-
1
-
-
0023644113
-
Newborn screening for sickle cell disease and other hemoglobinopathies
-
Consensus conference
-
Consensus conference. Newborn screening for sickle cell disease and other hemoglobinopathies. JAMA 1987; 258: 1205-1209.
-
(1987)
JAMA
, vol.258
, pp. 1205-1209
-
-
-
2
-
-
0026275459
-
Teaching both the management and the molecular biology of sickle cell disease
-
Charache S, Davies S. Teaching both the management and the molecular biology of sickle cell disease. Acad Med 1991; 66: 748-749.
-
(1991)
Acad Med
, vol.66
, pp. 748-749
-
-
Charache, S.1
Davies, S.2
-
3
-
-
23844518974
-
A brief review of the pathophysiology, associated pain, and psychosocial issues in sickle cell disease
-
Edwards CL, Scales MT, Loughlin C, et al. A brief review of the pathophysiology, associated pain, and psychosocial issues in sickle cell disease. Int J Behav Med 2005; 12: 171-179.
-
(2005)
Int J Behav Med
, vol.12
, pp. 171-179
-
-
Edwards, C.L.1
Scales, M.T.2
Loughlin, C.3
-
5
-
-
21344450307
-
Psychological complications in sickle cell disease
-
Anie KA. Psychological complications in sickle cell disease. Br J Haematol 2005; 129: 723-729.
-
(2005)
Br J Haematol
, vol.129
, pp. 723-729
-
-
Anie, K.A.1
-
6
-
-
0028132001
-
Scholastic performance of children with sickle cell disease
-
Nettles AL. Scholastic performance of children with sickle cell disease. J Health Soc Policy 1994; 5: 123-140.
-
(1994)
J Health Soc Policy
, vol.5
, pp. 123-140
-
-
Nettles, A.L.1
-
7
-
-
33644869771
-
The psychosocial well-being of children with chronic disease, their parents and siblings: An overview of the research evidence base
-
Barlow JH, Ellard DR. The psychosocial well-being of children with chronic disease, their parents and siblings: An overview of the research evidence base. Child Care Health Dev 2006; 32: 19-31.
-
(2006)
Child Care Health Dev
, vol.32
, pp. 19-31
-
-
Barlow, J.H.1
Ellard, D.R.2
-
8
-
-
0027256413
-
Psychosocial and family functioning in children with sickle cell syndrome and their mothers
-
Brown RT, Kaslow NJ, Doepke K, et al. Psychosocial and family functioning in children with sickle cell syndrome and their mothers. J Am Acad Child Adolesc Psychiatry 1993; 32: 545-553.
-
(1993)
J Am Acad Child Adolesc Psychiatry
, vol.32
, pp. 545-553
-
-
Brown, R.T.1
Kaslow, N.J.2
Doepke, K.3
-
9
-
-
0036616656
-
Parental report of health-related quality of life in children with sickle cell disease
-
Palermo TM, Schwartz L, Drotar D, McGowan K. Parental report of health-related quality of life in children with sickle cell disease. J Behav Med 2002; 25: 269-283.
-
(2002)
J Behav Med
, vol.25
, pp. 269-283
-
-
Palermo, T.M.1
Schwartz, L.2
Drotar, D.3
McGowan, K.4
-
10
-
-
80052651537
-
-
Family adaptation to the diagnosis of sickle cell disease: quantitative and qualitative perspectives.
-
Treadwell M, Gold JI, Weissman L, Barnes M, Vichinsky E. Family adaptation to the diagnosis of sickle cell disease: quantitative and qualitative perspectives. 1995.
-
(1995)
-
-
Treadwell, M.1
Gold, J.I.2
Weissman, L.3
Barnes, M.4
Vichinsky, E.5
-
11
-
-
0029021617
-
Social competence of siblings of children with sickle cell anemia
-
Noll RB, Yosua LA, Vannatta K, Kalinyak K, Bukowski WM, Davies WH. Social competence of siblings of children with sickle cell anemia. J Pediatr Psychol 1995; 20: 165-172.
-
(1995)
J Pediatr Psychol
, vol.20
, pp. 165-172
-
-
Noll, R.B.1
Yosua, L.A.2
Vannatta, K.3
Kalinyak, K.4
Bukowski, W.M.5
Davies, W.H.6
-
13
-
-
0036893241
-
Siblings of children with a chronic illness: a meta-analysis
-
Sharpe D, Rossiter L. Siblings of children with a chronic illness: a meta-analysis. J Pediatr Psychol 2002; 27: 699-710.
