young adulthood in youth with type 1 diabetes on intensive treatment. Pediatr Diabetes 2007, 8:228-234.
19. Dugueperoux I., Tamalet A., Sermet-Gaudelus I., et al. Clinical changes of patients with cystic fibrosis during transition from pediatric to adult care. J Adolesc Health 2008, 43:459-465.
20. Maturo D., Powell A., Major-Wilson H., Sanchez K., De Santis J.P., Friedman L.B. Development of a protocol for transitioning adolescents with HIV infection to adult care. J Pediatr Health Care 2011, 25:16-23.
21. Gortmaker S.L., Perrin J.M., Weitzman M., Homer C.J., Sobol A.M. An Unexpected Success Story: Transition to Adulthood in Youth With Chronic Physical Health Conditions. J Res Adolesc 1993, 3:317-336.
22. Maslow G.R., Haydon A.A., Ford C.A., Halpern C.T. Young adult outcomes of children growing up with chronic illness: an analysis of the National Longitudinal Study of Adolescent Health. Arch Pediatr Adolesc Med 2011, 165:256-261.
23. Hagood J.S., Lenker C.V., Thrasher S. A course on the transition to adult care of patients with childhood-onset chronic illnesses. Acad Med 2005, 80:352-355.
24. Suris J.C. Global trends of young people with chronic and disabling conditions. J Adolesc Health 1995, 17:17-22.
25. McDonagh J.E. Transition of care from paediatric to adult rheumatology. Arch Dis Child 2007, 92:802-807.
26. Reiss J.G., Gibson R.W., Walker L.R. Health care transition: youth, family, and provider perspectives. Pediatrics 2005, 115:112-120.
27. Hudsmith L.E., Thorne S.A. Transition of care from paediatric to adult services in cardiology. Arch Dis Child 2007, 92:927-930.
28. Zack J., Jacobs C.P., Keenan P.M., et al. Perspectives of patients with cystic fibrosis on preventive counseling and transition to adult care. Pediatr Pulmonol 2003, 36:376-383.
29. McDonagh J.E., Walker V., Foulerton M., Robertson L., Gupta K., Diwakar V. Young people: lost in transition. Arch Dis Child 2006, 91:201.
30. Helms P. The adolescent with respiratory disease. J R Coll Physicians Lond 2000, 34:134-137.
31. Boyle M.P., Farukhi Z., Nosky M.L. Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views. Pediatr Pulmonol 2001, 32:428-436.
32. Flume P.A., Taylor L.A., Anderson D.L., Gray S., Turner D. Transition programs in cystic fibrosis centers: perceptions of team members. Pediatr Pulmonol 2004, 37:4-7.
33. Lotstein D.S., McPherson M., Strickland B., Newacheck P.W. Transition planning for youth with special health care needs: results from the National Survey of Children with Special Health Care Needs. Pediatrics 2005, 115:1562-1568.
34. Jordan A., McDonagh J.E. Transition: getting it right for young people. Clin Med 2006, 6:497-500.
35. Wallis C. Transition of care in children with chronic disease. BMJ 2007, 334:1231-1232.
36. Webb A.K., Jones A.W., Dodd M.E. Transition from paediatric to adult care: problems that arise in the adult cystic fibrosis clinic. J R Soc Med 2001, 94(suppl 40):8-11.
37. Scal P. Transition for youth with chronic conditions: primary care physicians' approaches. Pediatrics 2002, 110:1315-1321.
38. David T.J. Transition from the paediatric clinic to the adult service. J R Soc Med 2001, 94:373-374.
39. Department of Health, Department for Children, and Schools and Families. Healthy lives, brighter futures: The strategy for children and young people's health Report. 2009.
40. Tuchman L.K., Slap G.B., Britto M.T. Transition to adult care: experiences and expectations of adolescents with a chronic illness. Child Care Health Dev 2008, 34:557-563.
41. Shaw K.L., Southwood T.R., McDonagh J.E. Young people's satisfaction of transitional care in adolescent rheumatology in the UK. Child Care Health Dev 2007, 33:368-379.
42. Britto M.T., Tivorsak T.L., Slap G.B. Adolescents' needs for health care privacy. Pediatrics 2010, 126:e1469-e1476.
43. Bolton-Maggs P.H. Transition of care from paediatric to adult services in haematology. Arch Dis Child 2007, 92:797-801.
44. Landau L.I. Cystic fibrosis: transition from paediatric to adult physician's care. Thorax 1995, 50:1031-1032.
45. Van Walleghem N., MacDonald C.A., Dean H.J. Evaluation of a Systems Navigator Model for Transition From Pediatric to Adult Care for Young Adults With Type 1 Diabetes. Diabetes Care 2008, 31:1529-1530.
46. American Thoracic Society Documents Statement on the Care of the Child with Chronic Lung Disease of Infancy and Childhood. Am J Respir Crit Care Med 2003, 168:356-396.
47. Crowley R., Wolfe I., Lock K., McKee M. Improving the transition between paediatric and adult healthcare: a systematic review. Arch Dis Child 2011, 96:548-553.
48. Bent N., Tennant A., Swift T., Posnett J., Scuffham P., Chamberlain M.A. Team approach versus ad hoc health services for young people with physical disabilities: a retrospective cohort study. Lancet 2002, 360:1280-1286.