Consumer empowerment and self-advocacy outcomes in a randomized study of peer-led education

Community Mental Health Journal

Volumn 48, Issue 4, 2012, Pages 420-430

  Pickett, Susan A ^a   Diehl, Sita M ^b   Steigman, Pamela J ^a   Prater, Joy D ^c   Fox, Anthony ^c   Shipley, Patricia ^a   Grey, Dennis D ^a   Cook, Judith A ^a  

^a UNIVERSITY OF ILLINOIS AT CHICAGO   (United States)

^b National Alliance on Mental Illness   (United States)

^c Tennessee Mental Health Consumers Association   (United States)

Author keywords

Consumer empowerment; Patient self advocacy; Peer led education interventions; Recovery education

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; BEHAVIOR; CLINICAL TRIAL; CONSUMER; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; DREAM; FEMALE; HUMAN; INTERVENTION STUDY; MALE; MENTAL DISEASE; METHODOLOGY; MIDDLE AGED; MOTIVATION; PATIENT ADVOCACY; PATIENT EDUCATION; PEER GROUP; PSYCHOLOGIC TEST; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL RATING SCALE; RANDOMIZED CONTROLLED TRIAL; REGRESSION ANALYSIS; SELF CONCEPT; SOCIOECONOMICS; TREATMENT OUTCOME; UNITED STATES;

ADOLESCENT; ADULT; CONSUMER PARTICIPATION; DREAMS; FEMALE; GOALS; HUMANS; INTERVENTION STUDIES; INTERVIEW, PSYCHOLOGICAL; MALE; MENTAL DISORDERS; MIDDLE AGED; OUTCOME AND PROCESS ASSESSMENT (HEALTH CARE); PATIENT ADVOCACY; PATIENT EDUCATION AS TOPIC; PEER GROUP; POWER (PSYCHOLOGY); PSYCHIATRIC STATUS RATING SCALES; REGRESSION ANALYSIS; SELF CONCEPT; SOCIOECONOMIC FACTORS; TENNESSEE; YOUNG ADULT;

EID: 84866526673     PISSN: 00103853     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10597-012-9507-0     Document Type: Article

References (42)

