Governance of stem cell research: Public participation and decision-making in China, Japan, South Korea and Taiwan

Social Studies of Science

Volumn 42, Issue 5, 2012, Pages 684-708

  Sleeboom Faulkner, Margaret ^a   Hwang, Seyoung ^b  

^a UNIVERSITY OF SUSSEX   (United Kingdom)

^b Seoul National University   (South Korea)

Author keywords

East Asia; governance; public engagement; stem cell research

Indexed keywords

ARTICLE; BIOETHICS; CONSUMER; CULTURAL FACTOR; DECISION MAKING; EMBRYONIC STEM CELL; FAR EAST; HUMAN; RESEARCH ETHICS; STEM CELL RESEARCH;

BIOETHICAL ISSUES; CONSUMER PARTICIPATION; CROSS-CULTURAL COMPARISON; DECISION MAKING; EMBRYONIC STEM CELLS; ETHICS, RESEARCH; FAR EAST; HUMANS; STEM CELL RESEARCH;

EID: 84866687366     PISSN: 03063127     EISSN: 14603659     Source Type: Journal    
DOI: 10.1177/0306312712450939     Document Type: Article

References (54)

1. Bak H-J.Perceptions and evaluations of norms of science among Korean scientific community.Science and Technology Studies. 2007;7 (2): 91-124.
2. Bourdieu P.Intellectual field and creative project.Social Science Information. 1969;8 (2): 89-119.
3. Bucchi M,Neresini FThe Handbook of Science and Technology Studies. Hackett EJAmsterdamska OLynch MWajcman J, ed. third edition. Cambridge, MA: MIT Press; 2007:449-742.
4. Paradox of Progress: Toward Democratization of Science and Technology. Seoul: Dangdae; 1999:.
5. Collins HM,Evans R.The third wave of science studies: Studies of expertise and experience.Social Studies of Science. 2002;32 (2): 235-296.
6. Cyranoski D.Japan's embryo experts beg for faster ethical reviews.Nature. 2005;438 (7066): 263.
7. Daley GQ,Ahrlund Richter L,Auerbach JM,Benvenisty N,Charo RA,Chen G, et al.The ISSCR guidelines for human embryonic stem cell research.Science. 2007;315:603-604.
8. De Vries G.What is political in sub-politics? How Aristotle might help STS.Social Studies of Science. 2007;37 (5): 781-809.
9. Department of Health (2007) Policy Instructions on the Ethics of Human Embryo and Embryonic Stem Cell Research (Chinese source). Available in English at www.tsscr.org.tw/files/Policy%20Instructions%20on%20the%20Ethics%20of%20Human%20Embryo%20and%20Embryonic%20Stem%20Cell%20Research.pdf (accessed 10 April 2012); available in Chinese at: www.tsscr.org.tw/files/Guideline%20for%20Human%20Embryo%20and%20Embryonic%20Stem%20Cell%20Reserach_TW.pdf (accessed 10 April 2012).
10. Doering O.Chinese researchers promote biomedical regulations: What are the motives of the biopolitical dawn in China and where are they heading?.Kennedy Institute of Ethics Journal. 2003;14 (1): 39-46.
11. Evans R,Plows A.Listening without prejudice? Re-discovering the value of the disinterested citizen.Social Studies of Science. 2007;37 (6): 827-853.
12. Fleming C.Establishing NGOs in China.China Briefing. 2009 2009;:.
13. Greenhalgh SGoverning China's Population: From Leninist to Neoliberal Biopolitics. Stanford: Stanford University Press; 2007:.
14. Hongshe Bimonthly (n.d.) (Chinese Source){box drawings light horizontal}{box drawings light horizontal}(Chinese Source) [Buddhistical reflection on the stem cell researches: The Woo-Suk Hwang event as an example]. Hongshe Bimonthly. Available at: www.lca.org.tw/hongshi%20pic2/(Chinese Source)133.htm (accessed 10 April 2012).
15. Ida R.Ethical questions of the human embryonic stem cells research.Rinsho Shinkeigaku. 2002;42 (11): 1147-1148.
16. Irwin A.Constructing the scientific citizen: Science and democracy in the biosciences.Public Understanding of Science. 2001;10:1-18.
17. Jasanoff J.Breaking the waves in science studies: Comment on H.M. Collins and Robert Evans, 'The third wave of science studies'.Social Studies of Science. 2003;33 (3): 389-400.
18. Jasanoff SDesigns on Nature: Science and Democracy in Europe and the United States. Princeton, NJ: Princeton University Press; 2005:.
19. Jisui Sunshang Jiankang Wang (2010) (Chinese source), Jisui Sunshang Jiankang Wang, 27March2010. Available at: www.jskf123.com/bencandy.php?fid=40&id=3052 (accessed 15 April 2012).
20. Kato KGrenzüberschreitungen. Bender WHauskeller CManzei A, ed. Münster: Agenda Verlag; 2005:.
21. Kayukawa JKuroun Ningen. Tokyo: Koobunsha Shinsho; 2003:.
22. Kim HG.A study on the policy network of bioethics agenda setting in Korea.Journal of the Korean Association of Bioethics. 2004;4 (1): 1-20.
23. Kim L.Governing discourses of stem cell research in the UK and South Korea: 1997-2009. Paper presented at the 4th BIONET Conference; 2008aChangsha; 2008a.