-
(2002)
J Pediatr Psychol
, vol.27
, pp. 699-710
-
-
Sharpe, D.1
Rossiter, L.2
-
14
-
-
0023895806
-
Psychosocial adaptation of siblings of children with chronic medical illnesses
-
Tritt SG, Esses LM. Psychosocial adaptation of siblings of children with chronic medical illnesses. Am J Orthopsychiatry 1988; 58: 211-220.
-
(1988)
Am J Orthopsychiatry
, vol.58
, pp. 211-220
-
-
Tritt, S.G.1
Esses, L.M.2
-
15
-
-
0026228322
-
Siblings of chronically ill children: a question of vulnerability versus resilience
-
505-506.
-
Leonard BJ. Siblings of chronically ill children: a question of vulnerability versus resilience. Pediatr Ann 1991; 20: 501-502, 505-506.
-
(1991)
Pediatr Ann
, vol.20
, pp. 501-502
-
-
Leonard, B.J.1
-
16
-
-
0030114918
-
Impact of a chronic illness in childhood: siblings' perceptions
-
Derouin D, Jessee PO. Impact of a chronic illness in childhood: siblings' perceptions. Issues Compr Pediatr Nurs 1996; 19: 135-147.
-
(1996)
Issues Compr Pediatr Nurs
, vol.19
, pp. 135-147
-
-
Derouin, D.1
Jessee, P.O.2
-
17
-
-
0023251429
-
Psychosocial risk and resistance factors among children with chronic illness, healthy siblings, and healthy controls
-
Daniels D, Moos RH, Billings AG, Miller JJ. Psychosocial risk and resistance factors among children with chronic illness, healthy siblings, and healthy controls. J Abnorm Child Psychol 1987; 15: 295-308.
-
(1987)
J Abnorm Child Psychol
, vol.15
, pp. 295-308
-
-
Daniels, D.1
Moos, R.H.2
Billings, A.G.3
Miller, J.J.4
-
18
-
-
0022345285
-
Psychological adaptation of siblings of chronically ill children: research and practice implications
-
Drotar D, Crawford P. Psychological adaptation of siblings of chronically ill children: research and practice implications. J Dev Behav Pediatr 1985; 6: 355-362.
-
(1985)
J Dev Behav Pediatr
, vol.6
, pp. 355-362
-
-
Drotar, D.1
Crawford, P.2
-
19
-
-
0024389489
-
Family resources as resistance factors for psychological maladjustment in chronically ill and handicapped children
-
Wallander JL, Varni JW, Babani L, Banis HT, Wilcox KT. Family resources as resistance factors for psychological maladjustment in chronically ill and handicapped children. J Pediatr Psychol 1989; 14: 157-173.
-
(1989)
J Pediatr Psychol
, vol.14
, pp. 157-173
-
-
Wallander, J.L.1
Varni, J.W.2
Babani, L.3
Banis, H.T.4
Wilcox, K.T.5
-
20
-
-
85046521375
-
Role of child and maternal processes in the psychological adjustment of children with sickle cell disease
-
Thompson RJ, Gil KM, Burbach DJ, Keith BR, Kinney TR. Role of child and maternal processes in the psychological adjustment of children with sickle cell disease. J Consult Clin Psychol 1993; 61: 468-474.
-
(1993)
J Consult Clin Psychol
, vol.61
, pp. 468-474
-
-
Thompson, R.J.1
Gil, K.M.2
Burbach, D.J.3
Keith, B.R.4
Kinney, T.R.5
-
21
-
-
33644632652
-
Applying the transactional stress and coping model to sickle cell disorder and insulin-dependent diabetes mellitus: identifying psychosocial variables related to adjustment and intervention
-
Hocking MC, Lochman JE. Applying the transactional stress and coping model to sickle cell disorder and insulin-dependent diabetes mellitus: identifying psychosocial variables related to adjustment and intervention. Clin Child Fam Psychol Rev 2005; 8: 221-246.