1. Adams, J. R., Drake, R., & Wolford, G. L. (2007). Shared decisionmaking preferences of people with severe mental illness. Psychiatric Services, 9, 1219-1221.
2. Alegria, M., Polo, A., Gao, S., Santana, L., Rothstein, D., Jimenez, A., et al. (2008). Evaluation of a patient activation and empowerment intervention in mental health care. Medical Care, 46(3), 247-256.
3. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (revised (4th ed.). Washington, DC: American Psychiatric Association.
4. Barbic, S., Krupa, T., & Armstrong, I. (2009). A randomized controlled trial of the effectiveness of a modified recovery workbook program: Preliminary findings. Psychiatric Services, 60(4), 491-497.
5. Bellg, A. J., Borrelli, B., Resnick, B., Hecht, J., Miniucci, D. S., Ory, M., et al. (2004). Enhancing treatment fidelity in health behavior change studies: Best practices and recommendations from the NIH Behavior Change Consortium. Health Psychology, 23(5), 443-451.
6. Brashers, D. E. (1995, May). Communication and the management of uncertainty: The case of AIDS and HIV-infected patients. Paper presented at the annual meeting of the International Communication Association, Albuquerque, NM.
7. Brashers, D. E., Haas, S. M., & Neidig, J. L. (1999). The patient selfadvocacy scale: Measuring patient involvement in health care decision-making interactions. Health Communications, 11(2), 97-121.
8. Brashers, D. E., Haas, S. M., Neidig, J. L., & Rintamaki, L. S. (2002). Social activism, self-advocacy, and coping with HIV illness. Journal of Social and Personal Relationships, 19(1), 113-133.
9. Byerly, M. J., Nakonezny, P. A., & Lescouflair, E. (2007). Antipsychotic medication adherence in schizophrenia. Psychiatric Clinics of North America, 30, 437-452.
10. Campbell, J. (2005). The historical and philosophical development of peer-run support programs. In S. Clay, B. Schell, P. W. Corrigan, & R. O. Ralph (Eds.), On our own, together: Peer programs for people with mental illness (pp. 17-64). Nashville, TN: Vanderbilt University Press.
11. Cook, J. A., Jonikas, J. A., & Razzano, L. A. (1995). A randomized evaluation of consumer versus non-consumer training of state mental health service providers. Community Mental Health Journal, 31(3), 229-238.
12. Cook, J. A., Steigman, P., Pickett, S., Diehl, S., Fox, A., Shipley, P., MacFarlane, R., Grey, D. D., & Burke-Miller, J. K. (2012). Randomized controlled trial of peer-led recovery education using Building Recovery of Individual Dreams and Goals through education and support (BRIDGES). Schizoprhenia Research, 136(1), 36-42.
13. Cooper-Patrick, L., Gallo, J., Gonzales, J., et al. (1999). Race, gender, and partnership in the patient-physician relationship. JAMA, 282, 583-589.
14. Corrigan, P. W., Faber, D., Rashid, F., & Leary, M. (1999). The construct validity of empowerment among consumers of mental health services. Schizophrenia Research, 38, 77-84.
15. Crane-Ross, D., Roth, D., & Lauber, B. (2000). Consumers' and case managers' perceptions of mental health and community support service needs. Community Mental Health Journal, 36(2), 161-178.
16. Diehl, S. M., & Baxter, E. A. (Eds.). (2002). Back from where I've been. Nashville, TN: Tennessee Department of Mental Health and Developmental Disabilities.
17. Epstein, J., Barker, P., Vorburger, M., & Murtha, C. (2002). Serious mental illness and its co-occurrence with substance use disorders. DHHS Publication No. SMA 04-3905, Analytic Series A-24. Rockville, MD: Substance Abuse and Mental Health Services Administration, Office of Applied Studies.
18. Fischer, E. P., Shumway, M., & Owen, R. R. (2002). Priorities of consumers, providers and family members in the treatment of schizophrenia. Psychiatric Services, 53, 724-729.
19. Gibbons, R. D., Hedeker, D., Elkin, I., Waternaux, C., Kraemer, H. C., Greenhouse, J. B., et al. (1993). Some conceptual and statistical issues in analysis of longitudinal psychiatric data: Application of NIMH treatment of depression collaborative research program dataset. Archives of General Psychiatry, 50, 739-750.
20. Gluud, L. L. (2006). Bias in clinical intervention research. American Journal of Epidemiology, 163(6), 493-501.
21. Guttman, N. (1993). Patient-practitioner information exchange as an asymmetrical social encounter: Do patients actually know what their practitioners think they know? In J. R. Schement & B. D. Ruben (Eds.), Between communication and information: Information and behavior (Vol. 4, pp. 293-318). New Brunswick, NJ: Transaction.
