Examination of risk and resiliency in a pediatric sickle cell disease population using the psychosocial assessment tool 2.0

Journal of Pediatric Psychology

Volumn 37, Issue 9, 2012, Pages 1031-1040

  Karlson, Cynthia W ^a   Leist Haynes, Stacey ^a   Smith, Maria ^a   Faith, Melissa A ^a   Elkin, T David ^a   Megason, Gail ^a  

^a UNIVERSITY OF MISSISSIPPI SCHOOL OF MEDICINE   (United States)

Author keywords

caregiver; longitudinal; psychosocial adjustment; risk factors; sibling; sickle cell disease

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ARTICLE; CAREGIVER; CHILD; COPING BEHAVIOR; FAMILY; FEMALE; HUMAN; INFANT; MALE; MENTAL STRESS; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; REPRODUCIBILITY; SICKLE CELL ANEMIA; SOCIAL SUPPORT;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ANEMIA, SICKLE CELL; CAREGIVERS; CHILD; CHILD, PRESCHOOL; FAMILY; FEMALE; HUMANS; INFANT; MALE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; RESILIENCE, PSYCHOLOGICAL; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL;

EID: 84866949416     PISSN: 01468693     EISSN: 1465735X     Source Type: Journal    
DOI: 10.1093/jpepsy/jss087     Document Type: Article

References (37)