-
(2005)
Clin Child Fam Psychol Rev
, vol.8
, pp. 221-246
-
-
Hocking, M.C.1
Lochman, J.E.2
-
23
-
-
0001039454
-
Protective aspects of adaptive behavior in childrenwith sickle cell syndromes
-
Brown RT, Eckman J, Baldwin K, Buchanan I, Dingle AD. Protective aspects of adaptive behavior in childrenwith sickle cell syndromes. Child Health Care 1995; 24: 205-222.
-
(1995)
Child Health Care
, vol.24
, pp. 205-222
-
-
Brown, R.T.1
Eckman, J.2
Baldwin, K.3
Buchanan, I.4
Dingle, A.D.5
-
24
-
-
33644842730
-
A longitudinal examination predicting emergency room use in children with sickle cell disease and their caregivers
-
Brown RT, Connelly M, Rittle C, Clouse B. A longitudinal examination predicting emergency room use in children with sickle cell disease and their caregivers. J Pediatr Psychol 2006; 31: 163-173.
-
(2006)
J Pediatr Psychol
, vol.31
, pp. 163-173
-
-
Brown, R.T.1
Connelly, M.2
Rittle, C.3
Clouse, B.4
-
25
-
-
0344286145
-
Family functioning, neurocognitive functioning and behavior problems in children with sickle cell disease
-
Thompson RJJ, Armstrong fD, Kronenberger WG, et al. Family functioning, neurocognitive functioning and behavior problems in children with sickle cell disease. J Pediatr Psychol 1999; 24: 491-498.
-
(1999)
J Pediatr Psychol
, vol.24
, pp. 491-498
-
-
Thompson, R.J.J.1
Armstrong, fD.2
Kronenberger, W.G.3
-
26
-
-
0037231785
-
A prospective study of the relationship over time of behavior problems, intellectual functioning, and family functioning in children with sickle cell disease: a report from the cooperative study of sickle cell disease
-
Thompson RJ Jr, Armstrong FD, Link CL, Pegelow CH, Moser F, Wang WC. A prospective study of the relationship over time of behavior problems, intellectual functioning, and family functioning in children with sickle cell disease: a report from the cooperative study of sickle cell disease. J Pediatr Psychol 2003; 28: 59-65.
-
(2003)
J Pediatr Psychol
, vol.28
, pp. 59-65
-
-
Thompson Jr, R.J.1
Armstrong, F.D.2
Link, C.L.3
Pegelow, C.H.4
Moser, F.5
Wang, W.C.6
-
27
-
-
44949250013
-
An expanded transactional stress and coping model for siblings of children with sickle cell disease: family functioning and sibling coping, self-efficacy, and perceived social support
-
Gold JI, Treadwell M, Weissman L, Vichinsky E. An expanded transactional stress and coping model for siblings of children with sickle cell disease: family functioning and sibling coping, self-efficacy, and perceived social support. Child Care Health Dev 2008; 34: 491-502.
-
(2008)
Child Care Health Dev
, vol.34
, pp. 491-502
-
-
Gold, J.I.1
Treadwell, M.2
Weissman, L.3
Vichinsky, E.4
-
28
-
-
0022085040
-
A factor analysis of self-report measures of family functioning
-
Bloom BL. A factor analysis of self-report measures of family functioning. Fam Process 1985; 24: 225-239.
-
(1985)
Fam Process
, vol.24
, pp. 225-239
-
-
Bloom, B.L.1
-
31
-
-
0003507362
-
-
Burlington, VT: Department of Psychiatry, University of Vermont.
-
Achenbach TM. Integrative: guide for the, 1991 CBCL/4-18, YSR, and TRF profiles. Burlington, VT: Department of Psychiatry, University of Vermont; 1991.
-
(1991)
Integrative: guide for the, 1991 CBCL/4-18, YSR, and TRF profiles
-
-
Achenbach, T.M.1
-
34
-
-
0023020183
-
The moderator-mediator variable distinction in social psychological research: conceptual, strategic, and statistical considerations
-
Baron RM, Kenny DA. The moderator-mediator variable distinction in social psychological research: conceptual, strategic, and statistical considerations. J Pers Soc Psychol 1986; 51: 1173-1182.
-
(1986)
J Pers Soc Psychol
, vol.51
, pp. 1173-1182
-
-
Baron, R.M.1
Kenny, D.A.2
-
35
-
-
0036782806
-
Interrelationships among variables affecting well siblings and mothers in families of children with a chronic illness or disability
-
Williams PD, Williams AR, Graff JC, et al. Interrelationships among variables affecting well siblings and mothers in families of children with a chronic illness or disability. J Behav Med 2002; 25: 411-424.