22. Hamann, J., Langer, B., Winkler, V., Busch, R., Cohen, R., Leucht, S., et al. (2006). Shared decision making for in-patients with schizophrenia. Acta Psychiatrica Scandinavica, 114(4), 265-273.
23. Hermansen-Kobulnicky, C. J. (2008). Measurement of self-advocacy in cancer patients and survivors. Supportive Care in Cancer, 16, 613-618.
24. Jonikas, J. A., Grey, D. D., Copeland, M. E., Razzano, L. A., Hamilton, M. A., Bailey Floyd, C. et al. (2011). Improving propensity for patient self-advocacy through wellness recovery action planning: Results of a randomized controlled trial. Community Mental Health Journal. Published on line 14 Dec 2011.
25. Loh, A., Simona, D., Wills, C. E., Kristona, L., Niebling, W., & Harter, M. (2007). The effects of a shared decision-making intervention in primary care of depression: A cluster-randomized controlled trial. Patient Education and Counseling, 67(3), 324-332.
26. New Freedom Commission. (2003). Achieving the promise: Transforming mental health care in America. Final report (Pub No. SMA-03-3832). Bethesda, MD: US Department of Health and Human Services.
27. O'Neal, E. L., Adams, J., McHugo, G., Van Citters, A., Drake, R., & Bartels, S. (2008). Preferences of older and younger adults with serious mental illness for involvement in decision-making in medical and psychiatric settings. American Journal of Geriatric Psychiatry, 16, 826-833.
28. Onken, S. J. (2004). Contextualizing self-determination within a mental health recovery-oriented service and support system. In J. A. Jonikas & J. A. Cook (Eds.), The UIC NRTC's national selfdetermination and psychiatric disability invitational conference: Conference papers. Chicago, IL: UIC National Research and Training Center on Psychiatric Disability.
29. Pickett, S. A., Diehl, S., Steigman, P. J., Prater, J., Fox, A., & Cook, J. A. (2010). Early outcomes and lessons learned from a study of the Building Recovery of Individual Dreams and Goals through education and support (BRIDGES) program in Tennessee. Psychiatric Rehabilitation Journal, 34(2), 96-103.
30. Pyne, J. M., McSweeney, J., Kane, H. S., Harvey, S., Bragg, L., & Fisher, E. (2006). Agreement between patients with schizophrenia and providers on factors of antipsychotic medication adherence. Psychiatric Services, 57, 1170-1178.
31. Ralph, R. O. (2000). Recovery. Psychiatric Rehabilitation Skills, 4, 480-517.
32. Rogers, E. S., Chamberlin, J., Ellison, M. L., & Crean, T. (1997). A consumer-constructed scale to measure empowerment among users of mental health services. Psychiatric Services, 48(8), 1042-1047.
33. Rogers, E. S., Teague, G. B., Lichenstein, C., Campbell, J., Lyass, A., Chen, R., et al. (2007). Effects of participation in consumeroperated service programs on both personal and organizationally mediated empowerment: Results of multisite study. Journal of Rehabilitation Research and Development, 44, 785-800.
34. Roter, D. L., & Frankel, R. (1992). Quantitative and qualitative approaches to the evaluation of the medical dialogue. Social Science and Medicine, 34, 1097-1103.
35. Roth, D., & Crane-Ross, D. (2002). Impact of services, met needs, and service empowerment on consumer outcomes. Mental Health Services Research, 4(1), 43-56.
36. Roth, D., Crane-Ross, D., Hannon, M., Cusick, G., & Doklovic, S. (1998). Longitudinal study of mental health services and consumer outcomes in a changing system. In D. Roth (Ed.), New research in mental health (Vol. 13, pp. 104-116). Columbus, OH: Ohio Department of Mental Health.
37. Salzer, M., & Shear, S. L. (2002). Identifying consumer-provider benefits in evaluations of consumer-delivered services. Psychiatric Rehabilitation Journal, 25, 281-288.
38. Schutt, R. K., & Rogers, E. S. (2009). Empowerment and peer support: Structure and process of self-help in a consumer-run center for individuals with mental illness. Journal of Community Psychology, 37(6), 697-710.
39. Solomon, P. (2004). Peer support/peer provided services underlying processes, benefits, and critical elements. Psychiatric Rehabilitation Journal, 27, 392-401.
40. Volk, R. J., Jibaja-Weiss, M. L., Hawley, S. T., Kneuper, Z., Spann, S. J., Miles, B. J., et al. (2008). Entertainment education for prostate cancer screening: A randomized trail among primary care patients with low health literacy. Patient Education and Counseling, 73, 482-489.
41. Wowra, S. A., & McCarter, R. (1999). Validation of the Empowerment Scale with an outpatient mental health population. Psychiatric Services, 50, 959-961.
42. Zimmerman, M. A. (1990). Taking aim on empowerment research: On the distinction between individual and psychological conception. American Journal of Community Psychology, 18(1), 169-177.