1. Adam, E. K., & Chase-Lansdale, P. L. (2002). Home sweet home(s): Parental separations, residential moves, and adjustment problems in low-income adolescent girls. Developmental Psychology, 38, 792-805. doi:10.1037/0012-1649. 38.5.792.
2. Barakat, L. P., & Alderfer, M. A. (2011). Introduction to special issue: Advancing the science of family assessment in pediatric psychology. Journal of Pediatric Psychology, 36, 489-493. doi:10.1093/jpepsy/jsq110.
3. Barakat, L. P., Lash, L., Lutz, L. M., & Nicolaou, D. C. (2006). Psychosocial adaptation of children and adolescents with sickle cell disease. In R. T. Brown (Ed.), Comprehensive handbook of childhood cancer and sickle cell disease: A biopsychosocial approach (pp. 471-495). New York, NY: Oxford University Press.
4. Bediako, S. M. (2009). Psychosocial aspects of sickle cell disease: A primer for African American psychologists. In H. Neville, B. Tynes, & S. Utsey (Eds.), Handbook of African American psychology, (pp. 417-427). Thousand Oaks, CA: Sage.
5. Berry, J. G., Bloom, S., Foley, S., & Palfrey, J. S. (2010). Health inequity in children and youth with chronic health conditions. Pediatrics, 126(3 Suppl), 111-119. doi:10.1542/peds.2010-1466D.
6. Boulet, S. L., Yanni, E. A., Creary, M. S., & Olney, R. S. (2010). Health status and healthcare use in a national sample of children with sickle cell disease. American Journal of Preventative Medicine, 38(4 Suppl), S528-S535. doi:10.1016/j.amepre.2010.01.003.
7. Boyd-Franklin, N. (2003). Black families in therapy: Understanding the African American experience (2nd ed.). New York, NY: Guilford Press.
8. Brawley, O. W., Cornelius, L. J., Edwards, L. R., Gamble, V.N., Green, B.L., Inturrisi, C.,. Schori, M. (2008). National Institute of Health consensus developmental conference statement: Hydroxyurea treatment for sickle cell disease. Annals of Internal Medicine, 148, 932-938. (Pubitemid 351860825)
9. Brody, G. H., Stoneman, Z., & Burke, M. (1987). Child temperaments, maternal differential behavior, and sibling relationships. Developmental Psychology, 23, 354-362. doi:10.1037/0012-1649.23.3.354.
10. Brown, R. T., Eckman, J., Baldwin, K., Buchanan, I., & Dingle, A. D. (1995). Protective aspects of adaptive behavior in children with sickle cell syndromes. Children's Health Care, 24, 205-222. doi:10.1207/s15326888chc2404-1.
11. Brown, R. T., Lambert, R., Devine, D., Baldwin, K., Casey, R., Doepke, K.,. Eckman, J. (2000). Risk-resistance adaptation model for caregivers and their children with sickle cell syndromes. Annuals of Behavior Medicine, 22, 158-169. doi:10.1007/BF02895780. (Pubitemid 32429381)
12. Caldwell-Colbert, A. T., Parks, F. M., & Eshun, S. (2009). Positive psychology: African American strengths, resilience, and protective factors. In H. A. Neville, B. M. Tynes, & S. O. Utsey (Eds.), Handbook of African American psychology (pp. 375-384). Thousand Oaks, CA: Sage.
13. Cohen, L. L., La Greca, A. M., Blount, R. L., Kazak, A. E., Holmbeck, G. N., & Lemanek, K. L. (2008). Introduction to the special issue: Evidence-based assessment in pediatric psychology [Special issue]. Journal of Pediatric Psychology, 33, 911-915. doi:10.1093/jpepsy/jsj115.
14. Corbie-Smith, G., Thomas, S. B., & George, D. M. (2002). Distrust, race, and research. Archives of Internal Medicine, 162, 2458-2460. doi:10.001/archinte.162.21.2458.
15. Gil, K. M., Porter, L., Ready, J., Workman, E., Sedway, J., & Anthony, K. K. (2000). Pain in children and adolescents with sickle cell disease: An analysis of daily pain diaries. Children's Health Care, 29, 225-241. doi:10.1207/S15326888CHC2904-1.
16. Gold, J. I., Treadwell, M., Weissman, L., & Vichinsky, E. (2011). The mediating effects of family functioning on psychosocial outcomes in healthy siblings of children with sickle cell disease. Pediatric Blood and Cancer, 57, 1055-1061. doi:10.1002/pbc.22933.
17. Goldstein, H. (1986). Multilevel mixed linear model analysis using interative generalized least squares. Biometrika, 73, 43-56.
18. Hijmans, C. T., Fijnvandraat, K., Oosterlaan, J., Heijboer, H., Peters, M., & Grootenhuis, M. A. (2010). Double disadvantage: A case control study on health-related quality of life in children with sickle cell disease. Health and Quality of Life Outcomes, 8, 1-8. doi:10.1186/1477-7525-8-121.
19. Hoff, A. L., Palermo, T. M., Schluchter, M., Zebracki, K., & Drotar, D. (2006). Longitudinal relationships of depressive symptoms to pain intensity and functional disability among children with disease-related pain. Journal of Pediatric Psychology, 31, 1046-1056. doi: 10.1093/jpepsy/jsj076. (Pubitemid 44729850)
20. Jöreskog, K. G., & Sörbom, D. (1996). LISREL 8 user's reference guide. Uppsala, Sweden: Scientific Software International.
21. Kahana, S. Y., Feeny, N. C., Youngstrom, E. A., & Drotar, D. (2006). Posttraumatic stress in youth experiencing illnesses and injuries: An exploratory meta-analysis. Traumatology, 12, 148-161. doi: 10.1177/ 1534765606294562.
22. Kazak, A., Rourke, M., & Crump, T. (2003). Families and other systems in pediatric psychology. In M. Roberts (Ed.), Handbook of pediatric psychology (3rd ed., pp. 159-175). New York: Guilford.
23. Kazak, A. E., Cant, M. C., Jensen, M. M., McSherry, M., Rourke, M. T., Hwang, W. T.,. Lange, B. J. (2003). Identifying psychosocial risk indicative of subsequent resource use in families of newly diagnosed pediatric oncology patients. Journal of Clinical Oncology, 21, 3220-3225. doi:10.1200/JCO.2003.12. 156. (Pubitemid 46606253)
24. Lemanek, K. L., & Renalli, M. (2009). Sickle cell disease. In M. C. Roberts, & R. G. Steele (Eds.), Handbook of pediatric psychology (4th ed., pp. 303-318). New York: Guilford.
25. Longford, N. T. (1987). A fast scoring algorithm for maximum likelihood estimation in unbalances mixed models with nested random effects. Biometrika, 74(4), 817-827.
26. Majumdar, S., Robertson, Z., Robinson, A., Starnes, S., Iyer, R., & Megason, G. C. (2010). Outcome of hematopoietic cell transplantation in children with sickle cell disease, a single center's experience. Bone Marrow Transplant, 45, 895-900. doi:10.1038/bmt.2009.244.
27. Mitchell, M. J., Patterson, C. A., & Boyd-Franklin, N. (2011). Increasing cultural diversity in pediatric psychology family assessment research. Journal of Pediatric Psychology, 36, 634-641. doi:10.1093/jpepsy/ jsr019.
28. Mvundura, M., Amendah, D., Kavanagh, P. L., Sprinz, P. G., & Grosse, S. D. (2009). Health care utilization and expenditures for privately and publicly insured children with sickle cell disease in the United States. Pediatric Blood and Cancer, 53, 642-646. doi:10.1002/pbc.22069.
29. National Center for Biotechnology Information. (2011). Anemia, sickle cell. Genes and Disease (Publication No. NBK22238). Bethesda, MD: National Center for Biotechnology Information. Retrieved from http://www.ncbi.nlm.nih. gov/books/NBK22238/.
30. Oliver-Carpenter, G., Barach, I., Crosby, L. E., Valenzuela, J., & Mitchell, M. J. (2011). Disease management, coping, and functional disability in pediatric sickle cell disease. Journal of the National Medical Association, 103, 131-137.
31. Pai, A. L., Tackett, A., Ittenbach, R. F., & Goebel, J. (2012). Psychosocial assessment tool 2.0-General: Validity of a psychosocial risk screener in a pediatric kidney transplant sample. Pediatric Transplantation, 16, 92-98. doi:10.1111/j.1399-3046.2011.01620.x.
32. Pai, A. L. H., Patino-Fernandez, A. M., McSherry, M., Beele, D., Alderfer, M. A., Reilly, A. T.,. Kazak, A. E. (2008). The psychosocial assessment tool (PAT2.0): Psychometric properties of a screener for psychosocial distress in families of children newly diagnosed with cancer. Journal of Pediatric Psychology, 33, 50-62. doi:10.1093/jpepsy/jsm053.
33. Smetana, J. G., Campione-Barr, N., & Metzger, A. (2006). Adolescent development in interpersonal and societal contexts. Annual Review of Psychology, 57, 255-284. (Pubitemid 43239578)
34. Sue, D., & Sue, D. (2008). Counseling the culturally diverse: Theory and practice. New Jersey: Wiley & Sons.
35. Tabachnick, B. G., & Fidell, L. S. (2007). Using multivariate statistics, (5th ed.). Boston: Allyn and Bacon.
36. Thompson, R. J., Armstrong, F. D., Kronenberger, W. G., Scott, D., McCabe, M. A., Smith, B., & Wright, E. (1999). Family functioning, neurocognitive functioning, and behavior problems in children with sickle cell disease. Journal of Pediatric Psychology, 24, 491-498. doi:10.1093/jpepsy/24.6. 491.
37. Varner, F., & Mandara, J. (2009). Marital transitions and changes in African American mothers' depressive symptoms: The buffering role of financial resources. Journal of Family Psychology, 23, 839-847. doi: 10.1037/a0017007.