-
(2002)
J Behav Med
, vol.25
, pp. 411-424
-
-
Williams, P.D.1
Williams, A.R.2
Graff, J.C.3
-
36
-
-
0036892727
-
Integrated sibling-parent group intervention to improve sibling knowledge and adjustment to chronic illness and disability
-
Lobato DJ, Kao BT. Integrated sibling-parent group intervention to improve sibling knowledge and adjustment to chronic illness and disability. J Pediatr Psychol 2002; 27: 711-716.
-
(2002)
J Pediatr Psychol
, vol.27
, pp. 711-716
-
-
Lobato, D.J.1
Kao, B.T.2
-
37
-
-
52449111859
-
Evidence-based assessment in pediatric psychology: family measures
-
Alderfer MA, Fiese B, Gold JI, et al. Evidence-based assessment in pediatric psychology: family measures. J Pediatr Psychol 2007; 33: 1046-1061.
-
(2007)
J Pediatr Psychol
, vol.33
, pp. 1046-1061
-
-
Alderfer, M.A.1
Fiese, B.2
Gold, J.I.3
-
38
-
-
80052681910
-
-
Starlight StarbrightTM Children's Foundation. The sickle cell slime-O-rama game. Available at: [Accessed on May 3, 2007].
-
Starlight StarbrightTM Children's Foundation. The sickle cell slime-O-rama game. Available at: [Accessed on May 3, 2007].
-
-
-
-
39
-
-
27644568571
-
Brief report: family-based group intervention for young siblings of children with chronic illness and developmental disability
-
Lobato DJ, Kao BT. Brief report: family-based group intervention for young siblings of children with chronic illness and developmental disability. J Pediatr Psychol 2005; 30: 678-682.
-
(2005)
J Pediatr Psychol
, vol.30
, pp. 678-682
-
-
Lobato, D.J.1
Kao, B.T.2
-
40
-
-
33748502963
-
The effectiveness of a peer support camp for siblings of children with cancer
-
Sidhu R, Passmore A, Baker D. The effectiveness of a peer support camp for siblings of children with cancer. Pediatr Blood Cancer 2006; 47: 580-588.
-
(2006)
Pediatr Blood Cancer
, vol.47
, pp. 580-588
-
-
Sidhu, R.1
Passmore, A.2
Baker, D.3
-
41
-
-
33749682820
-
Fostering resilience in siblings of youths with a chronic health condition: a review of the literature
-
Bellin MH, Kovacs P. Fostering resilience in siblings of youths with a chronic health condition: a review of the literature. Health Soc Work 2006; 31: 209-221.
-
(2006)
Health Soc Work
, vol.31
, pp. 209-221
-
-
Bellin, M.H.1
Kovacs, P.2
-
42
-
-
84925982286
-
CHIP-coping health inventory for parents: an assessment of parental coping patterns in the care of the chronically Ill child
-
McCubbin HI, McCubbin MA, Patterson JM, Cauble AE, Wilson LR, Warwick W. 1983; CHIP-coping health inventory for parents: an assessment of parental coping patterns in the care of the chronically Ill child. J Marriage Fam 45: 359-370.
-
(1983)
J Marriage Fam
, vol.45
, pp. 359-370
-
-
McCubbin, H.I.1
McCubbin, M.A.2
Patterson, J.M.3
Cauble, A.E.4
Wilson, L.R.5
Warwick, W.6
-
43
-
-
0024225354
-
Development of a brief coping checklist for use with pediatric populations
-
Spirito A, Stark LJ, Williams C. 1988; Development of a brief coping checklist for use with pediatric populations. J Pediatr Psychol 13: 555-574.
-
(1988)
J Pediatr Psychol
, vol.13
, pp. 555-574
-
-
Spirito, A.1
Stark, L.J.2
Williams, C.3
-
44
-
-
34248569229
-
Assessment of children's self-efficacy for social interactions with peers
-
Wheeler VA, Ladd GW. 1982; Assessment of children's self-efficacy for social interactions with peers. Dev Psychol 18: 795-805.
-
(1982)
Dev Psychol
, vol.18
, pp. 795-805
-
-
Wheeler, V.A.1
Ladd, G.W.2
|