24. Kim TH.How could a scientist become a national celebrity? Nationalism and Hwang Woo-Suk scandal.East Asian Science, Technology and Society. 2008b;2:27-45.
25. Medical and biotechnological research must accord to bioethical principles.Statement Special Ethics Committee. 2004;:.
26. Liu J.Beyond bioethics: Biological scarcity and research progress.New Genetics and Society. 2011;30 (3): 253-265.
27. Lock MNew Medical Technologies. Lock MYoung ACambrosio A, ed. Cambridge: Cambridge University Press; 2000:233-262.
28. Yixue Lunlixue. Lu QRuan LZou C, ed. Huazhong: Keji Daxue Chubanshe; 1999:.
29. MannCC (2003) The first cloning superpower. Wired Com, 11January2003 [online]. Available at: www.wired.com/wired/archive/11.01/cloning_pr.html (accessed 15 April 2012).
30. Meslin EE.The value of using top-down and bottom-up approaches for building trust and transparency in biobanking.Public Health Genomics. 2010;13:207-214.
31. Ethical Guidelines for Research on Human Embryonic Stem Cells. Beijing: MOH and MOST; 2003 2003:.
32. Morioka MCross-Cultural Issues in Bioethics: The Example of Human Cloning. Roetz H, ed. Amsterdam: Rodopi; 2006:1-16.
33. NakatsujiN (2007) Irrational Japanese regulations hinder human embryonic stem cell research. Nature Reports Stem Cells. Published online: 9August2007. Available at: www.nature.com/stemcells/2007/0708/070809/full/stemcells.2007.66.html (accessed 15 April 2012).
34. Nie JBBehind the Silence: Chinese Voices on Abortion. Lanham and Oxford: Rowman and Littlefield; 2005:.
35. Ockwell D,Whitmarsh L,Saffran O'Neil S.Reorienting climate change communication for effective mitigation.Science Communication. 2009;30 (3): 305-327.
36. Papadopoulos D.Alter-ontologies: Towards a constituent politics in technoscience.Social Studies of Science. 2010;41 (2): 177-201.
37. Park JH.A study on the historical development of research community in Korea: Focused on the government supported institutes.Science and Technology Studies. 2006;6 (1): 119-151.
38. Yiue Lunlixue. Beijing: Renmin Weisheng Chubanshe; 2003:.
39. Rose NThe Politics of Life Itself: Biomedicine, Power, and Subjectivity in the Twenty-First Century. Princeton and Oxford: Princeton University Press; 2007:.
40. Sabatier PA.Top-down and bottom-up approaches to implementation research: A critical analysis and suggested synthesis.Journal of Public Policy. 1986;6:21-48.
41. Slingby BT,Nagao N,Akabayashi A.Administrative legislation in Japan: Guidelines on scientific and ethical standards.Cambridge Quarterly of Healthcare Ethics. 2004;13:245-253.
42. Sleeboom-Faulkner MThe Chinese Academy of Social Sciences: Shaping the Reforms, Academia and China (CASS) (1977-2003). Leiden and Boston: Brill Academic Publishers; 2007:.
43. The changing nature of ideology in the life sciences in the People's Republic of China (PRC): Case studies of human cloning and human embryonic stem cell research (hESR) in medical textbooks (1996-2005).Biosocieties. 2008a;3:21-36.
44. Sleeboom-Faulkner M.Claiming the futures of human embryonic stem cell research in Japan: Minority voices and their amplifiers.Science as Culture. 2008b;17 (1): 85-97.
45. Sleeboom-Faulkner M.National risk signatures and human embryonic stem cell research in Mainland China.Health, Risk and Society. 2010a;12 (5): 491-511.
46. Sleeboom-Faulkner M.Contested embryonic culture in Japan: Public discussion, and human embryonic stem cell research in an aging welfare society.Medical Anthropology. 2010b;29 (1): 44-70.
47. Sleeboom-Faulkner M,Patra PK.Experimental stem cell therapy: Biohierarchies and bionetworking in Japan and India.Social Studies of Science. 2011;41 (5): 645-666.
48. Song SY.The rise and fall of embryonic stem cell research in Korea.Asian Biotechnology and Development Review. 2006;9 (1): 65-73.
49. Yiue Lunlixue. Sun M, ed. Beijing: Gaodeng Jiaoyu Chubanshe; 2004:.
50. Tai TH,Chiou W-TGenetic Democracy. Launis VRäkkä J, ed. Heidelberg/Dordrecht: Springer; 2008:105-120.
51. Taiwan Society for Stem Cell Research (2011) Stem cell research groups in Taiwan. Available at: www.tsscr.org.tw/en_ver/scrgtaiwan.htm (accessed 3 February 2012).
52. Wong HCThe Family, Medical Decision-making, and Biotechnology. Lee SC, ed. Dordrecht: Springer; 2007:159-165.
53. Wynne B.Seasick on the third wave? Subverting the hegemony of propositionalism: Response to Collins and Evans.Social Studies of Science. 2003;33 (3): 401-417.
54. Zhang EGovernance of Life in Chinese Moral Experience: The Quest for an Adequate Life. Zhang EKleinman ATu W, ed. London: Routledge; 2011:1-30.